Civic Intelligence

A Cure for Ellie

990 • Fiscal year 2020 • EIN 46-2829156

Jan 01, 2020 to Dec 31, 2020 • Filed on Oct 14, 2021

Organization Profilewww.acureforellie.org
3520 S Wakefield StArlington, VA 22206

(202) 487-4235

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

27th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Liabilities / Revenue

27th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Net Margin

79th percentile

29%

Higher net margin than 79% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Top Officer Pay

51st percentile

$0

Higher top officer pay than 51% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Asset Growth

96th percentile

265%

Faster asset growth than 96% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Revenue Growth

93rd percentile

114%

Faster revenue growth than 93% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets27th percentile

Assets

Up

$260,193

Up $188,921 (+265%) from 2019

Net Assets

Up

$260,193

Up $188,921 (+265%) from 2019

Liabilities

Flat

$0

Flat from 2019

Revenue And Expenses
Liabilities / Revenue27th percentileNet Margin79th percentile

Revenue

Up

$659,411

Up $351,129 (+114%) from 2019

Expenses

Up

$470,491

Up $190,724 (+68%) from 2019

Net Income

Up

$188,920

Up $160,405 (+563%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth96th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2013: $17,253Liabilities 2013: $02013Assets 2017: $44,532Liabilities 2017: $0Net Assets 2017: $44,5302017Assets 2018: $43,192Liabilities 2018: $0Net Assets 2018: $43,1922018Assets 2019: $71,272Liabilities 2019: $0Net Assets 2019: $71,2722019Assets 2020: $260,193Liabilities 2020: $0Net Assets 2020: $260,1932020Assets 2021: $444,924Liabilities 2021: $0Net Assets 2021: $444,9242021Assets 2022: $535,129Liabilities 2022: $0Net Assets 2022: $535,1292022Assets 2023: $739,400Liabilities 2023: $0Net Assets 2023: $739,4002023Assets 2024: $955,625Liabilities 2024: $0Net Assets 2024: $955,6252024

Highlighted filing

2020

Assets$260,193
Liabilities$0
Net Assets$260,193
Open 2020 Filing

Operations Trend

Revenue Growth93rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KRevenue 2013: $17,995Expenses 2013: $743Net Income 2013: $17,2522013Revenue 2017: $100,598Expenses 2017: $74,942Net Income 2017: $25,6562017Revenue 2018: $107,860Expenses 2018: $109,261Net Income 2018: -$1,4012018Revenue 2019: $308,282Expenses 2019: $279,767Net Income 2019: $28,5152019Revenue 2020: $659,411Expenses 2020: $470,491Net Income 2020: $188,9202020Revenue 2021: $599,293Expenses 2021: $414,562Net Income 2021: $184,7312021Revenue 2022: $1,410,138Expenses 2022: $1,319,933Net Income 2022: $90,2052022Revenue 2023: $1,852,552Expenses 2023: $1,661,665Net Income 2023: $190,8872023Revenue 2024: $1,052,682Expenses 2024: $845,152Net Income 2024: $207,5302024

Highlighted filing

2020

Revenue$659,411
Expenses$470,491
Net Income$188,920
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Oct 14, 2021
Return Version
2020v4.0
Gross Receipts
$659,411
Mission and Program Overview

Mission

Provide funding to rare disease research & support affected families

Fund research on mitochondrial disease and LeukodystrophyLBSL and support affected families

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$71,272$260,193▲ $188,921
Total Assets$71,272$260,193▲ $188,921
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$71,272$260,193▲ $188,921
Total Net Assets Fund Balance$71,272$260,193▲ $188,921
Total Liabilities and Net Assets / Fund Balance$71,272$260,193▲ $188,921
Compensation and Service Providers
Top Officer Pay51st percentile

Board Members and Trustees

NameTitle
Chris GulugianDirector
Eliabeth McginnDirector
Elizabeth GulugianDirector
Lance SternDirector
Megan MitchellDirector
Michael McginnDirector
Morgan SternDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$659,411
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$659,411
Change in Net Assets
$188,920
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$450,000
Other Expenses$20,491
Total Fundraising Expense$442
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$450,000--$450,000
Information Technology-$1,947-$1,947
Conferences and Meetings-$1,853-$1,853
Fees for Services Management$1,059--$1,059
Office Expenses-$475-$475
Advertising--$442$442
Other Expenses-$249-$249
All Other Expenses-$47-$47
Travel-$10-$10
Total Functional Expenses$451,059$18,990$442$470,491
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Kennedy Krieger InstituteBaltimore, MD-Rare Disease Research$450,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Part VI Line 1A

“There are no differences”

Part VI Line 2

“Yes, the seven member board is has three married couples.”

Part VI Line 8B

“There are no commitees. Just the board of directors.”

Part VI Line 9

“Lance and Morgan Stern - 35 Palazzo, Newport Beach, CA 92660, Chris and”

Part VI Line 9

“Elizabeth Gulugian - 2672 Oakton Glen Dr, Vienna, Virginia 22181, Megan Mit”

Part VI Line 11B

“We will send by email once completed and submitted and will post to our”

Part VI Line 11B

“website.”

Part VI Line 12C

“We have regular board meetings and approve major expenses and grants.”

Part VI Line 12C

“We also raise the issue to see if anyone could have a conflict.”

Part VI Line 19

“We do not make our policies public but they are available upon request”

Filing and Contact Details

Filer

Filer Name
A Cure for Ellie
EIN
46-2829156
In Care Of
% Elizabeth McGinn
Phone
2024874235
Address
3520 S Wakefield St, Arlington, VA 22206

Signing Officer

Name
Elizabeth Mcginn
Title
Director
Phone
2024874235
Signed
2021-10-14

Organization Details

Principal Officer
Elizabeth a Mcginn
Formed
2013
Legal Domicile
Va
Voting Board Members
7
Independent Board Members
7
Employees
0
Supplemental Narrative

Additional Explanations

Part V Line 3B

“We do not have unrelated”

Part V Line 3B

“business income.”

Raw XML Appendix337 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1business income.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2There are no differences
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Yes, the seven member board is has three married couples.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4There are no commitees. Just the board of directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Lance and Morgan Stern - 35 Palazzo, Newport Beach, CA 92660, Chris and
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6Elizabeth Gulugian - 2672 Oakton Glen Dr, Vienna, Virginia 22181, Megan Mit
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt7We will send by email once completed and submitted and will post to our
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt8website.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt9We have regular board meetings and approve major expenses and grants.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt10We also raise the issue to see if anyone could have a conflict.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt11We do not make our policies public but they are available upon request
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IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt071272
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0260193
IRS990/TravelGrp/ManagementAndGeneralAmt010
IRS990/TravelGrp/TotalAmt010
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0true
IRS990/USAddress/AddressLine1Txt03520 S Wakefield St
IRS990/USAddress/CityNm0Arlington
IRS990/USAddress/StateAbbreviationCd0VA
IRS990/USAddress/ZIPCd022206
IRS990/VotingMembersGoverningBodyCnt07
IRS990/VotingMembersIndependentCnt07
IRS990/WebsiteAddressTxt0www.acureforellie.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd01
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/PersonNm0ELIZABETH MCGINN
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Director
ReturnHeader/BusinessOfficerGrp/PhoneNum02024874235
ReturnHeader/BusinessOfficerGrp/SignatureDt02021-10-14
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0A Cure for Ellie
ReturnHeader/Filer/BusinessNameControlTxt0ACUR
ReturnHeader/Filer/EIN0462829156
ReturnHeader/Filer/InCareOfNm0% Elizabeth McGinn
ReturnHeader/Filer/PhoneNum02024874235
ReturnHeader/Filer/USAddress/AddressLine1Txt03520 S Wakefield St
ReturnHeader/Filer/USAddress/CityNm0Arlington
ReturnHeader/Filer/USAddress/StateAbbreviationCd0VA
ReturnHeader/Filer/USAddress/ZIPCd022206
ReturnHeader/ReturnTs02021-10-14T17:13:50-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0ELIZABETH
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0MCGINN
ReturnHeader/TaxPeriodBeginDt02020-01-01
ReturnHeader/TaxPeriodEndDt02020-12-31
ReturnHeader/TaxYr02020

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$260,193
Liabilities
$0
Net assets
$260,193
Revenue
$659,411
Expenses
$470,491
Net income
$188,920
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.96$0.00$0.96$1.05$0.85$0.21
2023Detailed filing. Detailed filing data is available for this year.$0.74$0.00$0.74$1.85$1.66$0.19
2022Detailed filing. Detailed filing data is available for this year.$0.54$0.00$0.54$1.41$1.32$0.09
2021Detailed filing. Detailed filing data is available for this year.$0.44$0.00$0.44$0.60$0.41$0.18
2020Detailed filing. Detailed filing data is available for this year.$0.26$0.00$0.26$0.66$0.47$0.19
2019Detailed filing. Detailed filing data is available for this year.$0.07$0.00$0.07$0.31$0.28$0.03
2018Detailed filing. Detailed filing data is available for this year.$0.04$0.00$0.04$0.11$0.11$0.00
2017Detailed filing. Detailed filing data is available for this year.$0.04$0.00$0.04$0.10$0.07$0.03
2013Summary only. Only limited summary data is available for this year.$0.02$0.00$0.02$0.00$0.02