Civic Intelligence

The Ehe Foundation

990 • Fiscal year 2021 • EIN 47-3238441

Jan 01, 2021 to Dec 31, 2021 • Filed on May 15, 2022

1561 Hopi CTHobart, WI 54313

(906) 280-6432

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

25th percentile

0.00x

Higher debt load relative to assets than 25% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

22nd percentile

0.00x

Higher debt load relative to revenue than 22% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

87th percentile

51%

Higher net margin than 87% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

50th percentile

$57,600

Higher top officer pay than 50% of similar nonprofits.

Top officer pay equals 3.5% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

91st percentile

73%

Faster asset growth than 91% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

77th percentile

53%

Faster revenue growth than 77% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Assets

Up

$1,985,458

Up $840,346 (+73%) from 2020

Net Assets

Up

$1,977,560

Up $836,396 (+73%) from 2020

Liabilities

Up

$7,898

Up $3,950 (+100%) from 2020

Revenue

Up

$1,636,401

Up $564,505 (+53%) from 2020

Expenses

Up

$800,005

Up $245,651 (+44%) from 2020

Net Income

Up

$836,396

Up $318,854 (+62%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2015: $19,097Net Assets 2015: $19,0972015Assets 2016: $130,665Net Assets 2016: $130,6652016Assets 2017: $301,875Net Assets 2017: $301,8752017Assets 2018: $686,726Liabilities 2018: $0Net Assets 2018: $686,7262018Assets 2019: $623,622Liabilities 2019: $0Net Assets 2019: $623,6222019Assets 2020: $1,145,112Liabilities 2020: $3,948Net Assets 2020: $1,141,1642020Assets 2021: $1,985,458Liabilities 2021: $7,898Net Assets 2021: $1,977,5602021Assets 2022: $2,099,078Liabilities 2022: $287,882Net Assets 2022: $1,811,1962022Assets 2023: $1,902,421Liabilities 2023: $176,830Net Assets 2023: $1,725,5912023Assets 2024: $1,850,328Liabilities 2024: $321,776Net Assets 2024: $1,528,5522024

Highlighted filing

2021

Assets$1,985,458
Liabilities$7,898
Net Assets$1,977,560

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KRevenue 2015: $59,690Expenses 2015: $40,593Net Income 2015: $19,0972015Revenue 2016: $127,607Expenses 2016: $16,039Net Income 2016: $111,5682016Revenue 2017: $171,811Expenses 2017: $601Net Income 2017: $171,2102017Revenue 2018: $439,362Expenses 2018: $54,511Net Income 2018: $384,8512018Revenue 2019: $524,424Expenses 2019: $587,528Net Income 2019: -$63,1042019Revenue 2020: $1,071,896Expenses 2020: $554,354Net Income 2020: $517,5422020Revenue 2021: $1,636,401Expenses 2021: $800,005Net Income 2021: $836,3962021Revenue 2022: $893,828Expenses 2022: $942,301Net Income 2022: -$48,4732022Revenue 2023: $414,593Expenses 2023: $562,349Net Income 2023: -$147,7562023Revenue 2024: $585,109Expenses 2024: $814,338Net Income 2024: -$229,2292024

Highlighted filing

2021

Revenue$1,636,401
Expenses$800,005
Net Income$836,396
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
May 15, 2022
Return Version
2021v4.2
Gross Receipts
$1,641,909
Mission and Program Overview

Mission

The mission of ehe foundation is to seek treatments and a cure for epitheliod hemangioendofthelioma ehe by increasing awareness, pursuing scientific research, advocating for and supporting ehe patients and bridging information between researchers, providers and patients.

The mission of the ehe foundation is to seek treatments and a cure for epitheliod hemangioendofthelioma ehe by increasing awareness, pursuing scientific research, advocating for and supporting ehe patients.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,145,112$1,970,458▲ $825,346
Accounts Receivable-$15,000-
Total Assets$1,145,112$1,985,458▲ $840,346
Liabilities
Accounts Payable and Accrued Expenses$3,948$7,898▲ $3,950
Total Liabilities$3,948$7,898▲ $3,950
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$514,804$1,640,948▲ $1,126,144
Net Assets With Donor Restrictions$626,360$336,612▼ $289,748
Total Net Assets Fund Balance$1,141,164$1,977,560▲ $836,396
Total Liabilities and Net Assets / Fund Balance$1,145,112$1,985,458▲ $840,346
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Denise RobinsonDirector of ResearchFT$57,600$57,600

Board Members and Trustees

NameTitle
Jenni KovachPresident
Julia WahlVice President
Amy BaghdadiBoard Member
David CasimirBoard Member
Leeann ConnerDirector of Marketing
Sarah YanezaTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,555,159
Program Service Revenue
$92
Investment Income
$17,782
Other Revenue
$63,368
All Other Contributions
$1,555,159
Change in Net Assets
$836,396
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$459,229
Grants and Similar Amounts Paid$340,776
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$394,932--$394,932
Grants to Domestic Orgs$315,768--$315,768
Conferences and Meetings$48,549--$48,549
Grants to Domestic Individuals$25,008--$25,008
Fees for Services Accounting$5,000--$5,000
Insurance$1,486--$1,486
Advertising$1,379--$1,379
Occupancy$924--$924
Other Expenses$400--$400
Office Expenses$340--$340
Total Functional Expenses$800,005$0$0$800,005
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Memorial Sloan Kttering Cancer CenterNew York, NY-Research and Development$217,500
Albany Medical CollegeAlbany, NY-Research and Development$40,000
The Broad Institute IncCambridge, MA-Research and Development$33,080
Coriell Institute for Medical ResearchCamden, NJ-Research and Development$15,188
National Org for Rare DisordersDanbury, CT-Research and Development$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$68,876
Fundraising Direct Expenses$5,508
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
5K Race$68,876$68,876$5,508$63,368
Total Events$68,876$68,876$5,508$63,368
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
The Ehe Foundation
EIN
47-3238441
Phone
9062806432
Address
1561 HOPI CT, HOBART, WI 54313

Signing Officer

Name
Julia Wahl
Title
Vice President
Phone
9062806432
Signed
2022-05-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Julia Wahl
Formed
2015
Legal Domicile
Ak
Voting Board Members
7
Independent Board Members
7
Employees
0
Volunteers
7

Preparer

Firm
Denise Hovington LLC CPA
Address
15435 BALD EAGLE LANE, WOODBRIDGE, VA 22191
Preparer
Ellen D Hovington
Phone
7038780438
Supplemental Narrative

Additional Explanations

Form 990, Part IV, Line 22

Schedule i includes list of assistance to domestic organizations.

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy3Grp/Desc0IN 2020, THE EHE FOUNDATION CONTINUED ITS SUPPORT OF STRATEGIC RESEARCH INITIATIVES FOCUSED ON GENETIC REGULATION OF EHE, DEVELOPMENT OF A CELL LINE IN PARTNERSHIP WITH THE BROAD INSTITUTE RARE CANCER DEPENDENCY MAP INITIATIVE, AND MAPPING OF EHE GENETICS AND MICROENVIRONMENT. IN ADDITION, THE FOUNDATION IMPLEMENTED A BIOBANK, TO CREATE A REPOSITORY FOR DONATED EHE TISSUE FROM PATIENTS TO SUPPORT RESEARCH EFFORTS. THE FOUNDATION ALSO SUPPORTED THE RESEARCH EFFORTS AT THE EHE INTERNATIONAL CENTER OF EXPERTISE AND CONTINUED AS A PARTNER ADVOCACY ORGANIZATION WITH THE NCI MYPART NATURAL HISTORY STUDY.ALSO IN 2021, THE FOUNDATION CONTINUED TO RECEIVE SUPPORT FROM THE CHAN ZUCKBERGERG INITIATIVE, RARE AS ONE PROJECT WITH THE GOAL TO ESTABLISH AN INTERNATIONAL PATIENT-LED RESEARCH NETWORK ON SHARED RESEARCH PRIORITIES.
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IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt089909
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IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0439362
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0171811
IRS990ScheduleA/Total509Grp/TotalAmt03884469
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01064376
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0525033
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0426755
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0171811
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IRS990ScheduleA/TotalSupportAmt02187975
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt01624035
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt01075652
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0573609
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IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
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IRS990ScheduleG/EmailSolicitationsInd0X
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt068876
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt068876
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt063368
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IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0RESEARCH AND DEVLOPMENT
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt01
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IRS990ScheduleI/RecipientTable/CashGrantAmt115188
IRS990ScheduleI/RecipientTable/CashGrantAmt233080
IRS990ScheduleI/RecipientTable/CashGrantAmt3217500
IRS990ScheduleI/RecipientTable/CashGrantAmt440000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH AND DEVELOPMENT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH AND DEVELOPMENT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2RESEARCH AND DEVELOPMENT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3RESEARCH AND DEVELOPMENT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4RESEARCH AND DEVELOPMENT
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0NATIONAL ORG FOR RARE DISORDERS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1CORIELL INSTITUTE FOR MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2THE BROAD INSTITUTE INC
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3MEMORIAL SLOAN KTTERING CANCER CENTER
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4ALBANY MEDICAL COLLEGE
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IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt055 KENOSIA AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1403 HADDON AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2320 CHALES STREET
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt31275 YORK AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt443 NEW SCOTLAND AVENUE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0DANBURY
IRS990ScheduleI/RecipientTable/USAddress/CityNm1CAMDEN
IRS990ScheduleI/RecipientTable/USAddress/CityNm2CAMBRIDGE
IRS990ScheduleI/RecipientTable/USAddress/CityNm3NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/CityNm4ALBANY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0CT
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1NJ
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IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4NY
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd006810
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0SCHEDULE I INCLUDES LIST OF ASSISTANCE TO DOMESTIC ORGANIZATIONS.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part IV, Line 22
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IRS990/SignificantChangeInd0false
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IRS990/StatesWhereCopyOfReturnIsFldCd0AK
IRS990/SubjectToExcsTaxNetInvstIncInd0false
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IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
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IRS990/TotalFunctionalExpensesGrp/TotalAmt0800005
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IRS990/TotalLiabilitiesGrp/EOYAmt07898
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt01141164
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IRS990/TotalProgramServiceExpensesAmt0800005
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IRS990/TotalReportableCompFromOrgAmt057600
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IRS990/TotalRevenueGrp/TotalRevenueColumnAmt01636401
IRS990/TotalVolunteersCnt07
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt01145112
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IRS990/TravelGrp/TotalAmt00
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IRS990/TypeOfOrganizationCorpInd0X

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