Civic Intelligence

The Ryr-1 Foundation

990 • Fiscal year 2016 • EIN 47-1094057

Jan 01, 2016 to Dec 31, 2016 • Filed on Jun 22, 2017

Organization ProfileWWW.RYR1.ORG
PO Box 13312Pittsburgh, PA 15243

(412) 275-3398

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Liabilities / Revenue

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Net Margin

95th percentile

67%

Higher net margin than 95% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Top Officer Pay

75th percentile

$0

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Asset Growth

89th percentile

81%

Faster asset growth than 89% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

85th percentile

45%

Faster revenue growth than 85% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets56th percentile

Assets

Up

$454,095

Up $203,670 (+81%) from 2015

Net Assets

Up

$454,095

Up $203,670 (+81%) from 2015

Liabilities

Flat

$0

Flat from 2015

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin95th percentile

Revenue

Up

$304,151

Up $93,759 (+45%) from 2015

Expenses

Up

$100,481

Up $26,633 (+36%) from 2015

Net Income

Up

$203,670

Up $67,126 (+49%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth89th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2014: $113,881Liabilities 2014: $02014Assets 2015: $250,425Liabilities 2015: $0Net Assets 2015: $250,4252015Assets 2016: $454,095Liabilities 2016: $0Net Assets 2016: $454,0952016Assets 2017: $1,238,870Liabilities 2017: $109,976Net Assets 2017: $1,128,8942017Assets 2018: $1,513,156Liabilities 2018: $23,244Net Assets 2018: $1,489,9122018Assets 2019: $1,907,947Liabilities 2019: $20,583Net Assets 2019: $1,887,3642019Assets 2020: $1,951,506Liabilities 2020: $2,093Net Assets 2020: $1,949,4132020Assets 2021: $2,236,859Liabilities 2021: $8,822Net Assets 2021: $2,228,0372021Assets 2022: $2,065,543Liabilities 2022: $3,667Net Assets 2022: $2,061,8762022Assets 2023: $2,372,994Liabilities 2023: $5,114Net Assets 2023: $2,367,8802023Assets 2024: $2,731,932Liabilities 2024: $25,105Net Assets 2024: $2,706,8272024

Highlighted filing

2016

Assets$454,095
Liabilities$0
Net Assets$454,095
Open 2016 Filing

Operations Trend

Revenue Growth85th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2014: $135,923Expenses 2014: $22,042Net Income 2014: $113,8812014Revenue 2015: $210,392Expenses 2015: $73,848Net Income 2015: $136,5442015Revenue 2016: $304,151Expenses 2016: $100,481Net Income 2016: $203,6702016Revenue 2017: $1,059,068Expenses 2017: $384,269Net Income 2017: $674,7992017Revenue 2018: $778,647Expenses 2018: $421,185Net Income 2018: $357,4622018Revenue 2019: $744,214Expenses 2019: $349,004Net Income 2019: $395,2102019Revenue 2020: $393,570Expenses 2020: $330,396Net Income 2020: $63,1742020Revenue 2021: $519,685Expenses 2021: $257,682Net Income 2021: $262,0032021Revenue 2022: $411,112Expenses 2022: $536,228Net Income 2022: -$125,1162022Revenue 2023: $600,451Expenses 2023: $354,036Net Income 2023: $246,4152023Revenue 2024: $681,990Expenses 2024: $384,333Net Income 2024: $297,6572024

Highlighted filing

2016

Revenue$304,151
Expenses$100,481
Net Income$203,670
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Jun 22, 2017
Return Version
2016v3.0
Gross Receipts
$304,368
Mission and Program Overview

Mission

The mission of the RYR-1 Foundation is to support research leading to an effective treatment or a cure for RYR-1-related diseases through support research, physician education, and patient family support and advocacy.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$158,933$213,362▲ $54,429
Savings and Temporary Cash Investments$91,492$210,901▲ $119,409
Investments in Publicly Traded Securities-$29,832-
Total Assets$250,425$454,095▲ $203,670
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$250,425$454,095▲ $203,670
Total Net Assets Fund Balance$250,425$454,095▲ $203,670
Total Liabilities and Net Assets / Fund Balance$250,425$454,095▲ $203,670
Compensation and Service Providers
Top Officer Pay75th percentile

Board Members and Trustees

NameTitle
Michael GoldbergPresident
Myrna GoldbergVice President
Lindsay GoldbergSecretary/Treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$260,500
Program Service Revenue
$9,460
Investment Income
$1,030
Other Revenue
$33,161
All Other Contributions
$260,500
Change in Net Assets
$203,670
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$92,182
Grants and Similar Amounts Paid$8,299
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Travel$29,976--$29,976
Advertising$13,715$750-$14,465
Fees for Services Other$3,703$9,275-$12,978
Fees for Services Legal$5,567$4,506-$10,073
Grants to Domestic Orgs$8,299--$8,299
Office Expenses$5,556$484-$6,040
Conferences and Meetings$3,951--$3,951
Other Expenses$5,500$1,646-$1,623
Insurance-$1,471-$1,471
Fees for Services Accounting-$1,250-$1,250
All Other Expenses$1,027$-198-$829
Total Functional Expenses$77,294$21,564$0$100,481
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Gordon Research ConferencesWest Kingston, RI-Conference Sponsorship$3,500
National Institute of NursingBethesda, MD-Research Education$2,500
Trustees of Columbia UniversityNew York, NY-Research$1,799
AerobiePalo Alto, CA-Conference Sponsorship$500
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$33,115
Fundraising Direct Expenses$217
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
WePay online fundraising$17,115$17,115-$17,115
Crowdrise online fundraising$15,950$15,950$217$15,733
Total Events$33,115$33,115$217$32,898
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section Section B, Line 11B

“The officers meet regularly Form 990 is reviewed at one of these meetings”

Form 990, Part VI, Section Section C, Line 19

“All documents are available upon request by contacting the organization directly”

Filing and Contact Details

Filer

Filer Name
The Ryr-1 Foundation
EIN
47-1094057
Phone
4122753398
Address
PO BOX 13312, PITTSBURGH, PA 15243

Signing Officer

Name
Lindsay Goldberg
Title
Treasurer
Signed
2017-06-22
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michael Goldberg
Formed
2014
Legal Domicile
Pa
Voting Board Members
3
Independent Board Members
3
Employees
0

Preparer

Firm
JP Myers & Associates LLC
Address
150 E Main Street Ste 201, Carnegie, PA 15106
Preparer
Joseph P Myers
Phone
4122764150
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

“Patient Outreach and Education - includes sponsorships and research grants, patient registry program, annual family conference, meetings, education, and support for patients and the medical community”

Form 990, Part III, Line 2

“Scientific Advisory Board - Medical Professionals involved in research and education to further the goals of the Organization”

Form 990, Part IX, Line 1G

“3,703 - Paid outside contractors involved in the coordination and staffing of the annual family conference 9,275 - intermittent use of temporary administrative help”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2Research Education
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3Conference Sponsorship
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Gordon Research Conferences
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1Trustees of Columbia University
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2National Institute of Nursing
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3Aerobie
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0512 Liberty Lane
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1535 West 116th St
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt231 Center Dr Room 5B10
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt31121 San Antonio Rd Suite B101
IRS990ScheduleI/RecipientTable/USAddress/CityNm0West Kingston
IRS990ScheduleI/RecipientTable/USAddress/CityNm1New York
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Bethesda
IRS990ScheduleI/RecipientTable/USAddress/CityNm3Palo Alto
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0RI
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2MD
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3CA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd002892
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd110027
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd2208922178
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd394303
IRS990ScheduleI/TotalOtherOrgCnt04
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Patient Outreach and Education - includes sponsorships and research grants, patient registry program, annual family conference, meetings, education, and support for patients and the medical community
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Scientific Advisory Board - Medical Professionals involved in research and education to further the goals of the Organization
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The officers meet regularly Form 990 is reviewed at one of these meetings
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3All documents are available upon request by contacting the organization directly
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt43,703 - Paid outside contractors involved in the coordination and staffing of the annual family conference 9,275 - intermittent use of temporary administrative help
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part III, Line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part III, Line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section Section C, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part IX, Line 1g
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0true
IRS990/StatesWhereCopyOfReturnIsFldCd0PA
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0250425
IRS990/TotalAssetsEOYAmt0454095
IRS990/TotalAssetsGrp/BOYAmt0250425
IRS990/TotalAssetsGrp/EOYAmt0454095
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0260500
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt021564
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt077294
IRS990/TotalFunctionalExpensesGrp/TotalAmt0100481
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0250425
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0454095
IRS990/TotalProgramServiceExpensesAmt077294
IRS990/TotalProgramServiceRevenueAmt09460
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt010753
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0304151
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0250425
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0454095
IRS990/TravelGrp/ProgramServicesAmt029976
IRS990/TravelGrp/TotalAmt029976
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UnrestrictedNetAssetsGrp/BOYAmt0250425
IRS990/UnrestrictedNetAssetsGrp/EOYAmt0454095
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0939 Valleyview Road
IRS990/USAddress/CityNm0Pittsburgh
IRS990/USAddress/StateAbbreviationCd0PA
IRS990/USAddress/ZIPCd015243
IRS990/VotingMembersGoverningBodyCnt03
IRS990/VotingMembersIndependentCnt03
IRS990/WebsiteAddressTxt0WWW.RYR1.ORG
IRS990/WhistleblowerPolicyInd0false
IRS990/WrittenPolicyOrProcedureInd0false
ReturnHeader/BuildTS02017-02-10 21:41:12Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Lindsay Goldberg
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/SignatureDt02017-06-22
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0THE RYR-1 FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0RYR-
ReturnHeader/Filer/EIN0471094057
ReturnHeader/Filer/PhoneNum04122753398
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO BOX 13312
ReturnHeader/Filer/USAddress/CityNm0PITTSBURGH
ReturnHeader/Filer/USAddress/StateAbbreviationCd0PA
ReturnHeader/Filer/USAddress/ZIPCd015243
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId0EC5F185D1C764C3F93EA13CB8D7D2A14C4EFB9D3
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0EC5F185D1C764C3F93EA13CB8D7D2A14C4EFB9D3
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionId02506362017123qifeuea
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionIdDt02017-08-09
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt050.254.203.249
ReturnHeader/FilingSecurityInformation/IPDt02017-08-30
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0ED
ReturnHeader/FilingSecurityInformation/IPTm018:23:01
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0JP Myers & Associates LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0150 E Main Street Ste 201
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Carnegie
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0PA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd015106
ReturnHeader/PreparerPersonGrp/PhoneNum04122764150
ReturnHeader/PreparerPersonGrp/PreparationDt02017-06-22
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Joseph P Myers
ReturnHeader/ReturnTs02017-08-18T04:57:47-00:00
ReturnHeader/ReturnTypeCd0990

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$454,095
Liabilities
$0
Net assets
$454,095
Revenue
$304,151
Expenses
$100,481
Net income
$203,670
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.73$0.03$2.71$0.68$0.38$0.30
2023Detailed filing. Detailed filing data is available for this year.$2.37$0.01$2.37$0.60$0.35$0.25
2022Detailed filing. Detailed filing data is available for this year.$2.07$0.00$2.06$0.41$0.54$0.13
2021Detailed filing. Detailed filing data is available for this year.$2.24$0.01$2.23$0.52$0.26$0.26
2020Detailed filing. Detailed filing data is available for this year.$1.95$0.00$1.95$0.39$0.33$0.06
2019Detailed filing. Detailed filing data is available for this year.$1.91$0.02$1.89$0.74$0.35$0.40
2018Detailed filing. Detailed filing data is available for this year.$1.51$0.02$1.49$0.78$0.42$0.36
2017Detailed filing. Detailed filing data is available for this year.$1.24$0.11$1.13$1.06$0.38$0.67
2016Detailed filing. Detailed filing data is available for this year.$0.45$0.00$0.45$0.30$0.10$0.20
2015Detailed filing. Detailed filing data is available for this year.$0.25$0.00$0.25$0.21$0.07$0.14
2014Summary only. Only limited summary data is available for this year.$0.11$0.00$0.14$0.02$0.11
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2016 filings • 501(c)3 • <$500k nonprofits