Civic Intelligence

A Cure for Ellie

990 • Fiscal year 2023 • EIN 46-2829156

Jan 01, 2023 to Dec 31, 2023 • Filed on Oct 18, 2024

Organization Profilewww.curelbsl.org
3520 S Wakefield StArlington, VA 22206

(202) 487-4235

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

17th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

17th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

62nd percentile

10%

Higher net margin than 62% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

39th percentile

$0

Higher top officer pay than 39% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

86th percentile

38%

Faster asset growth than 86% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

75th percentile

31%

Faster revenue growth than 75% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets17th percentile

Assets

Up

$739,400

Up $204,271 (+38%) from 2022

Net Assets

Up

$739,400

Up $204,271 (+38%) from 2022

Liabilities

Flat

$0

Flat from 2022

Revenue And Expenses
Liabilities / Revenue17th percentileNet Margin62nd percentile

Revenue

Up

$1,852,552

Up $442,414 (+31%) from 2022

Expenses

Up

$1,661,665

Up $341,732 (+26%) from 2022

Net Income

Up

$190,887

Up $100,682 (+112%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth86th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2013: $17,253Liabilities 2013: $02013Assets 2017: $44,532Liabilities 2017: $0Net Assets 2017: $44,5302017Assets 2018: $43,192Liabilities 2018: $0Net Assets 2018: $43,1922018Assets 2019: $71,272Liabilities 2019: $0Net Assets 2019: $71,2722019Assets 2020: $260,193Liabilities 2020: $0Net Assets 2020: $260,1932020Assets 2021: $444,924Liabilities 2021: $0Net Assets 2021: $444,9242021Assets 2022: $535,129Liabilities 2022: $0Net Assets 2022: $535,1292022Assets 2023: $739,400Liabilities 2023: $0Net Assets 2023: $739,4002023Assets 2024: $955,625Liabilities 2024: $0Net Assets 2024: $955,6252024

Highlighted filing

2023

Assets$739,400
Liabilities$0
Net Assets$739,400
Open 2023 Filing

Operations Trend

Revenue Growth75th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KRevenue 2013: $17,995Expenses 2013: $743Net Income 2013: $17,2522013Revenue 2017: $100,598Expenses 2017: $74,942Net Income 2017: $25,6562017Revenue 2018: $107,860Expenses 2018: $109,261Net Income 2018: -$1,4012018Revenue 2019: $308,282Expenses 2019: $279,767Net Income 2019: $28,5152019Revenue 2020: $659,411Expenses 2020: $470,491Net Income 2020: $188,9202020Revenue 2021: $599,293Expenses 2021: $414,562Net Income 2021: $184,7312021Revenue 2022: $1,410,138Expenses 2022: $1,319,933Net Income 2022: $90,2052022Revenue 2023: $1,852,552Expenses 2023: $1,661,665Net Income 2023: $190,8872023Revenue 2024: $1,052,682Expenses 2024: $845,152Net Income 2024: $207,5302024

Highlighted filing

2023

Revenue$1,852,552
Expenses$1,661,665
Net Income$190,887
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Oct 18, 2024
Return Version
2023v5.1
Gross Receipts
$1,852,552
Mission and Program Overview

Mission

Provide funding to rare disease research & support affected families

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$531,701$734,935▲ $203,234
Savings and Temporary Cash Investments$3,428$3,433▲ $5
Accounts Receivable-$1,032-
Total Assets$535,129$739,400▲ $204,271
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$535,129$739,400▲ $204,271
Total Net Assets Fund Balance$535,129$739,400▲ $204,271
Total Liabilities and Net Assets / Fund Balance$535,129$739,400▲ $204,271
Compensation and Service Providers
Top Officer Pay39th percentile

Board Members and Trustees

NameTitle
Elizabeth GulugianBoard Chair
Chris GulugianDirector
Edward BlakelyDirector
Elizabeth A McGinnDirector
Lance SternDirector
Megan MitchellDirector
Michael McGinn until 724Director
Morgan SternDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$1,850,787
Program Service Revenue
$0
Investment Income
$1,765
Other Revenue
$0
All Other Contributions
$1,850,787
Change in Net Assets
$190,887
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,502,459
Salaries, Compensation, and Employee Benefits$84,131
Other Expenses$75,075
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,502,459--$1,502,459
Other Salaries and Wages$61,279--$61,279
Payroll Taxes$22,852--$22,852
Other Expenses$20,990$706-$20,990
Fees for Services Other$16,787--$16,787
Office Expenses$9,498$616-$10,114
Travel$4,726--$4,726
Information Technology$4,436--$4,436
Fees for Services Legal$2,626--$2,626
Conferences and Meetings$2,512--$2,512
Fees for Services Accounting$1,790--$1,790
Total Functional Expenses$1,660,343$1,322$0$1,661,665
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Kennedy Krieger InstituteBaltimore, MD501c3Research$1,502,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“The Board has members with family relationships.”

Form 990 governing body review Part VI line 11

“The form will be emailed to The Board once it is complete and available for print.”

Conflict of interest policy compliance Part VI line 12C

“There is little room for a conflict of interest within Cure LBSL but all potential conflicts are to be raised to The Board for review.”

Form 990 availability to public Part VI line 18

“The 990 is available on Guidestar which is accesible to the public.”

Governing documents etc available to public Part VI line 19

“We do not make our policies public but they are available upon request.”

Filing and Contact Details

Filer

Filer Name
Cure LBSL
EIN
46-2829156
Address
3520 S Wakefield St, Arlington, VA 22206

Signing Officer

Name
Elizabeth A McGinn
Title
Director
Phone
2024874235
Signed
2024-10-18
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Elizabeth A McGinn
Formed
2013
Legal Domicile
Va
Voting Board Members
8
Independent Board Members
8
Employees
1
Volunteers
8

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Raw XML Appendix367 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The Board has members with family relationships.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The form will be emailed to The Board once it is complete and available for print.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2There is little room for a conflict of interest within Cure LBSL but all potential conflicts are to be raised to The Board for review.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The 990 is available on Guidestar which is accesible to the public.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4We do not make our policies public but they are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990 availability to public Part VI line 18
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Governing documents etc available to public Part VI line 19
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ReturnHeader/BuildTS02024-10-15 13:58:12Z
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ReturnHeader/BusinessOfficerGrp/PersonNm0Elizabeth A McGinn
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ReturnHeader/PreparerPersonGrp/PreparationDt02024-10-18
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0John Mullins
ReturnHeader/ReturnTs02024-10-18T08:58:03-04:00
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ReturnHeader/TaxPeriodBeginDt02023-01-01
ReturnHeader/TaxPeriodEndDt02023-12-31
ReturnHeader/TaxYr02023

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$739,400
Liabilities
$0
Net assets
$739,400
Revenue
$1,852,552
Expenses
$1,661,665
Net income
$190,887
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.96$0.00$0.96$1.05$0.85$0.21
2023Detailed filing. Detailed filing data is available for this year.$0.74$0.00$0.74$1.85$1.66$0.19
2022Detailed filing. Detailed filing data is available for this year.$0.54$0.00$0.54$1.41$1.32$0.09
2021Detailed filing. Detailed filing data is available for this year.$0.44$0.00$0.44$0.60$0.41$0.18
2020Detailed filing. Detailed filing data is available for this year.$0.26$0.00$0.26$0.66$0.47$0.19
2019Detailed filing. Detailed filing data is available for this year.$0.07$0.00$0.07$0.31$0.28$0.03
2018Detailed filing. Detailed filing data is available for this year.$0.04$0.00$0.04$0.11$0.11$0.00
2017Detailed filing. Detailed filing data is available for this year.$0.04$0.00$0.04$0.10$0.07$0.03
2013Summary only. Only limited summary data is available for this year.$0.02$0.00$0.02$0.00$0.02