Civic Intelligence

The Marfan Foundation Inc

EIN 52-1265361 • 501(c)3 • Port Washington, NY

View Organization Page

Profile

The marfan foundation creates a brighter future for everyone affected by marfan syndrome and related disorders. The foundation works tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness.

22 Manhasset AvenuePort Washington, NY 11050-2023

www.marfan.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

45th percentile

0.14x

Higher debt load relative to assets than 45% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Liabilities / Revenue

61st percentile

0.34x

Higher debt load relative to revenue than 61% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Net Margin

46th percentile

2.8%

Higher net margin than 46% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Top Officer Pay

91st percentile

$502,741

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 6.5% of source-year revenue.

501(c)3 • $10M-$25M nonprofits • Source year 2025

Asset Growth

61st percentile

7.9%

Faster asset growth than 61% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2024 to 2025

Revenue Growth

83rd percentile

42%

Faster revenue growth than 83% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets45th percentile

Assets

Up

$19,547,558

Up $1,429,488 (+7.9%) from 2024

Liabilities

Up

$2,672,468

Up $811,952 (+44%) from 2024

Net Assets

Up

$16,875,090

Up $617,536 (+3.8%) from 2024

Operations
Liabilities / Revenue61st percentileNet Margin46th percentile

Revenue

Up

$7,780,692

Up $2,294,672 (+42%) from 2024

Expenses

Up

$7,566,004

Up $919,228 (+14%) from 2024

Net Income

Up

$214,688

Up $1,375,444 (+118%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth61st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$20M$15M$10M$5.0M$0Assets 2011: $9,856,282Liabilities 2011: $452,405Net Assets 2011: $9,403,8772011Assets 2012: $13,407,551Liabilities 2012: $423,875Net Assets 2012: $12,983,6762012Assets 2013: $12,493,339Liabilities 2013: $556,162Net Assets 2013: $11,937,1772013Assets 2014: $11,524,820Liabilities 2014: $526,504Net Assets 2014: $10,998,3162014Assets 2015: $10,608,212Liabilities 2015: $488,097Net Assets 2015: $10,120,1152015Assets 2016: $9,314,476Liabilities 2016: $313,986Net Assets 2016: $9,000,4902016Assets 2017: $13,466,909Liabilities 2017: $415,414Net Assets 2017: $13,051,4952017Assets 2018: $12,637,785Liabilities 2018: $420,079Net Assets 2018: $12,217,7062018Assets 2019: $12,076,553Liabilities 2019: $484,444Net Assets 2019: $11,592,1092019Assets 2020: $11,146,771Liabilities 2020: $2,058,328Net Assets 2020: $9,088,4432020Assets 2021: $12,467,539Liabilities 2021: $1,676,488Net Assets 2021: $10,791,0512021Assets 2022: $16,600,923Liabilities 2022: $1,508,775Net Assets 2022: $15,092,1482022Assets 2023: $18,561,612Liabilities 2023: $1,718,116Net Assets 2023: $16,843,4962023Assets 2024: $18,118,070Liabilities 2024: $1,860,516Net Assets 2024: $16,257,5542024Assets 2025: $19,547,558Liabilities 2025: $2,672,468Net Assets 2025: $16,875,0902025

Highlighted filing

2025

Assets$19,547,558
Liabilities$2,672,468
Net Assets$16,875,090
Open 2025 Filing

Operations Trend

Revenue Growth83rd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $3,586,3552011Expenses 2012: $4,000,9392012Revenue 2013: $2,854,100Expenses 2013: $3,841,998Net Income 2013: -$987,8982013Revenue 2014: $3,048,384Expenses 2014: $4,036,732Net Income 2014: -$988,3482014Revenue 2015: $3,548,689Expenses 2015: $4,438,348Net Income 2015: -$889,6592015Revenue 2016: $3,519,660Expenses 2016: $4,644,297Net Income 2016: -$1,124,6372016Revenue 2017: $8,321,203Expenses 2017: $4,465,668Net Income 2017: $3,855,5352017Revenue 2018: $4,353,700Expenses 2018: $5,374,588Net Income 2018: -$1,020,8882018Revenue 2019: $4,704,278Expenses 2019: $5,465,717Net Income 2019: -$761,4392019Revenue 2020: $3,889,456Expenses 2020: $6,171,617Net Income 2020: -$2,282,1612020Revenue 2021: $4,898,166Expenses 2021: $4,891,164Net Income 2021: $7,0022021Revenue 2022: $9,814,628Expenses 2022: $4,705,271Net Income 2022: $5,109,3572022Revenue 2023: $8,195,380Expenses 2023: $6,758,497Net Income 2023: $1,436,8832023Revenue 2024: $5,486,020Expenses 2024: $6,646,776Net Income 2024: -$1,160,7562024Revenue 2025: $7,780,692Expenses 2025: $7,566,004Net Income 2025: $214,6882025

Highlighted filing

2025

Revenue$7,780,692
Expenses$7,566,004
Net Income$214,688
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$19,547,558
Liabilities
$2,672,468
Net assets
$16,875,090
Revenue
$7,780,692
Expenses
$7,566,004
Net income
$214,688
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$19.5$2.67$16.9$7.78$7.57$0.21
2024Detailed filing. Detailed filing data is available for this year.$18.1$1.86$16.3$5.49$6.65$1.16
2023Detailed filing. Detailed filing data is available for this year.$18.6$1.72$16.8$8.20$6.76$1.44
2022Detailed filing. Detailed filing data is available for this year.$16.6$1.51$15.1$9.81$4.71$5.11
2021Detailed filing. Detailed filing data is available for this year.$12.5$1.68$10.8$4.90$4.89$0.01
2020Detailed filing. Detailed filing data is available for this year.$11.1$2.06$9.09$3.89$6.17$2.28
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.1$0.48$11.6$4.70$5.47$0.76
2018Detailed filing. Detailed filing data is available for this year.$12.6$0.42$12.2$4.35$5.37$1.02
2017Detailed filing. Detailed filing data is available for this year.$13.5$0.42$13.1$8.32$4.47$3.86
2016Detailed filing. Detailed filing data is available for this year.$9.31$0.31$9.00$3.52$4.64$1.12
2015Detailed filing. Detailed filing data is available for this year.$10.6$0.49$10.1$3.55$4.44$0.89
2014Detailed filing. Detailed filing data is available for this year.$11.5$0.53$11.0$3.05$4.04$0.99
2013Summary only. Only limited summary data is available for this year.$12.5$0.56$11.9$2.85$3.84$0.99
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$13.4$0.42$13.0$4.00
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.86$0.45$9.40$3.59
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Oct 27, 2025
Return Version
2024v5.2
Gross Receipts
$12,512,714
Mission and Program Overview

Mission

See schedule o.the marfan foundation saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including marfan, loeys-dietz, and vascular ehlers-danlos (veds) syndromes. *we pursue the most innovative research and make sure that it receives proper funding. *we create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment. *we provide relentless support to families, caregivers, and healthcare providers.

See schedule o.the marfan foundation drives research, education and support and builds community to improve outcomes, save lives and empower all people to thrive who are living with marfan, loeys-dietz, vascular ehlers-danlos syndromes, and related genetic aortic and vascular conditions. *we pursue the most innovative research and make sure that it receives proper funding. *we foster an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment. *we provide dedicated support to families, caregivers, and healthcare providers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$11,853,616$12,440,501▲ $586,885
Savings and Temporary Cash Investments$2,029,585$2,760,327▲ $730,742
Pledges and Grants Receivable$2,096,801$1,799,211▼ $297,590
Land, Buildings, and Equipment, Net$556,480$543,808▼ $12,672
Prepaid Expenses and Deferred Charges$204,159$497,707▲ $293,548
Investments Other Securities$260,077$303,144▲ $43,067
Accounts Receivable$16,549$33,842▲ $17,293
Total Assets$18,118,070$19,547,558▲ $1,429,488
Other Assets Total$1,100,803$1,169,018▲ $68,215
Liabilities
Grants Payable$970,000$1,460,000▲ $490,000
Accounts Payable and Accrued Expenses$544,203$760,812▲ $216,609
Other Liabilities$260,077$303,144▲ $43,067
Deferred Revenue$86,236$148,512▲ $62,276
Total Liabilities$1,860,516$2,672,468▲ $811,952
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$8,150,927$9,945,445▲ $1,794,518
Net Assets With Donor Restrictions$8,106,627$6,929,645▼ $1,176,982
Total Net Assets Fund Balance$16,257,554$16,875,090▲ $617,536
Total Liabilities and Net Assets / Fund Balance$18,118,070$19,547,558▲ $1,429,488

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$401,084$516,480$917,564
Equipment$34,797$516,628$551,425
Land$107,927-$107,927
Other Assets Org$1,169,018--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$1,704,206-▲ $185,325$520,845$1,368,686
2023$1,629,161-▲ $237,314$162,269$1,704,206
2022$1,585,912-▲ $157,111$113,862$1,629,161
2021$1,548,015-▲ $37,897-$1,585,912
2020$1,128,897$400,000▲ $220,263$201,145$1,548,015
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Michael L WeamerPres/CEOFT$474,635$28,106$502,741
Helaine BaruchChief Development OfficerFT$250,145$18,163$268,308
Josephine GrimaChief Science OfficerFT$210,325$18,163$228,488
Eileen NovinsChief Program OfficerFT$194,453$18,163$212,616
Inderjeet Kaur CPAChief Financial OfficerFT$168,021$18,163$186,184
Judith GibaldiChief Operations OfficerFT$125,230$28,106$153,336
Kimberly K HuddlestonVP. of DevelopmentFT$138,012$326$138,338
Lauren E MayDirector of ResearchFT$131,724$326$132,050

Board Members and Trustees

NameTitle
Bert MedinaChair
Cory a EavesImmediate Past Chair
Alan Braverman MdDirector
Andrew ToyDirector
Anthony Yasick MdDirector
Brandy Banks HotchkissDirector
Bryan MaherDirector
David WarrenDirector
Dawn ReinerDirector
Duke Cameron MdDirector
Gary KauffmanDirector
Gil BasheDirector
James PrutowDirector
Jeffrey C LesageDirector
Jerry L LermanDirector
Jess MilburnDirector
Joaquin Ramos JrDirector
Jon R TullisDirector
Juan Bowen MdDirector
Ray ChevallierDirector
Scott D Avitabile EsqDirector
Sinclair LiDirector
Patricia Mccabe EstradaSecretary
Caryn E Kauffman CPATreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
42nd Street Lessee LLC Dba CiprianiEvent Package For Venue, And Catering110 EAST 42ND STREET, New York, NY 10017$125,000
Revenue and Support

Revenue Composition

Contributions and Grants
$6,904,067
Program Service Revenue
$34,390
Investment Income
$842,235
Other Revenue
$0
All Other Contributions
$3,592,943
Change in Net Assets
$214,688

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded11$41,013Fair Market Value (FMV) - Nyse
Total Noncash Contributions11$41,013-

Audited Revenue Reconciliation

Revenue per Audited Statements
$7,766,154
Revenue Not Reported on Financial Statements
$14,538
Revenue Not Reported on Form 990
$513,992
Total Revenue per Audited Statements
$8,280,146
Total Revenue per Form 990
$7,780,692
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$4,262,612
Other Expenses$1,773,674
Grants and Similar Amounts Paid$1,529,718
Total Fundraising Expense$825,711
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$2,255,780$136,012$367,576$2,759,368
Grants to Domestic Orgs$1,051,200--$1,051,200
Current Officers, Directors, Trustees, and Key Employees$711,239$153,546$26,449$891,234
Foreign Grants$470,868--$470,868
Travel$251,674$2,541$160,668$414,883
Other Employee Benefits$299,136$37,981$39,072$376,189
Office Expenses$181,453$25,603$77,142$284,198
Conferences and Meetings$248,470-$852$249,322
Payroll Taxes$190,927$18,387$26,507$235,821
Information Technology$168,248$7,552$34,509$210,309
Fees for Services Other$198,244$1,717$126$200,087
Advertising$131,763$222$24,136$156,121
Occupancy$34,364$8,496$8,456$51,316
Fees for Services Accounting-$41,354-$41,354
Depreciation Depletion$22,314$7,438$7,438$37,190
Fees for Service Investment Mgmnt Fees$14,290$124$124$14,538
Insurance$5,832$1,944$1,944$9,720
Grants to Domestic Individuals$7,650--$7,650
Other Expenses$5,718$2,215$5,800$5,718
Total Functional Expenses$6,284,560$455,733$825,711$7,566,004

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$7,662,610
Total Expenses per Form 990$7,566,004
Expenses per Audited Statements$7,432,327
Expenses Not Reported on Form 990$230,283
Expenses Not Reported on Financial Statements$133,677
Other Expense Adjustments$119,139
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Stanford University School of MedicineStanford, CA501c3Research$370,000
Johns Hopkins University School of MedicineBaltimore, MD501c3Research$365,000
Icahn School of Medicine at Mount SinaiNew York, NY501c3Research$100,000
The Regents of the University of California - Los AngelesLos Angeles, CA501c3Research$100,000
Yale UniversityNew Haven, CT501c3Research$100,000
Lyon Family FoundationChicago, IL501c3Research$10,000

International Summary

Offices
0
Employees
0
Spending
$470,868

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumGrant to RecipientResearch00$470,868
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$1,178,087
Fundraising Gross Income$1,178,087
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Nyc Gala$1,329,613$408,967$83,460$325,507
Heartworks-houston$628,276$132,243$71,566$60,677
Total Events$4,489,211$1,178,087$1,178,087$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Other Payables$303,144
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Caryn kauffman, cpa treasurer, has family relationship with gary kauffman, director.”

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the ceo, cfo and the audit committee. Once the audit committee approves the 990, it is then presented to the board for review before filing.”

Form 990, Part VI, Section B, Line 12C

“All officers, directors and key employees are required to complete a conflict of interest form annually which includes disclosure of possible conflicts of interest. These documents are maintained at the organization's headquarters. Any potential conflicts of interest are disclosed to the board. Officers and directors are required to abstain from any vote which has a potential conflict of interest.”

Form 990, Part VI, Section B, Line 15

“The executive committee conducts an annual performance review of the president/ceo which includes direct feedback from members of the board. An executive session is conducted as part of the review and an executive session is also conducted with the board reporting the results and any change in compensation consideration. Compensation surveys are also referenced in determining salaries. In addition, the foundation conducts an annual performance review for all of its officers, and all other employees. The annual performance review includes feedback from the ceo, discusses any accomplishments during the year and includes recommendations for improvements as needed. Compensation changes are based on performance and nonprofit compensation surveys.”

Form 990, Part VI, Section C, Line 19

“The governing documents, conflict of interest policy and audited financial statements are all available upon request. In addition, the audited financial statements and the form 990 are available to the public on the organization's website, www.marfan.org.”

Filing and Contact Details

Filer

Filer Name
The Marfan Foundation Inc
EIN
52-1265361
Phone
5168838712
Address
22 MANHASSET AVENUE, PORT WASHINGTON, NY 11050-2023

Signing Officer

Name
Michael L Weamer
Title
President and CEO
Phone
5168838712
Signed
2025-10-27
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michael L Weamer
Formed
1981
Legal Domicile
Md
Voting Board Members
24
Independent Board Members
24
Employees
30
Volunteers
510

Preparer

Firm
Cbiz Advisors LLC
Address
68 SOUTH SERVICE ROAD SUITE 300, MELVILLE, NY 11747-2354
Preparer
Mary Ann Mendel
Phone
6314144000
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Research grant refunds 119,139. Change in value of charitable remainder trust 68,215. Uncollectible expense -25,000. Rounding 1.”

Form 990, Part XII, Line 2C, Change in Oversight Process

“No change in process from the prior year.”

Financial Statement Notes

PART V, LINE 4:

“Reserve fund - to provide an emergency fund equal to 50% of the program and operations budget in order to safeguard organization in the event of economic difficulties.”

PART X, LINE 2:

“The foundation recognizes and measures its unrecognized tax positions and assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances, and information available at the end of each period. The measurement of unrecognized tax positions is adjusted when new information is available, or when an event occurs that requires a change. Interest and penalties associated with unrecognized tax positions, if any, would be classified as interest expense and additional income taxes, respectively, in the statements of activities. The foundation did not identify any uncertain tax positions for the years ended june 30, 2025 and 2024. The foundation is subject to routine audits by taxing jurisdictions; however, there are currently no audits for any periods pending or in progress.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Change in value of charitable remainder trust 68,215. Rounding 1.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Uncollectible expense 25,000.”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“AWARD REFUNDS 119,139.”

Raw XML AppendixShowing 400 of 1,023 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0544203
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0760812
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IRS990/AccountsReceivableGrp/EOYAmt033842
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0SEE SCHEDULE O.THE MARFAN FOUNDATION DRIVES RESEARCH, EDUCATION AND SUPPORT AND BUILDS COMMUNITY TO IMPROVE OUTCOMES, SAVE LIVES AND EMPOWER ALL PEOPLE TO THRIVE WHO ARE LIVING WITH MARFAN, LOEYS-DIETZ, VASCULAR EHLERS-DANLOS SYNDROMES, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. *WE PURSUE THE MOST INNOVATIVE RESEARCH AND MAKE SURE THAT IT RECEIVES PROPER FUNDING. *WE FOSTER AN INFORMED PUBLIC AND EDUCATED PATIENT COMMUNITY TO INCREASE EARLY DIAGNOSIS AND ENSURE LIFE-SAVING TREATMENT. *WE PROVIDE DEDICATED SUPPORT TO FAMILIES, CAREGIVERS, AND HEALTHCARE PROVIDERS.
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IRS990/Desc0SEE SCHEDULE O.RESEARCH -EXPENSES $2,811,733, GRANTS $1,512,774, REVENUE $0THE MARFAN FOUNDATION ADVANCES RESEARCH THAT SAVES LIVES AND DRAMATICALLY ENHANCES THE QUALITY OF LIFE FOR PEOPLE LIVING WITH MARFAN SYNDROME, LOEYS-DIETZ SYNDROME, VEDS, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. OUR RESEARCH PROGRAM HAS ADVANCED SCIENCE SINCE 1981, FUNDING 176 RESEARCH GRANTS SINCE 1986. THE RESEARCH WE'VE SUPPORTED HAS HELPED REDUCE LIFE-THREATENING PROBLEMS, IDENTIFIED TREATMENTS THAT HAVE IMPROVED QUALITY OF LIFE, AND HELPED PEOPLE LIVE LONGER LIVES. THE MARFAN FOUNDATION COLLABORATES WITH THE RESEARCH COMMUNITY AND ORGANIZATIONS TO IDENTIFY NEW THERAPIES AND TREATMENTS DOMESTICALLY AND AROUND THE GLOBE. THE FOUNDATION'S TWO-YEAR AND FOUR-YEAR GRANTS MECHANISMS HELP ENSURE A PIPELINE OF DEDICATED FELLOWS, NEW INVESTIGATORS, AND FACULTY MEMBERS WHO ARE COMMITTED TO THE SCIENTIFIC DISCOVERY NECESSARY TO ADVANCE UNDERSTANDING OF RARE DISEASES. THE FOUNDATION CONVENES NATIONAL AND INTERNATIONAL RESEARCH CONFERENCES, FACILITATES COLLABORATIONS AMONG RESEARCHERS AND RESEARCH INSTITUTIONS, AND HOLDS SYMPOSIUMS IN THE US AND ABROAD TO FACILITATE THE SHARING OF RESEARCH FINDINGS THAT EXPEDITE PROGRESS. THE MARFAN FOUNDATION PARTNERS WITH GOVERNMENT AGENCIES AND OTHER HEALTHCARE ORGANIZATIONS TO ADVANCE ITS RESEARCH GOALS AND ADVOCATE FOR ADDITIONAL RESEARCH FUNDING FROM THE GOVERNMENT.
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IRS990/MissionDesc0SEE SCHEDULE O.THE MARFAN FOUNDATION DRIVES RESEARCH, EDUCATION AND SUPPORT AND BUILDS COMMUNITY TO IMPROVE OUTCOMES, SAVE LIVES AND EMPOWER ALL PEOPLE TO THRIVE WHO ARE LIVING WITH MARFAN, LOEYS-DIETZ, VASCULAR EHLERS-DANLOS SYNDROMES, AND RELATED GENETIC AORTIC AND VASCULAR CONDITIONS. *WE PURSUE THE MOST INNOVATIVE RESEARCH AND MAKE SURE THAT IT RECEIVES PROPER FUNDING. *WE FOSTER AN INFORMED PUBLIC AND EDUCATED PATIENT COMMUNITY TO INCREASE EARLY DIAGNOSIS AND ENSURE LIFE-SAVING TREATMENT. *WE PROVIDE DEDICATED SUPPORT TO FAMILIES, CAREGIVERS, AND HEALTHCARE PROVIDERS.
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