Civic Intelligence

Dysautonomia International Inc.

EIN 45-5437249 • 501(c)3 • East Moriches, NY

Pub. 78 EligibleNTEE G19

Profile

To increase awareness of Dysautonomia within the medical community and the generalpublic and raise funds for dysautonomia research.

PO Box 596East Moriches, NY 11940

www.dysautonomiainternational.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

47th percentile

0.05x

Higher debt load relative to assets than 47% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

58th percentile

0.13x

Higher debt load relative to revenue than 58% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

23rd percentile

-9.4%

Higher net margin than 23% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

36th percentile

-0.4%

Faster asset growth than 36% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

22nd percentile

-9.0%

Faster revenue growth than 22% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets47th percentile

Assets

Down

$2,744,118

Down $9,905 (-0.4%) from 2023

Liabilities

Up

$141,718

Up $37,979 (+37%) from 2023

Net Assets

Down

$2,602,400

Down $47,884 (-1.8%) from 2023

Operations
Liabilities / Revenue58th percentileNet Margin23rd percentile

Revenue

Down

$1,111,068

Down $110,275 (-9.0%) from 2023

Expenses

Down

$1,215,256

Down $26,316 (-2.1%) from 2023

Net Income

Down

-$104,188

Down $83,959 (-415%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth36th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2012: $8,412Net Assets 2012: $8,4122012Assets 2013: $21,224Net Assets 2013: $21,2242013Assets 2014: $131,033Liabilities 2014: $0Net Assets 2014: $131,0332014Assets 2015: $305,982Liabilities 2015: $12,427Net Assets 2015: $293,5552015Assets 2016: $547,133Liabilities 2016: $14,354Net Assets 2016: $532,7792016Assets 2017: $1,040,763Liabilities 2017: $35,289Net Assets 2017: $1,005,4742017Assets 2018: $1,787,780Liabilities 2018: $239,955Net Assets 2018: $1,547,8252018Assets 2019: $1,902,775Liabilities 2019: $709,182Net Assets 2019: $1,193,5932019Assets 2020: $2,147,198Liabilities 2020: $425,877Net Assets 2020: $1,721,3212020Assets 2021: $2,460,755Liabilities 2021: $263,032Net Assets 2021: $2,197,7232021Assets 2022: $2,828,501Liabilities 2022: $164,134Net Assets 2022: $2,664,3672022Assets 2023: $2,754,023Liabilities 2023: $103,739Net Assets 2023: $2,650,2842023Assets 2024: $2,744,118Liabilities 2024: $141,718Net Assets 2024: $2,602,4002024

Highlighted filing

2024

Assets$2,744,118
Liabilities$141,718
Net Assets$2,602,400
Open 2024 Filing

Operations Trend

Revenue Growth22nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KRevenue 2012: $9,313Expenses 2012: $901Net Income 2012: $8,4122012Revenue 2013: $31,566Expenses 2013: $18,754Net Income 2013: $12,8122013Revenue 2014: $270,851Expenses 2014: $161,042Net Income 2014: $109,8092014Revenue 2015: $516,473Expenses 2015: $356,723Net Income 2015: $159,7502015Revenue 2016: $606,699Expenses 2016: $367,475Net Income 2016: $239,2242016Revenue 2017: $972,170Expenses 2017: $499,475Net Income 2017: $472,6952017Revenue 2018: $1,480,829Expenses 2018: $938,478Net Income 2018: $542,3512018Revenue 2019: $1,286,383Expenses 2019: $1,640,615Net Income 2019: -$354,2322019Revenue 2020: $1,252,600Expenses 2020: $724,872Net Income 2020: $527,7282020Revenue 2021: $1,133,539Expenses 2021: $728,273Net Income 2021: $405,2662021Revenue 2022: $1,485,666Expenses 2022: $1,013,571Net Income 2022: $472,0952022Revenue 2023: $1,221,343Expenses 2023: $1,241,572Net Income 2023: -$20,2292023Revenue 2024: $1,111,068Expenses 2024: $1,215,256Net Income 2024: -$104,1882024

Highlighted filing

2024

Revenue$1,111,068
Expenses$1,215,256
Net Income-$104,188
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$2,744,118
Liabilities
$141,718
Net assets
$2,602,400
Revenue
$1,111,068
Expenses
$1,215,256
Net income
-$104,188
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.74$0.14$2.60$1.11$1.22$0.10
2023Detailed filing. Detailed filing data is available for this year.$2.75$0.10$2.65$1.22$1.24$0.02
2022Detailed filing. Detailed filing data is available for this year.$2.83$0.16$2.66$1.49$1.01$0.47
2021Detailed filing. Detailed filing data is available for this year.$2.46$0.26$2.20$1.13$0.73$0.41
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.15$0.43$1.72$1.25$0.72$0.53
2019Detailed filing. Detailed filing data is available for this year.$1.90$0.71$1.19$1.29$1.64$0.35
2018Detailed filing. Detailed filing data is available for this year.$1.79$0.24$1.55$1.48$0.94$0.54
2017Summary only. Only limited summary data is available for this year.$1.04$0.04$1.01$0.97$0.50$0.47
2016Summary only. Only limited summary data is available for this year.$0.55$0.01$0.53$0.61$0.37$0.24
2015Summary only. Only limited summary data is available for this year.$0.31$0.01$0.29$0.52$0.36$0.16
2014Summary only. Only limited summary data is available for this year.$0.13$0.00$0.13$0.27$0.16$0.11
2013Detailed filing. Detailed filing data is available for this year.$0.02$0.02$0.03$0.02$0.01
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.01$0.01$0.01$0.00$0.01
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 14, 2025
Return Version
2024v5.2
Gross Receipts
$1,130,047
Mission and Program Overview

Mission

To provide education and increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research.

To increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$2,239,260$2,385,875▲ $146,615
Cash and Non-Interest-Bearing Accounts$488,642$265,878▼ $222,764
Investments in Publicly Traded Securities$18,585$23,640▲ $5,055
Prepaid Expenses and Deferred Charges$2,714$15,921▲ $13,207
Land, Buildings, and Equipment, Net$3,322$1,804▼ $1,518
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$2,754,023$2,744,118▼ $9,905
Other Assets Total$1,500$51,000▲ $49,500
Liabilities
Grants Payable$101,387$92,218▼ $9,169
Other Liabilities-$49,500-
Accounts Payable and Accrued Expenses$2,352--
Total Liabilities$103,739$141,718▲ $37,979
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,253,484$2,108,122▼ $145,362
Net Assets With Donor Restrictions$396,800$494,278▲ $97,478
Total Net Assets Fund Balance$2,650,284$2,602,400▼ $47,884
Total Liabilities and Net Assets / Fund Balance$2,754,023$2,744,118▼ $9,905

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,804$14,528$16,332
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Lauren Stiles JdPresident & CEOFT$134,885$134,885

Board Members and Trustees

NameTitle
Jacqueline Rutter GullyVice President
Amy Kohut JdDirector
Irene CollinsDirector
Salvatore Desena MdDirector
Liza Fisher MbaSecretary
Shannon KoplitzTreasurer & CFO
Revenue and Support

Revenue Composition

Contributions and Grants
$874,033
Program Service Revenue
$159,245
Investment Income
$96,769
Other Revenue
$-18,979
All Other Contributions
$701,788
Change in Net Assets
$-104,188

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,111,068
Revenue Not Reported on Form 990
$23,883
Total Revenue per Audited Statements
$1,134,951
Total Revenue per Form 990
$1,111,068
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$581,262
Other Expenses$523,169
Total Fundraising Expense$151,687
Grants and Similar Amounts Paid$110,825
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$328,568$4,501$60,898$393,967
Fees for Services Other$334,360$60$12,024$346,444
Current Officers, Directors, Trustees, and Key Employees$111,955$1,349$21,581$134,885
Grants to Domestic Orgs$81,582--$81,582
Payroll Taxes$38,685$520$7,748$46,953
Information Technology$33,436$1,082$9,360$43,878
Travel$33,077-$1,226$34,303
Foreign Grants$29,243--$29,243
Occupancy$16,726$223$3,290$20,239
Fees for Services Accounting$11,992$3,129$2,349$17,470
Other Employee Benefits$4,506$61$890$5,457
Fees for Services Legal$4,500$60$882$5,442
Insurance$3,524$47$1,337$4,908
Advertising$2,168-$384$2,552
Conferences and Meetings$1,785-$275$2,060
Depreciation Depletion$1,154$221$143$1,518
Office Expenses$1,183$15$227$1,425
Other Expenses$889$12$174$1,075
All Other Expenses$230$3$45$278
Total Functional Expenses$1,052,265$11,304$151,687$1,215,256

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,234,235
Expenses per Audited Statements$1,215,256
Total Expenses per Form 990$1,215,256
Expenses Not Reported on Form 990$18,979
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Ann & Robert H Lurie ChildrenChicago, IL-Double Blinded Placebo Controlled$29,362
John Hopkin UniverstyBaltimore, MD-Novel Autoantibodies Patients w/POT$27,220
Regents of Univ of CALIFORNIALaJolla, CA-mitochondrial/immune function pots$25,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$18,979
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising Events$172,245-$18,979-
Total Events$172,245-$18,979$-18,979
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Leases Payable$49,500
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The board will review and approve the tax returns prior to submission.”

Form 990, Part VI, Section B, Line 12C

“All conflicts are discussed annually at a board meeting.”

Form 990, Part VI, Section B, Line 15A

“The ceo salary is determined by independent non-employee members of the board of directors after a careful comparative review of salaries for similarly qualified individuals in similar positions.”

Form 990, Part VI, Section B, Line 15B

“The ceo and other staff salaries were set by independent non-employee members of the board of directors after a careful comparative review of salaries for similarly qualified individuals in similar positions.”

Form 990, Part VI, Section C, Line 19

“Documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Dysautonomia International Inc
EIN
45-5437249
Phone
6312021720
Address
PO BOX 596, EAST MORICHES, NY 11940

Signing Officer

Name
Shannon Koplitz
Title
Treasurer
Signed
2025-10-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Shannon Koplitz
Formed
2012
Legal Domicile
Ny
Voting Board Members
7
Independent Board Members
6
Employees
10
Volunteers
300

Preparer

Firm
Sabel & Oplinger CPA Pc
Address
106 Prospect St, Southampton, NY 11968
Preparer
Robert J Strebel CPA
Phone
6312832370
Supplemental Narrative

Financial Statement Notes

Part X : FIN48 Footnote

“The Organization has been classified by the Internal Revenue Service as a publicly supported tax-exempt charity pursuant to IRC Section 501(c)(3) and as a not-for-profit corporation under the laws of New York State. Accordingly, no provision for federal or state income taxes is required. As of December 31, 2024, no amounts have been recognized for uncertain income tax positions.”

Part XI, Line 2D: Other revenue amounts included in F/S but not included on form 990

“Direct fundraising expenses $18979”

Part XII, Line 2D: Other expenses and losses per audited F/S

“Direct fundraising expenses $18979”

Raw XML AppendixShowing 400 of 674 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
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