Civic Intelligence

National Down Syndrome Congress

EIN 51-0163631 • 501(c)3 • Cincinnati, OH

Profile

The mission of the national down syndrome congress is to provide information, advocacy, and support concerning all aspects of life for individuals with down syndrome.ndsc exists with the purpose to promote the interests of people with down syndrome, to educate through awareness, to advocate and ensure their rights are recognized and protected, to empower, and to inspire and reshape the way people understand and experience down syndrome.

3825 Edwards Rd Ste 103Cincinnati, OH 45209-1262

www.ndsccenter.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

73rd percentile

0.29x

Higher debt load relative to assets than 73% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

51st percentile

0.08x

Higher debt load relative to revenue than 51% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

51st percentile

4.7%

Higher net margin than 51% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

70th percentile

13%

Faster asset growth than 70% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

21st percentile

-10%

Faster revenue growth than 21% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Up

$495,809

Up $57,015 (+13%) from 2023

Liabilities

Down

$141,741

Down $24,823 (-15%) from 2023

Net Assets

Up

$354,068

Up $81,838 (+30%) from 2023

Revenue

Down

$1,734,848

Down $196,828 (-10%) from 2023

Expenses

Down

$1,653,010

Down $281,338 (-15%) from 2023

Net Income

Up

$81,838

Up $84,510 (+3163%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.0M$500K$0Assets 2010: $524,206Liabilities 2010: $12,921Net Assets 2010: $511,2852010Assets 2011: $656,477Liabilities 2011: $27,610Net Assets 2011: $628,8672011Assets 2012: $717,457Liabilities 2012: $28,398Net Assets 2012: $689,0592012Assets 2013: $790,181Liabilities 2013: $39,868Net Assets 2013: $750,3132013Assets 2014: $940,966Liabilities 2014: $35,029Net Assets 2014: $905,9372014Assets 2015: $744,067Liabilities 2015: $37,825Net Assets 2015: $706,2422015Assets 2016: $729,764Liabilities 2016: $63,824Net Assets 2016: $665,9402016Assets 2017: $678,136Liabilities 2017: $54,213Net Assets 2017: $623,9232017Assets 2018: $844,071Liabilities 2018: $42,122Net Assets 2018: $801,9492018Assets 2019: $850,251Liabilities 2019: $60,281Net Assets 2019: $789,9702019Assets 2020: $765,872Liabilities 2020: $45,196Net Assets 2020: $720,6762020Assets 2021: $533,990Liabilities 2021: $39,979Net Assets 2021: $494,0112021Assets 2022: $420,223Liabilities 2022: $144,625Net Assets 2022: $275,5982022Assets 2023: $438,794Liabilities 2023: $166,564Net Assets 2023: $272,2302023Assets 2024: $495,809Liabilities 2024: $141,741Net Assets 2024: $354,0682024

Highlighted filing

2024

Assets$495,809
Liabilities$141,741
Net Assets$354,068

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MExpenses 2010: $1,012,2532010Expenses 2011: $852,0752011Expenses 2012: $996,5662012Revenue 2013: $1,042,037Expenses 2013: $1,003,303Net Income 2013: $38,7342013Revenue 2014: $1,304,746Expenses 2014: $1,123,373Net Income 2014: $181,3732014Revenue 2015: $956,048Expenses 2015: $1,140,090Net Income 2015: -$184,0422015Revenue 2016: $1,125,227Expenses 2016: $1,177,561Net Income 2016: -$52,3342016Revenue 2017: $1,136,910Expenses 2017: $1,209,760Net Income 2017: -$72,8502017Revenue 2018: $1,510,081Expenses 2018: $1,294,970Net Income 2018: $215,1112018Revenue 2019: $1,428,349Expenses 2019: $1,486,527Net Income 2019: -$58,1782019Revenue 2020: $876,542Expenses 2020: $961,366Net Income 2020: -$84,8242020Revenue 2021: $732,155Expenses 2021: $930,611Net Income 2021: -$198,4562021Revenue 2022: $1,401,237Expenses 2022: $1,586,655Net Income 2022: -$185,4182022Revenue 2023: $1,931,676Expenses 2023: $1,934,348Net Income 2023: -$2,6722023Revenue 2024: $1,734,848Expenses 2024: $1,653,010Net Income 2024: $81,8382024

Highlighted filing

2024

Revenue$1,734,848
Expenses$1,653,010
Net Income$81,838

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.50$0.14$0.35$1.73$1.65$0.08
2023Detailed filing. Detailed filing data is available for this year.$0.44$0.17$0.27$1.93$1.93$0.00
2022Detailed filing. Detailed filing data is available for this year.$0.42$0.14$0.28$1.40$1.59$0.19
2021Detailed filing. Detailed filing data is available for this year.$0.53$0.04$0.49$0.73$0.93$0.20
2020Detailed filing. Detailed filing data is available for this year.$0.77$0.05$0.72$0.88$0.96$0.08
2019Detailed filing. Detailed filing data is available for this year.$0.85$0.06$0.79$1.43$1.49$0.06
2018Detailed filing. Detailed filing data is available for this year.$0.84$0.04$0.80$1.51$1.29$0.22
2017Detailed filing. Detailed filing data is available for this year.$0.68$0.05$0.62$1.14$1.21$0.07
2016Detailed filing. Detailed filing data is available for this year.$0.73$0.06$0.67$1.13$1.18$0.05
2015Detailed filing. Detailed filing data is available for this year.$0.74$0.04$0.71$0.96$1.14$0.18
2014Detailed filing. Detailed filing data is available for this year.$0.94$0.04$0.91$1.30$1.12$0.18
2013Detailed filing. Detailed filing data is available for this year.$0.79$0.04$0.75$1.04$1.00$0.04
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.72$0.03$0.69$1.00
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.66$0.03$0.63$0.85
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.52$0.01$0.51$1.01
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 19, 2025
Return Version
2024v5.2
Gross Receipts
$1,823,042
Mission and Program Overview

Mission

Provide information, advocacy and support concerning all aspects of life for individuals with down syndrome and their families.

The mission of the national down syndrome congress is to provide information, advocacy, and support concerning all aspects of life for individuals with down syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$356,506$329,403▼ $27,103
Prepaid Expenses and Deferred Charges$8,017$55,758▲ $47,741
Savings and Temporary Cash Investments$1,017$42,855▲ $41,838
Accounts Receivable$1,950$42,500▲ $40,550
Land, Buildings, and Equipment, Net$256$1,736▲ $1,480
Total Assets$438,794$495,809▲ $57,015
Other Assets Total$71,048$23,557▼ $47,491
Liabilities
Accounts Payable and Accrued Expenses$124,236$73,251▼ $50,985
Other Liabilities$42,328$68,490▲ $26,162
Total Liabilities$166,564$141,741▼ $24,823
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$232,230$216,101▼ $16,129
Net Assets With Donor Restrictions$40,000$137,967▲ $97,967
Total Net Assets Fund Balance$272,230$354,068▲ $81,838
Total Liabilities and Net Assets / Fund Balance$438,794$495,809▲ $57,015

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,736$158$1,894

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$2,645,984$70,000▲ $347,186$158,703$2,904,467
2023$2,755,671-▲ $426,620$536,307$2,645,984
2022$3,420,050$20,150▼ $586,539$97,990$2,755,671
2021$3,138,540$30,000▲ $383,488$131,978$3,420,050
2020$2,911,428$25,000▲ $372,401$170,289$3,138,540
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Stephanie Smith LeePolicy/advocacy Co-directorFT$112,280-$112,280
James HudsonExecutive DirectorFT$86,973$7,787$94,760

Board Members and Trustees

NameTitle
Marilyn TolbertPast President
Sean SmithPresident
Anthony Zanfordino1st Vice President
Beau Brooks2nd Vice President
Zachary Carroll3rd Vice President
Nicole Baumer4th Vice President
Beth ForakerDirector
Bradley CarlisleDirector
Clair WallaceDirector
Craig BlackburnDirector
Hannah LacourDirector
Macarena Lizama MdDirector
Noemi SpinazziDirector
David ChaplinSecretary
Andre PinedaTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Image Audiovisuals INCAudiovisual Services2130 DAHLIA ST, Denver, CO 80222$186,981
Revenue and Support

Revenue Composition

Contributions and Grants
$620,443
Program Service Revenue
$886,041
Investment Income
$13,436
Other Revenue
$214,928
All Other Contributions
$468,468
Change in Net Assets
$81,838
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,077,037
Salaries, Compensation, and Employee Benefits$464,071
Total Fundraising Expense$208,066
Professional Fundraising Fees$60,352
Grants and Similar Amounts Paid$51,550

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$416,054$3,832$351$420,237
Fees for Services Other$355,864$18,944$15,260$390,068
Other Salaries and Wages$193,526$40,779$78,443$312,748
Current Officers, Directors, Trustees, and Key Employees$53,818$11,340$21,815$86,973
Office Expenses$59,312$11,226$6,540$77,078
Fees for Services Accounting$10,912$41,866$10,912$63,690
Fees for Services Professional Fundraising--$60,352$60,352
Travel$48,361$8,185$3,615$60,161
Occupancy$35,686$5,306-$40,992
Payroll Taxes$20,572$10,956$7,460$38,988
Grants to Domestic Individuals$36,550--$36,550
Other Employee Benefits$11,709$2,768$2,336$16,813
Grants to Domestic Orgs$15,000--$15,000
Fees for Services Legal$10,912$2,030-$12,942
Pension Plan Contributions$2,450$5,117$982$8,549
Information Technology$6,063$674-$6,737
Insurance$2,713$1,707-$4,420
Advertising$371--$371
Depreciation Depletion-$341-$341
Total Functional Expenses$1,279,873$165,071$208,066$1,653,010
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Association of University Centers on DisabilitiesSilver Spring, MD501(c)(3)Financial Assistance$5,000
Down Syndrome Diagnosis NetworkStillwater, MN501(c)(3)Financial Assistance$5,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$303,049
Fundraising Direct Expenses$88,121
Professional Fundraising Fees$60,352

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala Event$259,998$256,984-$256,984
Golf Event$51,501$46,065-$46,065
Total Events$311,499$303,049$88,121$214,928
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Sean Smith Board PresidentBridget, Smith, Daughter of Board PresidentTemporary Youth and Adult CoordinatorNo$19,245
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Foundation$68,490
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

Ndsc board members are elected by members; however, board decisions are not subject to members' approval.

Form 990, Part VI, Section A, Line 7A

Members of the governing body are elected by members of the congress on an annual basis.

Form 990, Part VI, Section A, Line 7B

Members elect the governing board and approve significant decisions.

Form 990, Part VI, Section B, Line 11B

Before the form 990 is filed, a preliminary copy is provided to the executive committee of the board of directors for review. All issues that arise from this review are addressed, and any necessary changes are made. A final copy of the form 990 is then re-circulated to the executive committee with any additional information deemed necessary due to the changes. Upon approval of the executive committee, the form 990 is finalized and filed. A copy of form 990 is made available to the entire board for their review.

Form 990, Part VI, Section B, Line 12C

Management reviews the conflict of interest policy with all employees and board members. The policy and signature form are given out annually and board members must sign on an an annual basis.

Form 990, Part VI, Section B, Line 15

Compensation process for top official - the compensation committee, approved by the board, determines the compensation of the top management utilizing comparable data for similarly qualified persons in functionally comparable positions at similar organizations. Research is done for compensation in comparable positions. Compensation for the executive director is determined by the executive committee of the board of directors. Compensation process for officers - same policies for officers and key employees.

Form 990, Part VI, Section C, Line 19

Documents are generally made available to public upon request.

Filing and Contact Details

Filer

Filer Name
National Down Syndrome Congress
EIN
51-0163631
Phone
7706049500
Address
3825 EDWARDS RD STE 103, CINCINNATI, OH 45209-1262

Signing Officer

Name
Andre Pineda
Title
Treasurer
Phone
7706049500
Signed
2025-08-19
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Andre Pineda
Formed
1974
Legal Domicile
Il
Voting Board Members
15
Independent Board Members
15
Employees
12
Volunteers
457

Preparer

Firm
Cri Advisors LLC
Address
4004 SUMMIT BLVD NE SUITE 800, ATLANTA, GA 30319
Preparer
Tiffany T Orr CPA
Phone
7703948000
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

Bank fees: program service expenses 17,501. Management and general expenses 605. Fundraising expenses 1,926. Total expenses 20,032. Contracted services: program service expenses 324,858. Management and general expenses 6,708. Fundraising expenses 3,354. Total expenses 334,920. Dues and subscriptions: program service expenses 13,505. Management and general expenses 8,150. Fundraising expenses 9,980. Total expenses 31,635. Payroll fees: program service expenses 0. Management and general expenses 3,481. Fundraising expenses 0. Total expenses 3,481.

FORM 990, PART XII, LINE 2C:

The oversight process has not changed in process from the prior year.

Financial Statement Notes

PART V, LINE 4:

The national down syndrome congress (ndsc) has adopted investment and spending policies, approved by the board of directors, for endowment assets. Those policies attempt to provide a predictable stream of funding to programs supported by its endowment funds while also maintaining the purchasing power of those endowment assets over the long-term. Accordingly, the investment process seeks to achieve an after-cost total real rate of return, including investment income as well as capital appreciation, which exceeds the annual distribution with acceptable levels of risk. Endowment assets are invested in a well-diversified asset mix, which includes equity and debt securities. The organization expects its endowment assets, over time, to produce an average rate of return of approximately 5% annually. Actual returns in any given year may vary from this amount. Investment risk is measured in terms of the total endowment fund; investment assets and allocation between asset classes and strategies are managed to prevent exposing the fund to unacceptable levels of risk. Spending policy. The organization has a policy of appropriating for distribution each year 5% of its endowment fund's average fair value of the prior 12 quarters through the calendar year-end preceding the fiscal year in which the distribution is planned. In establishing this policy, the organization considered the long-term expected return on its investment assets, the nature and duration of the individual endowment funds, many of which must be maintained in perpetuity because of donor-restrictions, and the possible effects of inflation. The organization expects the current spending policy to allow its endowment funds to grow at an average rate of 3% annually. This is consistent with the organization's objective to maintain the purchasing power of the endowment assets as well as to provide additional real growth through new gifts and investment return.

PART X, LINE 2:

The congress has received a determination by the united states internal revenue service (irs) that it is exempt from federal income taxes under irs code section 501(c)(3). The foundation is exempt from federal income taxes under irs code section 509(a)(3) because it supports the congress, an exempt organization. Therefore, no provision for federal or state income taxes has been made in the accompanying consolidated financial statements. The organization utilizes the accounting requirements associated with uncertainty in income taxes using the provisions of financial accounting standards board (fasb) asc 740, income taxes. Using that guidance, tax positions initially need to be recognized in the consolidated financial statements when it is more-likely-than-not the positions will be sustained upon examination by the tax authorities. It also provides guidance for derecognition, classification, interest and penalties, accounting in interim periods, disclosure and transition. As of december 31, 2024 and 2023, the organization has no uncertain tax positions that qualify for recognition or disclosure in the consolidated financial statements.

Raw XML AppendixShowing 400 of 779 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm2BEAU BROOKS
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IRS990/Form990PartVIISectionAGrp/PersonNm4NICOLE BAUMER
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IRS990/Form990PartVIISectionAGrp/PersonNm6ANDRE PINEDA
IRS990/Form990PartVIISectionAGrp/PersonNm7DAVID CHAPLIN
IRS990/Form990PartVIISectionAGrp/PersonNm8CRAIG BLACKBURN
IRS990/Form990PartVIISectionAGrp/PersonNm9BRADLEY CARLISLE
IRS990/Form990PartVIISectionAGrp/PersonNm10BETH FORAKER
IRS990/Form990PartVIISectionAGrp/PersonNm11HANNAH LACOUR
IRS990/Form990PartVIISectionAGrp/PersonNm12MACARENA LIZAMA MD
IRS990/Form990PartVIISectionAGrp/PersonNm13NOEMI SPINAZZI
IRS990/Form990PartVIISectionAGrp/PersonNm14CLAIR WALLACE
IRS990/Form990PartVIISectionAGrp/PersonNm15JAMES HUDSON
IRS990/Form990PartVIISectionAGrp/PersonNm16STEPHANIE SMITH LEE
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
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IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt11ST VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt22ND VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt33RD VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt44TH VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt5PAST PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt6TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt7SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16POLICY/ADVOCACY CO-DIRECTOR
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IRS990/MissionDesc0THE MISSION OF THE NATIONAL DOWN SYNDROME CONGRESS IS TO PROVIDE INFORMATION, ADVOCACY, AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME.NDSC EXISTS WITH THE PURPOSE TO PROMOTE THE INTERESTS OF PEOPLE WITH DOWN SYNDROME, TO EDUCATE THROUGH AWARENESS, TO ADVOCATE AND ENSURE THEIR RIGHTS ARE RECOGNIZED AND PROTECTED, TO EMPOWER, AND TO INSPIRE AND RESHAPE THE WAY PEOPLE UNDERSTAND AND EXPERIENCE DOWN SYNDROME.THE VISION OF THE NDSC IS A WORLD WITH EQUAL RIGHTS AND OPPORTUNITIES FOR PEOPLE WITH DOWN SYNDROME.
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IRS990/Organization501c3Ind0X
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IRS990/ProgSrvcAccomActy2Grp/Desc0ANNUAL CONVENTION - THE CONGRESS HOLDS A CONVENTION EACH YEAR AT A DIFFERENT LOCATION IN THE UNITED STATES TO EDUCATE PARENTS, PROFESSIONALS, AND SELF-ADVOCATES WITH DOWN SYNDROME ON CURRENT TOPICS.
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