Liabilities / Assets
55th percentile
Higher debt load relative to assets than 55% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
55th percentile
Higher debt load relative to assets than 55% of similar nonprofits.
Liabilities / Revenue
78th percentile
Higher debt load relative to revenue than 78% of similar nonprofits.
Net Margin
10th percentile
Higher net margin than 10% of similar nonprofits.
Top Officer Pay
54th percentile
Higher top officer pay than 54% of similar nonprofits.
Top officer pay equals 17.0% of source-year revenue.
Asset Growth
14th percentile
Faster asset growth than 14% of similar nonprofits.
Revenue Growth
5th percentile
Faster revenue growth than 5% of similar nonprofits.
Assets
Flat$1,902,421
Flat from 2023
Net Assets
Flat$1,725,591
Flat from 2023
Liabilities
Flat$176,830
Flat from 2023
Revenue
Flat$414,593
Flat from 2023
Expenses
Flat$562,349
Flat from 2023
Net Income
Flat-$147,756
Flat from 2023
The mission of ehe foundation is to seek treatments and a cure for epitheliod hemangioendofthelioma ehe by increasing awareness, pursuing scientific research, advocating for and supporting ehe patients and bridging information between researchers, providers and patients.
To find treatments and a cure for the rare cancer, epithelioid hemangioendothelioma (ehe), by advancing research and driving collaboration between patients, researchers, and clinicians.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $766,143 | $865,160 | ▲ $99,017 |
| Investments in Publicly Traded Securities | $878,822 | $852,868 | ▼ $25,954 |
| Cash and Non-Interest-Bearing Accounts | $328,997 | $105,814 | ▼ $223,183 |
| Pledges and Grants Receivable | $125,000 | $50,000 | ▼ $75,000 |
| Accounts Receivable | $116 | $28,579 | ▲ $28,463 |
| Total Assets | $2,099,078 | $1,902,421 | ▼ $196,657 |
| Liabilities | |||
| Grants Payable | $275,000 | $100,000 | ▼ $175,000 |
| Accounts Payable and Accrued Expenses | $12,882 | $76,830 | ▲ $63,948 |
| Total Liabilities | $287,882 | $176,830 | ▼ $111,052 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,489,096 | $1,478,491 | ▼ $10,605 |
| Net Assets With Donor Restrictions | $322,100 | $247,100 | ▼ $75,000 |
| Total Net Assets Fund Balance | $1,811,196 | $1,725,591 | ▼ $85,605 |
| Total Liabilities and Net Assets / Fund Balance | $2,099,078 | $1,902,421 | ▼ $196,657 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Denise Robinson | Board Mem./r | FT | $70,400 | - | $70,400 |
| Julia Wahl | Board VP/fin | FT | $41,100 | - | $41,100 |
| Leeann Conner | Board Member | PT | $22,500 | - | $22,500 |
| Tammy Silverthorne | Executive Di | FT | $11,342 | $1,946 | $13,288 |
| Name | Title |
|---|---|
| Jenni Kovach | President |
| Amy Baghdadi | Board Member |
| David Casimir | Board Member |
| John Mcfadden | Board Member |
| Sarah Bright | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $326,246 |
| Grants and Similar Amounts Paid | $217,320 |
| Total Fundraising Expense | $35,256 |
| Salaries, Compensation, and Employee Benefits | $18,783 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $223,573 | $20,635 | $31,734 | $275,942 |
| Grants to Domestic Orgs | $114,728 | - | - | $114,728 |
| Foreign Grants | $100,592 | - | - | $100,592 |
| Office Expenses | $17,550 | $1,366 | $1,585 | $20,501 |
| Current Officers, Directors, Trustees, and Key Employees | $10,897 | $1,063 | $1,328 | $13,288 |
| Travel | $9,507 | $2,087 | - | $11,594 |
| Fees for Services Accounting | - | $8,856 | - | $8,856 |
| Fees for Service Investment Mgmnt Fees | - | $6,955 | - | $6,955 |
| Other Salaries and Wages | $2,798 | $273 | $341 | $3,412 |
| Grants to Domestic Individuals | $2,000 | - | - | $2,000 |
| Payroll Taxes | $1,597 | $155 | $195 | $1,947 |
| Insurance | $1,197 | $299 | - | $1,496 |
| Advertising | $194 | - | $43 | $237 |
| Other Expenses | $135 | $13 | $17 | $165 |
| Other Employee Benefits | $111 | $12 | $13 | $136 |
| Total Functional Expenses | $485,379 | $41,714 | $35,256 | $562,349 |
| Line Item | Amount |
|---|---|
| Total Expenses per Form 990 | $562,349 |
| Expenses per Audited Statements | $555,394 |
| Total Expenses per Audited Statements | $555,394 |
| Expenses Not Reported on Financial Statements | $6,955 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Albany Medical College Ms-231 | Albany, NY | - | Research/development | $40,000 |
| The University of Iowa | Iowa City, IA | - | Research/development | $36,800 |
| The Cleveland Clinic | Cleveland, OH | - | Research/development | $30,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe | Program Service | Research Grants | - | - | $100,592 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| Denise Robinson | Bd Mem/res Dir | Contractor Pay | No | $70,400 |
| - | Executive Dir. | Contractor Pay | No | $53,499 |
| Julia Wahl | Bd Vp/fin Mgr | Contractor Pay | No | $41,100 |
| Leeann Conner | Bd Mem/mktg | Contractor Pay | No | $22,500 |
“The 990 is reviewed and approved by management and the full board of directors prior to filing electronically with the irs.”
“Governing and financial documents are available upon request.”
“Contract personnel 211,513 20,635 25,794 website/social media 12,060 0 5,940 total 223,573 20,635 31,734”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 12882 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 76830 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 116 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 28579 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO FIND TREATMENTS AND A CURE FOR THE RARE CANCER, EPITHELIOID HEMANGIOENDOTHELIOMA (EHE), BY ADVANCING RESEARCH AND DRIVING COLLABORATION BETWEEN PATIENTS, RESEARCHERS, AND CLINICIANS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 43 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 194 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 237 |
| IRS990/AllOtherContributionsAmt | 0 | 359411 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | JULIE WAHL |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 9062806432 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1561 HOPI COURT |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | HOBART |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | WI |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 54313 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | true |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | true |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 328997 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 105814 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 1328 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 1063 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 10897 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 13288 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 359411 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 217320 |
| IRS990/CYInvestmentIncomeAmt | 0 | 55182 |
| IRS990/CYOtherExpensesAmt | 0 | 326246 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -147756 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 18783 |
| IRS990/CYTotalExpensesAmt | 0 | 562349 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 35256 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 414593 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | RESEARCH: THE EHE FOUNDATION FUNDED RESEARCH PROJECTS IN BASIC AND TRANSLATIONAL SCIENCE AIMED TO ADVANCE KNOWLEDGE IN THE DISEASE, ENABLING THE IDENTIFICATION OF EFFECTIVE TREATMENTS FOR EHE. IN ADDITION TO FUNDING EXTERNAL RESEARCH, THE FOUNDATION FUNDED AND ADVANCED PATIENT-LED RESEARCH INITIATIVES INCLUDING BIOBANKING OF EHE BIOSPECIMENS, DEVELPMENT OF A GLOBAL PATIENT REGISTRY, AND EXPANDING EHE CELL-LINE DEVELOPMENT. THE FOUNDATION CONTINUED ITS GROWTH OF A GLOBAL PATIENT-LED RESEARCH NETWORK, INCLUDING CLINICIAN-SCIENTISTS, RESEARCHERS, AND ADVOCATES IN A SCIENTIFIC SYMPOSIUM. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 322100 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 247100 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 437128 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 8856 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 8856 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 31734 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 20635 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 223573 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 275942 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 6955 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 6955 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 100592 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 100592 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 45.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 7.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 25.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 1946 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | TAMMY SILVERTHORNE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DENISE ROBINSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JULIA WAHL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JENNI KOVACH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | SARAH BRIGHT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | LEEANN CONNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | AMY BAGHDADI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | JOHN MCFADDEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | DAVID CASIMIR |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 11342 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 70400 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 41100 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 22500 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXECUTIVE DI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEM./R |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD VP/FIN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2015 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantAmt | 0 | 217320 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 275000 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 100000 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 2000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 2000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 114728 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 114728 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 414593 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 5 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 299 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1197 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1496 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 53806 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1376 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 55182 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 878822 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 852868 |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | AK |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO FIND TREATMENTS AND A CURE FOR THE RARE CANCER, EPITHELIOID HEMANGIOENDOTHELIOMA (EHE), BY ADVANCING RESEARCH AND DRIVING COLLABORATION BETWEEN PATIENTS, RESEARCHERS, AND CLINICIANS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1811196 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1725591 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 62151 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1489096 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1478491 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1585 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1366 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 17550 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 20501 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 13 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 12 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 111 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 136 |
| IRS990/OtherExpensesGrp/Desc | 0 | DUES & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | ALL OTHER |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 17 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 13 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 500 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 135 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 500 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 165 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 341 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 273 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 2798 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 3412 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 195 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 155 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 1597 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 1947 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 125000 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 50000 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | JULIA WAHL |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | PATIENT SERVICES: THE EHE FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT EHE, INCLUDING PHYSICIANS EXPERIENCED IN TREATING EHE, AND TREATMENT OPTIONS BY DEVELOPING AND PUBLISHING EDUCATIONAL CONTENT, HOSTING EDUCATIONAL CONFERENCES, AND PROVIDING ONLINE AND 1:1 PEER SUPPORT. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 48251 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 870093 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 580402 |
| IRS990/PYInvestmentIncomeAmt | 0 | 22402 |
| IRS990/PYOtherExpensesAmt | 0 | 361899 |
| IRS990/PYOtherRevenueAmt | 0 | 1333 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -48473 |
| IRS990/PYTotalExpensesAmt | 0 | 942301 |
| IRS990/PYTotalRevenueAmt | 0 | 893828 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -147756 |
| IRS990/RegularMonitoringEnfrcInd | 0 | false |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 766143 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 865160 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | NET FUNDRAISING 118,639 REIMBURSEMENTS 1,333 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART II, LINE 10 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 359411 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 870093 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1555159 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1064376 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 525033 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 4374072 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 53806 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 20471 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 17782 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 825 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 5733 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 98617 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 61228 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1333 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 63368 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 6695 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 48576 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 119972 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.64330 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.60970 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2954631 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 1419441 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 359411 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 870093 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1555159 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1064376 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 525033 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 4374072 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 4592661 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 6955 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 555394 |
| IRS990ScheduleD/InvestmentExpensesNotIncld2Amt | 0 | 6955 |
| IRS990ScheduleD/InvestmentExpensesNotIncldAmt | 0 | 6955 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 62151 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 62151 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 6955 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 407638 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 562349 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 414593 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 469789 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 555394 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 100592 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | EUROPE |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | RESEARCH GRANTS |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | PROGRAM SERVICE |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 73992 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 1 | 26600 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | WIRE TRANSFER |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 1 | WIRE TRANSFER |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | RESEARCH FUNDS |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 1 | RESEARCH FUNDS |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 100592 |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | EUROPE 100,592 0 |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE F, PAGE 1, PART I, LINE 3 |
| IRS990ScheduleF/TotalOtherOrgCnt | 0 | 2 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 100592 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 40000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 30000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 36800 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH/DEVELOPMENT |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | RESEARCH/DEVELOPMENT |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | RESEARCH/DEVELOPMENT |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | ALBANY MEDICAL COLLEGE MS-231 |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | THE CLEVELAND CLINIC |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | THE UNIVERSITY OF IOWA |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 141338307 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 912153073 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 426004813 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 47 NEW SCOTLAND AVE MC-151 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 9500 EUCLID AVE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 501 NEWTON ROAD |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | ALBANY |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | CLEVELAND |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | IOWA CITY |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | OH |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | IA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 12208 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 44195 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 52242 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 3 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/BusinessName/BusinessNameLine1Txt | 0 | CHORDOMA FOUNDATION |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 0 | DENISE ROBINSON |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 1 | JULIA WAHL |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 2 | LEEANN CONNER |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 0 | BD MEM/RES DIR |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 1 | BD VP/FIN MGR |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 2 | BD MEM/MKTG |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 3 | EXECUTIVE DIR. |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 0 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 1 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 2 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 3 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 0 | 70400 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 1 | 41100 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 2 | 22500 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 3 | 53499 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 0 | CONTRACTOR PAY |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 1 | CONTRACTOR PAY |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 2 | CONTRACTOR PAY |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 3 | CONTRACTOR PAY |
| IRS990ScheduleL/SupplementalInformationDetail/ExplanationTxt | 0 | THREE MEMBERS OF THE BOARD OF DIRECTORS ARE ALSO EMPLOYED BY THE ORGANIZATION AS CONTRACT EMPLOYEES. THEIR COMPENSATION IS FOR WORK PERFORMED AS CONTRACTORS, NOT FOR THEIR DUTIES AS BOARD MEMBERS. THE EXECUTIVE DIRECTOR WAS ALSO EMPLOYED BY THE CHORDOMA FOUNDATION AND THE ADDITIONAL SERVICES SHE PROVIDED IN THAT CAPACITY WERE REIMBURSED BY THE EHE FOUNDATION. HER COMPENSATION WAS FOR WORK PERFORMED AS A CONTRACTOR, NOT FOR HER DUTIES AS EXECUTIVE DIRECTOR. |
| IRS990ScheduleL/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE L, PART V |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE 990 IS REVIEWED AND APPROVED BY MANAGEMENT AND THE FULL BOARD OF DIRECTORS PRIOR TO FILING ELECTRONICALLY WITH THE IRS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | GOVERNING AND FINANCIAL DOCUMENTS ARE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | CONTRACT PERSONNEL 211,513 20,635 25,794 WEBSITE/SOCIAL MEDIA 12,060 0 5,940 TOTAL 223,573 20,635 31,734 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART IX, LINE 11G |
| IRS990/SchoolOperatingInd | 0 | false |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2023 • Form 990Detailed filing. Detailed filing data is available for this year.