Civic Intelligence

The Ehe Foundation

990 • Fiscal year 2022 • EIN 47-3238441

Jan 01, 2022 to Dec 31, 2022 • Filed on Sep 22, 2023

Organization ProfileFIGHTEHE.ORG
1561 Hopi CourtHobart, WI 54313

(906) 280-6432

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

62nd percentile

0.14x

Higher debt load relative to assets than 62% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

74th percentile

0.32x

Higher debt load relative to revenue than 74% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

26th percentile

-5.4%

Higher net margin than 26% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

63rd percentile

$88,080

Higher top officer pay than 63% of similar nonprofits.

Top officer pay equals 9.9% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

60th percentile

5.7%

Faster asset growth than 60% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

8th percentile

-45%

Faster revenue growth than 8% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets62nd percentile

Assets

Flat

$2,099,078

Flat from 2022

Net Assets

Flat

$1,811,196

Flat from 2022

Liabilities

Flat

$287,882

Flat from 2022

Revenue And Expenses
Liabilities / Revenue74th percentileNet Margin26th percentile

Revenue

Flat

$893,828

Flat from 2022

Expenses

Flat

$942,301

Flat from 2022

Net Income

Flat

-$48,473

Flat from 2022

Historical Trend

Balance Sheet Trend

Asset Growth60th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2015: $19,097Net Assets 2015: $19,0972015Assets 2016: $130,665Net Assets 2016: $130,6652016Assets 2017: $301,875Net Assets 2017: $301,8752017Assets 2018: $686,726Liabilities 2018: $0Net Assets 2018: $686,7262018Assets 2019: $623,622Liabilities 2019: $0Net Assets 2019: $623,6222019Assets 2020: $1,145,112Liabilities 2020: $3,948Net Assets 2020: $1,141,1642020Assets 2021: $1,985,458Liabilities 2021: $7,898Net Assets 2021: $1,977,5602021Assets 2022: $2,099,078Liabilities 2022: $287,882Net Assets 2022: $1,811,1962022Assets 2022: $2,099,078Liabilities 2022: $287,882Net Assets 2022: $1,811,1962022Assets 2023: $1,902,421Liabilities 2023: $176,830Net Assets 2023: $1,725,5912023Assets 2024: $1,850,328Liabilities 2024: $321,776Net Assets 2024: $1,528,5522024

Highlighted filing

2022

Assets$2,099,078
Liabilities$287,882
Net Assets$1,811,196
Open 2022 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KRevenue 2015: $59,690Expenses 2015: $40,593Net Income 2015: $19,0972015Revenue 2016: $127,607Expenses 2016: $16,039Net Income 2016: $111,5682016Revenue 2017: $171,811Expenses 2017: $601Net Income 2017: $171,2102017Revenue 2018: $439,362Expenses 2018: $54,511Net Income 2018: $384,8512018Revenue 2019: $524,424Expenses 2019: $587,528Net Income 2019: -$63,1042019Revenue 2020: $1,071,896Expenses 2020: $554,354Net Income 2020: $517,5422020Revenue 2021: $1,636,401Expenses 2021: $800,005Net Income 2021: $836,3962021Revenue 2022: $893,828Expenses 2022: $942,301Net Income 2022: -$48,4732022Revenue 2022: $893,828Expenses 2022: $942,301Net Income 2022: -$48,4732022Revenue 2023: $414,593Expenses 2023: $562,349Net Income 2023: -$147,7562023Revenue 2024: $585,109Expenses 2024: $814,338Net Income 2024: -$229,2292024

Highlighted filing

2022

Revenue$893,828
Expenses$942,301
Net Income-$48,473
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Sep 22, 2023
Return Version
2022v5.0
Gross Receipts
$893,828
Mission and Program Overview

Mission

The mission of ehe foundation is to seek treatments and a cure for epitheliod hemangioendofthelioma ehe by increasing awareness, pursuing scientific research, advocating for and supporting ehe patients and bridging information between researchers, providers and patients.

To find treatments and a cure for the rare cancer, epithelioid hemangioendothelioma (ehe), by advancing research and driving collaboration between patients, researchers, and clinicians.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities-$878,822-
Savings and Temporary Cash Investments-$766,143-
Cash and Non-Interest-Bearing Accounts$1,970,458$328,997▼ $1,641,461
Pledges and Grants Receivable-$125,000-
Accounts Receivable$15,000$116▼ $14,884
Total Assets$1,985,458$2,099,078▲ $113,620
Liabilities
Grants Payable-$275,000-
Accounts Payable and Accrued Expenses$7,898$12,882▲ $4,984
Total Liabilities$7,898$287,882▲ $279,984
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,640,948$1,489,096▼ $151,852
Net Assets With Donor Restrictions$336,612$322,100▼ $14,512
Total Net Assets Fund Balance$1,977,560$1,811,196▼ $166,364
Total Liabilities and Net Assets / Fund Balance$1,985,458$2,099,078▲ $113,620
Compensation and Service Providers
Top Officer Pay63rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Medha SutliffExecutive DiFT$88,080$88,080
Denise RobinsonBd Mem/reseaFT$76,800$76,800
Julia WahlVP/sec/consuFT$31,200$31,200

Board Members and Trustees

NameTitle
Jenni KovachPresident
Amy BaghdadiBoard Member
David CasimirBoard Member
Leeann ConnerBoard Member
Sarah BrightTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$870,093
Program Service Revenue
$0
Investment Income
$22,402
Other Revenue
$1,333
All Other Contributions
$870,093
Change in Net Assets
$-48,473

Audited Revenue Reconciliation

Revenue per Audited Statements
$887,087
Revenue Not Reported on Financial Statements
$6,741
Revenue Not Reported on Form 990
$-164,726
Total Revenue per Audited Statements
$722,361
Total Revenue per Form 990
$893,828
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$580,402
Other Expenses$361,899
Total Fundraising Expense$65,971
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$555,000--$555,000
Fees for Services Other$180,079$45,841$64,990$290,910
Conferences and Meetings$30,223--$30,223
Foreign Grants$22,402--$22,402
Office Expenses$14,555$970$797$16,322
Travel$6,786$1,489-$8,275
Fees for Service Investment Mgmnt Fees-$6,741-$6,741
Fees for Services Accounting-$6,500-$6,500
Grants to Domestic Individuals$3,000--$3,000
Insurance$1,491--$1,491
Advertising$826-$181$1,007
Other Expenses$25$2$3$30
Total Functional Expenses$814,787$61,543$65,971$942,301

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$942,301
Expenses per Audited Statements$935,560
Total Expenses per Audited Statements$935,560
Expenses Not Reported on Financial Statements$6,741
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Albany Medical College Ms-231Albany, NY-Research/development$490,000
The Cleveland ClinicCleveland, OH-Research/development$65,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Denise RobinsonBoard MemberContractor PayNo$76,800
Julia WahlBoard OfficerContractor PayNo$31,200
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The 990 is reviewed and approved by management and the full board of directors prior to filing electronically with the irs.”

Form 990, Page 6, Part VI, Line 19

“Governing and financial documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
The Ehe Foundation
EIN
47-3238441
Phone
9062806432
Address
1561 HOPI COURT, HOBART, WI 54313

Signing Officer

Name
Julia Wahl
Title
VP/sec/consultant
Phone
9062806432
Signed
2023-09-22
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Julia Wahl
Formed
2015
Legal Domicile
Ak
Voting Board Members
7
Independent Board Members
5
Employees
0
Volunteers
10

Preparer

Firm
Taylor Roth and Company
Address
800 GRANT ST STE 205, DENVER, CO 80203-2944
Preparer
Ken Roth
Phone
3038308109
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Contract personnel 164,468 45,841 57,301 website/social media 15,611 0 7,689 total 180,079 45,841 64,990”

Raw XML AppendixShowing 400 of 425 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt07898
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt012882
IRS990/AccountsReceivableGrp/BOYAmt015000
IRS990/AccountsReceivableGrp/EOYAmt0116
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0TO FIND TREATMENTS AND A CURE FOR THE RARE CANCER, EPITHELIOID HEMANGIOENDOTHELIOMA (EHE), BY ADVANCING RESEARCH AND DRIVING COLLABORATION BETWEEN PATIENTS, RESEARCHERS, AND CLINICIANS.
IRS990/AdvertisingGrp/FundraisingAmt0181
IRS990/AdvertisingGrp/ProgramServicesAmt0826
IRS990/AdvertisingGrp/TotalAmt01007
IRS990/AllOtherContributionsAmt0870093
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BooksInCareOfDetail/PersonNm0JULIE WAHL
IRS990/BooksInCareOfDetail/PhoneNum09062806432
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt01561 HOPI COURT
IRS990/BooksInCareOfDetail/USAddress/CityNm0HOBART
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0WI
IRS990/BooksInCareOfDetail/USAddress/ZIPCd054313
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0true
IRS990/CashNonInterestBearingGrp/BOYAmt01970458
IRS990/CashNonInterestBearingGrp/EOYAmt0328997
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt030223
IRS990/ConferencesMeetingsGrp/TotalAmt030223
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0870093
IRS990/CYGrantsAndSimilarPaidAmt0580402
IRS990/CYInvestmentIncomeAmt022402
IRS990/CYOtherExpensesAmt0361899
IRS990/CYOtherRevenueAmt01333
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-48473
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0942301
IRS990/CYTotalFundraisingExpenseAmt065971
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0893828
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0RESEARCH: THE EHE FOUNDATION FUNDED RESEARCH PROJECTS IN BASIC AND TRANSLATIONAL SCIENCE AIMED TO ADVANCE KNOWLEDGE IN THE DISEASE, ENABLING THE IDENTIFICATION OF EFFECTIVE TREATMENTS FOR EHE. IN ADDITION TO FUNDING EXTERNAL RESEARCH, THE FOUNDATION FUNDED AND ADVANCED PATIENT-LED RESEARCH INITIATIVES INCLUDING BIOBANKING OF EHE BIOSPECIMENS, DEVELPMENT OF A GLOBAL PATIENT REGISTRY, AND EXPANDING EHE CELL-LINE DEVELOPMENT. THE FOUNDATION CONTINUED ITS GROWTH OF A GLOBAL PATIENT-LED RESEARCH NETWORK, INCLUDING CLINICIAN-SCIENTISTS, RESEARCHERS, AND ADVOCATES IN A SCIENTIFIC SYMPOSIUM.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0336612
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt0322100
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0772804
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt06500
IRS990/FeesForServicesAccountingGrp/TotalAmt06500
IRS990/FeesForServicesOtherGrp/FundraisingAmt064990
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt045841
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0180079
IRS990/FeesForServicesOtherGrp/TotalAmt0290910
IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt06741
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt06741
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/ProgramServicesAmt022402
IRS990/ForeignGrantsGrp/TotalAmt022402
IRS990/ForeignOfficeInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt245.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt37.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt43.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt525.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt63.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt73.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/PersonNm0MEDHA SUTLIFF
IRS990/Form990PartVIISectionAGrp/PersonNm1DENISE ROBINSON
IRS990/Form990PartVIISectionAGrp/PersonNm2JULIA WAHL
IRS990/Form990PartVIISectionAGrp/PersonNm3JENNI KOVACH
IRS990/Form990PartVIISectionAGrp/PersonNm4SARAH BRIGHT
IRS990/Form990PartVIISectionAGrp/PersonNm5LEEANN CONNER
IRS990/Form990PartVIISectionAGrp/PersonNm6AMY BAGHDADI
IRS990/Form990PartVIISectionAGrp/PersonNm7DAVID CASIMIR
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt088080
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt176800
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt231200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DI
IRS990/Form990PartVIISectionAGrp/TitleTxt1BD MEM/RESEA
IRS990/Form990PartVIISectionAGrp/TitleTxt2VP/SEC/CONSU
IRS990/Form990PartVIISectionAGrp/TitleTxt3PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02015
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt07
IRS990/GrantAmt0580402
IRS990/GrantsPayableGrp/EOYAmt0275000
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt03000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt03000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0555000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0555000
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0893828
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt05
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/ProgramServicesAmt01491
IRS990/InsuranceGrp/TotalAmt01491
IRS990/InvestmentIncomeGrp/ExclusionAmt020471
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt01931
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt022402
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0878822
IRS990/IRPDocumentCnt06
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0AK
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO FIND TREATMENTS AND A CURE FOR THE RARE CANCER, EPITHELIOID HEMANGIOENDOTHELIOMA (EHE), BY ADVANCING RESEARCH AND DRIVING COLLABORATION BETWEEN PATIENTS, RESEARCHERS, AND CLINICIANS.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/NetAssetsOrFundBalancesBOYAmt01977560
IRS990/NetAssetsOrFundBalancesEOYAmt01811196
IRS990/NetUnrlzdGainsLossesInvstAmt0-164726
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01640948
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01489096
IRS990/NondeductibleContributionsInd0false
IRS990/OfficeExpensesGrp/FundraisingAmt0797
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0970
IRS990/OfficeExpensesGrp/ProgramServicesAmt014555
IRS990/OfficeExpensesGrp/TotalAmt016322
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherExpensesGrp/Desc0DUES & SUBSCRIPTIONS
IRS990/OtherExpensesGrp/Desc1ALL OTHER
IRS990/OtherExpensesGrp/FundraisingAmt03
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02
IRS990/OtherExpensesGrp/ProgramServicesAmt0400
IRS990/OtherExpensesGrp/ProgramServicesAmt125
IRS990/OtherExpensesGrp/TotalAmt0400
IRS990/OtherExpensesGrp/TotalAmt130
IRS990/OtherRevenueMiscGrp/Desc0REIMBURSEMENTS
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt01333
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt01333
IRS990/OtherRevenueTotalAmt01333
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0125000
IRS990/PoliticalCampaignActyInd0false
IRS990/PrincipalOfficerNm0JULIA WAHL
IRS990/PriorPeriodAdjustmentsAmt046835
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT SERVICES: THE EHE FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT EHE, INCLUDING PHYSICIANS EXPERIENCED IN TREATING EHE, AND TREATMENT OPTIONS BY DEVELOPING AND PUBLISHING EDUCATIONAL CONTENT, HOSTING EDUCATIONAL CONFERENCES, AND PROVIDING ONLINE AND 1:1 PEER SUPPORT.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt041983
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt01555159
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0340776
IRS990/PYInvestmentIncomeAmt017782
IRS990/PYOtherExpensesAmt0459229
IRS990/PYOtherRevenueAmt063368
IRS990/PYProgramServiceRevenueAmt092
IRS990/PYRevenuesLessExpensesAmt0836396
IRS990/PYTotalExpensesAmt0800005
IRS990/PYTotalRevenueAmt01636401
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-48473
IRS990/RegularMonitoringEnfrcInd0false
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0766143
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0NET FUNDRAISING 131,246 REIMBURSEMENTS 1,333
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART II, LINE 10
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0870093
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01555159
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01064376
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0525033
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0426755
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt04441416
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt020471
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt017782
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0825
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt05733
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt044811
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt072459
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt01333
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt063368
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt06695
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt048576
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt012607
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0132579
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.60970
IRS990ScheduleA/PublicSupportTotal170Amt02815920
IRS990ScheduleA/SubstantialContributorsTotAmt01625496
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0870093
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01555159
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01064376
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0525033
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0426755
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt04441416
IRS990ScheduleA/TotalSupportAmt04618806
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt06741
IRS990ScheduleD/ExpensesSubtotalAmt0935560
IRS990ScheduleD/InvestmentExpensesNotIncld2Amt06741
IRS990ScheduleD/InvestmentExpensesNotIncldAmt06741
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-164726
IRS990ScheduleD/RevenueNotReportedAmt0-164726
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt06741
IRS990ScheduleD/RevenueSubtotalAmt0887087
IRS990ScheduleD/TotalExpensesPerForm990Amt0942301
IRS990ScheduleD/TotalRevenuePerForm990Amt0893828
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0722361
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0935560
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt022402
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0WIRE TRANSFER
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0RESEARCH FUNDS
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt0490000
IRS990ScheduleI/RecipientTable/CashGrantAmt165000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH/DEVELOPMENT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH/DEVELOPMENT
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0ALBANY MEDICAL COLLEGE MS-231
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1THE CLEVELAND CLINIC
IRS990ScheduleI/RecipientTable/RecipientEIN0141338307
IRS990ScheduleI/RecipientTable/RecipientEIN1912153073
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt047 NEW SCOTLAND AVE MC-151
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt19500 EUCLID AVE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0ALBANY
IRS990ScheduleI/RecipientTable/USAddress/CityNm1CLEVELAND
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1OH
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd012208
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd144195
IRS990ScheduleI/TotalOtherOrgCnt02
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0DENISE ROBINSON
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm1JULIA WAHL
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0BOARD MEMBER
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt1BOARD OFFICER
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd1false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt076800
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt131200
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0CONTRACTOR PAY
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc1CONTRACTOR PAY
IRS990ScheduleL/SupplementalInformationDetail/ExplanationTxt0TWO MEMBERS OF THE BOARD OF DIRECTORS ARE ALSO EMPLOYED BY THE ORGANIZATION AS CONTRACT EMPLOYEES. THEIR COMPENSATION IS FOR WORK PERFORMED AS CONTRACTORS, NOT FOR THEIR DUTIES AS BOARD MEMBERS.
IRS990ScheduleL/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE L, PART V
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE 990 IS REVIEWED AND APPROVED BY MANAGEMENT AND THE FULL BOARD OF DIRECTORS PRIOR TO FILING ELECTRONICALLY WITH THE IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1GOVERNING AND FINANCIAL DOCUMENTS ARE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2CONTRACT PERSONNEL 164,468 45,841 57,301 WEBSITE/SOCIAL MEDIA 15,611 0 7,689 TOTAL 180,079 45,841 64,990
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART IX, LINE 11G
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt01985458
IRS990/TotalAssetsEOYAmt02099078
IRS990/TotalAssetsGrp/BOYAmt01985458
IRS990/TotalAssetsGrp/EOYAmt02099078
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0870093
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt065971
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt061543
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0814787
IRS990/TotalFunctionalExpensesGrp/TotalAmt0942301
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt07898
IRS990/TotalLiabilitiesEOYAmt0287882
IRS990/TotalLiabilitiesGrp/BOYAmt07898
IRS990/TotalLiabilitiesGrp/EOYAmt0287882
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt01977560
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt01811196
IRS990/TotalProgramServiceExpensesAmt0814787
IRS990/TotalReportableCompFromOrgAmt0196080
IRS990/TotalRevenueGrp/ExclusionAmt020471
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt03264
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0893828
IRS990/TotalVolunteersCnt010
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt01985458
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt02099078
IRS990/TravelGrp/ManagementAndGeneralAmt01489
IRS990/TravelGrp/ProgramServicesAmt06786
IRS990/TravelGrp/TotalAmt08275
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt01561 HOPI COURT
IRS990/USAddress/CityNm0HOBART
IRS990/USAddress/StateAbbreviationCd0WI
IRS990/USAddress/ZIPCd054313
IRS990/VotingMembersGoverningBodyCnt07
IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0FIGHTEHE.ORG
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0JULIA WAHL
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0VP/SEC/CONSULTANT
ReturnHeader/BusinessOfficerGrp/PhoneNum09062806432
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-09-22

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,099,078
Liabilities
$287,882
Net assets
$1,811,196
Revenue
$893,828
Expenses
$942,301
Net income
-$48,473
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.85$0.32$1.53$0.59$0.81$0.23
2023Summary only. Only limited summary data is available for this year.$1.90$0.18$1.73$0.41$0.56$0.15
2022Detailed filing. Detailed filing data is available for this year.$2.10$0.29$1.81$0.89$0.94$0.05
2022Summary only. Only limited summary data is available for this year.$2.10$0.29$1.81$0.89$0.94$0.05
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.99$0.01$1.98$1.64$0.80$0.84
2020Summary only. Only limited summary data is available for this year.$1.15$0.00$1.14$1.07$0.55$0.52
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.62$0.00$0.62$0.52$0.59$0.06
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.69$0.00$0.69$0.44$0.05$0.38
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.30$0.30$0.17$0.00$0.17
2016Detailed filing. Detailed filing data is available for this year.$0.13$0.13$0.13$0.02$0.11
2015Detailed filing. Detailed filing data is available for this year.$0.02$0.02$0.06$0.04$0.02