Civic Intelligence

The Marfan Foundation Inc.

990 • Fiscal year 2013 • EIN 52-1265361

Jul 01, 2012 to Jun 30, 2013 • Filed on Nov 11, 2013

Organization ProfileWWW.MARFAN.ORG

View Organization Page

22 Manhasset Avenue11050-2023
Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

Flat

$12,493,339

Flat from 2013

Net Assets

Flat

$11,937,177

Flat from 2013

Liabilities

Flat

$556,162

Flat from 2013

Revenue And Expenses

Revenue

-

No earlier filing loaded for comparison.

Expenses

Flat

$3,841,998

Flat from 2013

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2011: $9,856,282Liabilities 2011: $452,405Net Assets 2011: $9,403,8772011Assets 2012: $13,407,551Liabilities 2012: $423,875Net Assets 2012: $12,983,6762012Assets 2013: $12,493,339Liabilities 2013: $556,162Net Assets 2013: $11,937,1772013Assets 2013: $12,493,339Liabilities 2013: $556,162Net Assets 2013: $11,937,1772013Assets 2014: $11,524,820Liabilities 2014: $526,504Net Assets 2014: $10,998,3162014Assets 2015: $10,608,212Liabilities 2015: $488,097Net Assets 2015: $10,120,1152015Assets 2016: $9,314,476Liabilities 2016: $313,986Net Assets 2016: $9,000,4902016Assets 2017: $13,466,909Liabilities 2017: $415,414Net Assets 2017: $13,051,4952017Assets 2018: $12,637,785Liabilities 2018: $420,079Net Assets 2018: $12,217,7062018Assets 2019: $12,076,553Liabilities 2019: $484,444Net Assets 2019: $11,592,1092019Assets 2020: $11,146,771Liabilities 2020: $2,058,328Net Assets 2020: $9,088,4432020Assets 2021: $12,467,539Liabilities 2021: $1,676,488Net Assets 2021: $10,791,0512021Assets 2022: $16,600,923Liabilities 2022: $1,508,775Net Assets 2022: $15,092,1482022Assets 2023: $18,561,612Liabilities 2023: $1,718,116Net Assets 2023: $16,843,4962023Assets 2024: $18,118,070Liabilities 2024: $1,860,516Net Assets 2024: $16,257,5542024Assets 2025: $19,547,558Liabilities 2025: $2,672,468Net Assets 2025: $16,875,0902025

Highlighted filing

2013

Assets$12,493,339
Liabilities$556,162
Net Assets$11,937,177
Open 2013 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $3,586,3552011Expenses 2012: $4,000,9392012Expenses 2013: $3,841,9982013Revenue 2013: $2,854,100Expenses 2013: $3,841,998Net Income 2013: -$987,8982013Revenue 2014: $3,048,384Expenses 2014: $4,036,732Net Income 2014: -$988,3482014Revenue 2015: $3,548,689Expenses 2015: $4,438,348Net Income 2015: -$889,6592015Revenue 2016: $3,519,660Expenses 2016: $4,644,297Net Income 2016: -$1,124,6372016Revenue 2017: $8,321,203Expenses 2017: $4,465,668Net Income 2017: $3,855,5352017Revenue 2018: $4,353,700Expenses 2018: $5,374,588Net Income 2018: -$1,020,8882018Revenue 2019: $4,704,278Expenses 2019: $5,465,717Net Income 2019: -$761,4392019Revenue 2020: $3,889,456Expenses 2020: $6,171,617Net Income 2020: -$2,282,1612020Revenue 2021: $4,898,166Expenses 2021: $4,891,164Net Income 2021: $7,0022021Revenue 2022: $9,814,628Expenses 2022: $4,705,271Net Income 2022: $5,109,3572022Revenue 2023: $8,195,380Expenses 2023: $6,758,497Net Income 2023: $1,436,8832023Revenue 2024: $5,486,020Expenses 2024: $6,646,776Net Income 2024: -$1,160,7562024Revenue 2025: $7,780,692Expenses 2025: $7,566,004Net Income 2025: $214,6882025

Highlighted filing

2013

Revenue-
Expenses$3,841,998
Net Income-
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2012 to Jun 30, 2013
Signed
Nov 11, 2013
Return Version
2012v2.1
Gross Receipts
$7,070,054
Mission and Program Overview

Mission

The marfan foundation creates a brighter future for everyone affected by marfan syndrome and related conditions. The foundation works tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness.

Major Activities

Activity 2
Support - the marfan foundation provides a supportive community for everyone affected by marfan syndrome and related disorders. Individuals, family members, medical professionals, and other healthcare providers can access information about marfan syndrome and related disorders on its website, over the phone, or via email, and it offers special resources for children, teens, parents, teachers, nurses, and other specialized groups. Its annual family conference brings together the entire community for information and resource sharing while its active volunteer network organizes support for families who are dealing with marfan syndrome and raises money and awareness in local communities nationwide.
Activity 3
Education - the marfan foundation always has the latest and most accurate information, and it educates everyone: from patients and families to medical professionals and the general public about marfan syndrome and related disorders. The foundation provides expansive information for patients, family members, and healthcare providers through its website and helpline, accessible via phone and email, and creates public awareness campaigns about the risk of sudden death for people with marfan syndrome and the importance of early diagnosis, generating high-profile media coverage that helps people get the diagnosis and treatment they need to live with marfan syndrome.
Filing and Contact Details

Filer

EIN
52-1265361
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IRS990/NumberFormsTransmittedWith1096023
IRS990/NumberIndependentVotingMembers014
IRS990/NumberIndividualsGT100K02
IRS990/NumberOfContractorsGT100K01
IRS990/NumberOfEmployees021
IRS990/NumberW2GIncluded00
IRS990/Occupancy/Fundraising04694
IRS990/Occupancy/ManagementAndGeneral017902
IRS990/Occupancy/ProgramServices021844
IRS990/Occupancy/Total044440
IRS990/OfficeExpenses/Fundraising041156
IRS990/OfficeExpenses/ManagementAndGeneral018452
IRS990/OfficeExpenses/ProgramServices086489
IRS990/OfficeExpenses/Total0146097
IRS990/OfficerEntityWithBsnssRltnshp00
IRS990/OfficerMailingAddress00
IRS990/Organization501c30X
IRS990/OtherAssetsTotal/BOY0905978
IRS990/OtherAssetsTotal/EOY0946269
IRS990/OtherEmployeeBenefits/Fundraising026666
IRS990/OtherEmployeeBenefits/ManagementAndGeneral013233
IRS990/OtherEmployeeBenefits/ProgramServices040231
IRS990/OtherEmployeeBenefits/Total080130
IRS990/OtherExpensePriorYear01190996
IRS990/OtherExpensesCurrentYear01208513
IRS990/OtherExpenses/Description0MISCELLANEOUS
IRS990/OtherExpenses/Description1DUES AND SUBSCRIPTIONS
IRS990/OtherExpenses/Description2FEES AND PERMITS
IRS990/OtherExpenses/Description3AWARDS - NON PROGRAM
IRS990/OtherExpenses/Fundraising07618
IRS990/OtherExpenses/Fundraising11100
IRS990/OtherExpenses/ManagementAndGeneral0657
IRS990/OtherExpenses/ManagementAndGeneral1483
IRS990/OtherExpenses/ProgramServices017115
IRS990/OtherExpenses/ProgramServices14708
IRS990/OtherExpenses/ProgramServices24592
IRS990/OtherExpenses/ProgramServices31530
IRS990/OtherExpenses/Total025390
IRS990/OtherExpenses/Total15191
IRS990/OtherExpenses/Total24592
IRS990/OtherExpenses/Total32630
IRS990/OtherLiabilities/BOY098784
IRS990/OtherLiabilities/EOY0120667
IRS990/OtherRevenueCurrentYear02297
IRS990/OtherRevenuePriorYear03716
IRS990/OtherSalariesAndWages/Fundraising0207573
IRS990/OtherSalariesAndWages/ManagementAndGeneral0162735
IRS990/OtherSalariesAndWages/ProgramServices0516262
IRS990/OtherSalariesAndWages/Total0886570
IRS990/OwnWebsite0X
IRS990/PartialLiquidation00
IRS990/PayrollTaxes/Fundraising021336
IRS990/PayrollTaxes/ManagementAndGeneral015241
IRS990/PayrollTaxes/ProgramServices060825
IRS990/PayrollTaxes/Total097402
IRS990/PledgesAndGrantsReceivable/BOY04057769
IRS990/PledgesAndGrantsReceivable/EOY04104459
IRS990/PoliciesReferenceChapters01
IRS990/PoliticalActivities00
IRS990/PremiumsPaid00
IRS990/PrepaidExpensesDeferredCharges/BOY0103128
IRS990/PrepaidExpensesDeferredCharges/EOY0130067
IRS990/PriorExcessBenefitTransaction00
IRS990/ProfessionalFundraising01
IRS990/ProgramServiceRevenue/BusinessCode0541700
IRS990/ProgramServiceRevenue/BusinessCode1541700
IRS990/ProgramServiceRevenueCY0198751
IRS990/ProgramServiceRevenue/Description0NATIONAL MARFAN CONFER
IRS990/ProgramServiceRevenue/Description1PROGRAM REVENUE
IRS990/ProgramServiceRevenuePriorYear0235475
IRS990/ProgramServiceRevenue/RelatedOrExemptFunctionIncome0192675
IRS990/ProgramServiceRevenue/RelatedOrExemptFunctionIncome16076
IRS990/ProgramServiceRevenue/TotalRevenueColumn0192675
IRS990/ProgramServiceRevenue/TotalRevenueColumn16076
IRS990/ProhibitedTaxShelterTrans00
IRS990/QuidProQuoContributions01
IRS990/QuidProQuoDisclosure01
IRS990/ReconcilationOtherChanges040291

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Filings

Displayed year

2013 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$12,493,339
Liabilities
$556,162
Net assets
$11,937,177
Revenue
-
Expenses
$3,841,998
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$19.5$2.67$16.9$7.78$7.57$0.21
2024Detailed filing. Detailed filing data is available for this year.$18.1$1.86$16.3$5.49$6.65$1.16
2023Detailed filing. Detailed filing data is available for this year.$18.6$1.72$16.8$8.20$6.76$1.44
2022Detailed filing. Detailed filing data is available for this year.$16.6$1.51$15.1$9.81$4.71$5.11
2021Detailed filing. Detailed filing data is available for this year.$12.5$1.68$10.8$4.90$4.89$0.01
2020Detailed filing. Detailed filing data is available for this year.$11.1$2.06$9.09$3.89$6.17$2.28
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.1$0.48$11.6$4.70$5.47$0.76
2018Detailed filing. Detailed filing data is available for this year.$12.6$0.42$12.2$4.35$5.37$1.02
2017Detailed filing. Detailed filing data is available for this year.$13.5$0.42$13.1$8.32$4.47$3.86
2016Detailed filing. Detailed filing data is available for this year.$9.31$0.31$9.00$3.52$4.64$1.12
2015Detailed filing. Detailed filing data is available for this year.$10.6$0.49$10.1$3.55$4.44$0.89
2014Detailed filing. Detailed filing data is available for this year.$11.5$0.53$11.0$3.05$4.04$0.99
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$12.5$0.56$11.9$3.84
2013Summary only. Only limited summary data is available for this year.$12.5$0.56$11.9$2.85$3.84$0.99
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$13.4$0.42$13.0$4.00
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.86$0.45$9.40$3.59