Civic Intelligence

Snyder-Robinson Foundation

EIN 46-5662435 • 501(c)3 • McLean, VA

Pub. 78 Eligible

Profile

We are a rare disease patient advocacy organization. Our mission is to support medical research that will lead to safe and effective treatments for individuals with Snyder-Robinson Syndrome and related disorders; and for related scientific and charitable purposes.

1443 Layman StreetMcLean, VA 22101

snyder-robinson.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2025

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2025

Net Margin

96th percentile

79%

Higher net margin than 96% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Top Officer Pay

86th percentile

$2,136

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 3.1% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2025

Asset Growth

23rd percentile

-34%

Faster asset growth than 23% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2025

Revenue Growth

61st percentile

7.8%

Faster revenue growth than 61% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2025

Balance Sheet
Liabilities / Assets59th percentile

Assets

Up

$68,519

Up $54,030 (+373%) from 2024

Liabilities

Flat

$0

Flat from 2024

Net Assets

Up

$68,519

Up $54,030 (+373%) from 2024

Operations
Liabilities / Revenue61st percentileNet Margin96th percentile

Revenue

Up

$68,211

Up $40,001 (+142%) from 2024

Expenses

Down

$14,181

Down $157,808 (-92%) from 2024

Net Income

Up

$54,030

Up $197,809 (+138%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth23rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$400K$300K$200K$100K$0Assets 2015: $11,917Liabilities 2015: $02015Assets 2016: $828Liabilities 2016: $02016Assets 2017: $4,896Liabilities 2017: $02017Assets 2018: $14,982Liabilities 2018: $02018Assets 2019: $17,853Liabilities 2019: $02019Assets 2020: $234,542Liabilities 2020: $0Net Assets 2020: $234,5422020Assets 2021: $288,110Liabilities 2021: $0Net Assets 2021: $288,1102021Assets 2022: $316,790Liabilities 2022: $0Net Assets 2022: $316,7902022Assets 2023: $158,268Liabilities 2023: $0Net Assets 2023: $158,2682023Assets 2024: $14,489Liabilities 2024: $0Net Assets 2024: $14,4892024Assets 2025: $68,519Liabilities 2025: $0Net Assets 2025: $68,5192025

Highlighted filing

2025

Assets$68,519
Liabilities$0
Net Assets$68,519
Open 2025 Filing

Operations Trend

Revenue Growth61st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$200K$0-$200KRevenue 2015: $13,446Expenses 2015: $1,529Net Income 2015: $11,9172015Revenue 2016: $12,800Expenses 2016: $23,889Net Income 2016: -$11,0892016Revenue 2017: $7,954Expenses 2017: $3,913Net Income 2017: $4,0412017Revenue 2018: $19,473Expenses 2018: $9,360Net Income 2018: $10,1132018Revenue 2019: $21,826Expenses 2019: $18,955Net Income 2019: $2,8712019Revenue 2020: $243,145Expenses 2020: $26,456Net Income 2020: $216,6892020Revenue 2021: $280,812Expenses 2021: $227,243Net Income 2021: $53,5692021Revenue 2022: $193,587Expenses 2022: $164,907Net Income 2022: $28,6802022Revenue 2023: $58,730Expenses 2023: $217,252Net Income 2023: -$158,5222023Revenue 2024: $28,210Expenses 2024: $171,989Net Income 2024: -$143,7792024Revenue 2025: $68,211Expenses 2025: $14,181Net Income 2025: $54,0302025

Highlighted filing

2025

Revenue$68,211
Expenses$14,181
Net Income$54,030
Open 2025 Filing

Filings

Most recent year

2025 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$68,519
Liabilities
$0
Net assets
$68,519
Revenue
$68,211
Expenses
$14,181
Net income
$54,030
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$0.69$0.00$0.69$0.68$0.14$0.54
2024Detailed filing. Detailed filing data is available for this year.$0.14$0.00$0.14$0.28$1.72$1.44
2023Detailed filing. Detailed filing data is available for this year.$1.58$0.00$1.58$0.59$2.17$1.59
2022Detailed filing. Detailed filing data is available for this year.$3.17$0.00$3.17$1.94$1.65$0.29
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.88$0.00$2.88$2.81$2.27$0.54
2020Summary only. Only limited summary data is available for this year.$2.35$0.00$2.35$2.43$0.26$2.17
2019Summary only. Only limited summary data is available for this year.$0.18$0.00$0.22$0.19$0.03
2018Summary only. Only limited summary data is available for this year.$0.15$0.00$0.19$0.09$0.10
2017Summary only. Only limited summary data is available for this year.$0.05$0.00$0.08$0.04$0.04
2016Summary only. Only limited summary data is available for this year.$0.01$0.00$0.13$0.24$0.11
2015Summary only. Only limited summary data is available for this year.$0.12$0.00$0.13$0.02$0.12
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Apr 1, 2024 to Mar 31, 2025
Signed
Feb 1, 2026
Return Version
2024v5.0
Gross Receipts
$68,211
Mission and Program Overview

Mission

We are a rare disease patient advocacy organization. Our mission is to support medical research that will lead to safe and effective treatments for individuals with Snyder-Robinson Syndrome and related disorders; and for related scientific and charitable purposes.

Program Services

DescriptionGrantsExpenses
Snyder-Robinson Syndrome Patient Registry and Natural History Study (ongoing): This IRB-approved study gathers medical data from SRS patients to help researchers to understand SRS and to develop treatments for SRS. This includes salary expense for our Director of Research and related expenses. This line also includes related expenses incurred to find treatments for SRS patients.$0$10,257
Education/Website: We incurred expenses to maintain a website and create digital content to share information about SRS, including information for health care providers. This includes payroll expense for our Director of Membership. Our website may be found at www.snyder-robinson.org.$0$586
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Teri KoernerDirector Of ResearchPT$2,136-$2,136
Michael RaymondExecutive Director-$0--
Katia LuedtkeGeneral Counsel-$0--
Frank MarchettiChief Financial Officer-$0--
Christopher AbbottChief Information Officer-$0--
Filing and Contact Details

Filer

Filer Name
Snyder-robinson Foundation
EIN
46-5662435
Phone
7032030215
Address
1443 Layman Street, McLean, VA 22101

Signing Officer

Name
Michael Raymond
Title
Executive Director
Phone
7032030215
Signed
2026-02-01
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16

“Description;Amount^NORD Membership;50|VA SCC filing fees;25|Misc;163|Natural History Study;10257|Website;586^Total;11081^”

Raw XML Appendix187 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0Director of Research
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1Executive Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2General Counsel
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3Chief Financial Officer
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4Chief Information Officer
IRS990EZ/OperateHospitalInd00
IRS990EZ/Organization501c3Ind0X
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IRS990EZ/PoliticalCampaignActyInd00
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IRS990EZ/PrintingPublicationsPostageAmt00
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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1Education/Website: We incurred expenses to maintain a website and create digital content to share information about SRS, including information for health care providers. This includes payroll expense for our Director of Membership. Our website may be found at www.snyder-robinson.org.
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part I, Line 16
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Michael Raymond
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Executive Director
ReturnHeader/BusinessOfficerGrp/PhoneNum07032030215
ReturnHeader/BusinessOfficerGrp/SignatureDt02026-02-01
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ReturnHeader/Filer/EIN0465662435
ReturnHeader/Filer/PhoneNum07032030215
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ReturnHeader/Filer/USAddress/StateAbbreviationCd0VA
ReturnHeader/Filer/USAddress/ZIPCd022101
ReturnHeader/IRSResponsiblePrtyInfoCurrInd01
ReturnHeader/ReturnTs02026-02-01T10:40:47-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-04-01
ReturnHeader/TaxPeriodEndDt02025-03-31
ReturnHeader/TaxYr02024

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