Civic Intelligence

Snyder-Robinson Foundation

990 • Fiscal year 2021 • EIN 46-5662435

Apr 01, 2020 to Mar 31, 2021 • Filed on Jan 30, 2022

1443 Layman StreetMcLean, VA 22101

(703) 203-0215

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Net Margin

64th percentile

19%

Higher net margin than 64% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Top Officer Pay

97th percentile

$80,000

Higher top officer pay than 97% of similar nonprofits.

Top officer pay equals 28.5% of source-year revenue.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Asset Growth

68th percentile

23%

Faster asset growth than 68% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Annualized from 2020 to 2021

Revenue Growth

59th percentile

15%

Faster revenue growth than 59% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Annualized from 2020 to 2021

Assets

Up

$288,110

Up $53,568 (+23%) from 2020

Net Assets

Up

$288,110

Up $53,568 (+23%) from 2020

Liabilities

Flat

$0

Flat from 2020

Revenue

Up

$280,812

Up $37,667 (+15%) from 2020

Expenses

Up

$227,243

Up $200,787 (+759%) from 2020

Net Income

Down

$53,569

Down $163,120 (-75%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$400K$300K$200K$100K$0Assets 2015: $11,917Liabilities 2015: $02015Assets 2016: $828Liabilities 2016: $02016Assets 2017: $4,896Liabilities 2017: $02017Assets 2018: $14,982Liabilities 2018: $02018Assets 2019: $17,853Liabilities 2019: $02019Assets 2020: $234,542Liabilities 2020: $0Net Assets 2020: $234,5422020Assets 2021: $288,110Liabilities 2021: $0Net Assets 2021: $288,1102021Assets 2022: $316,790Liabilities 2022: $0Net Assets 2022: $316,7902022Assets 2023: $158,268Liabilities 2023: $0Net Assets 2023: $158,2682023Assets 2024: $14,489Liabilities 2024: $0Net Assets 2024: $14,4892024Assets 2025: $68,519Liabilities 2025: $0Net Assets 2025: $68,5192025

Highlighted filing

2021

Assets$288,110
Liabilities$0
Net Assets$288,110

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200KRevenue 2015: $13,446Expenses 2015: $1,529Net Income 2015: $11,9172015Revenue 2016: $12,800Expenses 2016: $23,889Net Income 2016: -$11,0892016Revenue 2017: $7,954Expenses 2017: $3,913Net Income 2017: $4,0412017Revenue 2018: $19,473Expenses 2018: $9,360Net Income 2018: $10,1132018Revenue 2019: $21,826Expenses 2019: $18,955Net Income 2019: $2,8712019Revenue 2020: $243,145Expenses 2020: $26,456Net Income 2020: $216,6892020Revenue 2021: $280,812Expenses 2021: $227,243Net Income 2021: $53,5692021Revenue 2022: $193,587Expenses 2022: $164,907Net Income 2022: $28,6802022Revenue 2023: $58,730Expenses 2023: $217,252Net Income 2023: -$158,5222023Revenue 2024: $28,210Expenses 2024: $171,989Net Income 2024: -$143,7792024Revenue 2025: $68,211Expenses 2025: $14,181Net Income 2025: $54,0302025

Highlighted filing

2021

Revenue$280,812
Expenses$227,243
Net Income$53,569
Jump To
Filing Snapshot
Filing Period
Apr 1, 2020 to Mar 31, 2021
Signed
Jan 30, 2022
Return Version
2020v4.0
Gross Receipts
$280,812
Mission and Program Overview

Mission

We are a rare disease patient advocacy organization. Our mission is to support medical research that will lead to safe and effective treatments for individuals with Snyder-Robinson Syndrome and related disorders; and for related scientific and charitable purposes.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$234,542$288,110▲ $53,568
Total Assets$234,542$288,110▲ $53,568
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$234,542$288,110▲ $53,568
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$234,542$288,110▲ $53,568
Total Liabilities and Net Assets / Fund Balance$234,542$288,110▲ $53,568
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Cameron HancockDirector of Business Development & MembershipPT$40,000$40,000$80,000
Teri KoernerDirector of ResearchPT$40,000$40,000$80,000

Board Members and Trustees

NameTitle
Dr Mark GallagherChairman, Board of Directors
Dr Anthony PeggDirector
Dr Jeffrey LindemanDirector
Dr Mary Jo KutlerDirector
Dr Robin CarlsonDirector
Tom DolanDirector
Michael RaymondExecutive Director
Frank MarchettiChief Financial Officer
Christopher AbbottChief Information Officer
Katia LuedtkeGeneral Counsel
Revenue and Support

Revenue Composition

Contributions and Grants
$280,812
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$270,812
Change in Net Assets
$53,569
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$142,105
Salaries, Compensation, and Employee Benefits$85,138
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$40,000$40,000-$80,000
Payroll Taxes$2,569$2,569-$5,138
Other Expenses$2,801$265$0$3,066
Conferences and Meetings$2,990--$2,990
Fees for Services Other$643$643-$1,286
Total Functional Expenses$183,766$43,477$0$227,243
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Did any officer, director, trustee or key employee have a family or business relationship with any other officer, director, trustee, or key employee? Yes, Michael Raymond (Executive Director) is married to Katia Luedtke (General Counsel).

Form 990, Part VI, Section A, Line 6

Did the organization have members or stockholders? Yes, the organization has two classes of members: (1) Voting Members (individuals with Snyder-Robinson Syndrome, parents, siblings, caregivers, and carriers of the genetic mutation causing SRS; and (2) Associate Members (everyone else who supports our mission). There are no dues or fees for membership.

Form 990, Part VI, Section A, Line 7A

Did the organization have members... who had the power to elect or appoint one or more members of the governing body? Yes, Voting Members elect all of the Directors to the Board of Directors.

Form 990, Part VI, Section A, Line 7B

Are any of the governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? Yes, Voting Members must approve all changes to the Articles of Incorporation and By-laws.

Form 990, Part VI, Section B, Line 11B

This form was prepared by the Executive Director (who is a CPA). It was reviewed by the CFO.

Form 990, Part VI, Section C, Line 19

Form 990, Part VI, Section C, Line 19 - These documents are available on our website at: https://snyder-robinson.org/about/governance-finance/

Form 990, Part VIII, Line 1E

We received Employee Retention Tax Credits of $10,000 during the fiscal year. We are reporting these credits as Government Grants on Form 990, Part VIII, Line 1e.

Filing and Contact Details

Filer

Filer Name
Snyder-robinson Foundation
EIN
46-5662435
Phone
7032030215
Address
1443 Layman Street, McLean, VA 22101

Signing Officer

Name
Michael Raymond
Title
Executive Director
Phone
7032030215
Signed
2022-01-30

Organization Details

Principal Officer
Michael Raymond
Formed
2014
Legal Domicile
Va
Voting Board Members
7
Independent Board Members
7
Employees
2
Volunteers
15
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IRS990/Form990PartVIISectionAGrp/TitleTxt0Director of Business Development & Membership
IRS990/Form990PartVIISectionAGrp/TitleTxt1Director of Research
IRS990/Form990PartVIISectionAGrp/TitleTxt2Executive Director
IRS990/Form990PartVIISectionAGrp/TitleTxt3Chairman, Board of Directors
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
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IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9General Counsel
IRS990/Form990PartVIISectionAGrp/TitleTxt10Chief Financial Officer
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IRS990/MissionDesc0We are a rare disease patient advocacy organization. Our mission is to support medical research that will lead to safe and effective treatments for individuals with Snyder-Robinson Syndrome ("SRS") and related disorders; and for related scientific and charitable purposes.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0We provided $60,000 of funding for research to the University of Central Florida for development of a spermine prodrug, a novel compound that shows promise as a treatment for Snyder-Robinson Syndrome, and paid $2525 for additional research expenses.
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IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt053569
IRS990/RegularMonitoringEnfrcInd00
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt00
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt07000
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt03200
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt01500
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt01590
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt0500
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt013790
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0We received $10,000 in federal Employee Retention Tax Credits. The Employee Retention Credit is a fully refundable tax credit for employers equal to 50 percent of qualified wages (including allocable qualified health plan expenses) that Eligible Employers pay their employees. This Employee Retention Credit applies to qualified wages paid after March 12, 2020, and before January 1, 2021.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0Schedule A, Part III, Line 12
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0270812
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0243145
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt021826
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt019473
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt07954
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0563210
IRS990ScheduleA/InvestmentIncomeCYPct00
IRS990ScheduleA/InvestmentIncomePYPct00
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt010000
IRS990ScheduleA/OtherIncome509Grp/TotalAmt010000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.95850
IRS990ScheduleA/PublicSupportPY509Pct00.9712
IRS990ScheduleA/PublicSupportTotal509Amt0549420
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt07000
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt03200
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt01500
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt01590
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt0500
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt013790
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0270812
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0243145
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt021826
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt019473
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt07954
IRS990ScheduleA/Total509Grp/TotalAmt0563210
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0280812
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0243145
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt021826
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt019473
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt07954
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0573210
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Did any officer, director, trustee or key employee have a family or business relationship with any other officer, director, trustee, or key employee? Yes, Michael Raymond (Executive Director) is married to Katia Luedtke (General Counsel).
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Did the organization have members or stockholders? Yes, the organization has two classes of members: (1) Voting Members (individuals with Snyder-Robinson Syndrome, parents, siblings, caregivers, and carriers of the genetic mutation causing SRS; and (2) Associate Members (everyone else who supports our mission). There are no dues or fees for membership.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Did the organization have members... who had the power to elect or appoint one or more members of the governing body? Yes, Voting Members elect all of the Directors to the Board of Directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Are any of the governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body? Yes, Voting Members must approve all changes to the Articles of Incorporation and By-laws.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4This form was prepared by the Executive Director (who is a CPA). It was reviewed by the CFO.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Form 990, Part VI, Section C, Line 19 - These documents are available on our website at: https://snyder-robinson.org/about/governance-finance/
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6We received Employee Retention Tax Credits of $10,000 during the fiscal year. We are reporting these credits as Government Grants on Form 990, Part VIII, Line 1e.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, Line 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section A, Line 7a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section A, Line 7b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part VI, Section C, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Form 990, Part VIII, Line 1e
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0234542
IRS990/TotalAssetsEOYAmt0288110
IRS990/TotalAssetsGrp/BOYAmt0234542
IRS990/TotalAssetsGrp/EOYAmt0288110
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0280812
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt043477
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0183766
IRS990/TotalFunctionalExpensesGrp/TotalAmt0227243
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0234542
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0288110
IRS990/TotalOtherCompensationAmt080000
IRS990/TotalOtherProgSrvcExpenseAmt062525
IRS990/TotalOtherProgSrvcGrantAmt00
IRS990/TotalOtherProgSrvcRevenueAmt00
IRS990/TotalProgramServiceExpensesAmt0183766
IRS990/TotalProgramServiceRevenueAmt00
IRS990/TotalReportableCompFromOrgAmt080000
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0280812
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt015
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0234542
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0288110
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00

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