Liabilities / Assets
49th percentile
Higher debt load relative to assets than 49% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
49th percentile
Higher debt load relative to assets than 49% of similar nonprofits.
Liabilities / Revenue
51st percentile
Higher debt load relative to revenue than 51% of similar nonprofits.
Net Margin
94th percentile
Higher net margin than 94% of similar nonprofits.
Top Officer Pay
36th percentile
Higher top officer pay than 36% of similar nonprofits.
Top officer pay equals 0.3% of source-year revenue.
Asset Growth
97th percentile
Faster asset growth than 97% of similar nonprofits.
Revenue Growth
97th percentile
Faster revenue growth than 97% of similar nonprofits.
Assets
Up$1,238,870
Up $784,775 (+173%) from 2016
Net Assets
Up$1,128,894
Up $674,799 (+149%) from 2016
Liabilities
Up$109,976
Up $109,976 from 2016
Revenue
Up$1,059,068
Up $754,917 (+248%) from 2016
Expenses
Up$384,269
Up $283,788 (+282%) from 2016
Net Income
Up$674,799
Up $471,129 (+231%) from 2016
The mission of the RYR-1 Foundation is to support research leading to an effective treatment or a cure for RYR-1-related diseases through support research, physician education, and patient family support and advocacy.
The mission of the ryr-1 foundation is to support research leading to an effective treatment or a cure for ryr-1 related diseases through supporting research, physician education, and patient & family support and advocacy.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $213,362 | $617,504 | ▲ $404,142 |
| Savings and Temporary Cash Investments | $210,901 | $300,191 | ▲ $89,290 |
| Investments in Publicly Traded Securities | $29,832 | $267,393 | ▲ $237,561 |
| Pledges and Grants Receivable | $0 | $50,000 | ▲ $50,000 |
| Prepaid Expenses and Deferred Charges | $0 | $3,782 | ▲ $3,782 |
| Total Assets | $454,095 | $1,238,870 | ▲ $784,775 |
| Liabilities | |||
| Deferred Revenue | $0 | $104,044 | ▲ $104,044 |
| Accounts Payable and Accrued Expenses | $0 | $5,932 | ▲ $5,932 |
| Total Liabilities | $0 | $109,976 | ▲ $109,976 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $454,095 | $1,128,894 | ▲ $674,799 |
| Total Net Assets Fund Balance | $454,095 | $1,128,894 | ▲ $674,799 |
| Total Liabilities and Net Assets / Fund Balance | $454,095 | $1,238,870 | ▲ $784,775 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Lindsay Goldberg | Secretary/treasurer | PT | $3,470 | $3,470 |
| Name | Title |
|---|---|
| Michael Goldberg | President |
| Myrna Goldberg | Vice President |
| Emily Pedersen | Trustee |
| Jennifer Ryan | Trustee |
| Michael Legum | Trustee |
| Michael Orseck | Trustee |
| Morton Goldberg | Trustee |
| Randolph Pepper | Trustee |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $271,963 |
| Other Expenses | $68,637 |
| Salaries, Compensation, and Employee Benefits | $43,669 |
| Total Fundraising Expense | $1,045 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $212,020 | - | - | $212,020 |
| Foreign Grants | $59,943 | - | - | $59,943 |
| Other Salaries and Wages | $12,231 | $27,669 | - | $39,900 |
| Travel | $14,695 | $6,471 | - | $21,166 |
| All Other Expenses | - | $15,915 | - | $15,915 |
| Fees for Services Accounting | - | $7,336 | - | $7,336 |
| Fees for Services Management | $725 | $4,205 | $60 | $4,990 |
| Fees for Services Legal | - | $4,466 | - | $4,466 |
| Payroll Taxes | - | $3,769 | - | $3,769 |
| Office Expenses | $78 | $2,062 | - | $2,140 |
| Advertising | - | $1,077 | $985 | $2,062 |
| Fees for Services Other | $200 | $1,465 | - | $1,665 |
| Insurance | - | $1,471 | - | $1,471 |
| Other Expenses | $0 | $959 | $0 | $959 |
| Information Technology | - | $720 | - | $720 |
| Total Functional Expenses | $302,470 | $80,754 | $1,045 | $384,269 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $387,114 |
| Expenses per Audited Statements | $384,269 |
| Total Expenses per Form 990 | $384,269 |
| Expenses Not Reported on Form 990 | $2,845 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Baylor College of Medicine | Houston, TX | - | Research | $60,000 |
| The Regents of the University of California | Oakland, CA | - | Research | $60,000 |
| Ingenious Targeting Laboratory | Ronkonkoma, NY | - | Research | $54,300 |
| National Institute of Nursing Research | Bethesda, MD | - | Research | $20,000 |
| Columbia University Sponsored Projects Finance | New York, NY | - | Research | $11,900 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| North America | Grants to Recipients Located in Region | - | 0 | 0 | $30,000 |
| East Asia and the Pacific | Grants to Recipients Located in Region | - | 0 | 0 | $29,943 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $2,845 |
| Fundraising Gross Income | $2,000 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| La Fundraiser | $11,590 | - | $624 | - |
| Mad Mex Fundraiser | $5,196 | $2,000 | $164 | $1,836 |
| Total Events | $16,786 | $2,000 | $2,845 | $-845 |
“Michael goldberg is president & a trustee of the ryr-1 foundation. He is married to lindsay goldberg and is the son of myrna and morton goldberg. Lindsay goldberg is secretary & treasurer as well as a trustee of the ryr-1 foundation. She is married to michael goldberg and is the daughter-in-law of myrna and morton goldberg. Morton goldberg is a trustee of the ryr-1 foundation. He is the father of michael goldberg, husband of myrna goldberg, and father-in-law of lindsay goldberg. Myrna goldberg is vice president and a trustee of the ryr-1 foundation. She is the mother of michael goldberg, wife of morton goldberg, and mother-in-law of lindsay goldberg.”
“The ryr-1 foundation has expanded it's board of trustees since the filing of the 2016 form 990.”
“The form 990 is reviewed by the board president and secretary/treasurer prior to filing.”
“All documents are available upon request by contacting the organization directly. Also available on guidestar's website.”
“Management believes there is no liability related to uncertain tax positions at december 31, 2017 or 2016. The organization is no longer subject to tax examinations for the years before december 31, 2016.”
“FUNDRAISING EXPENSES”
“FUNDRAISING EXPENSES”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 5932 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE MISSION OF THE RYR-1 FOUNDATION IS TO SUPPORT RESEARCH LEADING TO AN EFFECTIVE TREATMENT OR A CURE FOR RYR-1 RELATED DISEASES THROUGH SUPPORTING RESEARCH, PHYSICIAN EDUCATION, AND PATIENT & FAMILY SUPPORT AND ADVOCACY. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 985 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1077 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 2062 |
| IRS990/AllOtherContributionsAmt | 0 | 1035217 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 15915 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 15915 |
| IRS990/AuditCommitteeInd | 0 | 0 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | LINDSAY GOLDBERG SECRETARYTREASURER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4125291482 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO BOX 13312 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | PITTSBURGH |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 15243 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 213362 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 617504 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 1 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 0 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 14786 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1050003 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 271963 |
| IRS990/CYInvestmentIncomeAmt | 0 | 2596 |
| IRS990/CYOtherExpensesAmt | 0 | 68637 |
| IRS990/CYOtherRevenueAmt | 0 | 1719 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 4750 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 674799 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 43669 |
| IRS990/CYTotalExpensesAmt | 0 | 384269 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 1045 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1059068 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 0 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 104044 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | PATIENT OUTREACH AND EDUCATION - THE FOUNDATION RAISES AWARENESS THROUGH RESOURCES ON ITS WEBSITE, INCLUDING THE LATEST MEDICAL LITERATURE, AS WELL AS DIRECT MEETINGS WITH PHYSICIANS AROUND THE WORLD. THE FOUNDATION SERVES AS A RESOURCE FOR PATIENTS AND THEIR FAMILIES THROUGH ITS WEBSITE, OTHER FORMS OF SOCIAL MEDIA, AND FAMILY CONFERENCES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 30507 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 7336 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 7336 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 4466 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 4466 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 60 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 4205 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 725 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 4990 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 1465 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 200 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 1665 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 59943 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 59943 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 8.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MICHAEL GOLDBERG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MYRNA GOLDBERG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | LINDSAY GOLDBERG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | MORTON GOLDBERG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | JENNIFER RYAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MICHAEL LEGUM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | MICHAEL ORSECK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | EMILY PEDERSEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | RANDOLPH PEPPER |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 3470 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY/TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | TRUSTEE |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 0 |
| IRS990/FormationYr | 0 | 2014 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 14786 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 2845 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 2000 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 212020 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 212020 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 1061913 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 720 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 720 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1471 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1471 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 2596 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 2596 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 29832 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 267393 |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | PA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE MISSION OF THE RYR-1 FOUNDATION IS TO SUPPORT RESEARCH LEADING TO AN EFFECTIVE TREATMENT OR A CURE FOR RYR-1 RELATED DISEASES THROUGH SUPPORTING RESEARCH, PHYSICIAN EDUCATION, AND PATIENT & FAMILY SUPPORT AND ADVOCACY. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 454095 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1128894 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -845 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -845 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoncashContributionsAmt | 0 | 24248 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 2062 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 78 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 2140 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | HONORARIUMS |
| IRS990/OtherExpensesGrp/Desc | 1 | POSTAGE |
| IRS990/OtherExpensesGrp/Desc | 2 | PRINTING & COPYING |
| IRS990/OtherExpensesGrp/Desc | 3 | BANK, CREDIT CARD & BRO |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1563 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 1606 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 959 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 2500 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 78 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 0 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 2500 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 1641 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 1606 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 959 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS INCOME |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 2564 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 2564 |
| IRS990/OtherRevenueTotalAmt | 0 | 2564 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 27669 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 12231 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 39900 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3769 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 3769 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 50000 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 3782 |
| IRS990/PrincipalOfficerNm | 0 | MICHAEL GOLDBERG |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | SPONSORSHIPS |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 4750 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 4750 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | RESEARCH GRANTS - THE FOUNDATION MAKES GRANTS TO RESEARCHERS INTERESTED IN RYR-1 MYOPATHY. AS THE ONLY ORGANIZATION SOLELY DEDICATED TO RYR-1 MYOPATHY, WE HOPE TO BE ABLE TO PROMOTE RESEARCH IN THIS AREA. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 271963 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 271963 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 260500 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 8299 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1030 |
| IRS990/PYOtherExpensesAmt | 0 | 92182 |
| IRS990/PYOtherRevenueAmt | 0 | 33161 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 9460 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 203670 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 100481 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 304151 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 674799 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 4750 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 210901 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 300191 |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1035217 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 260500 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 209071 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1504788 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 2596 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1030 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 43 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 3669 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 65188 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 2564 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 263 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 2827 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1504788 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1035217 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 260500 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 209071 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1504788 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1511284 |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 2845 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 384269 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 2845 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 2845 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 2845 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 1059068 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | MANAGEMENT BELIEVES THERE IS NO LIABILITY RELATED TO UNCERTAIN TAX POSITIONS AT DECEMBER 31, 2017 OR 2016. THE ORGANIZATION IS NO LONGER SUBJECT TO TAX EXAMINATIONS FOR THE YEARS BEFORE DECEMBER 31, 2016. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | FUNDRAISING EXPENSES |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 2 | FUNDRAISING EXPENSES |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART X, LINE 2: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 384269 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 1059068 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 1061913 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 387114 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt | 0 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt | 1 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt | 0 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt | 1 | 0 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 29943 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 1 | 30000 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | EAST ASIA AND THE PACIFIC |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 1 | NORTH AMERICA |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 1 | GRANTS TO RECIPIENTS LOCATED IN REGION |
| IRS990ScheduleF/BoycottCountriesInd | 0 | 0 |
| IRS990ScheduleF/ContinuationSpentAmt | 0 | 0 |
| IRS990ScheduleF/ContinuationTotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/ContinuationTotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | 0 |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | 0 |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 29943 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 1 | 30000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 1 | RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | EAST ASIA AND THE PACIFIC |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 1 | NORTH AMERICA |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | 0 |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | 0 |
| IRS990ScheduleF/SubtotalEmployeesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalOfficesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 59943 |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 0 |
| IRS990ScheduleF/TotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOtherOrgCnt | 0 | 2 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 59943 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | 0 |
| IRS990ScheduleG/EmailSolicitationsInd | 0 | X |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 14786 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 11590 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 3196 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 2845 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | LA FUNDRAISER |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | MAD MEX FUNDRAISER |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 1831 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 226 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 2057 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 11590 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 5196 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 16786 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 2000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 2000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | -845 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 788 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 624 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 164 |
| IRS990ScheduleG/InPersonSolicitationsInd | 0 | X |
| IRS990ScheduleG/MailSolicitationsInd | 0 | X |
| IRS990ScheduleG/PhoneSolicitationsInd | 0 | X |
| IRS990ScheduleG/SolicitationOfNonGovtGrantsInd | 0 | X |
| IRS990ScheduleG/SpecialFundraisingEventsInd | 0 | X |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 60000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 60000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 54300 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 11900 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 20000 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | BAYLOR COLLEGE OF MEDICINE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | THE REGENTS OF THE UNIVERSITY OF CALIFORNIA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | INGENIOUS TARGETING LABORATORY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | COLUMBIA UNIVERSITY SPONSORED PROJECTS FINANCE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | NATIONAL INSTITUTE OF NURSING RESEARCH |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.