Familial Adenomatous Polyposis

“Expenses travel 33 interest 3,142 health insurance 1,561 bank fees 124 books, subscriptions ref 8 computer & internet 2,693 credit card fees 348 dues and memberships 195 online community support 117 payroll processing 496 program comm & production 259 software 2,025 supplies 43 telephone 683 webinar hosting fees 2,912 repairs & maintenance 30 miscellaneous 37 non-investment depreciation 165 total 14,871”

“Inventories for sale or use 2,180 6,988 computer 1,320 1,320 less accumulated depreciation 1,206 1,282 furniture 1,007 1,007 less accumulated depreciation 782 872 total 2,519 7,161”

“Credit cards 16,655 17,139 payroll liabilities 199 0”

“The hereditary colon cancer foundation is a registered 501(c)(3) nonprofit organization serving the hereditary colon cancer community by connecting patients, caregivers, and medical professionals to educational, social, and financial resources while promoting requisite research and health care initiatives. We are building this community holistically by acting as a conduit to physical and psychological care from a variety of traditional and modern health care practices.”

“Highlights from our 2017 programs: patient services included: our informational website, hcctakesguts.org, served over 12,000 unique individuals. Our "expert care facility" list helped over 2,000 people find a provider. The patient's guide to lynch syndrome was distributed to over 500 individuals to be used personally or shared with their families. The patient's guide to fap was distributed to over 900 patients to be shared with their families. Serving as patient navigators and advisors, we guided patients to credible resources and coached patients on how to navigate life with a hereditary colon cancer condition. We responded to emails and phone calls from individual patients, on average, one or two times per week. Medical professional services included: our seven-hour educational webinar series entitled "advancing care for adenomatous polyposis conditions" was attended by over 350 providers. The patient's guide to lynch syndrome was distributed to over 600 providers to be used personally or shared with their patients. The patient's guide to fap was distributed to over 400 providers to be shared with their patients. We provided over 250 complementary brochures at the request of providers for distribution in their clinics. We attended and exhibited at the collaborative group of the americas on inherited colorectal cancer annual meeting. We were selected to provide input to two sets of clinical practice guidelines developed by the national comprehensive cancer guidelines: "genetic/familial high-risk assessment: colorectal- and "colon cancer screening." on a monthly basis, we supported providers by connecting them to experts at high risk centers. We also served providers by helping to connect their patients to other affected families.”