Civic Intelligence

The Ryr-1 Foundation

990 • Fiscal year 2017 • EIN 47-1094057

Jan 01, 2017 to Dec 31, 2017 • Filed on Nov 08, 2018

PO Box 13312Pittsburgh, PA 15243

(412) 529-1482

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

49th percentile

0.09x

Higher debt load relative to assets than 49% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

51st percentile

0.10x

Higher debt load relative to revenue than 51% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

94th percentile

64%

Higher net margin than 94% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

36th percentile

$3,470

Higher top officer pay than 36% of similar nonprofits.

Top officer pay equals 0.3% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

97th percentile

173%

Faster asset growth than 97% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

97th percentile

248%

Faster revenue growth than 97% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Assets

Up

$1,238,870

Up $784,775 (+173%) from 2016

Net Assets

Up

$1,128,894

Up $674,799 (+149%) from 2016

Liabilities

Up

$109,976

Up $109,976 from 2016

Revenue

Up

$1,059,068

Up $754,917 (+248%) from 2016

Expenses

Up

$384,269

Up $283,788 (+282%) from 2016

Net Income

Up

$674,799

Up $471,129 (+231%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2014: $113,881Liabilities 2014: $02014Assets 2015: $250,425Liabilities 2015: $0Net Assets 2015: $250,4252015Assets 2016: $454,095Liabilities 2016: $0Net Assets 2016: $454,0952016Assets 2017: $1,238,870Liabilities 2017: $109,976Net Assets 2017: $1,128,8942017Assets 2018: $1,513,156Liabilities 2018: $23,244Net Assets 2018: $1,489,9122018Assets 2019: $1,907,947Liabilities 2019: $20,583Net Assets 2019: $1,887,3642019Assets 2020: $1,951,506Liabilities 2020: $2,093Net Assets 2020: $1,949,4132020Assets 2021: $2,236,859Liabilities 2021: $8,822Net Assets 2021: $2,228,0372021Assets 2022: $2,065,543Liabilities 2022: $3,667Net Assets 2022: $2,061,8762022Assets 2023: $2,372,994Liabilities 2023: $5,114Net Assets 2023: $2,367,8802023Assets 2024: $2,731,932Liabilities 2024: $25,105Net Assets 2024: $2,706,8272024

Highlighted filing

2017

Assets$1,238,870
Liabilities$109,976
Net Assets$1,128,894

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2014: $135,923Expenses 2014: $22,042Net Income 2014: $113,8812014Revenue 2015: $210,392Expenses 2015: $73,848Net Income 2015: $136,5442015Revenue 2016: $304,151Expenses 2016: $100,481Net Income 2016: $203,6702016Revenue 2017: $1,059,068Expenses 2017: $384,269Net Income 2017: $674,7992017Revenue 2018: $778,647Expenses 2018: $421,185Net Income 2018: $357,4622018Revenue 2019: $744,214Expenses 2019: $349,004Net Income 2019: $395,2102019Revenue 2020: $393,570Expenses 2020: $330,396Net Income 2020: $63,1742020Revenue 2021: $519,685Expenses 2021: $257,682Net Income 2021: $262,0032021Revenue 2022: $411,112Expenses 2022: $536,228Net Income 2022: -$125,1162022Revenue 2023: $600,451Expenses 2023: $354,036Net Income 2023: $246,4152023Revenue 2024: $681,990Expenses 2024: $384,333Net Income 2024: $297,6572024

Highlighted filing

2017

Revenue$1,059,068
Expenses$384,269
Net Income$674,799
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Nov 8, 2018
Return Version
2017v2.3
Gross Receipts
$1,061,913
Mission and Program Overview

Mission

The mission of the RYR-1 Foundation is to support research leading to an effective treatment or a cure for RYR-1-related diseases through support research, physician education, and patient family support and advocacy.

The mission of the ryr-1 foundation is to support research leading to an effective treatment or a cure for ryr-1 related diseases through supporting research, physician education, and patient & family support and advocacy.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$213,362$617,504▲ $404,142
Savings and Temporary Cash Investments$210,901$300,191▲ $89,290
Investments in Publicly Traded Securities$29,832$267,393▲ $237,561
Pledges and Grants Receivable$0$50,000▲ $50,000
Prepaid Expenses and Deferred Charges$0$3,782▲ $3,782
Total Assets$454,095$1,238,870▲ $784,775
Liabilities
Deferred Revenue$0$104,044▲ $104,044
Accounts Payable and Accrued Expenses$0$5,932▲ $5,932
Total Liabilities$0$109,976▲ $109,976
Net Assets / Fund Balance
Unrestricted Net Assets$454,095$1,128,894▲ $674,799
Total Net Assets Fund Balance$454,095$1,128,894▲ $674,799
Total Liabilities and Net Assets / Fund Balance$454,095$1,238,870▲ $784,775
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Lindsay GoldbergSecretary/treasurerPT$3,470$3,470

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$1,050,003
Program Service Revenue
$4,750
Investment Income
$2,596
Other Revenue
$1,719
All Other Contributions
$1,035,217
Change in Net Assets
$674,799

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,059,068
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$2,845
Total Revenue per Audited Statements
$1,061,913
Total Revenue per Form 990
$1,059,068
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$271,963
Other Expenses$68,637
Salaries, Compensation, and Employee Benefits$43,669
Total Fundraising Expense$1,045
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$212,020--$212,020
Foreign Grants$59,943--$59,943
Other Salaries and Wages$12,231$27,669-$39,900
Travel$14,695$6,471-$21,166
All Other Expenses-$15,915-$15,915
Fees for Services Accounting-$7,336-$7,336
Fees for Services Management$725$4,205$60$4,990
Fees for Services Legal-$4,466-$4,466
Payroll Taxes-$3,769-$3,769
Office Expenses$78$2,062-$2,140
Advertising-$1,077$985$2,062
Fees for Services Other$200$1,465-$1,665
Insurance-$1,471-$1,471
Other Expenses$0$959$0$959
Information Technology-$720-$720
Total Functional Expenses$302,470$80,754$1,045$384,269

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$387,114
Expenses per Audited Statements$384,269
Total Expenses per Form 990$384,269
Expenses Not Reported on Form 990$2,845
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Baylor College of MedicineHouston, TX-Research$60,000
The Regents of the University of CaliforniaOakland, CA-Research$60,000
Ingenious Targeting LaboratoryRonkonkoma, NY-Research$54,300
National Institute of Nursing ResearchBethesda, MD-Research$20,000
Columbia University Sponsored Projects FinanceNew York, NY-Research$11,900

International Summary

Offices
0
Employees
0
Spending
$59,943

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaGrants to Recipients Located in Region-00$30,000
East Asia and the PacificGrants to Recipients Located in Region-00$29,943
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$2,845
Fundraising Gross Income$2,000
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
La Fundraiser$11,590-$624-
Mad Mex Fundraiser$5,196$2,000$164$1,836
Total Events$16,786$2,000$2,845$-845
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Michael goldberg is president & a trustee of the ryr-1 foundation. He is married to lindsay goldberg and is the son of myrna and morton goldberg. Lindsay goldberg is secretary & treasurer as well as a trustee of the ryr-1 foundation. She is married to michael goldberg and is the daughter-in-law of myrna and morton goldberg. Morton goldberg is a trustee of the ryr-1 foundation. He is the father of michael goldberg, husband of myrna goldberg, and father-in-law of lindsay goldberg. Myrna goldberg is vice president and a trustee of the ryr-1 foundation. She is the mother of michael goldberg, wife of morton goldberg, and mother-in-law of lindsay goldberg.

Form 990, Part VI, Section A, Line 4

The ryr-1 foundation has expanded it's board of trustees since the filing of the 2016 form 990.

Form 990, Part VI, Section B, Line 11B

The form 990 is reviewed by the board president and secretary/treasurer prior to filing.

Form 990, Part VI, Section C, Line 19

All documents are available upon request by contacting the organization directly. Also available on guidestar's website.

Filing and Contact Details

Filer

Filer Name
The Ryr-1 Foundation
EIN
47-1094057
Phone
4125291482
Address
PO BOX 13312, PITTSBURGH, PA 15243

Signing Officer

Name
Michael Goldberg
Title
President
Phone
4125291482
Signed
2018-11-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michael Goldberg
Formed
2014
Legal Domicile
Pa
Voting Board Members
12
Independent Board Members
11
Employees
1
Volunteers
0

Preparer

Firm
Grossman Yanak & Ford Llp
Address
THREE GATEWAY CTR STE 1800, PITTSBURGH, PA 15222
Preparer
Richard E Dynoske
Phone
4123389300
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

Management believes there is no liability related to uncertain tax positions at december 31, 2017 or 2016. The organization is no longer subject to tax examinations for the years before december 31, 2016.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

FUNDRAISING EXPENSES

PART XII, LINE 2D - OTHER ADJUSTMENTS:

FUNDRAISING EXPENSES

Raw XML AppendixShowing 400 of 520 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt00
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt05932
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0THE MISSION OF THE RYR-1 FOUNDATION IS TO SUPPORT RESEARCH LEADING TO AN EFFECTIVE TREATMENT OR A CURE FOR RYR-1 RELATED DISEASES THROUGH SUPPORTING RESEARCH, PHYSICIAN EDUCATION, AND PATIENT & FAMILY SUPPORT AND ADVOCACY.
IRS990/AdvertisingGrp/FundraisingAmt0985
IRS990/AdvertisingGrp/ManagementAndGeneralAmt01077
IRS990/AdvertisingGrp/TotalAmt02062
IRS990/AllOtherContributionsAmt01035217
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt015915
IRS990/AllOtherExpensesGrp/TotalAmt015915
IRS990/AuditCommitteeInd00
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0LINDSAY GOLDBERG SECRETARYTREASURER
IRS990/BooksInCareOfDetail/PhoneNum04125291482
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0PO BOX 13312
IRS990/BooksInCareOfDetail/USAddress/CityNm0PITTSBURGH
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0PA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd015243
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOfficerEntInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0213362
IRS990/CashNonInterestBearingGrp/EOYAmt0617504
IRS990/ChangeToOrgDocumentsInd01
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd00
IRS990/CompensationProcessOtherInd00
IRS990/ConflictOfInterestPolicyInd00
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt014786
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt01050003
IRS990/CYGrantsAndSimilarPaidAmt0271963
IRS990/CYInvestmentIncomeAmt02596
IRS990/CYOtherExpensesAmt068637
IRS990/CYOtherRevenueAmt01719
IRS990/CYProgramServiceRevenueAmt04750
IRS990/CYRevenuesLessExpensesAmt0674799
IRS990/CYSalariesCompEmpBnftPaidAmt043669
IRS990/CYTotalExpensesAmt0384269
IRS990/CYTotalFundraisingExpenseAmt01045
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt01059068
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/BOYAmt00
IRS990/DeferredRevenueGrp/EOYAmt0104044
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc0PATIENT OUTREACH AND EDUCATION - THE FOUNDATION RAISES AWARENESS THROUGH RESOURCES ON ITS WEBSITE, INCLUDING THE LATEST MEDICAL LITERATURE, AS WELL AS DIRECT MEETINGS WITH PHYSICIANS AROUND THE WORLD. THE FOUNDATION SERVES AS A RESOURCE FOR PATIENTS AND THEIR FAMILIES THROUGH ITS WEBSITE, OTHER FORMS OF SOCIAL MEDIA, AND FAMILY CONFERENCES.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonorAdvisedFundInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt01
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt030507
IRS990/FamilyOrBusinessRlnInd01
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt07336
IRS990/FeesForServicesAccountingGrp/TotalAmt07336
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt04466
IRS990/FeesForServicesLegalGrp/TotalAmt04466
IRS990/FeesForServicesManagementGrp/FundraisingAmt060
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt04205
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt0725
IRS990/FeesForServicesManagementGrp/TotalAmt04990
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt01465
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0200
IRS990/FeesForServicesOtherGrp/TotalAmt01665
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt059943
IRS990/ForeignGrantsGrp/TotalAmt059943
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt015.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt210.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt38.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt45.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/PersonNm0MICHAEL GOLDBERG
IRS990/Form990PartVIISectionAGrp/PersonNm1MYRNA GOLDBERG
IRS990/Form990PartVIISectionAGrp/PersonNm2LINDSAY GOLDBERG
IRS990/Form990PartVIISectionAGrp/PersonNm3MORTON GOLDBERG
IRS990/Form990PartVIISectionAGrp/PersonNm4JENNIFER RYAN
IRS990/Form990PartVIISectionAGrp/PersonNm5MICHAEL LEGUM
IRS990/Form990PartVIISectionAGrp/PersonNm6MICHAEL ORSECK
IRS990/Form990PartVIISectionAGrp/PersonNm7EMILY PEDERSEN
IRS990/Form990PartVIISectionAGrp/PersonNm8RANDOLPH PEPPER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt23470
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY/TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt4TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt5TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt6TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt7TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt8TRUSTEE
IRS990/Form990ProvidedToGvrnBodyInd00
IRS990/FormationYr02014
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt014786
IRS990/FundraisingDirectExpensesAmt02845
IRS990/FundraisingGrossIncomeAmt02000
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0212020
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0212020
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt01061913
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt011
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0720
IRS990/InformationTechnologyGrp/TotalAmt0720
IRS990/InsuranceGrp/ManagementAndGeneralAmt01471
IRS990/InsuranceGrp/TotalAmt01471
IRS990/InvestmentIncomeGrp/ExclusionAmt02596
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt02596
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt029832
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0267393
IRS990/IRPDocumentCnt04
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0PA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE MISSION OF THE RYR-1 FOUNDATION IS TO SUPPORT RESEARCH LEADING TO AN EFFECTIVE TREATMENT OR A CURE FOR RYR-1 RELATED DISEASES THROUGH SUPPORTING RESEARCH, PHYSICIAN EDUCATION, AND PATIENT & FAMILY SUPPORT AND ADVOCACY.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt0454095
IRS990/NetAssetsOrFundBalancesEOYAmt01128894
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-845
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-845
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoncashContributionsAmt024248
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02062
IRS990/OfficeExpensesGrp/ProgramServicesAmt078
IRS990/OfficeExpensesGrp/TotalAmt02140
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0HONORARIUMS
IRS990/OtherExpensesGrp/Desc1POSTAGE
IRS990/OtherExpensesGrp/Desc2PRINTING & COPYING
IRS990/OtherExpensesGrp/Desc3BANK, CREDIT CARD & BRO
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/FundraisingAmt10
IRS990/OtherExpensesGrp/FundraisingAmt20
IRS990/OtherExpensesGrp/FundraisingAmt30
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11563
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21606
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt3959
IRS990/OtherExpensesGrp/ProgramServicesAmt02500
IRS990/OtherExpensesGrp/ProgramServicesAmt178
IRS990/OtherExpensesGrp/ProgramServicesAmt20
IRS990/OtherExpensesGrp/ProgramServicesAmt30
IRS990/OtherExpensesGrp/TotalAmt02500
IRS990/OtherExpensesGrp/TotalAmt11641
IRS990/OtherExpensesGrp/TotalAmt21606
IRS990/OtherExpensesGrp/TotalAmt3959
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt02564
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt02564
IRS990/OtherRevenueTotalAmt02564
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt027669
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt012231
IRS990/OtherSalariesAndWagesGrp/TotalAmt039900
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03769
IRS990/PayrollTaxesGrp/TotalAmt03769
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt050000
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt03782
IRS990/PrincipalOfficerNm0MICHAEL GOLDBERG
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0SPONSORSHIPS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt04750
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt04750
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH GRANTS - THE FOUNDATION MAKES GRANTS TO RESEARCHERS INTERESTED IN RYR-1 MYOPATHY. AS THE ONLY ORGANIZATION SOLELY DEDICATED TO RYR-1 MYOPATHY, WE HOPE TO BE ABLE TO PROMOTE RESEARCH IN THIS AREA.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0271963
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0271963
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0260500
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt08299
IRS990/PYInvestmentIncomeAmt01030
IRS990/PYOtherExpensesAmt092182
IRS990/PYOtherRevenueAmt033161
IRS990/PYProgramServiceRevenueAmt09460
IRS990/PYRevenuesLessExpensesAmt0203670
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0100481
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0304151
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0674799
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt04750
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0210901
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0300191
IRS990ScheduleA/First5Years170Ind0X
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01035217
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0260500
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0209071
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01504788
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt02596
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt01030
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt043
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt03669
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt065188
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt02564
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt0263
IRS990ScheduleA/OtherIncome170Grp/TotalAmt02827
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportTotal170Amt01504788
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01035217
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0260500
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0209071
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01504788
IRS990ScheduleA/TotalSupportAmt01511284
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt02845
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0384269
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherExpensesIncludedAmt02845
IRS990ScheduleD/OtherRevenueAmt02845
IRS990ScheduleD/RevenueNotReportedAmt02845
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt01059068
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0MANAGEMENT BELIEVES THERE IS NO LIABILITY RELATED TO UNCERTAIN TAX POSITIONS AT DECEMBER 31, 2017 OR 2016. THE ORGANIZATION IS NO LONGER SUBJECT TO TAX EXAMINATIONS FOR THE YEARS BEFORE DECEMBER 31, 2016.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1FUNDRAISING EXPENSES
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2FUNDRAISING EXPENSES
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt0384269
IRS990ScheduleD/TotalRevenuePerForm990Amt01059068
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt01061913
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0387114
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt029943
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt130000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EAST ASIA AND THE PACIFIC
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1NORTH AMERICA
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANTS TO RECIPIENTS LOCATED IN REGION
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1GRANTS TO RECIPIENTS LOCATED IN REGION
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt029943
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt130000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0EAST ASIA AND THE PACIFIC
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt1NORTH AMERICA
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt059943
IRS990ScheduleF/Total501c3OrgCnt00
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalOtherOrgCnt02
IRS990ScheduleF/TotalSpentAmt059943
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/EmailSolicitationsInd0X
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt014786
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt011590
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt03196
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt02845
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0LA FUNDRAISER
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0MAD MEX FUNDRAISER
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt01831
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt0226
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt02057
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt011590
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt05196
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt016786
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt02000
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt02000
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-845
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt0788
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt0624
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt0164
IRS990ScheduleG/InPersonSolicitationsInd0X
IRS990ScheduleG/MailSolicitationsInd0X
IRS990ScheduleG/PhoneSolicitationsInd0X
IRS990ScheduleG/SolicitationOfNonGovtGrantsInd0X
IRS990ScheduleG/SpecialFundraisingEventsInd0X
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt060000
IRS990ScheduleI/RecipientTable/CashGrantAmt160000
IRS990ScheduleI/RecipientTable/CashGrantAmt254300
IRS990ScheduleI/RecipientTable/CashGrantAmt311900
IRS990ScheduleI/RecipientTable/CashGrantAmt420000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0BAYLOR COLLEGE OF MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2INGENIOUS TARGETING LABORATORY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3COLUMBIA UNIVERSITY SPONSORED PROJECTS FINANCE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4NATIONAL INSTITUTE OF NURSING RESEARCH

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings