Civic Intelligence

A Cure for Ellie

990 • Fiscal year 2022 • EIN 46-2829156

Jan 01, 2022 to Dec 31, 2022 • Filed on Nov 14, 2023

Organization Profilewww.curelbsl.org
3520 S Wakefield StArlington, VA 22206

(202) 487-4235

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

17th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

17th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

49th percentile

6.4%

Higher net margin than 49% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

39th percentile

$0

Higher top officer pay than 39% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

77th percentile

20%

Faster asset growth than 77% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

93rd percentile

135%

Faster revenue growth than 93% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets17th percentile

Assets

Up

$535,129

Up $90,205 (+20%) from 2021

Net Assets

Up

$535,129

Up $90,205 (+20%) from 2021

Liabilities

Flat

$0

Flat from 2021

Revenue And Expenses
Liabilities / Revenue17th percentileNet Margin49th percentile

Revenue

Up

$1,410,138

Up $810,845 (+135%) from 2021

Expenses

Up

$1,319,933

Up $905,371 (+218%) from 2021

Net Income

Down

$90,205

Down $94,526 (-51%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth77th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2013: $17,253Liabilities 2013: $02013Assets 2017: $44,532Liabilities 2017: $0Net Assets 2017: $44,5302017Assets 2018: $43,192Liabilities 2018: $0Net Assets 2018: $43,1922018Assets 2019: $71,272Liabilities 2019: $0Net Assets 2019: $71,2722019Assets 2020: $260,193Liabilities 2020: $0Net Assets 2020: $260,1932020Assets 2021: $444,924Liabilities 2021: $0Net Assets 2021: $444,9242021Assets 2022: $535,129Liabilities 2022: $0Net Assets 2022: $535,1292022Assets 2023: $739,400Liabilities 2023: $0Net Assets 2023: $739,4002023Assets 2024: $955,625Liabilities 2024: $0Net Assets 2024: $955,6252024

Highlighted filing

2022

Assets$535,129
Liabilities$0
Net Assets$535,129
Open 2022 Filing

Operations Trend

Revenue Growth93rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KRevenue 2013: $17,995Expenses 2013: $743Net Income 2013: $17,2522013Revenue 2017: $100,598Expenses 2017: $74,942Net Income 2017: $25,6562017Revenue 2018: $107,860Expenses 2018: $109,261Net Income 2018: -$1,4012018Revenue 2019: $308,282Expenses 2019: $279,767Net Income 2019: $28,5152019Revenue 2020: $659,411Expenses 2020: $470,491Net Income 2020: $188,9202020Revenue 2021: $599,293Expenses 2021: $414,562Net Income 2021: $184,7312021Revenue 2022: $1,410,138Expenses 2022: $1,319,933Net Income 2022: $90,2052022Revenue 2023: $1,852,552Expenses 2023: $1,661,665Net Income 2023: $190,8872023Revenue 2024: $1,052,682Expenses 2024: $845,152Net Income 2024: $207,5302024

Highlighted filing

2022

Revenue$1,410,138
Expenses$1,319,933
Net Income$90,205
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Nov 14, 2023
Return Version
2022v5.0
Gross Receipts
$1,410,138
Mission and Program Overview

Mission

Provide funding to rare disease research & support affected families

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$444,924$531,701▲ $86,777
Savings and Temporary Cash Investments-$3,428-
Total Assets$444,924$535,129▲ $90,205
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$444,924$535,129▲ $90,205
Total Net Assets Fund Balance$444,924$535,129▲ $90,205
Total Liabilities and Net Assets / Fund Balance$444,924$535,129▲ $90,205
Compensation and Service Providers
Top Officer Pay39th percentile

Board Members and Trustees

NameTitle
Elizabeth GulugianBoard Chair
Chris GulugianDirector
Edward BlakelyDirector
Elizabeth A McGinnDirector
Lance SternDirector
Megan MitchellDirector
Michael McGinnDirector
Morgan SternDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$1,410,137
Program Service Revenue
$0
Investment Income
$1
Other Revenue
$0
All Other Contributions
$1,410,137
Change in Net Assets
$90,205
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,144,010
Other Expenses$164,727
Total Fundraising Expense$29,243
Salaries, Compensation, and Employee Benefits$11,196
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,144,010--$1,144,010
Office Expenses-$34,835-$34,835
Conferences and Meetings$26,019--$26,019
Fees for Services Other$17,507--$17,507
Other Salaries and Wages--$8,465$8,465
Payroll Taxes--$2,731$2,731
Information Technology-$2,083-$2,083
Travel-$545-$545
Advertising--$233$233
Other Expenses$65,691-$50$50
Total Functional Expenses$1,253,227$37,463$29,243$1,319,933
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Kennedy Krieger InstituteBaltimore, MD501c3Research$600,000
CHOC FoundationOrange, CA501c3Research$529,010
Cure ARSRaritan, NJ501c3Research$15,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“The Board has members with family relationships.”

Form 990 governing body review Part VI line 11

“The form will be emailed to the Board once it is complete and available for print.”

Conflict of interest policy compliance Part VI line 12C

“There is little room for a conflict of interest within A Cure for Ellie but all potential conflicts are to be raised to the Board for review.”

Form 990 availability to public Part VI line 18

“The 990 is available on Guidestar which is accesible to the public.”

Governing documents etc available to public Part VI line 19

“We do not make our policies public but they are available upon request.”

Filing and Contact Details

Filer

Filer Name
Cure LBSL
EIN
46-2829156
Address
3520 S Wakefield St, Arlington, VA 22206

Signing Officer

Name
Elizabeth A McGinn
Title
Director
Phone
2024874235
Signed
2023-11-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Elizabeth A McGinn
Formed
2013
Legal Domicile
Va
Voting Board Members
8
Independent Board Members
8
Employees
1
Volunteers
25

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Raw XML Appendix385 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleI/Total501c3OrgCnt03
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IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The Board has members with family relationships.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The form will be emailed to the Board once it is complete and available for print.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2There is little room for a conflict of interest within A Cure for Ellie but all potential conflicts are to be raised to the Board for review.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The 990 is available on Guidestar which is accesible to the public.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4We do not make our policies public but they are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990 availability to public Part VI line 18
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Governing documents etc available to public Part VI line 19
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IRS990/TotalAssetsBOYAmt0444924
IRS990/TotalAssetsEOYAmt0535129
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IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt01253227
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ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/OOBSecurityVerificationCd000
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd00
ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Elizabeth A McGinn
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Director
ReturnHeader/BusinessOfficerGrp/PhoneNum02024874235
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-11-14
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Cure LBSL
ReturnHeader/Filer/BusinessNameControlTxt0CURE
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ReturnHeader/Filer/USAddress/AddressLine1Txt03520 S Wakefield St
ReturnHeader/Filer/USAddress/CityNm0Arlington
ReturnHeader/Filer/USAddress/StateAbbreviationCd0VA
ReturnHeader/Filer/USAddress/ZIPCd022206
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0474306215
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Mullins PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt07625 Wisconsin Avenue
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Bethesda
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd020814
ReturnHeader/PreparerPersonGrp/PhoneNum02027706371
ReturnHeader/PreparerPersonGrp/PreparationDt02023-11-15
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0John Mullins
ReturnHeader/ReturnTs02023-11-15T14:02:14-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0Elizabeth A
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0McGinn
ReturnHeader/TaxPeriodBeginDt02022-01-01
ReturnHeader/TaxPeriodEndDt02022-12-31
ReturnHeader/TaxYr02022

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$535,129
Liabilities
$0
Net assets
$535,129
Revenue
$1,410,138
Expenses
$1,319,933
Net income
$90,205
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.96$0.00$0.96$1.05$0.85$0.21
2023Detailed filing. Detailed filing data is available for this year.$0.74$0.00$0.74$1.85$1.66$0.19
2022Detailed filing. Detailed filing data is available for this year.$0.54$0.00$0.54$1.41$1.32$0.09
2021Detailed filing. Detailed filing data is available for this year.$0.44$0.00$0.44$0.60$0.41$0.18
2020Detailed filing. Detailed filing data is available for this year.$0.26$0.00$0.26$0.66$0.47$0.19
2019Detailed filing. Detailed filing data is available for this year.$0.07$0.00$0.07$0.31$0.28$0.03
2018Detailed filing. Detailed filing data is available for this year.$0.04$0.00$0.04$0.11$0.11$0.00
2017Detailed filing. Detailed filing data is available for this year.$0.04$0.00$0.04$0.10$0.07$0.03
2013Summary only. Only limited summary data is available for this year.$0.02$0.00$0.02$0.00$0.02