Civic Intelligence

The Familial Hypercholesterolemia Foundation

EIN 45-4597425 • 501(c)3 • Fernandina Beach, FL

Profile

The Family Heart Foundation was incorporated February 17, 2012 as a California nonprofit corporation, originally as The Familial Hypercholesterolemia Foundation (the "FH Foundation"). This remains the legal name, with "Family Heart Foundation" added dba or doing business as. The name of the organization was changed in December of 2021 to reflect a broader mission. The Family Heart Foundation is a patient-centered nonprofit dedicated to improving the diagnosis and management of inherited lipid disorders, including familial hypercholesterolemia ("FH") and elevated lipoprotein (a) ("Lp(a). Through research, advocacy, and education, the Family Heart Foundation drives change, and empowers families to navigate their own health.

5548 First Coast Hwy 204Fernandina Beach, FL 32034

www.familyheart.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

66th percentile

0.28x

Higher debt load relative to assets than 66% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

59th percentile

0.23x

Higher debt load relative to revenue than 59% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

64th percentile

12%

Higher net margin than 64% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

89th percentile

38%

Faster asset growth than 89% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

81st percentile

36%

Faster revenue growth than 81% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets66th percentile

Assets

Up

$7,350,370

Up $2,036,694 (+38%) from 2023

Liabilities

Up

$2,079,880

Up $946,356 (+83%) from 2023

Net Assets

Up

$5,270,490

Up $1,090,338 (+26%) from 2023

Operations
Liabilities / Revenue59th percentileNet Margin64th percentile

Revenue

Up

$8,891,212

Up $2,355,604 (+36%) from 2023

Expenses

Up

$7,841,100

Up $1,478,600 (+23%) from 2023

Net Income

Up

$1,050,112

Up $877,004 (+507%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth89th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$8.0M$6.0M$4.0M$2.0M$0Assets 2012: $444,503Liabilities 2012: $0Net Assets 2012: $444,5032012Assets 2013: $366,923Liabilities 2013: $5,346Net Assets 2013: $361,5772013Assets 2014: $3,582,214Liabilities 2014: $31,226Net Assets 2014: $3,550,9882014Assets 2015: $4,836,419Liabilities 2015: $117,776Net Assets 2015: $4,718,6432015Assets 2016: $6,970,129Liabilities 2016: $179,265Net Assets 2016: $6,790,8642016Assets 2017: $7,642,582Liabilities 2017: $180,835Net Assets 2017: $7,461,7472017Assets 2018: $5,284,854Liabilities 2018: $463,353Net Assets 2018: $4,821,5012018Assets 2019: $3,585,638Liabilities 2019: $219,414Net Assets 2019: $3,366,2242019Assets 2020: $4,371,270Liabilities 2020: $307,977Net Assets 2020: $4,063,2932020Assets 2021: $6,401,928Liabilities 2021: $384,859Net Assets 2021: $6,017,0692021Assets 2022: $4,488,377Liabilities 2022: $554,614Net Assets 2022: $3,933,7632022Assets 2023: $5,313,676Liabilities 2023: $1,133,524Net Assets 2023: $4,180,1522023Assets 2024: $7,350,370Liabilities 2024: $2,079,880Net Assets 2024: $5,270,4902024

Highlighted filing

2024

Assets$7,350,370
Liabilities$2,079,880
Net Assets$5,270,490
Open 2024 Filing

Operations Trend

Revenue Growth81st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2012: $138,3382012Revenue 2013: $762,377Expenses 2013: $845,303Net Income 2013: -$82,9262013Revenue 2014: $3,099,878Expenses 2014: $1,448,127Net Income 2014: $1,651,7512014Revenue 2015: $4,349,570Expenses 2015: $3,181,915Net Income 2015: $1,167,6552015Revenue 2016: $6,162,693Expenses 2016: $4,090,472Net Income 2016: $2,072,2212016Revenue 2017: $5,690,012Expenses 2017: $5,037,196Net Income 2017: $652,8162017Revenue 2018: $3,098,812Expenses 2018: $5,685,786Net Income 2018: -$2,586,9742018Revenue 2019: $3,459,476Expenses 2019: $5,012,467Net Income 2019: -$1,552,9912019Revenue 2020: $3,755,847Expenses 2020: $3,120,676Net Income 2020: $635,1712020Revenue 2021: $4,759,952Expenses 2021: $2,857,007Net Income 2021: $1,902,9452021Revenue 2022: $2,813,780Expenses 2022: $4,729,443Net Income 2022: -$1,915,6632022Revenue 2023: $6,535,608Expenses 2023: $6,362,500Net Income 2023: $173,1082023Revenue 2024: $8,891,212Expenses 2024: $7,841,100Net Income 2024: $1,050,1122024

Highlighted filing

2024

Revenue$8,891,212
Expenses$7,841,100
Net Income$1,050,112
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$7,350,370
Liabilities
$2,079,880
Net assets
$5,270,490
Revenue
$8,891,212
Expenses
$7,841,100
Net income
$1,050,112
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.35$2.08$5.27$8.89$7.84$1.05
2023Detailed filing. Detailed filing data is available for this year.$5.31$1.13$4.18$6.54$6.36$0.17
2022Detailed filing. Detailed filing data is available for this year.$4.49$0.55$3.93$2.81$4.73$1.92
2021Detailed filing. Detailed filing data is available for this year.$6.40$0.38$6.02$4.76$2.86$1.90
2020Detailed filing. Detailed filing data is available for this year.$4.37$0.31$4.06$3.76$3.12$0.64
2019Detailed filing. Detailed filing data is available for this year.$3.59$0.22$3.37$3.46$5.01$1.55
2018Detailed filing. Detailed filing data is available for this year.$5.28$0.46$4.82$3.10$5.69$2.59
2017Detailed filing. Detailed filing data is available for this year.$7.64$0.18$7.46$5.69$5.04$0.65
2016Detailed filing. Detailed filing data is available for this year.$6.97$0.18$6.79$6.16$4.09$2.07
2015Detailed filing. Detailed filing data is available for this year.$4.84$0.12$4.72$4.35$3.18$1.17
2014Detailed filing. Detailed filing data is available for this year.$3.58$0.03$3.55$3.10$1.45$1.65
2013Detailed filing. Detailed filing data is available for this year.$0.37$0.01$0.36$0.76$0.85$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.44$0.00$0.44$0.14
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 1, 2025
Return Version
2024v5.2
Gross Receipts
$8,891,212
Mission and Program Overview

Mission

The Familial Hypercholesterolemia Foundation ("The FH Foundation") was incorporated February 17, 2012 as a California nonprofit corporation. The FH Foundation is a patient-centered nonprofit dedicated to education, advocacy, and research of familial hypercholesterolemia (FH). Our mission is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia and Lipoprotein(a). Through research, advocacy, and education we play a critical role in driving change, and empower families to navigate their own health.

The mission of the Family Heart Foundation is to save generations of families from heart disease

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,455,288$3,035,008▲ $1,579,720
Savings and Temporary Cash Investments$2,312,202$2,859,676▲ $547,474
Investments in Publicly Traded Securities$890,893$964,437▲ $73,544
Pledges and Grants Receivable$531,161$362,186▼ $168,975
Prepaid Expenses and Deferred Charges$76,431$94,109▲ $17,678
Land, Buildings, and Equipment, Net$22,602$20,678▼ $1,924
Accounts Receivable$2,553$0▼ $2,553
Total Assets$5,313,676$7,350,370▲ $2,036,694
Other Assets Total$22,546$14,276▼ $8,270
Liabilities
Deferred Revenue$791,000$1,683,485▲ $892,485
Accounts Payable and Accrued Expenses$321,833$383,264▲ $61,431
Other Liabilities$20,691$13,131▼ $7,560
Total Liabilities$1,133,524$2,079,880▲ $946,356
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$788,283$4,908,628▲ $4,120,345
Net Assets With Donor Restrictions$3,391,869$361,862▼ $3,030,007
Total Net Assets Fund Balance$4,180,152$5,270,490▲ $1,090,338
Total Liabilities and Net Assets / Fund Balance$5,313,676$7,350,370▲ $2,036,694

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$20,678$54,182$74,860
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Katherine WilemonCEO/Board MemberFT$337,365$66,071$403,436
Hilliard PaigeChief Innovation OfficerFT$303,165$98,442$401,607
Allison HawkeVP of OperationsFT$183,984$49,874$233,858
Diane MacDougallVP of Science and ResearchFT$185,774$34,627$220,401
Susan SeimCreative DirectorFT$135,463$14,292$149,755
Barbara GladdersSr. Healthcare Data AnalystFT$124,000$18,842$142,842

Board Members and Trustees

NameTitle
Joshua KnowlesChair
Seth BaumVice Chair
Brian MittmanBoard Member
Courtney RileyBoard Member
Keith FerdinandBoard Member
Allison JamisonTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
BIA Clinical Group LLCStatistical & Programming Support2793 Plymouth Rd Suite J, Ann Arbor, MI 48105$417,888
Fairmont HotelSummit venue, A/V Production1717 North Akard Street, Dallas, TX 75201$347,208
Source Heathcare Analytics LLCData4130 ParkLake Ave Ste 400, Raleigh, NC 27612$333,897
Solstice Health CommunicationsCommunications & Marketing Consultants49 Route 202, Far Hills, NJ 07931$296,529
Pri-Med LLCProfessional Society Event855 Boylston Street Suite 501, Boston, MA 02116$274,500
Revenue and Support

Revenue Composition

Contributions and Grants
$8,536,472
Program Service Revenue
$240,000
Investment Income
$54,378
Other Revenue
$60,362
All Other Contributions
$8,138,677
Change in Net Assets
$1,050,112

Audited Revenue Reconciliation

Revenue per Audited Statements
$8,891,212
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$40,226
Total Revenue per Audited Statements
$8,931,438
Total Revenue per Form 990
$8,891,212
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,721,297
Salaries, Compensation, and Employee Benefits$3,119,803
Total Fundraising Expense$224,010
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,930,197$201,964$113,108$2,245,269
Advertising$1,153,154$119,357$19,263$1,291,774
Fees for Services Other$874,557$52,617$18,052$945,226
Conferences and Meetings$669,351$98,783$15,433$783,567
Current Officers, Directors, Trustees, and Key Employees$346,822$36,290$20,324$403,436
Travel$279,076$7,656$1,965$288,697
Other Employee Benefits$158,031$16,150$5,251$179,432
Payroll Taxes$143,862$14,730$5,074$163,666
Office Expenses$84,840$38,113$11,247$134,200
Pension Plan Contributions$112,512$11,520$3,968$128,000
Fees for Services Legal$84,155$30,874$4,429$119,458
Insurance$70,106$10,722$1,650$82,478
Information Technology$55,201$3,399$1,742$60,342
Fees for Services Accounting-$23,295-$23,295
Depreciation Depletion-$12,153-$12,153
Occupancy$8,030$1,228$189$9,447
Other Expenses$33,647$440$2,315$440
Total Functional Expenses$6,926,628$690,462$224,010$7,841,100

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$7,841,100
Total Expenses per Audited Statements$7,841,100
Total Expenses per Form 990$7,841,100
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease liabilities - operating leases$13,131
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“The Form 990 is e-mailed to each member and reviewed via electronic media prior to filing.”

Form 990, Part VI, Section B, line 12C

“Conflicts of interest are monitored annually and reviewed by the governing body prior to approval or determination of action.”

Form 990, Part VI, Section B, line 15A

“The CEO's salary is reviewed on an annual basis by the Board of Directors and then approved by the Executive Committee. Part VI, line 15(b) was answered "no" as there were no other officers or key employees as defined in Form 990 instructions who received compensation.”

Form 990, Part VI, Section C, line 19

“All documents are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
The Familial Hypercholesterolemia
EIN
45-4597425
Phone
6265834674
Address
5548 First Coast Hwy 204, Fernandina Beach, FL 32034
Doing Business As
Family Heart Foundation

Signing Officer

Name
Katherine Wilemon
Title
CEO
Phone
6265834674
Signed
2025-10-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Katherine Wilemon
Formed
2012
Legal Domicile
CA
Voting Board Members
7
Independent Board Members
6
Employees
22
Volunteers
374

Preparer

Firm
Harrington Group CPAs LLP
Address
2698 Mataro Street, Pasadena, CA 91107
Preparer
Carlos A Davis CPA
Phone
6264036801
Supplemental Narrative

Additional Explanations

Form 990, Part I, line 1, Description of Organization Mission:

“through timely identification and improved care of familial hypercholesterolemia (FH) and elevated lipoprotein(a) (Lp(a)). Through research, advocacy, and education we play a critical role in driving change and empower families to navigate their own health. Programs and Initiatives are: Family Heart Awareness and Engagement Campaigns Community In Action Corporate Advisory Council Clinical Trial Awareness CASCADE FH Registry Family Heart Database Research FIND Lp(a) FIND FH Leveraging Evidence and Data (LEAD) to Accelerate Pediatric Screening for FH Leveraging Evidence and Data (LEAD) LDL Getting On Appropriate Lipid Lowering ("GOAL") Program Care Navigation Center Family Heart Global Summit Global Network Research Partnerships Cholesterol Connect”

Form 990, Part IX, line 11G

“Consultants/temporary staff: Program service expenses 302,649. Management and general expenses 40,702. Total expenses 343,351. Other professional services: Program service expenses 571,908. Management and general expenses 11,915. Fundraising expenses 18,052. Total expenses 601,875.”

Financial Statement Notes

Part X, Line 2:

“Family Heart Foundation is exempt from taxation under Internal Revenue Code Section 501(c)(3) and California Revenue and Taxation Code Section 23701d. Generally accepted accounting principles provide accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes that all of the positions taken by Family Heart Foundation in its federal and state exempt organization tax returns are more likely than not to be sustained upon examination. Family Heart Foundation's returns are subject to examination by federal and state taxing authorities, generally for three and four years, respectively, after they are filed.”

Raw XML AppendixShowing 400 of 612 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0321833
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0383264
IRS990/AccountsReceivableGrp/BOYAmt02553
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0The mission of the Family Heart Foundation is to save generations of families from heart disease
IRS990/AdvertisingGrp/FundraisingAmt019263
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0119357
IRS990/AdvertisingGrp/ProgramServicesAmt01153154
IRS990/AdvertisingGrp/TotalAmt01291774
IRS990/AllOtherContributionsAmt08138677
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0The Organization
IRS990/BooksInCareOfDetail/PhoneNum06265834674
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt05548 First Coast Hwy 204
IRS990/BooksInCareOfDetail/USAddress/CityNm0Fernandina Beach
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0FL
IRS990/BooksInCareOfDetail/USAddress/ZIPCd032034
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt01455288
IRS990/CashNonInterestBearingGrp/EOYAmt03035008
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt013
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt020324
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt036290
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0346822
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0403436
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/FundraisingAmt015433
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt098783
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt0669351
IRS990/ConferencesMeetingsGrp/TotalAmt0783567
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContractorCompensationGrp/CompensationAmt0417888
IRS990/ContractorCompensationGrp/CompensationAmt1347208
IRS990/ContractorCompensationGrp/CompensationAmt2333897
IRS990/ContractorCompensationGrp/CompensationAmt3296529
IRS990/ContractorCompensationGrp/CompensationAmt4274500
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt02793 Plymouth Rd Suite J
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt11717 North Akard Street
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt24130 ParkLake Ave Ste 400
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt349 Route 202
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt4855 Boylston Street Suite 501
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm0Ann Arbor
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm1Dallas
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm2Raleigh
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm3Far Hills
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm4Boston
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd0MI
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd1TX
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd2NC
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd3NJ
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd4MA
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd048105
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd175201
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd227612
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd307931
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd402116
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt0BIA Clinical Group LLC
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt1Fairmont Hotel
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt2Source Heathcare Analytics LLC
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt3Solstice Health Communications
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt4Pri-Med LLC
IRS990/ContractorCompensationGrp/ServicesDesc0Statistical & Programming Support
IRS990/ContractorCompensationGrp/ServicesDesc1Summit venue, A/V Production
IRS990/ContractorCompensationGrp/ServicesDesc2Data
IRS990/ContractorCompensationGrp/ServicesDesc3Communications & Marketing Consultants
IRS990/ContractorCompensationGrp/ServicesDesc4Professional Society Event
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt08536472
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt054378
IRS990/CYOtherExpensesAmt04721297
IRS990/CYOtherRevenueAmt060362
IRS990/CYProgramServiceRevenueAmt0240000
IRS990/CYRevenuesLessExpensesAmt01050112
IRS990/CYSalariesCompEmpBnftPaidAmt03119803
IRS990/CYTotalExpensesAmt07841100
IRS990/CYTotalFundraisingExpenseAmt0224010
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt08891212
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/BOYAmt0791000
IRS990/DeferredRevenueGrp/EOYAmt01683485
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt012153
IRS990/DepreciationDepletionGrp/TotalAmt012153
IRS990/Desc0RESEARCH: The Family Heart Foundation conducts independent, observational and implementation research. Our major research initiatives involve characterizing familial hypercholesterolemia through our national CASCADE FH Registry, analyzing current screening rates, diagnosis and burden of disease of high lipoprotein(a), FH, and high LDL-C through our Family Heart Database and quality improvement research through FIND-FH & FIND-Lp(a). We have published over 50 peer-reviewed manuscripts, most recently in the European Heart Journal entitled "Lipoprotein(a) and recurrent atherosclerotic cardiovascular events: the US Family Heart Database" (May 7, 2025).
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DoingBusinessAsName/BusinessNameLine1Txt0Family Heart Foundation
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt03391869
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt0361862
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt022
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt03093173
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt023295
IRS990/FeesForServicesAccountingGrp/TotalAmt023295
IRS990/FeesForServicesLegalGrp/FundraisingAmt04429
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt030874
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt084155
IRS990/FeesForServicesLegalGrp/TotalAmt0119458
IRS990/FeesForServicesOtherGrp/FundraisingAmt018052
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt052617
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0874557
IRS990/FeesForServicesOtherGrp/TotalAmt0945226
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt340.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt740.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt840.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt940.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1140.00
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd3X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt316071
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt724874
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt818842
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt938442
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1014292
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1125627
IRS990/Form990PartVIISectionAGrp/PersonNm0Joshua Knowles
IRS990/Form990PartVIISectionAGrp/PersonNm1Seth Baum
IRS990/Form990PartVIISectionAGrp/PersonNm2Allison Jamison
IRS990/Form990PartVIISectionAGrp/PersonNm3Katherine Wilemon
IRS990/Form990PartVIISectionAGrp/PersonNm4Keith Ferdinand
IRS990/Form990PartVIISectionAGrp/PersonNm5Brian Mittman
IRS990/Form990PartVIISectionAGrp/PersonNm6Courtney Riley
IRS990/Form990PartVIISectionAGrp/PersonNm7Allison Hawke
IRS990/Form990PartVIISectionAGrp/PersonNm8Barbara Gladders
IRS990/Form990PartVIISectionAGrp/PersonNm9Hilliard Paige
IRS990/Form990PartVIISectionAGrp/PersonNm10Susan Seim
IRS990/Form990PartVIISectionAGrp/PersonNm11Diane MacDougall
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt3387365
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt7208984
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt8124000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt9363165
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10135463
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt11194774
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/TitleTxt0Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt2Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt3CEO/Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt4Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt5Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt6Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt7VP of Operations
IRS990/Form990PartVIISectionAGrp/TitleTxt8Sr. Healthcare Data Analyst
IRS990/Form990PartVIISectionAGrp/TitleTxt9Chief Innovation Officer
IRS990/Form990PartVIISectionAGrp/TitleTxt10Creative Director
IRS990/Form990PartVIISectionAGrp/TitleTxt11VP of Science and Research
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02012
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt07
IRS990/GovernmentGrantsAmt0397795
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt08891212
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt06
IRS990/IndivRcvdGreaterThan100KCnt012
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt01742
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt03399
IRS990/InformationTechnologyGrp/ProgramServicesAmt055201
IRS990/InformationTechnologyGrp/TotalAmt060342
IRS990/InsuranceGrp/FundraisingAmt01650
IRS990/InsuranceGrp/ManagementAndGeneralAmt010722
IRS990/InsuranceGrp/ProgramServicesAmt070106
IRS990/InsuranceGrp/TotalAmt082478
IRS990/InvestmentIncomeGrp/ExclusionAmt054378
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt054378
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0890893
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0964437
IRS990/IRPDocumentCnt025
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt054182
IRS990/LandBldgEquipBasisNetGrp/BOYAmt022602
IRS990/LandBldgEquipBasisNetGrp/EOYAmt020678
IRS990/LandBldgEquipCostOrOtherBssAmt074860
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0The Family Heart Foundation was incorporated February 17, 2012 as a California nonprofit corporation, originally as The Familial Hypercholesterolemia Foundation (the "FH Foundation"). This remains the legal name, with "Family Heart Foundation" added dba or doing business as. The name of the organization was changed in December of 2021 to reflect a broader mission. The Family Heart Foundation is a patient-centered nonprofit dedicated to improving the diagnosis and management of inherited lipid disorders, including familial hypercholesterolemia ("FH") and elevated lipoprotein (a) ("Lp(a). Through research, advocacy, and education, the Family Heart Foundation drives change, and empowers families to navigate their own health.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt04180152
IRS990/NetAssetsOrFundBalancesEOYAmt05270490
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt040226
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0788283
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt04908628
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt0189
IRS990/OccupancyGrp/ManagementAndGeneralAmt01228
IRS990/OccupancyGrp/ProgramServicesAmt08030
IRS990/OccupancyGrp/TotalAmt09447
IRS990/OfficeExpensesGrp/FundraisingAmt011247
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt038113
IRS990/OfficeExpensesGrp/ProgramServicesAmt084840
IRS990/OfficeExpensesGrp/TotalAmt0134200
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt022546
IRS990/OtherAssetsTotalGrp/EOYAmt014276
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt05251
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt016150
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0158031
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0179432
IRS990/OtherExpensesGrp/Desc0Data & Research
IRS990/OtherExpensesGrp/Desc1Membership/subscription
IRS990/OtherExpensesGrp/Desc2Bank charges
IRS990/OtherExpensesGrp/Desc3Registration fees & tax
IRS990/OtherExpensesGrp/FundraisingAmt02315
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0701
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt110470
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2440
IRS990/OtherExpensesGrp/ProgramServicesAmt0923087
IRS990/OtherExpensesGrp/ProgramServicesAmt133647
IRS990/OtherExpensesGrp/TotalAmt0923087
IRS990/OtherExpensesGrp/TotalAmt134348
IRS990/OtherExpensesGrp/TotalAmt212785
IRS990/OtherExpensesGrp/TotalAmt3440
IRS990/OtherLiabilitiesGrp/BOYAmt020691
IRS990/OtherLiabilitiesGrp/EOYAmt013131
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0Other income
IRS990/OtherRevenueMiscGrp/ExclusionAmt060362
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt060362
IRS990/OtherRevenueTotalAmt060362
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0113108
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0201964
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01930197
IRS990/OtherSalariesAndWagesGrp/TotalAmt02245269
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05074
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt014730
IRS990/PayrollTaxesGrp/ProgramServicesAmt0143862
IRS990/PayrollTaxesGrp/TotalAmt0163666
IRS990/PensionPlanContributionsGrp/FundraisingAmt03968
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt011520
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt0112512
IRS990/PensionPlanContributionsGrp/TotalAmt0128000
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0531161
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0362186
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt076431
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt094109
IRS990/PrincipalOfficerNm0Katherine Wilemon
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0Contract fees
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0240000
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0240000
IRS990/ProgSrvcAccomActy2Grp/Desc0ADVOCACY: The Family Heart Foundation provides individualized resources to those living with genetic dyslipidemias through our Care Navigation Center. We also engage and support communities through on-site community education and screening programs. In addition, we raise awareness of these highly undiagnosed conditions through national media and awareness campaigns, The Family Heart Foundation established FH Awareness Day in 2012 and Lp(a) Awareness Day in 2021. We also work at a policy level to represent and elevate the voices of our community and improve care.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt02288028
IRS990/ProgSrvcAccomActy3Grp/Desc0EDUCATION: As an honest broker and neutral convener, the Family Heart Foundation provides education and tools to diverse audiences, from patients (through programs like Cholesterol Connect) to healthcare professionals, policymakers and payers (through programs like GOAL and Lp(a) AWARE). We host an annual scientific meeting, the Family Heart Global Summit and hold educational symposia at primary care medical conferences across the country.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt01545427
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt06160613
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt031584
IRS990/PYOtherExpensesAmt03764416
IRS990/PYOtherRevenueAmt025015
IRS990/PYProgramServiceRevenueAmt0318396
IRS990/PYRevenuesLessExpensesAmt0173108
IRS990/PYSalariesCompEmpBnftPaidAmt02598084
IRS990/PYTotalExpensesAmt06362500
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt06535608
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt01050112
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0240000
IRS990/SavingsAndTempCashInvstGrp/BOYAmt02312202
IRS990/SavingsAndTempCashInvstGrp/EOYAmt02859676
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt08536472
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt06160613
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01824933
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt03613537
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt02147210
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt022282765
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt054378
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt031584
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt031749
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt032015
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt025313
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0175039
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt04195354
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt060362
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt025015
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt04366
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0300
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt013198
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0103241
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.35560
IRS990ScheduleA/PublicSupportPY170Pct00.35080
IRS990ScheduleA/PublicSupportTotal170Amt08021981
IRS990ScheduleA/SubstantialContributorsTotAmt014260784
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X

Document Assets

No mirrored PDF or thumbnail assets are attached yet.