Liabilities / Assets
84th percentile
Higher debt load relative to assets than 84% of similar nonprofits.
990 • Fiscal year 2019 • EIN 45-5437249
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
84th percentile
Higher debt load relative to assets than 84% of similar nonprofits.
Liabilities / Revenue
91st percentile
Higher debt load relative to revenue than 91% of similar nonprofits.
Net Margin
15th percentile
Higher net margin than 15% of similar nonprofits.
Top Officer Pay
66th percentile
Higher top officer pay than 66% of similar nonprofits.
Top officer pay equals 9.0% of source-year revenue.
Asset Growth
49th percentile
Faster asset growth than 49% of similar nonprofits.
Revenue Growth
22nd percentile
Faster revenue growth than 22% of similar nonprofits.
Assets
Up$1,902,775
Up $114,995 (+6.4%) from 2018
Net Assets
Down$1,193,593
Down $354,232 (-23%) from 2018
Liabilities
Up$709,182
Up $469,227 (+196%) from 2018
Revenue
Down$1,286,383
Down $194,446 (-13%) from 2018
Expenses
Up$1,640,615
Up $702,137 (+75%) from 2018
Net Income
Down-$354,232
Down $896,583 (-165%) from 2018
To provide education and increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research.
To increase awareness of Dysautonomia within the medical community and the generalpublic and raise funds for dysautonomia research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $1,685,733 | $1,819,291 | ▲ $133,558 |
| Accounts Receivable | $1,372 | $69,934 | ▲ $68,562 |
| Inventories for Sale or Use | - | $6,392 | - |
| Land, Buildings, and Equipment, Net | $4,020 | $5,014 | ▲ $994 |
| Prepaid Expenses and Deferred Charges | $96,655 | $644 | ▼ $96,011 |
| Savings and Temporary Cash Investments | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Total Assets | $1,787,780 | $1,902,775 | ▲ $114,995 |
| Other Assets Total | - | $1,500 | - |
| Liabilities | |||
| Grants Payable | $126,047 | $514,333 | ▲ $388,286 |
| Accounts Payable and Accrued Expenses | $113,183 | $194,849 | ▲ $81,666 |
| Other Liabilities | $725 | - | - |
| Total Liabilities | $239,955 | $709,182 | ▲ $469,227 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,547,825 | $1,193,593 | ▼ $354,232 |
| Total Net Assets Fund Balance | $1,547,825 | $1,193,593 | ▼ $354,232 |
| Total Liabilities and Net Assets / Fund Balance | $1,787,780 | $1,902,775 | ▲ $114,995 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $5,014 | $3,729 | $8,743 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Lauren Stiles Jd | President | FT | $115,385 | $115,385 |
| Name | Title |
|---|---|
| Jodi Parker | Vice President |
| Jacqueline Rutter Gully | Secretary |
| Christine Jagdfeld | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Other Non Cash Contri Table | 284 | $41,753 | Fair Market Value (FMV) |
| Other Non Cash Contri Table | 2 | $25,589 | Fair Market Value (FMV) |
| Total Noncash Contributions | 286 | $67,342 | - |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $808,670 |
| Other Expenses | $473,514 |
| Salaries, Compensation, and Employee Benefits | $358,431 |
| Total Fundraising Expense | $70,707 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Foreign Grants | $617,168 | - | - | $617,168 |
| Other Salaries and Wages | $113,783 | $68,321 | $26,643 | $208,747 |
| Grants to Domestic Orgs | $191,502 | - | - | $191,502 |
| Current Officers, Directors, Trustees, and Key Employees | $108,462 | $5,769 | $1,154 | $115,385 |
| Fees for Services Other | $54,078 | $12,685 | $1,104 | $67,867 |
| Travel | $53,124 | $210 | $952 | $54,286 |
| Advertising | $34,355 | $94 | $1,890 | $36,339 |
| All Other Expenses | $20,314 | $6,631 | $2,294 | $29,239 |
| Payroll Taxes | $17,813 | $4,360 | $2,442 | $24,615 |
| Other Expenses | $3,228 | $558 | $12,215 | $16,001 |
| Information Technology | $8,070 | $1,897 | $5,934 | $15,901 |
| Fees for Services Accounting | - | $10,550 | - | $10,550 |
| Other Employee Benefits | $6,487 | $2,422 | $775 | $9,684 |
| Occupancy | $4,309 | $1,608 | $515 | $6,432 |
| Insurance | $3,712 | $1,386 | $443 | $5,541 |
| Office Expenses | - | $4,741 | - | $4,741 |
| Depreciation Depletion | $1,715 | $640 | $205 | $2,560 |
| Fees for Services Legal | - | $500 | - | $500 |
| Total Functional Expenses | $1,440,439 | $129,469 | $70,707 | $1,640,615 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $1,640,615 |
| Total Expenses per Form 990 | $1,640,615 |
| Total Expenses per Audited Statements | $1,626,677 |
| Expenses Not Reported on Form 990 | $-13,938 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Medical College of Wisconsin | Milwaukee, WI | 501(c)(3) | Optimizing Vagal Efficiency | $125,353 |
| University of Utah | Salt Lake City, UT | 501(c)(3) | altered nitric oxide metabolism | $66,026 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $30,362 |
| Fundraising Gross Income | $10,110 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Fundraising Events | $81,836 | $10,110 | $26,752 | $-16,642 |
| Total Events | $81,836 | $10,110 | $30,362 | $-20,252 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“The board will review and approve the tax returns prior to submission.”
“All conflicts are discussed annually at a board meeting.”
“The ceo salary is determined by independent non-employee members of the board of directors after a careful comparative review of salaries for similarly qualified individuals in similar positions.”
“The ceo and other staff salaries were set by independent non-employee members of the board of directors after a careful comparative review of salaries for similarly qualified individuals in similar positions.”
“Documents are available upon request.”
“OTHER PROGRAM SERVICES 4: Advocacy Initiatives - Patient Support and Empowerment programs. OTHER PROGRAM SERVICES 5: Clinician education.”
“The Organization has been classified by the Internal Revenue Service as a publicly supported tax-exempt charity pursuant to IRC Section 501(c)(3) and as a not-for-profit corporation under the laws of New York State. Accordingly, no provision for federal or state income taxes is required. As of December 31, 2019, no amounts have been recognized for uncertain income tax positions.”
“Direct fundraising expenses $30362”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 113183 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 194849 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 1372 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 69934 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To increase awareness of Dysautonomia within the medical community and the generalpublic and raise funds for dysautonomia research. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 1890 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 94 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 34355 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 36339 |
| IRS990/AllOtherContributionsAmt | 0 | 1010401 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 2294 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 6631 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 20314 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 29239 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | SHANNON KOPLITZ |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6312021720 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | PO BOX 596 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | EAST MORICHES |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 11940 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1685733 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1819291 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 1154 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 5769 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 108462 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 115385 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 71726 |
| IRS990/CostOfGoodsSoldAmt | 0 | 14720 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1082127 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 808670 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1597 |
| IRS990/CYOtherExpensesAmt | 0 | 473514 |
| IRS990/CYOtherRevenueAmt | 0 | 29924 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 172735 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -354232 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 358431 |
| IRS990/CYTotalExpensesAmt | 0 | 1640615 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 70707 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1286383 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | true |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 205 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 640 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 1715 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 2560 |
| IRS990/Desc | 0 | Providing research funding for projects at major University Research Centers. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | true |
| IRS990/EmployeeCnt | 0 | 6 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 853114 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 10550 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 10550 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 500 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 500 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 1104 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 12685 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 54078 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 67867 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 617168 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 617168 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 60.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 25.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 25.00 |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | LAUREN STILES JD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JODI PARKER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JACQUELINE RUTTER GULLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CHRISTINE JAGDFELD |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 115385 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Treasurer |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2012 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 71726 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 30362 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 10110 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 4 |
| IRS990/GrantAmt | 0 | 808670 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 126047 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 514333 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 191502 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 191502 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1331465 |
| IRS990/GrossSalesOfInventoryAmt | 0 | 20596 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 3 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 5934 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1897 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 8070 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 15901 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 443 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1386 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 3712 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 5541 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 6392 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1597 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1597 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 3729 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 4020 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 5014 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 8743 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To increase awareness of Dysautonomia within the medical community and the generalpublic and raise funds for dysautonomia research. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1547825 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1193593 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -20252 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt | 0 | 5876 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 5876 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1547825 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1193593 |
| IRS990/NoncashContributionsAmt | 0 | 67342 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 515 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1608 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 4309 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 6432 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 4741 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 4741 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 1500 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 775 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2422 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 6487 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 9684 |
| IRS990/OtherExpensesGrp/Desc | 0 | conferences |
| IRS990/OtherExpensesGrp/Desc | 1 | SUPPLIES |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK FEES |
| IRS990/OtherExpensesGrp/Desc | 3 | Postage and Shipping |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 82 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 14059 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 12215 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 6304 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 793 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 558 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 174226 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 26159 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 1934 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 3228 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 174226 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 32545 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 16786 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 16001 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 725 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | GRANTS RETURNED |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 44300 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 44300 |
| IRS990/OtherRevenueTotalAmt | 0 | 44300 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 26643 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 68321 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 113783 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 208747 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2442 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 4360 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 17813 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 24615 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 96655 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 644 |
| IRS990/PrincipalOfficerNm | 0 | SHANNON KOPLITZ |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 541700 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCES |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 172735 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 172735 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Conferences to educate patients, caregivers and medicalprofessionals on dysautonomia conditions, treatments and research. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 382664 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 233505 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Clinician education. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 126944 |
| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 22553 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1208581 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 393645 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1446 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 394542 |
| IRS990/PYOtherRevenueAmt | 0 | 77763 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 193039 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 542351 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 150291 |
| IRS990/PYTotalExpensesAmt | 0 | 938478 |
| IRS990/PYTotalRevenueAmt | 0 | 1480829 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -354232 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 0 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 13683 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 100000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 277696 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 391379 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1082127 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1208581 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 801282 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 474437 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 389645 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 3956072 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 172735 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 193039 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 191139 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 124842 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 126827 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 808582 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.72600 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.72160 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 3459172 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 252866 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 719616 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 333000 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 1305482 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt | 0 | 239183 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt | 0 | 619616 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus2YearsAmt | 0 | 55304 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 914103 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 1254862 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1401620 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 992421 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 599279 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 516472 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 4764654 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 1254862 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 1401620 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 992421 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 599279 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 516472 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 4764654 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 5014 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 3729 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 8743 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | -13938 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 1640615 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | -13938 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 30362 |
| IRS990ScheduleD/RecoveriesPriorYearGrantsAmt | 0 | -44300 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | -13938 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 1286383 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | The Organization has been classified by the Internal Revenue Service as a publicly supported tax-exempt charity pursuant to IRC Section 501(c)(3) and as a not-for-profit corporation under the laws of New York State. Accordingly, no provision for federal or state income taxes is required. As of December 31, 2019, no amounts have been recognized for uncertain income tax positions. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | DIRECT FUNDRAISING EXPENSES $30362 |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part X : FIN48 Footnote |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 5014 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 1640615 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 1286383 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 1272445 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 1626677 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 65000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 1 | 75000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 2 | 90000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 3 | 187181 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 4 | 199987 |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.