Civic Intelligence

The Marfan Foundation Inc.

990 • Fiscal year 2017 • EIN 52-1265361

Jul 01, 2016 to Jun 30, 2017 • Filed on Oct 26, 2017

Organization ProfileWWW.MARFAN.ORG

View Organization Page

22 Manhasset AvenuePort Washington, NY 11050-2023

(516) 883-8712

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

22nd percentile

0.03x

Higher debt load relative to assets than 22% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Liabilities / Revenue

17th percentile

0.05x

Higher debt load relative to revenue than 17% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Net Margin

90th percentile

46%

Higher net margin than 90% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Top Officer Pay

86th percentile

$383,627

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 4.6% of source-year revenue.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Asset Growth

93rd percentile

45%

Faster asset growth than 93% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2016 to 2017

Revenue Growth

95th percentile

136%

Faster revenue growth than 95% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets22nd percentile

Assets

Up

$13,466,909

Up $4,152,433 (+45%) from 2016

Net Assets

Up

$13,051,495

Up $4,051,005 (+45%) from 2016

Liabilities

Up

$415,414

Up $101,428 (+32%) from 2016

Revenue And Expenses
Liabilities / Revenue17th percentileNet Margin90th percentile

Revenue

Up

$8,321,203

Up $4,801,543 (+136%) from 2016

Expenses

Down

$4,465,668

Down $178,629 (-3.8%) from 2016

Net Income

Up

$3,855,535

Up $4,980,172 (+443%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth93rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2011: $9,856,282Liabilities 2011: $452,405Net Assets 2011: $9,403,8772011Assets 2012: $13,407,551Liabilities 2012: $423,875Net Assets 2012: $12,983,6762012Assets 2013: $12,493,339Liabilities 2013: $556,162Net Assets 2013: $11,937,1772013Assets 2014: $11,524,820Liabilities 2014: $526,504Net Assets 2014: $10,998,3162014Assets 2015: $10,608,212Liabilities 2015: $488,097Net Assets 2015: $10,120,1152015Assets 2016: $9,314,476Liabilities 2016: $313,986Net Assets 2016: $9,000,4902016Assets 2017: $13,466,909Liabilities 2017: $415,414Net Assets 2017: $13,051,4952017Assets 2018: $12,637,785Liabilities 2018: $420,079Net Assets 2018: $12,217,7062018Assets 2019: $12,076,553Liabilities 2019: $484,444Net Assets 2019: $11,592,1092019Assets 2020: $11,146,771Liabilities 2020: $2,058,328Net Assets 2020: $9,088,4432020Assets 2021: $12,467,539Liabilities 2021: $1,676,488Net Assets 2021: $10,791,0512021Assets 2022: $16,600,923Liabilities 2022: $1,508,775Net Assets 2022: $15,092,1482022Assets 2023: $18,561,612Liabilities 2023: $1,718,116Net Assets 2023: $16,843,4962023Assets 2024: $18,118,070Liabilities 2024: $1,860,516Net Assets 2024: $16,257,5542024Assets 2025: $19,547,558Liabilities 2025: $2,672,468Net Assets 2025: $16,875,0902025

Highlighted filing

2017

Assets$13,466,909
Liabilities$415,414
Net Assets$13,051,495
Open 2017 Filing

Operations Trend

Revenue Growth95th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2011: $3,586,3552011Expenses 2012: $4,000,9392012Revenue 2013: $2,854,100Expenses 2013: $3,841,998Net Income 2013: -$987,8982013Revenue 2014: $3,048,384Expenses 2014: $4,036,732Net Income 2014: -$988,3482014Revenue 2015: $3,548,689Expenses 2015: $4,438,348Net Income 2015: -$889,6592015Revenue 2016: $3,519,660Expenses 2016: $4,644,297Net Income 2016: -$1,124,6372016Revenue 2017: $8,321,203Expenses 2017: $4,465,668Net Income 2017: $3,855,5352017Revenue 2018: $4,353,700Expenses 2018: $5,374,588Net Income 2018: -$1,020,8882018Revenue 2019: $4,704,278Expenses 2019: $5,465,717Net Income 2019: -$761,4392019Revenue 2020: $3,889,456Expenses 2020: $6,171,617Net Income 2020: -$2,282,1612020Revenue 2021: $4,898,166Expenses 2021: $4,891,164Net Income 2021: $7,0022021Revenue 2022: $9,814,628Expenses 2022: $4,705,271Net Income 2022: $5,109,3572022Revenue 2023: $8,195,380Expenses 2023: $6,758,497Net Income 2023: $1,436,8832023Revenue 2024: $5,486,020Expenses 2024: $6,646,776Net Income 2024: -$1,160,7562024Revenue 2025: $7,780,692Expenses 2025: $7,566,004Net Income 2025: $214,6882025

Highlighted filing

2017

Revenue$8,321,203
Expenses$4,465,668
Net Income$3,855,535
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2016 to Jun 30, 2017
Signed
Oct 26, 2017
Return Version
2016v3.0
Gross Receipts
$10,235,719
Mission and Program Overview

Mission

The marfan foundation creates a brighter future for everyone affected by marfan syndrome and related conditions. The foundation works tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness.

The Marfan Foundation Creates a brighter future for everyone affected by Marfan syndrome and related disorders. We pursue the most innovative research and make sure that it receives proper funding. We inform the public and educate the patient community to increase early diagnosis and ensure life-saving treatment. We provide relentless support to families, caregivers, and healthcare providers. We will not rest until we have achieved victory in a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$6,677,308$6,983,908▲ $306,600
Pledges and Grants Receivable$219,958$4,065,160▲ $3,845,202
Land, Buildings, and Equipment, Net$691,253$660,404▼ $30,849
Savings and Temporary Cash Investments$371,111$379,828▲ $8,717
Prepaid Expenses and Deferred Charges$111,126$161,479▲ $50,353
Cash and Non-Interest-Bearing Accounts$233,318$79,215▼ $154,103
Accounts Receivable$13,570$61,872▲ $48,302
Investments Other Securities$29,758$54,706▲ $24,948
Total Assets$9,314,476$13,466,909▲ $4,152,433
Other Assets Total$967,074$1,020,337▲ $53,263
Liabilities
Accounts Payable and Accrued Expenses$147,606$247,343▲ $99,737
Deferred Revenue$136,622$113,365▼ $23,257
Other Liabilities$29,758$54,706▲ $24,948
Total Liabilities$313,986$415,414▲ $101,428
Net Assets / Fund Balance
Temporarily Rstr Net Assets$4,938,362$8,940,461▲ $4,002,099
Unrestricted Net Assets$4,062,128$4,111,034▲ $48,906
Total Net Assets Fund Balance$9,000,490$13,051,495▲ $4,051,005
Total Liabilities and Net Assets / Fund Balance$9,314,476$13,466,909▲ $4,152,433

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$516,922$293,653$810,575
Equipment$35,555$432,699$468,254
Land$107,927-$107,927
Other Assets Org$1,020,337--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2016$2,006,110-▲ $159,737-$2,165,752
2015$1,915,019-▲ $91,241-$2,006,110
2014$1,909,351-▲ $5,818-$1,915,019
2013$1,902,063-▲ $7,438-$1,909,351
2012$2,288,761$53,439▲ $5,928$222,974$1,902,063
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Michael L WeamerPresident/CEOFT$349,036$34,591$383,627
Helaine BaruchChief Development OfficerFT$205,578$19,364$224,942
Judith GibaldiCFO/COOFT$163,399$27,723$191,122
Josephine GrimaChief Science OfficerFT$128,615$5,314$133,929

Board Members and Trustees

NameTitle
Karen MurrayChair
Cory EavesVice Chair
Alan Braverman MDDirector
Alix McLean JenningsDirector
Benjamin WeismanDirector
Bert MedinaDirector
Beth UtzDirector
Emily WheelerDirector
Kathleen Mimnagh MDDirector
Mary Roman MDDirector
Marylynn Ireland PhDDirector
Maya Brown-ZimmermanDirector
Patricia McCabe EstradaDirector
Rod GrayDirector
Scott AvitabileDirector
Jerry LermanSecretary
Caryn Kauffman CPATreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$8,155,638
Program Service Revenue
$95,498
Investment Income
$70,067
Other Revenue
$0
All Other Contributions
$6,477,787
Change in Net Assets
$3,855,535

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded8$99,351Fair Market Value (FMV)
Total Noncash Contributions8$99,351-

Audited Revenue Reconciliation

Revenue per Audited Statements
$8,321,203
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$459,647
Total Revenue per Audited Statements
$8,780,850
Total Revenue per Form 990
$8,321,203
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,412,840
Other Expenses$1,036,166
Grants and Similar Amounts Paid$1,012,762
Total Fundraising Expense$548,240
Professional Fundraising Fees$3,900

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,008,965$213,573$262,946$1,485,484
Grants to Domestic Orgs$919,299--$919,299
Current Officers, Directors, Trustees, and Key Employees$482,370$104,230$19,751$606,351
Travel$164,113$7,830$62,205$234,148
Office Expenses$140,916$17,049$51,952$209,917
Other Employee Benefits$122,227$26,898$27,906$177,031
Conferences and Meetings$153,318$64$1,182$154,564
Advertising$92,060$1,767$56,650$150,477
Payroll Taxes$102,550$22,860$18,564$143,974
Information Technology$106,220$3,586$11,295$121,101
Fees for Services Other$75,489$3,583$3,583$82,655
Foreign Grants$77,005--$77,005
Occupancy$42,591$8,155$8,155$58,901
Depreciation Depletion$22,020$7,340$7,340$36,700
Fees for Services Accounting-$27,800-$27,800
Fees for Services Lobbying$21,797--$21,797
Grants to Domestic Individuals$16,458--$16,458
Insurance$2,907$969$969$4,845
Fees for Services Professional Fundraising--$3,900$3,900
Other Expenses$-116,010$2,489$3,000$-116,010
Total Functional Expenses$3,465,055$452,373$548,240$4,465,668

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$4,729,845
Expenses per Audited Statements$4,465,668
Total Expenses per Form 990$4,465,668
Expenses Not Reported on Form 990$264,177
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Johns Hopkins School of MedicineBaltimore, MD501(c)(3)Research$287,500
washington Universityst louis, MO501(c)(3)research$102,270
Trustees Of The University Of Pennsylvaniaphiladelphia, PA501(c)(3)research$76,950
Icahn School Of Medicine Of Mount Sinainew york, NY501(c)(3)research$75,000
Baylor College of MedicineHouston, TX501(c)(3)Research$51,284
Massachusetts GeneralBosTON, MD501(c)(3)research$50,000
NYU School Of Medicinenew york, NY501(c)(3)research$50,000
Weill Medical College Of Cornell Universitynew york, NY501(c)(3)research$38,450
Midwestern Universitydiwbers grove, IL501(c)(3)Research$37,500
Board of Trustees of The Leland Standford Junior Universitypalo alto, CA501(c)(3)research$25,000
Case Western Reserve Universitycleveland, OH501(c)(3)research$25,000
Cleveland Clinic Foundationcleveland, OH501(c)(3)Research$25,000
University Of Maryland BaltimorebaLTIMORE, MD501(c)(3)research$25,000
beth israel deaconess medical centerBoston, MA501(c)(3)Research$17,195
Mayo Clinic RochesterRochester, MA501(c)(3)research$15,450
The Arnold P Gold Foundationnew york, NY501(c)(3)research$10,000

International Summary

Offices
0
Employees
0
Spending
$77,005

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
europegrant to recipientresearch00$41,350
North Americagrant to recipientresearch00$33,755
South Americagrant to recipientresearch00$1,900
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$337,580
Fundraising Gross Income$337,580
Professional Fundraising Fees$3,900

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Nyc Gala$1,204,357$204,763$8,049$196,714
St. Louis Gala$273,869$57,734$4,650$53,084
Total Events$2,015,431$337,580$337,580$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Other Payables$54,706
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“The 990 was reviewed by the Board of Directors before filing.”

Form 990, Part VI, Section B, line 12C

“ALL OFFICERS, DIRECTORS AND KEY EMPLOYEES ARE REQUIRED TO COMPLETE A CONFLICT OF INTEREST FORM ANNUALLY WHICH INCLUDES DISCLOSURE OF POSSIBLE CONFLICTS OF INTEREST. THESE DOCUMENTS ARE MAINTAINED AT THE ORGANIZATION'S HEADQUARTERS. Any potential conflicts of interest are disclosed to the Board. OFFICERS AND DIRECTORS ARE REQUIRED TO ABSTAIN FROM ANY VOTE WHICH HAS A POTENTIAL CONFLICT OF INTEREST.”

Form 990, Part VI, Section B, line 15

“The Executive Committee conducts an annual performance review of the President/CEO which includes direct feedback from Members of the Board. An executive session is conducted as part of the review and an executive session is also conducted with the Board reporting the results and any change in compensation consideration. Compensation surveys are also referenced in determining salaries across the organization.”

Form 990, Part VI, Section C, line 19

“The governing documents, conflict of interest policy and audited financial statements are all available upon request. In addition the audited financial statements and the form 990 are available to the public on the organization's website, www.marfan.org.”

Filing and Contact Details

Filer

Filer Name
The Marfan Foundation Inc
EIN
52-1265361
Phone
5168838712
Address
22 MANHASSET AVENUE, PORT WASHINGTON, NY 11050-2023

Signing Officer

Name
Michael L Weamer
Title
President and CEO
Phone
5168838712
Signed
2017-10-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michael L Weamer
Formed
1981
Legal Domicile
Md
Voting Board Members
17
Independent Board Members
17
Employees
28
Volunteers
83

Preparer

Firm
Baker Tilly Virchow Krause LLP
Address
125 Baylis Road Suite 300, Melville, NY 11747
Preparer
Ellen M Labita CPA
Phone
6317527400
Supplemental Narrative

Additional Explanations

Form 990, Part XI, line 9:

“Change in fmv of charitable remainder trust 53,262.”

Financial Statement Notes

Part V, Line 4:

“Intended uses of the organization's endowment funds: reserve fund - to provide an emergency fund equal to 50% of the program and operations budget in order to safeguard organization in the event of economic difficulties.”

Part X, Line 2:

“Management has evaluated the foundation's tax positions and concluded that the foundation has not taken any uncertain tax positions that require adjustment to the financial statements to comply with the provisions of fasb accounting standards codification ("asc") no. 740.”

Part XI, Line 2D - Other Adjustments:

“Change in fmv of charitable remainder trust 53,262.”

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IRS990/ActivityOrMissionDesc0The Marfan Foundation Creates a brighter future for everyone affected by Marfan syndrome and related disorders. We pursue the most innovative research and make sure that it receives proper funding. We inform the public and educate the patient community to increase early diagnosis and ensure life-saving treatment. We provide relentless support to families, caregivers, and healthcare providers. We will not rest until we have achieved victory in a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.
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IRS990/Desc0RESEARCH - The Marfan Foundation tirelessly advances the research for treatments that save lives and dramatically enhance quality of life for people living with Marfan syndrome and related disorders. Through its research grant program, the Foundation has strengthened a growing community of expert researchers committed to victory over Marfan syndrome and related disorders. The Foundation urges the government to fund the research that will improve and save lives and facilitates the sharing of knowledge about Marfan syndrome and related disorders through conferences, symposia, and partnerships with governmental agencies and other health organizations.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt111.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt121.00
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1835.00
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
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IRS990/Form990PartVIISectionAGrp/OfficerInd5X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1734591
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1827723
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1919364
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt205314
IRS990/Form990PartVIISectionAGrp/PersonNm0Karen Murray
IRS990/Form990PartVIISectionAGrp/PersonNm1Cory Eaves
IRS990/Form990PartVIISectionAGrp/PersonNm2Caryn Kauffman CPA
IRS990/Form990PartVIISectionAGrp/PersonNm3Jerry Lerman
IRS990/Form990PartVIISectionAGrp/PersonNm4Maya Brown-Zimmerman
IRS990/Form990PartVIISectionAGrp/PersonNm5Scott Avitabile
IRS990/Form990PartVIISectionAGrp/PersonNm6Alan Braverman MD
IRS990/Form990PartVIISectionAGrp/PersonNm7Patricia McCabe Estrada
IRS990/Form990PartVIISectionAGrp/PersonNm8Rod Gray
IRS990/Form990PartVIISectionAGrp/PersonNm9Marylynn Ireland PhD
IRS990/Form990PartVIISectionAGrp/PersonNm10Alix McLean Jennings
IRS990/Form990PartVIISectionAGrp/PersonNm11Bert Medina
IRS990/Form990PartVIISectionAGrp/PersonNm12Kathleen Mimnagh MD
IRS990/Form990PartVIISectionAGrp/PersonNm13Mary Roman MD
IRS990/Form990PartVIISectionAGrp/PersonNm14Beth Utz
IRS990/Form990PartVIISectionAGrp/PersonNm15Benjamin Weisman
IRS990/Form990PartVIISectionAGrp/PersonNm16Emily Wheeler
IRS990/Form990PartVIISectionAGrp/PersonNm17Michael L Weamer
IRS990/Form990PartVIISectionAGrp/PersonNm18Judith Gibaldi
IRS990/Form990PartVIISectionAGrp/PersonNm19Helaine Baruch
IRS990/Form990PartVIISectionAGrp/PersonNm20Josephine Grima
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18163399
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19205578
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20128615
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/TitleTxt0Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt2Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt3Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director
IRS990/Form990PartVIISectionAGrp/TitleTxt11Director
IRS990/Form990PartVIISectionAGrp/TitleTxt12Director
IRS990/Form990PartVIISectionAGrp/TitleTxt13Director
IRS990/Form990PartVIISectionAGrp/TitleTxt14Director
IRS990/Form990PartVIISectionAGrp/TitleTxt15Director
IRS990/Form990PartVIISectionAGrp/TitleTxt16Director
IRS990/Form990PartVIISectionAGrp/TitleTxt17President/CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt18CFO/COO
IRS990/Form990PartVIISectionAGrp/TitleTxt19Chief Development Officer
IRS990/Form990PartVIISectionAGrp/TitleTxt20Chief Science Officer
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01981
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01677851
IRS990/FundraisingDirectExpensesAmt0337580
IRS990/FundraisingGrossIncomeAmt0337580
IRS990/GainOrLossGrp/SecuritiesAmt02345
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt017
IRS990/GrantAmt0989704
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt016458
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt016458
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0919299
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0919299
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01579281
IRS990/GrossReceiptsAmt010235719
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt017
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt011295
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt03586
IRS990/InformationTechnologyGrp/ProgramServicesAmt0106220
IRS990/InformationTechnologyGrp/TotalAmt0121101
IRS990/InsuranceGrp/FundraisingAmt0969
IRS990/InsuranceGrp/ManagementAndGeneralAmt0969
IRS990/InsuranceGrp/ProgramServicesAmt02907
IRS990/InsuranceGrp/TotalAmt04845
IRS990/InvestmentIncomeGrp/ExclusionAmt067722
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt067722
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt029758
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt054706
IRS990/InvestmentsPubTradedSecGrp/BOYAmt06677308
IRS990/InvestmentsPubTradedSecGrp/EOYAmt06983908
IRS990/IRPDocumentCnt030
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0726352
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0691253
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0660404
IRS990/LandBldgEquipCostOrOtherBssAmt01386756
IRS990/LegalDomicileStateCd0MD
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01576936
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. The Foundation works tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt09000490
IRS990/NetAssetsOrFundBalancesEOYAmt013051495
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt02345
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt02345
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0142208
IRS990/NoncashContributionsAmt099351
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt08155
IRS990/OccupancyGrp/ManagementAndGeneralAmt08155
IRS990/OccupancyGrp/ProgramServicesAmt042591
IRS990/OccupancyGrp/TotalAmt058901
IRS990/OfficeExpensesGrp/FundraisingAmt051952
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt017049
IRS990/OfficeExpensesGrp/ProgramServicesAmt0140916
IRS990/OfficeExpensesGrp/TotalAmt0209917
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0967074
IRS990/OtherAssetsTotalGrp/EOYAmt01020337
IRS990/OtherChangesInNetAssetsAmt053262
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt027906
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt026898
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0122227
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0177031
IRS990/OtherExpensesGrp/Desc0MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc1DUES, SUBSCRIP, fees &
IRS990/OtherExpensesGrp/Desc2UNCOLLECTABLE EXPENSE
IRS990/OtherExpensesGrp/Desc3grant refund
IRS990/OtherExpensesGrp/FundraisingAmt08762
IRS990/OtherExpensesGrp/FundraisingAmt180
IRS990/OtherExpensesGrp/FundraisingAmt23000
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt04180
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12489
IRS990/OtherExpensesGrp/ProgramServicesAmt012518
IRS990/OtherExpensesGrp/ProgramServicesAmt118242
IRS990/OtherExpensesGrp/ProgramServicesAmt2-116010
IRS990/OtherExpensesGrp/TotalAmt025460
IRS990/OtherExpensesGrp/TotalAmt120811
IRS990/OtherExpensesGrp/TotalAmt23000
IRS990/OtherExpensesGrp/TotalAmt3-116010
IRS990/OtherLiabilitiesGrp/BOYAmt029758
IRS990/OtherLiabilitiesGrp/EOYAmt054706
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0262946
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0213573
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01008965
IRS990/OtherSalariesAndWagesGrp/TotalAmt01485484
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt018564
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt022860
IRS990/PayrollTaxesGrp/ProgramServicesAmt0102550
IRS990/PayrollTaxesGrp/TotalAmt0143974
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0219958
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt04065160
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0111126
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0161479
IRS990/PrincipalOfficerNm0MICHAEL L WEAMER
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541700
IRS990/ProgramServiceRevenueGrp/BusinessCd1541700
IRS990/ProgramServiceRevenueGrp/Desc0MARFAN CONFERENCE

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$13,466,909
Liabilities
$415,414
Net assets
$13,051,495
Revenue
$8,321,203
Expenses
$4,465,668
Net income
$3,855,535
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$19.5$2.67$16.9$7.78$7.57$0.21
2024Detailed filing. Detailed filing data is available for this year.$18.1$1.86$16.3$5.49$6.65$1.16
2023Detailed filing. Detailed filing data is available for this year.$18.6$1.72$16.8$8.20$6.76$1.44
2022Detailed filing. Detailed filing data is available for this year.$16.6$1.51$15.1$9.81$4.71$5.11
2021Detailed filing. Detailed filing data is available for this year.$12.5$1.68$10.8$4.90$4.89$0.01
2020Detailed filing. Detailed filing data is available for this year.$11.1$2.06$9.09$3.89$6.17$2.28
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.1$0.48$11.6$4.70$5.47$0.76
2018Detailed filing. Detailed filing data is available for this year.$12.6$0.42$12.2$4.35$5.37$1.02
2017Detailed filing. Detailed filing data is available for this year.$13.5$0.42$13.1$8.32$4.47$3.86
2016Detailed filing. Detailed filing data is available for this year.$9.31$0.31$9.00$3.52$4.64$1.12
2015Detailed filing. Detailed filing data is available for this year.$10.6$0.49$10.1$3.55$4.44$0.89
2014Detailed filing. Detailed filing data is available for this year.$11.5$0.53$11.0$3.05$4.04$0.99
2013Summary only. Only limited summary data is available for this year.$12.5$0.56$11.9$2.85$3.84$0.99
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$13.4$0.42$13.0$4.00
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.86$0.45$9.40$3.59