Civic Intelligence

Ngly1 Foundation

990EZ • Fiscal year 2018 • EIN 47-1978341

Jan 01, 2018 to Dec 31, 2018 • Filed on Mar 23, 2019

Organization Profilewww.ngly1.org
175 S Main Street Ste 500Salt Lake City, UT 84111

(650) 646-4591

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Net Margin

4th percentile

-126%

Higher net margin than 4% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Asset Growth

4th percentile

-83%

Faster asset growth than 4% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Annualized from 2017 to 2018

Revenue Growth

9th percentile

-52%

Faster revenue growth than 9% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets57th percentile

Assets

Down

$8,605

Down $43,105 (-83%) from 2017

Net Assets

Down

$8,605

Down $43,105 (-83%) from 2017

Liabilities

Flat

$0

Flat from 2017

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin4th percentile

Revenue

Down

$34,520

Down $37,672 (-52%) from 2017

Expenses

Up

$77,844

Up $24,400 (+46%) from 2017

Net Income

Down

-$43,324

Down $62,072 (-331%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth4th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60K$40K$20K$0Assets 2015: $36,881Liabilities 2015: $0Net Assets 2015: $36,8812015Assets 2017: $51,710Liabilities 2017: $0Net Assets 2017: $51,7102017Assets 2018: $8,605Liabilities 2018: $0Net Assets 2018: $8,6052018Assets 2019: $20,211Liabilities 2019: $0Net Assets 2019: $20,2112019

Highlighted filing

2018

Assets$8,605
Liabilities$0
Net Assets$8,605
Open 2018 Filing

Operations Trend

Revenue Growth9th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$100K$50K$0-$50KRevenue 2015: $50,097Expenses 2015: $13,216Net Income 2015: $36,8812015Revenue 2017: $72,192Expenses 2017: $53,444Net Income 2017: $18,7482017Revenue 2018: $34,520Expenses 2018: $77,844Net Income 2018: -$43,3242018Revenue 2019: $52,295Expenses 2019: $40,689Net Income 2019: $11,6062019

Highlighted filing

2018

Revenue$34,520
Expenses$77,844
Net Income-$43,324
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Mar 23, 2019
Return Version
2018v3.0
Gross Receipts
$34,520
Mission and Program Overview

Mission

The mission of the NGLY1 Foundation is to eliminate the challenges of N-glycanase Deficiency through research, awareness and support.

Program Services

DescriptionGrantsExpenses
In 2018, NGLY1.org brought together researchers and families affected by NGLY1 Deficiency for the 2018 NGLY1/CDG Scientific and Family Conference, a bi-annual event hosting scientists and families from all over the world. NGLY1.org is actively involved in multiple research projects relating to NGLY1 Deficiency including partnerships with NCATS, Retrophin, and other institutions.$0$50,292
Compensation and Service Providers
Top Officer Pay76th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Cristina Casanova MightBoard MemberPT$0--
Matt MightBoard Member-$0--
Diane MightBoard Member-$0--
Christina RentzmannBoard Member-$0--
Eileen EstenikBoard Member-$0--
Filing and Contact Details

Filer

Filer Name
NGLY1 Foundation
EIN
47-1978341
Phone
6506464591
Address
175 S Main Street Ste 500, Salt Lake City, UT 84111

Signing Officer

Name
Carrie Ostrea
Title
Executive Director
Phone
7023362488
Signed
2019-03-23
Discuss with paid preparer
Yes

Preparer

Firm
Kritzberg Consulting
Address
151 South 1100 East, Salt Lake City, UT 84102
Preparer
Tricia Kritzberg
Phone
8015564962
Supplemental Narrative

Additional Explanations

Form 990-EZ, Header, Line B

“Line 28 of the 990-EZ did not include consulting fees associated with these program activities”

Form 990-EZ, Part I, Line 16

“Description;Amount^Travel and Meetings;16776|Insurance;509|Membership Dues;150|Computer Services;400|Bank Charges;186|Registration fees for charitable solicitation;7087|Other Expenses;1062^Total;26170^”

Form 990-EZ, Part I, Line 20

“Description;Amount^Prior period adjustment;-1625^Total;-1625^”

Raw XML Appendix198 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990EZ/BooksInCareOfDetail/PhoneNum07023362488
IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt0NGLY1 Foundation
IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine2Txt0175 S Main Street Ste 500
IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0Salt Lake City
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd0UT
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd084111
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IRS990EZ/OccupancyRentUtltsAndMaintAmt0891
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt05
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt10
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt40
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt40
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt40
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0Cristina Casanova Might
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1Matt Might
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2Diane Might
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3Christina Rentzmann
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm4Eileen Estenik
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0Board Member
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1Board Member
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2Board Member
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3Board Member
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4Board Member
IRS990EZ/OperateHospitalInd00
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd00
IRS990EZ/OrganizationHadUBIInd00
IRS990EZ/OtherAssetsTotalDetail/BOYAmt00
IRS990EZ/OtherAssetsTotalDetail/EOYAmt00
IRS990EZ/OtherChangesInNetAssetsAmt0-1625
IRS990EZ/OtherExpensesTotalAmt026170
IRS990EZ/OtherRevenueTotalAmt00
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd00
IRS990EZ/PrimaryExemptPurposeTxt0The mission of the NGLY1 Foundation is to eliminate the challenges of N-glycanase Deficiency through research, awareness and support.
IRS990EZ/PrintingPublicationsPostageAmt0541
IRS990EZ/ProgramServiceRevenueAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0In 2018, NGLY1.org brought together researchers and families affected by NGLY1 Deficiency for the 2018 NGLY1/CDG Scientific and Family Conference, a bi-annual event hosting scientists and families from all over the world. NGLY1.org is actively involved in multiple research projects relating to NGLY1 Deficiency including partnerships with NCATS, Retrophin, and other institutions.
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt050292
IRS990EZ/ProhibitedTaxShelterTransInd00
IRS990EZ/RelatedOrganizationCtrlEntInd00
IRS990EZ/SalariesOtherCompEmplBnftAmt00
IRS990EZ/SaleOfAssetsGrossAmt060
IRS990EZ/SchoolOperatingInd00
IRS990EZ/SpecialEventsDirectExpensesAmt00
IRS990EZ/SpecialEventsNetIncomeLossAmt00
IRS990EZ/SubjectToProxyTaxInd00
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt00
IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt00
IRS990EZ/TanningServicesProvidedInd00
IRS990EZ/TaxImposedOnOrganizationMgrAmt00
IRS990EZ/TaxImposedUnderIRC4911Amt00
IRS990EZ/TaxImposedUnderIRC4912Amt00
IRS990EZ/TaxImposedUnderIRC4955Amt00
IRS990EZ/TaxReimbursedByOrganizationAmt00
IRS990EZ/TotalExpensesAmt077844
IRS990EZ/TotalProgramServiceExpensesAmt050292
IRS990EZ/TotalRevenueAmt034520
IRS990EZ/TransactionWithControlEntInd00
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990EZ/WebsiteAddressTxt0www.ngly1.org
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt025000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt038000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt063000
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt034446
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt072182
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt027211
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt050096
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0183935
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt014
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt010
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt024
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt014
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt010
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt024
IRS990ScheduleA/InvestmentIncomeCYPct00.00013
IRS990ScheduleA/InvestmentIncomePYPct00.0001
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.35842
IRS990ScheduleA/PublicSupportPY509Pct00.4113
IRS990ScheduleA/PublicSupportTotal509Amt065935
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt025000
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt055000
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt038000
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt0118000
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt055000
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt055000
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt034446
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt072182
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt027211
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt050096
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/Total509Grp/TotalAmt0183935
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt034460
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt072192
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt027211
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt050096
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0183959
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Line 28 of the 990-EZ did not include consulting fees associated with these program activities
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Description;Amount^Travel and Meetings;16776|Insurance;509|Membership Dues;150|Computer Services;400|Bank Charges;186|Registration fees for charitable solicitation;7087|Other Expenses;1062^Total;26170^
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Description;Amount^Prior period adjustment;-1625^Total;-1625^
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Header, Line B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990-EZ, Part I, Line 16
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990-EZ, Part I, Line 20
ReturnHeader/BuildTS02019-02-21 02:37:17Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0Carrie Ostrea
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Executive Director
ReturnHeader/BusinessOfficerGrp/PhoneNum07023362488
ReturnHeader/BusinessOfficerGrp/SignatureDt02019-03-23
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0NGLY1 Foundation
ReturnHeader/Filer/BusinessNameControlTxt0NGLY
ReturnHeader/Filer/EIN0471978341
ReturnHeader/Filer/PhoneNum06506464591
ReturnHeader/Filer/USAddress/AddressLine1Txt0175 S Main Street Ste 500
ReturnHeader/Filer/USAddress/CityNm0Salt Lake City
ReturnHeader/Filer/USAddress/StateAbbreviationCd0UT
ReturnHeader/Filer/USAddress/ZIPCd084111
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt0136.36.119.85
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0464215859
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Kritzberg Consulting
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0151 South 1100 East
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Salt Lake City
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0UT
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd084102
ReturnHeader/PreparerPersonGrp/PhoneNum08015564962
ReturnHeader/PreparerPersonGrp/PreparationDt02019-03-21
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Tricia Kritzberg
ReturnHeader/ReturnTs02019-05-01T09:45:23-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02018-01-01
ReturnHeader/TaxPeriodEndDt02018-12-31
ReturnHeader/TaxYr02018

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2018 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,605
Liabilities
$0
Net assets
$8,605
Revenue
$34,520
Expenses
$77,844
Net income
-$43,324
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2019Detailed filing. Detailed filing data is available for this year.$20.2$0.00$20.2$52.3$40.7$11.6
2018Detailed filing. Detailed filing data is available for this year.$8.61$0.00$8.61$34.5$77.8$43.3
2017Detailed filing. Detailed filing data is available for this year.$51.7$0.00$51.7$72.2$53.4$18.7
2015Detailed filing. Detailed filing data is available for this year.$36.9$0.00$36.9$50.1$13.2$36.9