Civic Intelligence

International Neuroendocrine Cancer

EIN 46-2961023 • 501(c)3 • Newton, MA

Profile

Organization's mission is to be the global advocate for neuroendocrine cancer patients. Statements of Purpose:1. Serving as the global voice in support of neuroendocrine cancer patients and facilitator of global action;2. Raising awareness about neuroendocrine cancer among members of the healthcare community and the general public;3. Supporting research to develop better treatments and cures for all forms of neuroendocrine cancer;4. Disseminating accurate information about neuroendocrine cancer;5. Helping members of the corporation to better achieve their goals through global collaboration;6. Sharing best practices and experiences with member organizations and other neuroendocrine cancer groups from around the world in order to build their capacity; and7. Mentoring newly established, and guiding those who wish to establish, neuroendocrine cancer patient and patient advocate groups.

1150 Walnut StreetNewton, MA 02461

n/A

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

75th percentile

0.05x

Higher debt load relative to assets than 75% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Liabilities / Revenue

78th percentile

0.05x

Higher debt load relative to revenue than 78% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Net Margin

62nd percentile

9.1%

Higher net margin than 62% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2025

Asset Growth

64th percentile

6.1%

Faster asset growth than 64% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2024 to 2025

Revenue Growth

58th percentile

4.1%

Faster revenue growth than 58% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2024 to 2025

Assets

Up

$381,709

Up $21,884 (+6.1%) from 2024

Liabilities

Down

$18,242

Down $14,350 (-44%) from 2024

Net Assets

Up

$363,467

Up $36,234 (+11%) from 2024

Revenue

Up

$398,393

Up $15,723 (+4.1%) from 2024

Expenses

Down

$362,159

Down $8,438 (-2.3%) from 2024

Net Income

Up

$36,234

Up $24,161 (+200%) from 2024

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$400K$300K$200K$100K$0Assets 2015: $321,943Liabilities 2015: $5,625Net Assets 2015: $316,3182015Assets 2016: $348,593Liabilities 2016: $12,276Net Assets 2016: $336,3172016Assets 2017: $368,363Liabilities 2017: $13,107Net Assets 2017: $355,2562017Assets 2018: $336,978Liabilities 2018: $1,605Net Assets 2018: $335,3732018Assets 2019: $320,445Liabilities 2019: $386Net Assets 2019: $320,0592019Assets 2020: $322,740Liabilities 2020: $400Net Assets 2020: $322,3402020Assets 2021: $384,323Liabilities 2021: $54,479Net Assets 2021: $329,8442021Assets 2022: $320,758Liabilities 2022: $0Net Assets 2022: $320,7582022Assets 2023: $315,160Liabilities 2023: $0Net Assets 2023: $315,1602023Assets 2024: $359,825Liabilities 2024: $32,592Net Assets 2024: $327,2332024Assets 2025: $381,709Liabilities 2025: $18,242Net Assets 2025: $363,4672025

Highlighted filing

2025

Assets$381,709
Liabilities$18,242
Net Assets$363,467

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$200K$0-$200KRevenue 2015: $160,632Expenses 2015: $190,437Net Income 2015: -$29,8052015Revenue 2016: $171,693Expenses 2016: $151,694Net Income 2016: $19,9992016Revenue 2017: $192,197Expenses 2017: $173,258Net Income 2017: $18,9392017Revenue 2018: $172,514Expenses 2018: $192,397Net Income 2018: -$19,8832018Revenue 2019: $177,381Expenses 2019: $192,695Net Income 2019: -$15,3142019Revenue 2020: $200,299Expenses 2020: $198,018Net Income 2020: $2,2812020Revenue 2021: $182,733Expenses 2021: $175,229Net Income 2021: $7,5042021Revenue 2022: $257,057Expenses 2022: $266,143Net Income 2022: -$9,0862022Revenue 2023: $265,460Expenses 2023: $271,058Net Income 2023: -$5,5982023Revenue 2024: $382,670Expenses 2024: $370,597Net Income 2024: $12,0732024Revenue 2025: $398,393Expenses 2025: $362,159Net Income 2025: $36,2342025

Highlighted filing

2025

Revenue$398,393
Expenses$362,159
Net Income$36,234

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2025 to Dec 31, 2025
Signed
Feb 27, 2026
Return Version
2025v4.0
Gross Receipts
$398,393
Mission and Program Overview

Mission

Organization's mission is to be the global advocate for neuroendocrine cancer patients. Statements of Purpose:1. Serving as the global voice in support of neuroendocrine cancer patients and facilitator of global action;2. Raising awareness about neuroendocrine cancer among members of the healthcare community and the general public;3. Supporting research to develop better treatments and cures for all forms of neuroendocrine cancer;4. Disseminating accurate information about neuroendocrine cancer;5. Helping members of the corporation to better achieve their goals through global collaboration;6. Sharing best practices and experiences with member organizations and other neuroendocrine cancer groups from around the world in order to build their capacity; and7. Mentoring newly established, and guiding those who wish to establish, neuroendocrine cancer patient and patient advocate groups.

Organization's mission is to be the global advocate for neuroendocrine cancer patients

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$340,912$360,698▲ $19,786
Accounts Receivable$18,510$20,321▲ $1,811
Prepaid Expenses and Deferred Charges$403$690▲ $287
Savings and Temporary Cash Investments-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$359,825$381,709▲ $21,884
Other Assets Total-$0-
Liabilities
Deferred Revenue$28,500$15,000▼ $13,500
Accounts Payable and Accrued Expenses$4,092$3,242▼ $850
Total Liabilities$32,592$18,242▼ $14,350
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$327,233$363,467▲ $36,234
Total Net Assets Fund Balance$327,233$363,467▲ $36,234
Total Liabilities and Net Assets / Fund Balance$359,825$381,709▲ $21,884
Compensation and Service Providers

Board Members and Trustees

NameTitle
Stephanie AlbandPresident
Meredith CumminsPresident-Elect
Benard RonoDirector
Christine Rodien-LouwDirector
Duncan MacduffDirector
Ignacio ZervinoDirector
Simona BarbiSecretary
Lisa YenTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Pr Net LtdManagement24 Ekzarh Iosif St, Sofia, Bu$141,331
Revenue and Support

Revenue Composition

Contributions and Grants
$381,489
Program Service Revenue
$0
Investment Income
$8,061
Other Revenue
$8,843
All Other Contributions
$381,489
Change in Net Assets
$36,234
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$362,159
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Travel$50,233--$50,233
Other Expenses$29,592$17,674-$17,674
Conferences and Meetings$13,962--$13,962
Fees for Services Accounting-$11,320-$11,320
All Other Expenses-$2,547-$2,547
Insurance-$1,092-$1,092
Total Functional Expenses$329,526$32,633$0$362,159
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, Line 3

Organization utilizes a management company to perform organizational leadership and administrative functions.

Form 990, Part VI, Section A, Line 6

Organization has members

Form 990, Part VI, Section B, Line 11B

Form 990 provided to Treasurer for review prior to filing.

Form 990, Part VI, Section C, Line 19

No documents available to the public.

Filing and Contact Details

Filer

Filer Name
International Neuroendocrine Cancer
EIN
46-2961023
Phone
6176306900
Address
1150 Walnut Street, Newton, MA 02461

Signing Officer

Name
Lisa Yen
Title
Treasurer
Signed
2026-02-27
Discuss with paid preparer
Yes

Organization Details

Formed
2013
Legal Domicile
Il
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
10

Preparer

Firm
Barnes Givens & Barnes Ltd
Address
200 E Evergreen Ave Suite 117, Mount Prospect, IL 60056
Preparer
William J Barnes
Phone
2247642442
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IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt055710
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0368477
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt09903
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0370597
IRS990/PYOtherRevenueAmt04290
IRS990/PYRevenuesLessExpensesAmt012073
IRS990/PYTotalExpensesAmt0370597
IRS990/PYTotalRevenueAmt0382670
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt036234
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/EOYAmt00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0368477
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0258728
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0249572
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0179926
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01438192
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt08061
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt09903
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt02629
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt069
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt0127
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt020789
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt04103
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt07416
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt02680
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt014199
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt08061
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt09903
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt02629
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt069
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt0127
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt020789
IRS990ScheduleA/InvestmentIncomeCYPct00.01400
IRS990ScheduleA/InvestmentIncomePYPct00.01000
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt08843
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt04290
IRS990ScheduleA/OtherIncome509Grp/TotalAmt013133
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.97720
IRS990ScheduleA/PublicSupportPY509Pct00.98660
IRS990ScheduleA/PublicSupportTotal509Amt01452391
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0381489
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0368477
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0262831
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0256988
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0182606
IRS990ScheduleA/Total509Grp/TotalAmt01452391
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0398393
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0382670
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0265460
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0257057
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0182733
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01486313
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ORGANIZATION UTILIZES A MANAGEMENT COMPANY TO PERFORM ORGANIZATIONAL LEADERSHIP AND ADMINISTRATIVE FUNCTIONS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Organization has members
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Form 990 provided to Treasurer for review prior to filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3No documents available to the public.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, Line 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, Line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0359825
IRS990/TotalAssetsEOYAmt0381709
IRS990/TotalAssetsGrp/BOYAmt0359825
IRS990/TotalAssetsGrp/EOYAmt0381709
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0381489
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt032633
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0329526
IRS990/TotalFunctionalExpensesGrp/TotalAmt0362159
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt032592
IRS990/TotalLiabilitiesEOYAmt018242
IRS990/TotalLiabilitiesGrp/BOYAmt032592
IRS990/TotalLiabilitiesGrp/EOYAmt018242
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0327233
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0363467
IRS990/TotalProgramServiceExpensesAmt0329526
IRS990/TotalProgramServiceRevenueAmt00
IRS990/TotalRevenueGrp/ExclusionAmt08061
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt08843
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0398393
IRS990/TotalVolunteersCnt010
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0359825
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0381709
IRS990/TravelGrp/ProgramServicesAmt050233
IRS990/TravelGrp/TotalAmt050233
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt01150 Walnut Street
IRS990/USAddress/CityNm0Newton

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