Liabilities / Assets
44th percentile
Higher debt load relative to assets than 44% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
44th percentile
Higher debt load relative to assets than 44% of similar nonprofits.
Liabilities / Revenue
45th percentile
Higher debt load relative to revenue than 45% of similar nonprofits.
Net Margin
95th percentile
Higher net margin than 95% of similar nonprofits.
Top Officer Pay
54th percentile
Higher top officer pay than 54% of similar nonprofits.
Top officer pay equals 2.8% of source-year revenue.
Asset Growth
96th percentile
Faster asset growth than 96% of similar nonprofits.
Revenue Growth
96th percentile
Faster revenue growth than 96% of similar nonprofits.
Assets
Up$537,625
Up $331,833 (+161%) from 2018
Net Assets
Up$528,911
Up $327,044 (+162%) from 2018
Liabilities
Up$8,714
Up $4,789 (+122%) from 2018
Revenue
Up$479,962
Up $316,570 (+194%) from 2018
Expenses
Up$152,918
Up $42,019 (+38%) from 2018
Net Income
Up$327,044
Up $274,551 (+523%) from 2018
To improve health outcomes for individuals with x-linked adrenoleukodystrophy ("ald") by raising awareness, empowering patients, and accelerating the translation
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $205,792 | $537,625 | ▲ $331,833 |
| Total Assets | $205,792 | $537,625 | ▲ $331,833 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $3,925 | $8,714 | ▲ $4,789 |
| Total Liabilities | $3,925 | $8,714 | ▲ $4,789 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $151,867 | $496,411 | ▲ $344,544 |
| Net Assets With Donor Restrictions | $50,000 | $32,500 | ▼ $17,500 |
| Total Net Assets Fund Balance | $201,867 | $528,911 | ▲ $327,044 |
| Total Liabilities and Net Assets / Fund Balance | $205,792 | $537,625 | ▲ $331,833 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Kelly Miettunen | Executive Director | PT | $13,520 | $13,520 |
| Name | Title |
|---|---|
| Florian Eichler Md | President |
| Alex Sherman | Director |
| Amber Salzman Phd | Director |
| Benjamin Lenail | Director |
| Gregory Benton | Director |
| Jennifer Farmer | Director |
| Josh Bonkowsky Md Phd | Director |
| Keith Van Haren Md | Director |
| S Ali Fatemi Md | Director |
| Stephan Kemp Phd | Director |
| Timothy Maguire | Director |
| Troy Lund Phd Md | Director |
| Patricia Chapman | Clerk |
| KATHLEEN M O'SULLIVAN-FORTIN ESQ | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $152,918 |
| Total Fundraising Expense | $4,249 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $91,418 | $0 | $0 | $91,418 |
| Other Expenses | $17,500 | $0 | $0 | $17,500 |
| Fees for Services Management | $4,056 | $9,464 | $0 | $13,520 |
| Advertising | $10,168 | $2,645 | $0 | $12,813 |
| Office Expenses | $0 | $5,030 | $968 | $5,998 |
| Fees for Services Accounting | $0 | $4,680 | $0 | $4,680 |
| Fees for Services Other | $1,125 | $675 | $2,700 | $4,500 |
| Occupancy | $0 | $948 | $0 | $948 |
| Total Functional Expenses | $124,267 | $24,402 | $4,249 | $152,918 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“A draft of form 990 is distributed to all board members; in particular, the board treasurer, to review and approve prior to filing. Any concerns are brought to the attention of the board treasurer for discussion and resolution.”
“On an annual basis, each board member and key employee completes, signs and delivers to the board treasurer or board president an annual affiliation disclosure statement naming any affiliation with ald connect's competing/collaborating organizations, vendors and consultants or other board members. All responses are reviewed by the executive board. Any responses raising concern are addressed and resolved in compliance with policy regarding conflicts of interest.”
“On july 9, 2019, the myelin project, a nonprofit organization focusing on improving the lives of those living with ald and amn through research, advocacy and family support, executed a transfer agreement whereby substantially all of its assets ($333,332) were transferred to ald connect, inc. Ald connect, inc. Will continue to operate the myelin project's family support program through block grants to patients and their families.”
“The accounting standard on accounting for uncertainty in income taxes addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under that guidance, ald connect may recognize the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by the taxing authorities based on the technical merits of the position. The tax benefits recognized in the financial statements from such a position are measured based on the largest benefit that has a greater than 50% likelihood of being realized upon ultimate settlement. There were no unrecognized tax benefits identified or recorded as liabilities at december 31, 2008.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 3925 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 8714 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 0 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 2645 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 10168 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 12813 |
| IRS990/AllOtherContributionsAmt | 0 | 133805 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | false |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | KATHLEEN M O'SULLIVAN-FORTIN |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 9782892395 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 6 BUTTONWOOD LANE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | IPSWICH |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 01938 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 205792 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 537625 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 91418 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 91418 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 467137 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 152918 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 12825 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 327044 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 152918 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 4249 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 479962 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | ALDC SPONSORS AN ANNUAL MEDICAL CONFERENCE, MAINTAINS A WEBSITE WITH EDUCATIONAL CONTENT, PRODUCES FREE WEBINARS, HOSTS SUPPORT CALLS FOR VARIOUS PATIENT GROUPS, AND RAISES AWARENESS. ALDC ALSO HOSTS A PATIENT PORTAL AND COLLECTS PATIENT HEALTH DATA. ALDC WORKS WITH ITS INDUSTRY ADVISORY COUNCIL TO BRING INDUSTRY REPRESENTATIVES TOGETHER TO ENCOURAGE THEIR WORK IN THE ALD/AMN FIELD. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 50000 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 32500 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 124267 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 4680 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 4680 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 9464 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 4056 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 13520 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 2700 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 675 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 1125 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 4500 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 30.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | FLORIAN EICHLER MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | KATHLEEN M O'SULLIVAN-FORTIN ESQ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | PATRICIA CHAPMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | GREGORY BENTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | JOSH BONKOWSKY MD PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | JENNIFER FARMER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | S ALI FATEMI MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | STEPHAN KEMP PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | BENJAMIN LENAIL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | TROY LUND PHD MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | TIMOTHY MAGUIRE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | AMBER SALZMAN PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | ALEX SHERMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | KEITH VAN HAREN MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | KELLY MIETTUNEN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 13520 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CLERK |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2013 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 14 |
| IRS990/GrantAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 479962 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 14 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 2 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 201867 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 528911 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 151867 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 496411 |
| IRS990/NoncashContributionsAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 948 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 948 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 968 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 5030 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 5998 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | BANK SERVICE FEES |
| IRS990/OtherExpensesGrp/Desc | 1 | TRAINING AND EDUCATION |
| IRS990/OtherExpensesGrp/Desc | 2 | COMMUNITY OUTREACH |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 581 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 960 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 17500 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 581 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 960 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 17500 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | KATHLEEN M O'SULLIVAN-FORTIN ESQ |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 541711 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE REGISTRATION FEES |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 12825 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
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| IRS990/PYContributionsGrantsAmt | 0 | 154592 |
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| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE FINANCIAL STATEMENTS. UNDER THAT GUIDANCE, ALD CONNECT MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WILL BE SUSTAINED ON EXAMINATION BY THE TAXING AUTHORITIES BASED ON THE TECHNICAL MERITS OF THE POSITION. THE TAX BENEFITS RECOGNIZED IN THE FINANCIAL STATEMENTS FROM SUCH A POSITION ARE MEASURED BASED ON THE LARGEST BENEFIT THAT HAS A GREATER THAN 50% LIKELIHOOD OF BEING REALIZED UPON ULTIMATE SETTLEMENT. THERE WERE NO UNRECOGNIZED TAX BENEFITS IDENTIFIED OR RECORDED AS LIABILITIES AT DECEMBER 31, 2008. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | A DRAFT OF FORM 990 IS DISTRIBUTED TO ALL BOARD MEMBERS; IN PARTICULAR, THE BOARD TREASURER, TO REVIEW AND APPROVE PRIOR TO FILING. ANY CONCERNS ARE BROUGHT TO THE ATTENTION OF THE BOARD TREASURER FOR DISCUSSION AND RESOLUTION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | ON AN ANNUAL BASIS, EACH BOARD MEMBER AND KEY EMPLOYEE COMPLETES, SIGNS AND DELIVERS TO THE BOARD TREASURER OR BOARD PRESIDENT AN ANNUAL AFFILIATION DISCLOSURE STATEMENT NAMING ANY AFFILIATION WITH ALD CONNECT'S COMPETING/COLLABORATING ORGANIZATIONS, VENDORS AND CONSULTANTS OR OTHER BOARD MEMBERS. ALL RESPONSES ARE REVIEWED BY THE EXECUTIVE BOARD. ANY RESPONSES RAISING CONCERN ARE ADDRESSED AND RESOLVED IN COMPLIANCE WITH POLICY REGARDING CONFLICTS OF INTEREST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | ON JULY 9, 2019, THE MYELIN PROJECT, A NONPROFIT ORGANIZATION FOCUSING ON IMPROVING THE LIVES OF THOSE LIVING WITH ALD AND AMN THROUGH RESEARCH, ADVOCACY AND FAMILY SUPPORT, EXECUTED A TRANSFER AGREEMENT WHEREBY SUBSTANTIALLY ALL OF ITS ASSETS ($333,332) WERE TRANSFERRED TO ALD CONNECT, INC. ALD CONNECT, INC. WILL CONTINUE TO OPERATE THE MYELIN PROJECT'S FAMILY SUPPORT PROGRAM THROUGH BLOCK GRANTS TO PATIENTS AND THEIR FAMILIES. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt VI, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Pt VI, Line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Pt III, Line 2 |
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| ReturnHeader/BuildTS | 0 | 2021-01-29 14:40:06Z |
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| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | KATHLEEN O'SULLIVAN-FORTIN ESQ |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.