Familial Adenomatous Polyposis Foundation

“Expenses conferences and meetings 1,295 travel 52 d&o liability insurance 919 donor acknowledgement 36 telephone 1,224 fundraising 2,107 mailers 239 fundraising software 948 gift cards 50 bank fees 12 business registration 266 credit card fees 758 miscellaneous 72 supplies 158 computer & internet 2,178 online support 218 parking 41 non-investment depreciation 387 total 10,960”

“Inventories for sale or use 0 1,101 computer 1,320 1,320 less accumulated depreciation 792 1,003 furniture 1,007 1,007 less accumulated depreciation 391 567 909 0 total 2,053 1,858”

“The hereditary colon cancer foundation is a registered 501(c)(3) nonprofit organization serving the hereditary colon cancer community by connecting patients, caregivers, and medical professionals to educational, social, and financial resources while promoting requisite research and health care initiatives. We are building this community holistically by acting as a conduit to physical and psychological care from a variety of traditional and modern health care practices.”

“Highlights from our 2014 programs: to help patients take control of their health care, our online resources were expanded to over 100 pages of content and currently serves >1000 unique individuals monthly. To help patients find quality care, we created the only list of genetic counselors with expertise in supporting families with hereditary colon cancer syndromes. 567 families used this tool to find a genetic counselor near them. To inspire & support families and caregivers, we presented words of wisdom - a collection of advice on 31 topics, from more than 100 patients and caregivers around the world. 645 families engaged with this resource for support. To support patients and their families in their time of need, we responded to online discussions, with audiences ranging from 100 to 5000, guiding patients to credible resources. To address challenges patients with bowel diversions face every day, we conducted a pilot study examining how diet and nutrition can affect quality of life. The results were presented at the 2014 conference of the collaborative group of the americas on inherited colorectal cancer. To increase awareness of hereditary colon cancer syndromes, we developed and mailed an informational brochure to all members of the american gastroenterological association. >11,000 gastroenterologists now have a resource for use by their team and their patients. To increase the quality of care for patients, we delivered a webinar educating 202 providers on the most up to date care protocols for their hccs patients. As a result, 95% of respondents felt prepared to develop an immediate and long-term care plan for their patients. To ensure the most appropriate surgeries are recommended to patients, we delivered a webinar educating 175 providers on the pros and cons of the current colectomy-related surgical options. As a result, 95% of respondents felt prepared to define current colectomy-related surgical options. To reduce the likelihood that secondary manifestations become deadly, we delivered a webinar educating 162 providers on how to screen and treat other potential extracolonic effects of polyposis conditions. As a result, 96% of respondents felt prepared to develop a care plan for their patients that includes screening for extracolonic manifestations. To support the medical providers who care for our patients, we helped them stay abreast of current research results by presenting a webinar, newsletters, and social media posts to over 500 clinicians. As a result, 96% of respondents felt prepared to recognize the potential clinical implications of recent research advances. To ensure that patients are diagnosed at the earliest possible stage and receive a personalized treatment plan, we delivered a webinar educating 159 providers on when to perform a genetic test, which test to use, and how to interpret the results. As a result, 98% of respondents felt prepared to identify when genetic screening for a colon cancer syndrome is needed.”

“Highlights from our 2014 programs: to help patients take control of their health care, our online resources were expanded to over 100 pages of content and currently serves >1000 unique individuals monthly. To help patients find quality care, we created the only list of genetic counselors with expertise in supporting families with hereditary colon cancer syndromes. 567 families used this tool to find a genetic counselor near them. To inspire & support families and caregivers, we presented words of wisdom - a collection of advice on 31 topics, from more than 100 patients and caregivers around the world. 645 families engaged with this resource for support. To support patients and their families in their time of need, we responded to online discussions, with audiences ranging from 100 to 5000, guiding patients to credible resources. To address challenges patients with bowel diversions face every day, we conducted a pilot study examining how diet and nutrition can affect quality of life. The results were presented at the 2014 conference of the collaborative group of the americas on inherited colorectal cancer. To increase awareness of hereditary colon cancer syndromes, we developed and mailed an informational brochure to all members of the american gastroenterological association. >11,000 gastroenterologists now have a resource for use by their team and their patients. To increase the quality of care for patients, we delivered a webinar educating 202 providers on the most up to date care protocols for their hccs patients. As a result, 95% of respondents felt prepared to develop an immediate and long-term care plan for their patients. To ensure the most appropriate surgeries are recommended to patients, we delivered a webinar educating 175 providers on the pros and cons of the current colectomy-related surgical options. As a result, 95% of respondents felt prepared to define current colectomy-related surgical options. To reduce the likelihood that secondary manifestations become deadly, we delivered a webinar educating 162 providers on how to screen and treat other potential extracolonic effects of polyposis conditions. As a result, 96% of respondents felt prepared to develop a care plan for their patients that includes screening for extracolonic manifestations. To support the medical providers who care for our patients, we helped them stay abreast of current research results by presenting a webinar, newsletters, and social media posts to over 500 clinicians. As a result, 96% of respondents felt prepared to recognize the potential clinical implications of recent research advances. To ensure that patients are diagnosed at the earliest possible stage and receive a personalized treatment plan, we delivered a webinar educating 159 providers on when to perform a genetic test, which test to use, and how to interpret the results. As a result, 98% of respondents felt prepared to identify when genetic screening for a colon cancer syndrome is needed.”