Liabilities / Assets
54th percentile
Tied with the lowest-debt nonprofits in its peer group.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
54th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
54th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
58th percentile
Higher net margin than 58% of similar nonprofits.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
67th percentile
Faster asset growth than 67% of similar nonprofits.
Revenue Growth
76th percentile
Faster revenue growth than 76% of similar nonprofits.
Assets
Up$87,248
Up $10,040 (+13%) from 2017
Net Assets
Up$87,248
Up $10,040 (+13%) from 2017
Liabilities
Flat$0
Flat from 2017
Revenue
Up$148,913
Up $29,057 (+24%) from 2017
Expenses
Up$138,873
Up $70,144 (+102%) from 2017
Net Income
Down$10,040
Down $41,087 (-80%) from 2017
Believing in the value of sleep, Project Sleep aims to improve public health by educating individuals about the importance of sleep health and sleep disorders. Project Sleep will educate and empower individuals using events, campaigns and programs to bring people together and talk about sleep as a pillar of health.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $77,208 | $87,248 | ▲ $10,040 |
| Savings and Temporary Cash Investments | - | $0 | - |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Prepaid Expenses and Deferred Charges | - | $0 | - |
| Total Assets | $77,208 | $87,248 | ▲ $10,040 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $77,208 | $87,248 | ▲ $10,040 |
| Total Net Assets Fund Balance | $77,208 | $87,248 | ▲ $10,040 |
| Total Liabilities and Net Assets / Fund Balance | $77,208 | $87,248 | ▲ $10,040 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Julie Louise Flygare | President | FT | $65,625 | $65,625 |
| Name | Title |
|---|---|
| Julie Glazer Scher | Chair |
| Melissa Buron | Director |
| Tracy Christensen | Secretary |
| Ed Sweet | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $75,133 |
| Other Expenses | $49,740 |
| Grants and Similar Amounts Paid | $14,000 |
| Total Fundraising Expense | $751 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $63,000 | $1,969 | $656 | $65,625 |
| Grants to Domestic Individuals | $14,000 | - | - | $14,000 |
| Fees for Services Other | $13,280 | - | - | $13,280 |
| Travel | $10,195 | - | - | $10,195 |
| All Other Expenses | $5,264 | $2,546 | - | $7,810 |
| Payroll Taxes | $4,819 | $151 | $50 | $5,020 |
| Other Employee Benefits | $4,308 | $135 | $45 | $4,488 |
| Other Expenses | $2,323 | $2,226 | - | $2,226 |
| Office Expenses | $213 | $1,842 | - | $2,055 |
| Insurance | - | $1,350 | - | $1,350 |
| Occupancy | $800 | - | - | $800 |
| Total Functional Expenses | $126,828 | $11,294 | $751 | $138,873 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Officers and board of directors reviews the form 990 prior to filing”
“The board of directors regularly monitors potential conflicts to ensure continuous compliance”
“The board of directors reviews comparability data, taking into consideration the location and similar non-profit size, to determine President/CEO compensation”
“No documents available to the public.”
“OTHER PROGRAM SERVICES 4: NARCOLEPSY: NOT ALONE - an on-going online awareness campaign with it's own website (www.narcolepsynotalone.com) to raise awareness of narcolepsy by collecting photos of people who have narcolepsy and support people with narcolepsy and to let people living with narcolepsy know they are not alone. OTHER PROGRAM SERVICES 5: SLEEP IN - a virtual awareness campaign to raise awareness of sleep health and sleep disorders during National Sleep Awareness Week. Project Sleep sends out prize-packs to a few super-star participants for their significant activity. OTHER PROGRAM SERVICES 6: SLEEP RESEARCH EDUCATION AND ADVOCACY - A COLLABORATION WITH THE SLEEP RESEARCH SOCIETY TO LEVERAGE FIRST-HAND PATIENT PERSPECTIVES AND GRASSROOTS ENGAGEMENT TO ADVOCATE IN FRONT OF CONGRESSIONAL AND FEDERAL AGENCY LEADERSHIP. OTHER PROGRAM SERVICES 7: NARCOLEPSY AWARENESS PROGRAM (NAP) - THE NARCOLEPSY AWARENESS PROGRAM AIMS TO INCREASE AWARENESS TO KEY AUDIENCES WHO ARE CURRENTLY LACKING KNOWLEDGE AND UNDERSTANDING OF NARCOLEPSY. AT THE SAME TIME, WE WILL REDUCE BOTH SELF-STIGMA AND SOCIETAL STIGMA BY PROVIDING PEOPLE WITH NARCOLEPSY WITH THE LEADERSHIP, ROLE MODELING, AND VITAL OPPORTUNITIES AND RESOURCES TO FEEL HOPE, INSPRIATION, CONNECTION AND EMPOWERMENT TO SUCCEED WITH NARCOLEPSY. NAP PROGRAM TACTICS INCLUDE MEDIA EFFORTS, SPEAKING ENGAGEMENTS, EVERGREEN NARCOLEPSY RESOURCES, FRESH NEWS CONTENT, AND A NARCOLEPSY AWARENESS CAMPAIGN.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | Believing in the value of sleep, Project Sleep aims to improve public health by educating individuals about the importance of sleep health and sleep disorders. Project Sleep will educate and empower individuals using events, campaigns and programs to bring people together and talk about sleep as a pillar of health. |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 0 |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 135436 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2546 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 5264 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 7810 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | JULIE SCHER |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3235778923 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO BOX 70206 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | LOS ANGELES |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 900700201 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 77208 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 87248 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 656 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 1969 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 63000 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 65625 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 148913 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 14000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 49740 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 10040 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 75133 |
| IRS990/CYTotalExpensesAmt | 0 | 138873 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 751 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 148913 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | NARCOLEPSY AWARENESS PROGRAM (NAP) - THE NARCOLEPSY AWARENESS PROGRAM AIMS TO INCREASE AWARENESS TO KEY AUDIENCES WHO ARE CURRENTLY LACKING KNOWLEDGE AND UNDERSTANDING OF NARCOLEPSY. AT THE SAME TIME, WE WILL REDUCE BOTH SELF-STIGMA AND SOCIETAL STIGMA BY PROVIDING PEOPLE WITH NARCOLEPSY WITH THE LEADERSHIP, ROLE MODELING, AND VITAL OPPORTUNITIES AND RESOURCES TO FEEL HOPE, INSPRIATION, CONNECTION AND EMPOWERMENT TO SUCCEED WITH NARCOLEPSY. NAP PROGRAM TACTICS INCLUDE MEDIA EFFORTS, SPEAKING ENGAGEMENTS, EVERGREEN NARCOLEPSY RESOURCES, FRESH NEWS CONTENT, AND A NARCOLEPSY AWARENESS CAMPAIGN. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | false |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 50217 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 13280 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 13280 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JULIE LOUISE FLYGARE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | TRACY CHRISTENSEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JULIE GLAZER SCHER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ED SWEET |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MELISSA BURON |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 65625 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | false |
| IRS990/FormationYr | 0 | 2013 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 5 |
| IRS990/GovernmentGrantsAmt | 0 | 13477 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 14000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 14000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToIndividualsInd | 0 | true |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 148913 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 5 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1350 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1350 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/InvestTaxExemptBondsInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LicensedMoreThanOneStateInd | 0 | false |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | true |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | false |
| IRS990/MissionDesc | 0 | Believing in the value of sleep, Project Sleep aims to improve public health by educating individuals about the importance of sleep health and sleep disorders. Project Sleep will educate and empower individuals using events, campaigns and programs to bring people together and talk about sleep as a pillar of health. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 77208 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 87248 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 800 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 800 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1842 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 213 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 2055 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OnBehalfOfIssuerInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OrgFiledInLieuOfForm1041Ind | 0 | false |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 45 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 135 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 4308 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 4488 |
| IRS990/OtherExpensesGrp/Desc | 0 | WEBSITE & LISTSERV |
| IRS990/OtherExpensesGrp/Desc | 1 | GRAPHIC DESIGN-NAP |
| IRS990/OtherExpensesGrp/Desc | 2 | Printing and Publications |
| IRS990/OtherExpensesGrp/Desc | 3 | ACCOUNTING |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1075 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 2226 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 4762 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 3864 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 2323 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 4762 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 3864 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 3398 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2226 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 0 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 50 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 151 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 4819 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 5020 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | JULIE LOUISE FLYGARE |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Rising Voices of Narcolepsy, a leadership training program to help people with narcolepsy effectively share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond.Narcolepsy is a chronic neurological disorder of the sleep-wake cycle that affects about three million people worldwide. However, public understanding of narcolepsy is limited, with media portrayals associating narcolepsy with comical sleepiness rather than a medical condition. As a result, people with narcolepsy (PWN) often face stigma and isolation as they are mislabeled as antisocial, faking and unmotivated. Misconceptions and low awareness of narcolepsy also perpetuate delays in proper detection and diagnosis.At the same time, communicating about narcolepsy can be challenging. Many aspects of living with narcolepsy are invisible to peers, family, teachers and even medical professionals. The Rising Voices of Narcolepsy program aims to address this unmet need in the narcolepsy community.This program will serve the dual purpose of fostering a new generation of narcolepsy patient-advocates spreading awareness while also empowering participants. Personal stories of health and illness are invaluable public education tools. Audiences are much more likely to empathize and retain information when it is delivered by someone with lived experience, giving a real face to medical terminology and statistics. Moreover, for those with invisible illnesses like narcolepsy, sharing ones story is a powerful way to find connection, validation and understanding. Participants will not only gain valuable communication skills, but will also build confidence in their unique and important stories. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 37953 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 20260 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Project Sleeps Jack & Julie Narcolepsy Scholarship is the first-ever national scholarship program supporting students with narcolepsy while also raising narcolepsy awareness in high school and college settings. Project Sleep awarded 14 scholarships in the 2018 Jack & Julie Narcolepsy Scholarship program. Recipients are graduating high school seniors who will each receive $1,000 toward their college education. The 14 students selected accelerate the scholarship program to new heights, having now awarded 50 scholarships totaling $50,000 over the last five years.Narcolepsy is a neurological disorder affecting 1 in 2,000 people worldwide. Symptoms include excessive sleepiness, cataplexy (sudden muscle weakness triggered by emotions), sleep paralysis and frightening hallucinations while falling asleep or waking up. |
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| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 8000 |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | OTHER PROGRAM SERVICES 4: NARCOLEPSY: NOT ALONE - an on-going online awareness campaign with it's own website (www.narcolepsynotalone.com) to raise awareness of narcolepsy by collecting photos of people who have narcolepsy and support people with narcolepsy and to let people living with narcolepsy know they are not alone. OTHER PROGRAM SERVICES 5: SLEEP IN - a virtual awareness campaign to raise awareness of sleep health and sleep disorders during National Sleep Awareness Week. Project Sleep sends out prize-packs to a few super-star participants for their significant activity. OTHER PROGRAM SERVICES 6: SLEEP RESEARCH EDUCATION AND ADVOCACY - A COLLABORATION WITH THE SLEEP RESEARCH SOCIETY TO LEVERAGE FIRST-HAND PATIENT PERSPECTIVES AND GRASSROOTS ENGAGEMENT TO ADVOCATE IN FRONT OF CONGRESSIONAL AND FEDERAL AGENCY LEADERSHIP. OTHER PROGRAM SERVICES 7: NARCOLEPSY AWARENESS PROGRAM (NAP) - THE NARCOLEPSY AWARENESS PROGRAM AIMS TO INCREASE AWARENESS TO KEY AUDIENCES WHO ARE CURRENTLY LACKING KNOWLEDGE AND UNDERSTANDING OF NARCOLEPSY. AT THE SAME TIME, WE WILL REDUCE BOTH SELF-STIGMA AND SOCIETAL STIGMA BY PROVIDING PEOPLE WITH NARCOLEPSY WITH THE LEADERSHIP, ROLE MODELING, AND VITAL OPPORTUNITIES AND RESOURCES TO FEEL HOPE, INSPRIATION, CONNECTION AND EMPOWERMENT TO SUCCEED WITH NARCOLEPSY. NAP PROGRAM TACTICS INCLUDE MEDIA EFFORTS, SPEAKING ENGAGEMENTS, EVERGREEN NARCOLEPSY RESOURCES, FRESH NEWS CONTENT, AND A NARCOLEPSY AWARENESS CAMPAIGN. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | OFFICERS AND BOARD OF DIRECTORS REVIEWS THE FORM 990 PRIOR TO FILING |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE BOARD OF DIRECTORS REGULARLY MONITORS POTENTIAL CONFLICTS TO ENSURE CONTINUOUS COMPLIANCE |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | The board of directors reviews comparability data, taking into consideration the location and similar non-profit size, to determine President/CEO compensation |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | No documents available to the public. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part III, Line 4d: Other Program Services Description |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Line 11b: Form 990 Review Process |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Form 990, Part VI, Line 19: Other Organization Documents Publicly Available |
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| ReturnHeader/BuildTS | 0 | 2020-03-31 21:24:44Z |
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| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | JULIE LOUISE FLYGARE |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.