Civic Intelligence

Ngly1 Foundation

990EZ • Fiscal year 2017 • EIN 47-1978341

Jan 01, 2017 to Dec 31, 2017 • Filed on Mar 23, 2018

Organization Profilewww.ngly1.org
175 S Main Street Ste 500Salt Lake City, UT 84111

(650) 646-4591

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Net Margin

81st percentile

26%

Higher net margin than 81% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

70th percentile

18%

Faster asset growth than 70% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2017

Revenue Growth

72nd percentile

20%

Faster revenue growth than 72% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2017

Balance Sheet
Liabilities / Assets56th percentile

Assets

Up

$51,710

Up $14,829 (+40%) from 2015

Net Assets

Up

$51,710

Up $14,829 (+40%) from 2015

Liabilities

Flat

$0

Flat from 2015

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin81st percentile

Revenue

Up

$72,192

Up $22,095 (+44%) from 2015

Expenses

Up

$53,444

Up $40,228 (+304%) from 2015

Net Income

Down

$18,748

Down $18,133 (-49%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth70th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$60K$40K$20K$0Assets 2015: $36,881Liabilities 2015: $0Net Assets 2015: $36,8812015Assets 2017: $51,710Liabilities 2017: $0Net Assets 2017: $51,7102017Assets 2018: $8,605Liabilities 2018: $0Net Assets 2018: $8,6052018Assets 2019: $20,211Liabilities 2019: $0Net Assets 2019: $20,2112019

Highlighted filing

2017

Assets$51,710
Liabilities$0
Net Assets$51,710
Open 2017 Filing

Operations Trend

Revenue Growth72nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$100K$50K$0-$50KRevenue 2015: $50,097Expenses 2015: $13,216Net Income 2015: $36,8812015Revenue 2017: $72,192Expenses 2017: $53,444Net Income 2017: $18,7482017Revenue 2018: $34,520Expenses 2018: $77,844Net Income 2018: -$43,3242018Revenue 2019: $52,295Expenses 2019: $40,689Net Income 2019: $11,6062019

Highlighted filing

2017

Revenue$72,192
Expenses$53,444
Net Income$18,748
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Mar 23, 2018
Return Version
2017v2.0
Gross Receipts
$72,192
Mission and Program Overview

Mission

The mission of the NGLY1 Foundation is to eliminate the challenges of N-glycanase Deficiency through research, awareness and support.

Program Services

DescriptionGrantsExpenses
In 2017, NGLY1.org increased its patient and family support programs including building out stronger educational materials and online educational opportunities. NGLY1.org has been strengthening the relationships with researchers and scientists to gain a better understanding of NGLY1 Deficiency including an innovative partnership between the National Center for Advancing Translational Sciences at the NIH, Retrophin, and NGLY1.org. NGLY1.org participated in multiple conferences as an exhibitor and participant including the Annual Clinical Genetics Meeting, Global Genes Rare Patient Advocacy Summit, and Rare Disease Legislative Conference. NGLY1.org was also the featured speaker at a variety of meetings on topics focusing on the challenges of raising children with rare disorders, precision medicine, benefits of diagnostic testing in rare diseases, and patient and family support.$0$44,512
Compensation and Service Providers
Top Officer Pay76th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Cristina Casanova MightBoard MemberPT$0--
Matt MightBoard Member-$0--
Diane MightBoard Member-$0--
Christina RentzmannBoard Member-$0--
Eileen EstenikBoard Member-$0--
Filing and Contact Details

Filer

Filer Name
NGLY1 Foundation
EIN
47-1978341
Phone
6506464591
Address
175 S Main Street Ste 500, Salt Lake City, UT 84111

Signing Officer

Name
Carrie Ostrea
Title
Executive Director
Phone
6506464591
Signed
2018-03-23
Discuss with paid preparer
Yes

Preparer

Firm
Kritzberg Consulting
Address
151 South 1100 East, Salt Lake City, UT 84102
Preparer
Tricia Kritzberg
Phone
8015564962
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16

“Description;Amount^Supplies;822|Postage;35|Travel and conferences;3658|Insurance;885|Computer services;3070|Membership Dues;50|Bank Charges;82|Charitable Solicitation Permits;6741^Total;15343^”

Raw XML Appendix186 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2Board Member
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4Board Member
IRS990EZ/OperateHospitalInd00
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IRS990EZ/PrintingPublicationsPostageAmt09112
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IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
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IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt038000
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Description;Amount^Supplies;822|Postage;35|Travel and conferences;3658|Insurance;885|Computer services;3070|Membership Dues;50|Bank Charges;82|Charitable Solicitation Permits;6741^Total;15343^
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ReturnHeader/Filer/PhoneNum06506464591
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ReturnHeader/Filer/USAddress/StateAbbreviationCd0UT
ReturnHeader/Filer/USAddress/ZIPCd084111
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0151 South 1100 East
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0UT
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd084102
ReturnHeader/PreparerPersonGrp/PhoneNum08015564962
ReturnHeader/PreparerPersonGrp/PreparationDt02018-03-19
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Tricia Kritzberg
ReturnHeader/ReturnTs02018-03-27T14:17:32-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02017-01-01
ReturnHeader/TaxPeriodEndDt02017-12-31
ReturnHeader/TaxYr02017

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$51,710
Liabilities
$0
Net assets
$51,710
Revenue
$72,192
Expenses
$53,444
Net income
$18,748
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2019Detailed filing. Detailed filing data is available for this year.$20.2$0.00$20.2$52.3$40.7$11.6
2018Detailed filing. Detailed filing data is available for this year.$8.61$0.00$8.61$34.5$77.8$43.3
2017Detailed filing. Detailed filing data is available for this year.$51.7$0.00$51.7$72.2$53.4$18.7
2015Detailed filing. Detailed filing data is available for this year.$36.9$0.00$36.9$50.1$13.2$36.9