Civic Intelligence

Snyder-Robinson Foundation

990 • Fiscal year 2024 • EIN 46-5662435

Apr 01, 2023 to Mar 31, 2024 • Filed on Jan 18, 2025

1443 Layman StreetMcLean, VA 22101

(703) 203-0215

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2024 filings • 501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

57th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2024 filings • 501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

2nd percentile

-510%

Higher net margin than 2% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

99th percentile

$162,520

Higher top officer pay than 99% of similar nonprofits.

Top officer pay equals 576.1% of source-year revenue.

2024 filings • 501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

4th percentile

-91%

Faster asset growth than 4% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

10th percentile

-52%

Faster revenue growth than 10% of similar nonprofits.

2024 filings • 501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Assets

Down

$14,489

Down $143,779 (-91%) from 2023

Net Assets

Down

$14,489

Down $143,779 (-91%) from 2023

Liabilities

Flat

$0

Flat from 2023

Revenue

Down

$28,210

Down $30,520 (-52%) from 2023

Expenses

Down

$171,989

Down $45,263 (-21%) from 2023

Net Income

Up

-$143,779

Up $14,743 (+9.3%) from 2023

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$400K$300K$200K$100K$0Assets 2015: $11,917Liabilities 2015: $02015Assets 2016: $828Liabilities 2016: $02016Assets 2017: $4,896Liabilities 2017: $02017Assets 2018: $14,982Liabilities 2018: $02018Assets 2019: $17,853Liabilities 2019: $02019Assets 2020: $234,542Liabilities 2020: $0Net Assets 2020: $234,5422020Assets 2021: $288,110Liabilities 2021: $0Net Assets 2021: $288,1102021Assets 2022: $316,790Liabilities 2022: $0Net Assets 2022: $316,7902022Assets 2023: $158,268Liabilities 2023: $0Net Assets 2023: $158,2682023Assets 2024: $14,489Liabilities 2024: $0Net Assets 2024: $14,4892024Assets 2025: $68,519Liabilities 2025: $0Net Assets 2025: $68,5192025

Highlighted filing

2024

Assets$14,489
Liabilities$0
Net Assets$14,489

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200KRevenue 2015: $13,446Expenses 2015: $1,529Net Income 2015: $11,9172015Revenue 2016: $12,800Expenses 2016: $23,889Net Income 2016: -$11,0892016Revenue 2017: $7,954Expenses 2017: $3,913Net Income 2017: $4,0412017Revenue 2018: $19,473Expenses 2018: $9,360Net Income 2018: $10,1132018Revenue 2019: $21,826Expenses 2019: $18,955Net Income 2019: $2,8712019Revenue 2020: $243,145Expenses 2020: $26,456Net Income 2020: $216,6892020Revenue 2021: $280,812Expenses 2021: $227,243Net Income 2021: $53,5692021Revenue 2022: $193,587Expenses 2022: $164,907Net Income 2022: $28,6802022Revenue 2023: $58,730Expenses 2023: $217,252Net Income 2023: -$158,5222023Revenue 2024: $28,210Expenses 2024: $171,989Net Income 2024: -$143,7792024Revenue 2025: $68,211Expenses 2025: $14,181Net Income 2025: $54,0302025

Highlighted filing

2024

Revenue$28,210
Expenses$171,989
Net Income-$143,779
Jump To
Filing Snapshot
Filing Period
Apr 1, 2023 to Mar 31, 2024
Signed
Jan 18, 2025
Return Version
2023v6.0
Gross Receipts
$28,210
Mission and Program Overview

Mission

We are a rare disease patient advocacy organization. Our mission is to support medical research that will lead to safe and effective treatments for individuals with Snyder-Robinson Syndrome and related disorders; and for related scientific and charitable purposes.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$158,268$14,489▼ $143,779
Total Assets$158,268$14,489▼ $143,779
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$158,268$14,489▼ $143,779
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$158,268$14,489▼ $143,779
Total Liabilities and Net Assets / Fund Balance$158,268$14,489▼ $143,779
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Teri KoernerDirector of ResearchFT$81,260$81,260$81,260
Cameron HancockDirector of Business Development & MembershipPT$40,630$40,630$40,630

Board Members and Trustees

NameTitle
Michael RaymondExecutive Director
Frank MarchettiChief Financial Officer
Christopher AbbottChief Information Officer
Katia LuedtkeGeneral Counsel
Revenue and Support

Revenue Composition

Contributions and Grants
$28,210
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$28,210
Change in Net Assets
$-143,779
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$131,215
Other Expenses$40,774
Total Fundraising Expense$227
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$121,890$0$0$121,890
Other Expenses$34,775$0$0$34,775
Payroll Taxes$9,325--$9,325
Conferences and Meetings$1,456--$1,456
Fees for Services Other--$227$227
Total Functional Expenses$167,446$4,316$227$171,989
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Michael Raymond, Executive Director, and Katia Luedtke, General Counsel, are married. Both individuals are volunteers. Neither individual receives any compensation from the Foundation.

Form 990, Part VI, Section A, Line 6

The Snyder-Robinson Foundation is a membership organization. We have no membership fees or dues. All individuals with Snyder-Robinson Syndrome, their parents, siblings, and legal guardians are voting members. Carriers of the genetic mutation that causes Snyder-Robinson Syndrome are also voting members. Non-voting members include any individuals who support the mission on the Foundation.

Form 990, Part VI, Section A, Line 7A

The Snyder-Robinson Foundation is a membership organization. We have no membership fees or dues. All individuals with Snyder-Robinson Syndrome, their parents, siblings, and legal guardians are voting members who may vote on the Foundation's officers and directors.

Form 990, Part VI, Section A, Line 7B

The Snyder-Robinson Foundation is a membership organization. We have no membership fees or dues. All individuals with Snyder-Robinson Syndrome, their parents, siblings, and legal guardians are voting members who can vote on any changes to the Foundations Articles of Incorporation and Bylaws.

Form 990, Part VI, Section B, Line 11B

The 990 is prepared by the Executive Director and reviewed by the CFO. Both individuals are volunteers who receive no compensation from the Foundation.

Form 990, Part VI, Section B, Line 12C

The company had a very limited number of transactions during the year. All of these transactions were routine arm's length transactions with unrelated third parties.

Form 990, Part VI, Section B, Line 15

The Foundation's Executive Director is a volunteer and received no compensation. The Foundation had two employees during the year. Their salaries were funded by a prior year grant from the Rare As One grant program administered by the Chan Zuckerberg Initiative. Proposed salaries were submitted with the grant application after reviewing comparable salaries for similar positions in the local market.

Form 990, Part VI, Section C, Line 19

Our governing documents and policies are posted to our website at: www.snyder-robinson.org

Filing and Contact Details

Filer

Filer Name
Snyder-robinson Foundation
EIN
46-5662435
Phone
7032030215
Address
1443 Layman Street, McLean, VA 22101

Signing Officer

Name
Michael Raymond
Title
Executive Director
Phone
7032030215
Signed
2025-01-18

Organization Details

Principal Officer
Michael Raymond
Formed
2014
Legal Domicile
Va
Voting Board Members
5
Independent Board Members
5
Employees
2
Volunteers
13
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IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm0Teri Koerner
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm1Cameron Hancock
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IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt1Director of Business Development & Membership
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Michael Raymond, Executive Director, and Katia Luedtke, General Counsel, are married. Both individuals are volunteers. Neither individual receives any compensation from the Foundation.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Snyder-Robinson Foundation is a membership organization. We have no membership fees or dues. All individuals with Snyder-Robinson Syndrome, their parents, siblings, and legal guardians are voting members. Carriers of the genetic mutation that causes Snyder-Robinson Syndrome are also voting members. Non-voting members include any individuals who support the mission on the Foundation.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The Snyder-Robinson Foundation is a membership organization. We have no membership fees or dues. All individuals with Snyder-Robinson Syndrome, their parents, siblings, and legal guardians are voting members who may vote on the Foundation's officers and directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The Snyder-Robinson Foundation is a membership organization. We have no membership fees or dues. All individuals with Snyder-Robinson Syndrome, their parents, siblings, and legal guardians are voting members who can vote on any changes to the Foundations Articles of Incorporation and Bylaws.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4The 990 is prepared by the Executive Director and reviewed by the CFO. Both individuals are volunteers who receive no compensation from the Foundation.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5The company had a very limited number of transactions during the year. All of these transactions were routine arm's length transactions with unrelated third parties.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6The Foundation's Executive Director is a volunteer and received no compensation. The Foundation had two employees during the year. Their salaries were funded by a prior year grant from the Rare As One grant program administered by the Chan Zuckerberg Initiative. Proposed salaries were submitted with the grant application after reviewing comparable salaries for similar positions in the local market.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt7Our governing documents and policies are posted to our website at: www.snyder-robinson.org
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 2
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Form 990, Part VI, Section B, Line 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc7Form 990, Part VI, Section C, Line 19
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