Civic Intelligence

Ald Connect Inc.

990 • Fiscal year 2022 • EIN 46-3749890

Jan 01, 2022 to Dec 31, 2022 • Filed on Jun 22, 2023

Organization Profilewww.aldconnect.org
35 Village RoadMiddleton, MA 01949-1202

(833) 525-3266

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

53rd percentile

0.02x

Higher debt load relative to assets than 53% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Liabilities / Revenue

62nd percentile

0.06x

Higher debt load relative to revenue than 62% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Net Margin

12th percentile

-29%

Higher net margin than 12% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Top Officer Pay

88th percentile

$101,188

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 26.7% of source-year revenue.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Asset Growth

22nd percentile

-9.9%

Faster asset growth than 22% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Revenue Growth

21st percentile

-18%

Faster revenue growth than 21% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets53rd percentile

Assets

Down

$934,444

Down $102,864 (-9.9%) from 2021

Net Assets

Down

$911,525

Down $107,923 (-11%) from 2021

Liabilities

Up

$22,919

Up $5,059 (+28%) from 2021

Revenue And Expenses
Liabilities / Revenue62nd percentileNet Margin12th percentile

Revenue

Down

$378,350

Down $82,703 (-18%) from 2021

Expenses

Up

$486,273

Up $302,294 (+164%) from 2021

Net Income

Down

-$107,923

Down $384,997 (-139%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth22nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2013: $5,600Liabilities 2013: $02013Assets 2014: $278,191Liabilities 2014: $125,824Net Assets 2014: $152,3672014Assets 2015: $237,825Liabilities 2015: $66,301Net Assets 2015: $171,5242015Assets 2016: $152,872Liabilities 2016: $3,927Net Assets 2016: $148,9452016Assets 2017: $153,299Liabilities 2017: $3,925Net Assets 2017: $149,3742017Assets 2018: $205,792Liabilities 2018: $3,925Net Assets 2018: $201,8672018Assets 2019: $537,625Liabilities 2019: $8,714Net Assets 2019: $528,9112019Assets 2020: $753,352Liabilities 2020: $10,978Net Assets 2020: $742,3742020Assets 2021: $1,037,308Liabilities 2021: $17,860Net Assets 2021: $1,019,4482021Assets 2022: $934,444Liabilities 2022: $22,919Net Assets 2022: $911,5252022Assets 2023: $1,033,151Liabilities 2023: $15,161Net Assets 2023: $1,017,9902023Assets 2024: $1,252,052Liabilities 2024: $16,211Net Assets 2024: $1,235,8412024

Highlighted filing

2022

Assets$934,444
Liabilities$22,919
Net Assets$911,525
Open 2022 Filing

Operations Trend

Revenue Growth21st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2013: $5,600Expenses 2013: $0Net Income 2013: $5,6002013Revenue 2014: $456,599Expenses 2014: $309,832Net Income 2014: $146,7672014Revenue 2015: $461,101Expenses 2015: $441,944Net Income 2015: $19,1572015Revenue 2016: $86,500Expenses 2016: $109,078Net Income 2016: -$22,5782016Revenue 2017: $107,442Expenses 2017: $107,013Net Income 2017: $4292017Revenue 2018: $163,392Expenses 2018: $110,899Net Income 2018: $52,4932018Revenue 2019: $479,962Expenses 2019: $152,918Net Income 2019: $327,0442019Revenue 2020: $339,880Expenses 2020: $126,417Net Income 2020: $213,4632020Revenue 2021: $461,053Expenses 2021: $183,979Net Income 2021: $277,0742021Revenue 2022: $378,350Expenses 2022: $486,273Net Income 2022: -$107,9232022Revenue 2023: $413,327Expenses 2023: $306,862Net Income 2023: $106,4652023Revenue 2024: $574,309Expenses 2024: $353,774Net Income 2024: $220,5352024

Highlighted filing

2022

Revenue$378,350
Expenses$486,273
Net Income-$107,923
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Jun 22, 2023
Return Version
2022v5.0
Gross Receipts
$378,350
Mission and Program Overview

Mission

To improve health outcomes for individuals with x-linked adrenoleukodystrophy ("ald") by raising awareness, empowering patients, and accelerating the translation

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,033,490$930,766▼ $102,724
Intangible Assets$2,899$2,684▼ $215
Prepaid Expenses and Deferred Charges$819$894▲ $75
Savings and Temporary Cash Investments$100$100→ $0
Total Assets$1,037,308$934,444▼ $102,864
Liabilities
Accounts Payable and Accrued Expenses$17,860$22,919▲ $5,059
Total Liabilities$17,860$22,919▲ $5,059
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$994,448$908,390▼ $86,058
Net Assets With Donor Restrictions$25,000$3,135▼ $21,865
Total Net Assets Fund Balance$1,019,448$911,525▼ $107,923
Total Liabilities and Net Assets / Fund Balance$1,037,308$934,444▼ $102,864
Compensation and Service Providers
Top Officer Pay88th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kelly MiettunenExecutive DirectorPT$101,188$101,188

Board Members and Trustees

NameTitle
Florian Eichler MdPresident
Alex ShermanDirector
Amber Salzman PhdDirector
Benjamin LenailDirector
Gregory BentonDirector
Josh Bonkowsky Md PhdDirector
Keith Van Haren MdDirector
Patricia Musolino Md PhdDirector
S Ali Fatemi MdDirector
Stephan Kemp PhdDirector
Timothy MaguireDirector
Troy Lund Phd MdDirector
Patricia ChapmanClerk
KATHLEEN M O'SULLIVAN-FORTIN ESQTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$378,083
Program Service Revenue
$0
Investment Income
$267
Other Revenue
$0
All Other Contributions
$256,637
Change in Net Assets
$-107,923
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$395,077
Grants and Similar Amounts Paid$91,196
Total Fundraising Expense$29,352
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$188,984$2,389$0$191,373
Fees for Services Management$41,497$75,377$4,069$120,943
Grants to Domestic Orgs$36,750--$36,750
Other Expenses$36,155$0$0$36,155
Foreign Grants$34,250--$34,250
Advertising$3,910$0$22,814$26,724
Grants to Domestic Individuals$20,196--$20,196
Office Expenses$0$6,933$0$6,933
Fees for Services Accounting$0$6,813$0$6,813
Occupancy$0$1,814$0$1,814
Insurance$0$1,117$0$1,117
Fees for Services Legal$0$309$0$309
Depreciation Depletion$0$215$0$215
Total Functional Expenses$361,742$95,179$29,352$486,273
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of UtahSalt Lake City, UT-Research$36,750

International Summary

Offices
0
Employees
0
Spending
$34,250

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeMedical ResearchGrantmaking00$34,250
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Ald Connect Inc
EIN
46-3749890
Phone
8335253266
Address
35 VILLAGE ROAD, MIDDLETON, MA 01949-1202

Signing Officer

Name
KATHLEEN O'SULLIVAN-FORTIN ESQ
Title
Treasurer
Phone
8335253266
Signed
2023-06-22
Discuss with paid preparer
Yes

Organization Details

Principal Officer
KATHLEEN M O'SULLIVAN-FORTIN ESQ
Formed
2013
Legal Domicile
Ma
Voting Board Members
14
Independent Board Members
14
Employees
0
Volunteers
25

Preparer

Firm
Bernard Johnson & Company Pc
Address
15 MAIN STREET, TOPSFIELD, MA 01983
Preparer
Timothy F Hagan CPA
Phone
9788872220
Supplemental Narrative

Additional Explanations

Pt VI, Line 11B

“A draft of form 990 is distributed to all board members; in particular, the board treasurer, to review and approve prior to filing. Any concerns are brought to the attention of the board treasurer for discussion and resolution.”

Pt VI, Line 12C

“On an annual basis, each board member and key employee completes, signs and delivers to the board treasurer or board president an annual affiliation disclosure statement naming any affiliation with ald connect's competing/collaborating organizations, vendors and consultants or other board members. All responses are reviewed by the executive board. Any responses raising concern are addressed and resolved in compliance with policy regarding conflicts of interest.”

Financial Statement Notes

Pt X, Line 2

“The accounting standard on accounting for uncertainty in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under that guidance, ald connect may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by the taxing authorities based on the technical merits of the position. The tax benefits recognized in the financial statements from such a position are measured based on the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilities at december 31, 2008.”

Raw XML AppendixShowing 400 of 529 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0true
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt017860
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt022919
IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION
IRS990/AdvertisingGrp/FundraisingAmt022814
IRS990/AdvertisingGrp/ManagementAndGeneralAmt00
IRS990/AdvertisingGrp/ProgramServicesAmt03910
IRS990/AdvertisingGrp/TotalAmt026724
IRS990/AllOtherContributionsAmt0256637
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0false
IRS990/BooksInCareOfDetail/PersonNm0KATHLEEN M O'SULLIVAN-FORTIN
IRS990/BooksInCareOfDetail/PhoneNum09782892395
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt06 BUTTONWOOD LANE
IRS990/BooksInCareOfDetail/USAddress/CityNm0IPSWICH
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd001938
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt01033490
IRS990/CashNonInterestBearingGrp/EOYAmt0930766
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/FundraisingAmt00
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt02389
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt0188984
IRS990/ConferencesMeetingsGrp/TotalAmt0191373
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt0121446
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0378083
IRS990/CYGrantsAndSimilarPaidAmt091196
IRS990/CYInvestmentIncomeAmt0267
IRS990/CYOtherExpensesAmt0395077
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-107923
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0486273
IRS990/CYTotalFundraisingExpenseAmt029352
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0378350
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/FundraisingAmt00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt0215
IRS990/DepreciationDepletionGrp/ProgramServicesAmt00
IRS990/DepreciationDepletionGrp/TotalAmt0215
IRS990/Desc0ALDC SPONSORS AN ANNUAL MEDICAL CONFERENCE, MAINTAINS A WEBSITE WITH EDUCATIONAL CONTENT, PRODUCES FREE WEBINARS, HOSTS SUPPORT CALLS FOR VARIOUS PATIENT GROUPS, AND RAISES AWARENESS. ALDC ALSO HOSTS A PATIENT PORTAL AND COLLECTS PATIENT HEALTH DATA. ALDC WORKS WITH ITS INDUSTRY ADVISORY COUNCIL TO BRING INDUSTRY REPRESENTATIVES TOGETHER TO ENCOURAGE THEIR WORK IN THE ALD/AMN FIELD.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt025000
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt03135
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0361742
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/FundraisingAmt00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt06813
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt00
IRS990/FeesForServicesAccountingGrp/TotalAmt06813
IRS990/FeesForServicesLegalGrp/FundraisingAmt00
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt0309
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt00
IRS990/FeesForServicesLegalGrp/TotalAmt0309
IRS990/FeesForServicesManagementGrp/FundraisingAmt04069
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt075377
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt041497
IRS990/FeesForServicesManagementGrp/TotalAmt0120943
IRS990/ForeignActivitiesInd0true
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/ProgramServicesAmt034250
IRS990/ForeignGrantsGrp/TotalAmt034250
IRS990/ForeignOfficeInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt010.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt130.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt44.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt55.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt65.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt82.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt92.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt122.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt132.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1410.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/PersonNm0FLORIAN EICHLER MD
IRS990/Form990PartVIISectionAGrp/PersonNm1KATHLEEN M O'SULLIVAN-FORTIN ESQ
IRS990/Form990PartVIISectionAGrp/PersonNm2PATRICIA CHAPMAN
IRS990/Form990PartVIISectionAGrp/PersonNm3GREGORY BENTON
IRS990/Form990PartVIISectionAGrp/PersonNm4JOSH BONKOWSKY MD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm5S ALI FATEMI MD
IRS990/Form990PartVIISectionAGrp/PersonNm6STEPHAN KEMP PHD
IRS990/Form990PartVIISectionAGrp/PersonNm7BENJAMIN LENAIL
IRS990/Form990PartVIISectionAGrp/PersonNm8TROY LUND PHD MD
IRS990/Form990PartVIISectionAGrp/PersonNm9TIMOTHY MAGUIRE
IRS990/Form990PartVIISectionAGrp/PersonNm10PATRICIA MUSOLINO MD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm11AMBER SALZMAN PHD
IRS990/Form990PartVIISectionAGrp/PersonNm12ALEX SHERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm13KEITH VAN HAREN MD
IRS990/Form990PartVIISectionAGrp/PersonNm14KELLY MIETTUNEN
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14101188
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt2CLERK
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02013
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/FundraisingAmt0121446
IRS990/FundraisingDirectExpensesAmt00
IRS990/FundraisingGrossIncomeAmt00
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GrantAmt071000
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt020196
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt020196
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt036750
IRS990/GrantsToDomesticOrgsGrp/TotalAmt036750
IRS990/GrantsToIndividualsInd0true
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0378350
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0true
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt014
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/FundraisingAmt00
IRS990/InsuranceGrp/ManagementAndGeneralAmt01117
IRS990/InsuranceGrp/ProgramServicesAmt00
IRS990/InsuranceGrp/TotalAmt01117
IRS990/IntangibleAssetsGrp/BOYAmt02899
IRS990/IntangibleAssetsGrp/EOYAmt02684
IRS990/InvestmentIncomeGrp/ExclusionAmt0267
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0267
IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt00
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/NetAssetsOrFundBalancesBOYAmt01019448
IRS990/NetAssetsOrFundBalancesEOYAmt0911525
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt00
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0994448
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0908390
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/FundraisingAmt00
IRS990/OccupancyGrp/ManagementAndGeneralAmt01814
IRS990/OccupancyGrp/ProgramServicesAmt00
IRS990/OccupancyGrp/TotalAmt01814
IRS990/OfficeExpensesGrp/FundraisingAmt00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt06933
IRS990/OfficeExpensesGrp/ProgramServicesAmt00
IRS990/OfficeExpensesGrp/TotalAmt06933
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherExpensesGrp/Desc0BANK SERVICE FEES
IRS990/OtherExpensesGrp/Desc1PATIENT SUPPORT/OUTREACH
IRS990/OtherExpensesGrp/FundraisingAmt02469
IRS990/OtherExpensesGrp/FundraisingAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0212
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ProgramServicesAmt00
IRS990/OtherExpensesGrp/ProgramServicesAmt136155
IRS990/OtherExpensesGrp/TotalAmt02681
IRS990/OtherExpensesGrp/TotalAmt136155
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0819
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0894
IRS990/PrincipalOfficerNm0KATHLEEN M O'SULLIVAN-FORTIN ESQ
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0461563
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt0-510
IRS990/PYOtherExpensesAmt0183979
IRS990/PYRevenuesLessExpensesAmt0277074
IRS990/PYTotalExpensesAmt0183979
IRS990/PYTotalRevenueAmt0461053
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-107923
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt0378083
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0100
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0100
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0378083
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0461563
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0339880
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0133805
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0154592
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01467923
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt0267
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0267
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt00
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt0-510
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt012825
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt08800
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt021115
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt0267
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0267
IRS990ScheduleA/InvestmentIncomeCYPct00.00020
IRS990ScheduleA/InvestmentIncomePYPct00.00000
IRS990ScheduleA/OtherSupportSumAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00
IRS990ScheduleA/PublicSupportCY509Pct00.99980
IRS990ScheduleA/PublicSupportPY509Pct01.00000
IRS990ScheduleA/PublicSupportTotal509Amt01489038
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0378083
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0461053
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0339880
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0146630
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0163392
IRS990ScheduleA/Total509Grp/TotalAmt01489038
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01489305
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE FINANCIAL STATEMENTS. UNDER THAT GUIDANCE, ALD CONNECT MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WILL BE SUSTAINED ON EXAMINATION BY THE TAXING AUTHORITIES BASED ON THE TECHNICAL MERITS OF THE POSITION. THE TAX BENEFITS RECOGNIZED IN THE FINANCIAL STATEMENTS FROM SUCH A POSITION ARE MEASURED BASED ON THE LARGEST BENEFIT THAT HAS A GREATER THAN 50% LIKELIHOOD OF BEING REALIZED UPON ULTIMATE SETTLEMENT. THERE WERE NO UNRECOGNIZED TAX BENEFITS IDENTIFIED OR RECORDED AS LIABILITIES AT DECEMBER 31, 2008.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Pt X, Line 2
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt034250
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0Europe
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0GRANTMAKING
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0MEDICAL RESEARCH
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt034250
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0Europe
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt034250
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0INTERNATIONAL ORGANIZATIONS MUST BE PREDETERMINED TO BE EQUIVALENT TO DOMESTIC 501(C)(3) ORGANIZATIONS OR FOLLOW THE EXPENDITURE RESPONSIBILITY PROCESS FOR ALD CONNECT TO CONSIDER THEM ELIGIBLE TO RECEIVE GRANTS. GRANTS ARE MONITORED THROUGH PERIODIC FINANCIAL REPORTS. GRANTEES ARE REQUIRED TO SUBMIT A FINANCIAL REPORT ACCOUNTING FOR THE USE OF GRANT FUNDS, INCLUDING AN ITEMIZATION OF EXPENSES, A LIST OF OTHER SOURCES OF FUNDING, AND OTHER RELEVANT ACCOUNTING INFORMATION. DETAILED REPORTS COVERING THE IMPLEMENTATION OF PROJECTS, ANALYSIS OF RESEARCH OUTCOMES, AND MEETING WITH REPRESENTATIVES OF GRANTEE ORGANIZATIONS AND BENEFICIARIES ARE FILED BY STAFF OR CONTRACTORS.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0Pt I Line 2
IRS990ScheduleF/Total501c3OrgCnt01
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalOtherOrgCnt00
IRS990ScheduleF/TotalSpentAmt034250
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt036750
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc00
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF UTAH

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$934,444
Liabilities
$22,919
Net assets
$911,525
Revenue
$378,350
Expenses
$486,273
Net income
-$107,923
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.25$0.02$1.24$0.57$0.35$0.22
2023Detailed filing. Detailed filing data is available for this year.$1.03$0.02$1.02$0.41$0.31$0.11
2022Detailed filing. Detailed filing data is available for this year.$0.93$0.02$0.91$0.38$0.49$0.11
2021Detailed filing. Detailed filing data is available for this year.$1.04$0.02$1.02$0.46$0.18$0.28
2020Detailed filing. Detailed filing data is available for this year.$0.75$0.01$0.74$0.34$0.13$0.21
2019Detailed filing. Detailed filing data is available for this year.$0.54$0.01$0.53$0.48$0.15$0.33
2018Detailed filing. Detailed filing data is available for this year.$0.21$0.00$0.20$0.16$0.11$0.05
2017Detailed filing. Detailed filing data is available for this year.$0.15$0.00$0.15$0.11$0.11$0.00
2016Detailed filing. Detailed filing data is available for this year.$0.15$0.00$0.15$0.09$0.11$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.24$0.07$0.17$0.46$0.44$0.02
2014Detailed filing. Detailed filing data is available for this year.$0.28$0.13$0.15$0.46$0.31$0.15
2013Summary only. Only limited summary data is available for this year.$0.01$0.00$0.01$0.00$0.01