Liabilities / Assets
27th percentile
Tied with the lowest-debt nonprofits in its peer group.
Relapsing Polychondritis Awareness and Support Foundation
990 • Fiscal year 2020 • EIN 46-2458916
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
27th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
60th percentile
Higher net margin than 60% of similar nonprofits.
Top Officer Pay
58th percentile
Higher top officer pay than 58% of similar nonprofits.
Top officer pay equals 2.9% of source-year revenue.
Asset Growth
99th percentile
Faster asset growth than 99% of similar nonprofits.
Revenue Growth
99th percentile
Faster revenue growth than 99% of similar nonprofits.
Balance Sheet
Assets
Up$107,678
Up $99,348 (+1193%) from 2019
Net Assets
Up$107,678
Up $99,348 (+1193%) from 2019
Liabilities
$0
No earlier filing loaded for comparison.
Revenue And Expenses
Revenue
Up$847,514
Up $742,729 (+709%) from 2019
Expenses
Up$748,162
Up $638,013 (+579%) from 2019
Net Income
Up$99,352
Up $104,716 (+1952%) from 2019
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Apr 1, 2019 to Mar 31, 2020
- Signed
- Aug 13, 2020
- Return Version
- 2019v5.0
- Gross Receipts
- $847,514
Mission and Program Overview
Mission
The rp foundation's mission is to: (a) increase awareness about relapsing polychondritis; (b) provide support (primarily through the use of the internet, social media, and patient advocacy programs) for those who are affected by relapsing polychondritis, support research to advance a cure for relapsing polychondritis; (c) promote quality care for relapsing polychondritis patients; and (d) engage in such other activities in connection therewith that the board of directors may authorize, in all cases subject to the provision of section 501(c)(3) of the internal revenu code of 1986, as amended, or the corresponding provisions of any subsequent federal tax law (the "code").
Balance Sheet Detail
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $8,330 | $107,678 | ▲ $99,348 |
| Total Assets | $8,330 | $107,678 | ▲ $99,348 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $8,330 | $107,678 | ▲ $99,348 |
| Total Net Assets Fund Balance | $8,330 | $107,678 | ▲ $99,348 |
| Total Liabilities and Net Assets / Fund Balance | $8,330 | $107,678 | ▲ $99,348 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| David Bammert | President | PT | $25,000 | $25,000 |
Board Members and Trustees
| Name | Title |
|---|---|
| Nancy Linn | Director/CHA |
| Michael Linn | Director/vic |
| David Derosa | Secretary/tr |
Revenue and Support
Revenue Composition
- Contributions and Grants
- $847,506
- Program Service Revenue
- $0
- Investment Income
- $8
- Other Revenue
- $0
- All Other Contributions
- $847,506
- Change in Net Assets
- $99,352
Expenses and Functional Allocation
Major Expense Lines
| Line Item | Amount |
|---|---|
| Other Expenses | $723,162 |
| Salaries, Compensation, and Employee Benefits | $25,000 |
| Total Fundraising Expense | $3,588 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
Functional Expense Allocation
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $83,087 | $2,350 | $3,588 | $89,025 |
| Current Officers, Directors, Trustees, and Key Employees | $25,000 | - | - | $25,000 |
| Travel | $21,721 | - | - | $21,721 |
| Office Expenses | $9,546 | $6,335 | - | $15,881 |
| Information Technology | $1,524 | $6,544 | - | $8,068 |
| Fees for Services Accounting | - | $6,128 | - | $6,128 |
| Insurance | - | $3,475 | - | $3,475 |
| All Other Expenses | $1,239 | $458 | - | $1,697 |
| Other Expenses | $1,187 | $7,112 | - | $1,187 |
| Fees for Services Legal | - | $440 | - | $440 |
| Total Functional Expenses | $705,819 | $38,755 | $3,588 | $748,162 |
Fundraising, Events, and Gaming
- Fundraising activities
- No
- Gaming activities
- No
- Professional fundraiser used
- No
Fundraising and Gaming Totals
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
Political and Lobbying Activity
- Political campaign activity
- No
- Lobbying activity
- No
- Subject to proxy tax
- No
Governance and Compliance
Governance Checklist
- Compiled or reviewed by an accountant
- Yes
- Annual disclosure for covered persons
- Yes
- Audit committee
- Yes
- Business relationship with 35% controlled entity
- No
- Business relationship with family members
- No
- Business relationship with organization members
- No
- Material changes to governing documents
- No
- Compensation from other sources disclosed
- No
- CEO compensation reviewed
- Yes
- Other officer compensation reviewed
- Yes
- Conflict-of-interest policy
- Yes
- Audited financial statements prepared
- No
- Key decisions subject to board approval
- No
- Management duties delegated
- No
Governance Explanations
Form 990, Page 6, Part VI, Line 2
“Michael linn nancy linn vice chair chair siblings”
Form 990, Page 6, Part VI, Line 11B
“The form 990 is provided to the board which is reviewed and discussed at a meeting.”
Form 990, Page 6, Part VI, Line 12C
“Policy is emailed, signed by members and retained by treasurer. This is done annually.”
Form 990, Page 6, Part VI, Line 15A
“The board recommends compensation for the president. The president abstains from voting or discussing.”
Form 990, Page 6, Part VI, Line 15B
“There are no employees so no compensation.”
Form 990, Page 6, Part VI, Line 18
“Also available on www.guidestar.org”
Form 990, Page 6, Part VI, Line 19
“Governing documents are available on request.”
Filing and Contact Details
Filer
- Filer Name
- Relapsing Polychondritis Awareness
- EIN
- 46-2458916
- Phone
- 9062251166
- Address
- 1202 LEXINGTON AVE STE 112, NEW YORK, NY 10028
- Doing Business As
- Relapsing Polychondritis Foundation
Signing Officer
- Name
- David Bammert
- Title
- President
- Phone
- 9062251166
- Signed
- 2020-08-13
- Discuss with paid preparer
- Yes
Organization Details
- Principal Officer
- David Bammert
- Formed
- 2014
- Legal Domicile
- Mn
- Voting Board Members
- 4
- Independent Board Members
- 4
- Employees
- 0
- Volunteers
- 10
Preparer
- Firm
- Anderson Tackman & Company Plc
- Address
- 102 W WASHINGTON ST STE 109, MARQUETTE, MI 49855
- Preparer
- William C Sheltrow CPA
- Phone
- 9062251166
Supplemental Narrative
Additional Explanations
FORM 990 - ORGANIZATION'S MISSION
“The rp foundation's mission is to: (a) increase awareness about relapsing polychondritis; (b) provide support (primarily through the use of the internet, social media, and patient advocacy programs) for those who are affected by relapsing polychondritis, support research to advance a cure for relapsing polychondritis; (c) promote quality care for relapsing polychondritis patients; and (d) engage in such other activities in connection therewith that the board of directors may authorize, in all cases subject to the provision of section 501(c)(3) of the internal revenu code of 1986, as amended, or the corresponding provisions of any subsequent federal tax law (the "code").”
Form 990, Page 2, Part III, Line 4A
“The purpose of the rp foundation is to facilitate awareness, education, and research to improve the quality of life for patients with relapsing polychondritis (rp) and advance a cure for this disease. Given the collaborative efforts and our diverse partnerships, the relapsing polychondritis foundation experienced continued growth and success, as evidenced by the following: awareness and educational events in september 2019, the rp foundation and northern michigan university's doctor of nursing practice program hosted a "symposium exploring autoimmune diseases- and facilitated participation and/or sponsorship by the allegheny health network autoimmunity institute, and the american autoimmune related diseases association. In september 2019, the rp foundation was the event sponsor of the friends of patients at the national institutes of health (nih) 2019 friends' night out, an evening dedicated to the partnership of patients, doctors and researchers to find lifesaving cures. In november 2019, the rp foundation hosted an international relapsing polychondritis research network meeting in atlanta, ga to (a) provide an update on the rp classification criteria project, (b) introduce a new project to modify the rp disease activity index, and (c) discuss ongoing and recently completed rp-related projects. In may 2019, the rp foundation assisted the nih in the creation of an easy-to-understand, peer-reviewed poster for medical professionals to have a resource to help determine if their patient may has relapsing polychondritis. In march and april 2020, the rp foundation facilitated the distribution of the nih's relapsing polychondritis patient reported symptoms survey. Programs funded in february 2020, the rp foundation provided a gift to establish the penn relapsing polychondritis fund, which supports a unique partnership in the university of pennsylvania rp program and the nih sponsored vasculitis clinical research consortium. In september 2019, the rp foundation provided funds to friends of patients at the nih for a patient-related travel program, which facilitates research at nih.”
Form 990, Part IX, Line 11G
“OTHER 83,087 2,350 3,588”
Form 990, Part XI, Line 9
“ROUNDING ADJUSTMENT -4”
Raw XML Appendix369 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE RP FOUNDATION'S MISSION IS TO: (A) INCREASE AWARENESS ABOUT RELAPSING POLYCHONDRITIS; (B) PROVIDE SUPPORT (PRIMARILY THROUGH THE USE OF THE INTERNET, SOCIAL MEDIA, AND PATIENT ADVOCACY PROGRAMS) FOR THOSE WHO ARE AFFECTED BY RELAPSING POLYCHONDRITIS, SUPPORT RESEARCH TO ADVANCE A CURE FOR RELAPSING POLYCHONDRITIS; (C) PROMOTE QUALITY CARE FOR RELAPSING POLYCHONDRITIS PATIENTS; AND (D) ENGAGE IN SUCH OTHER ACTIVITIES IN CONNECTION THEREWITH THAT THE BOARD OF DIRECTORS MAY AUTHORIZE, IN ALL CASES SUBJECT TO THE PROVISION OF SECTION 501(C)(3) OF THE INTERNAL REVENU CODE OF 1986, AS AMENDED, OR THE CORRESPONDING PROVISIONS OF ANY SUBSEQUENT FEDERAL TAX LAW (THE "CODE"). |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE PURPOSE OF THE RP FOUNDATION IS TO FACILITATE AWARENESS, EDUCATION, AND RESEARCH TO IMPROVE THE QUALITY OF LIFE FOR PATIENTS WITH RELAPSING POLYCHONDRITIS (RP) AND ADVANCE A CURE FOR THIS DISEASE. GIVEN THE COLLABORATIVE EFFORTS AND OUR DIVERSE PARTNERSHIPS, THE RELAPSING POLYCHONDRITIS FOUNDATION EXPERIENCED CONTINUED GROWTH AND SUCCESS, AS EVIDENCED BY THE FOLLOWING: AWARENESS AND EDUCATIONAL EVENTS IN SEPTEMBER 2019, THE RP FOUNDATION AND NORTHERN MICHIGAN UNIVERSITY'S DOCTOR OF NURSING PRACTICE PROGRAM HOSTED A "SYMPOSIUM EXPLORING AUTOIMMUNE DISEASES- AND FACILITATED PARTICIPATION AND/OR SPONSORSHIP BY THE ALLEGHENY HEALTH NETWORK AUTOIMMUNITY INSTITUTE, AND THE AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION. IN SEPTEMBER 2019, THE RP FOUNDATION WAS THE EVENT SPONSOR OF THE FRIENDS OF PATIENTS AT THE NATIONAL INSTITUTES OF HEALTH (NIH) 2019 FRIENDS' NIGHT OUT, AN EVENING DEDICATED TO THE PARTNERSHIP OF PATIENTS, DOCTORS AND RESEARCHERS TO FIND LIFESAVING CURES. IN NOVEMBER 2019, THE RP FOUNDATION HOSTED AN INTERNATIONAL RELAPSING POLYCHONDRITIS RESEARCH NETWORK MEETING IN ATLANTA, GA TO (A) PROVIDE AN UPDATE ON THE RP CLASSIFICATION CRITERIA PROJECT, (B) INTRODUCE A NEW PROJECT TO MODIFY THE RP DISEASE ACTIVITY INDEX, AND (C) DISCUSS ONGOING AND RECENTLY COMPLETED RP-RELATED PROJECTS. IN MAY 2019, THE RP FOUNDATION ASSISTED THE NIH IN THE CREATION OF AN EASY-TO-UNDERSTAND, PEER-REVIEWED POSTER FOR MEDICAL PROFESSIONALS TO HAVE A RESOURCE TO HELP DETERMINE IF THEIR PATIENT MAY HAS RELAPSING POLYCHONDRITIS. IN MARCH AND APRIL 2020, THE RP FOUNDATION FACILITATED THE DISTRIBUTION OF THE NIH'S RELAPSING POLYCHONDRITIS PATIENT REPORTED SYMPTOMS SURVEY. PROGRAMS FUNDED IN FEBRUARY 2020, THE RP FOUNDATION PROVIDED A GIFT TO ESTABLISH THE PENN RELAPSING POLYCHONDRITIS FUND, WHICH SUPPORTS A UNIQUE PARTNERSHIP IN THE UNIVERSITY OF PENNSYLVANIA RP PROGRAM AND THE NIH SPONSORED VASCULITIS CLINICAL RESEARCH CONSORTIUM. IN SEPTEMBER 2019, THE RP FOUNDATION PROVIDED FUNDS TO FRIENDS OF PATIENTS AT THE NIH FOR A PATIENT-RELATED TRAVEL PROGRAM, WHICH FACILITATES RESEARCH AT NIH. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | MICHAEL LINN NANCY LINN VICE CHAIR CHAIR SIBLINGS |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE FORM 990 IS PROVIDED TO THE BOARD WHICH IS REVIEWED AND DISCUSSED AT A MEETING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | POLICY IS EMAILED, SIGNED BY MEMBERS AND RETAINED BY TREASURER. THIS IS DONE ANNUALLY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | THE BOARD RECOMMENDS COMPENSATION FOR THE PRESIDENT. THE PRESIDENT ABSTAINS FROM VOTING OR DISCUSSING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | THERE ARE NO EMPLOYEES SO NO COMPENSATION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | ALSO AVAILABLE ON WWW.GUIDESTAR.ORG |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 8 | GOVERNING DOCUMENTS ARE AVAILABLE ON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 9 | OTHER 83,087 2,350 3,588 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 10 | ROUNDING ADJUSTMENT -4 |
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| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 12C |
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| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | FORM 990, PAGE 6, PART VI, LINE 15B |
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| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 8 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 9 | FORM 990, PART IX, LINE 11G |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 10 | FORM 990, PART XI, LINE 9 |
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Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.
- Assets
- $107,678
- Liabilities
- $0
- Net assets
- $107,678
- Revenue
- $847,514
- Expenses
- $748,162
- Net income
- $99,352