Civic Intelligence

The Familial Hypercholesterolemia Foundation DBA the Fh Foundation

990 • Fiscal year 2023 • EIN 45-4597425

Jan 01, 2023 to Dec 31, 2023 • Filed on Nov 04, 2024

Organization Profilewww.thefhfoundation.org

View Organization Page

5548 First Coast Hwy 204Fernandina Beach, FL 32034

(626) 583-4674

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

60th percentile

0.21x

Higher debt load relative to assets than 60% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Liabilities / Revenue

49th percentile

0.17x

Higher debt load relative to revenue than 49% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Net Margin

47th percentile

2.6%

Higher net margin than 47% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Top Officer Pay

94th percentile

$452,099

Higher top officer pay than 94% of similar nonprofits.

Top officer pay equals 6.9% of source-year revenue.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2023

Asset Growth

75th percentile

18%

Faster asset growth than 75% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Revenue Growth

94th percentile

132%

Faster revenue growth than 94% of similar nonprofits.

2023 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets60th percentile

Assets

Up

$5,313,676

Up $825,299 (+18%) from 2022

Net Assets

Up

$4,180,152

Up $246,389 (+6.3%) from 2022

Liabilities

Up

$1,133,524

Up $578,910 (+104%) from 2022

Revenue And Expenses
Liabilities / Revenue49th percentileNet Margin47th percentile

Revenue

Up

$6,535,608

Up $3,721,828 (+132%) from 2022

Expenses

Up

$6,362,500

Up $1,633,057 (+35%) from 2022

Net Income

Up

$173,108

Up $2,088,771 (+109%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth75th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2012: $444,503Liabilities 2012: $0Net Assets 2012: $444,5032012Assets 2013: $366,923Liabilities 2013: $5,346Net Assets 2013: $361,5772013Assets 2014: $3,582,214Liabilities 2014: $31,226Net Assets 2014: $3,550,9882014Assets 2015: $4,836,419Liabilities 2015: $117,776Net Assets 2015: $4,718,6432015Assets 2016: $6,970,129Liabilities 2016: $179,265Net Assets 2016: $6,790,8642016Assets 2017: $7,642,582Liabilities 2017: $180,835Net Assets 2017: $7,461,7472017Assets 2018: $5,284,854Liabilities 2018: $463,353Net Assets 2018: $4,821,5012018Assets 2019: $3,585,638Liabilities 2019: $219,414Net Assets 2019: $3,366,2242019Assets 2020: $4,371,270Liabilities 2020: $307,977Net Assets 2020: $4,063,2932020Assets 2021: $6,401,928Liabilities 2021: $384,859Net Assets 2021: $6,017,0692021Assets 2022: $4,488,377Liabilities 2022: $554,614Net Assets 2022: $3,933,7632022Assets 2023: $5,313,676Liabilities 2023: $1,133,524Net Assets 2023: $4,180,1522023Assets 2024: $7,350,370Liabilities 2024: $2,079,880Net Assets 2024: $5,270,4902024

Highlighted filing

2023

Assets$5,313,676
Liabilities$1,133,524
Net Assets$4,180,152
Open 2023 Filing

Operations Trend

Revenue Growth94th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2012: $138,3382012Revenue 2013: $762,377Expenses 2013: $845,303Net Income 2013: -$82,9262013Revenue 2014: $3,099,878Expenses 2014: $1,448,127Net Income 2014: $1,651,7512014Revenue 2015: $4,349,570Expenses 2015: $3,181,915Net Income 2015: $1,167,6552015Revenue 2016: $6,162,693Expenses 2016: $4,090,472Net Income 2016: $2,072,2212016Revenue 2017: $5,690,012Expenses 2017: $5,037,196Net Income 2017: $652,8162017Revenue 2018: $3,098,812Expenses 2018: $5,685,786Net Income 2018: -$2,586,9742018Revenue 2019: $3,459,476Expenses 2019: $5,012,467Net Income 2019: -$1,552,9912019Revenue 2020: $3,755,847Expenses 2020: $3,120,676Net Income 2020: $635,1712020Revenue 2021: $4,759,952Expenses 2021: $2,857,007Net Income 2021: $1,902,9452021Revenue 2022: $2,813,780Expenses 2022: $4,729,443Net Income 2022: -$1,915,6632022Revenue 2023: $6,535,608Expenses 2023: $6,362,500Net Income 2023: $173,1082023Revenue 2024: $8,891,212Expenses 2024: $7,841,100Net Income 2024: $1,050,1122024

Highlighted filing

2023

Revenue$6,535,608
Expenses$6,362,500
Net Income$173,108
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Nov 4, 2024
Return Version
2023v5.1
Gross Receipts
$6,535,608
Mission and Program Overview

Mission

The Familial Hypercholesterolemia Foundation ("The FH Foundation") was incorporated February 17, 2012 as a California nonprofit corporation. The FH Foundation is a patient-centered nonprofit dedicated to education, advocacy, and research of familial hypercholesterolemia (FH). Our mission is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia and Lipoprotein(a). Through research, advocacy, and education we play a critical role in driving change, and empower families to navigate their own health.

The mission of the Family Heart Foundation is to save generations of families from heart disease

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,640,720$2,312,202▲ $671,482
Cash and Non-Interest-Bearing Accounts$1,765,132$1,455,288▼ $309,844
Investments in Publicly Traded Securities$798,771$890,893▲ $92,122
Pledges and Grants Receivable$0$531,161▲ $531,161
Prepaid Expenses and Deferred Charges$72,219$76,431▲ $4,212
Land, Buildings, and Equipment, Net$9,032$22,602▲ $13,570
Accounts Receivable$201,942$2,553▼ $199,389
Total Assets$4,488,377$5,313,676▲ $825,299
Other Assets Total$561$22,546▲ $21,985
Liabilities
Deferred Revenue$65,000$791,000▲ $726,000
Accounts Payable and Accrued Expenses$489,614$321,833▼ $167,781
Other Liabilities$0$20,691▲ $20,691
Total Liabilities$554,614$1,133,524▲ $578,910
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,604,092$3,391,869▲ $1,787,777
Net Assets Without Donor Restrictions$2,329,671$788,283▼ $1,541,388
Total Net Assets Fund Balance$3,933,763$4,180,152▲ $246,389
Total Liabilities and Net Assets / Fund Balance$4,488,377$5,313,676▲ $825,299

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$22,602$42,029$64,631
Compensation and Service Providers
Top Officer Pay94th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Katherine WilemonCEO/Board MemberFT$337,365$114,734$452,099
Hilliard PaigeChief Innovation OfficerFT$307,536$55,790$363,326
M McGowanCMOFT$198,639$32,537$231,176
Diane MacDougallVP of Science and ResearchFT$173,420$1,000$174,420
Catherine AhmedVP of PolicyFT$141,418$658$142,076
Susan SeimCreative DirectorFT$117,716-$117,716

Board Members and Trustees

NameTitle
Joshua KnowlesChair
Dan RaderChair (end Dec.)
Seth BaumVice Chair (start Jan.)
Brian MittmanBoard Member
Courtney RileyBoard Member
Stacey LaneBoard Member (end Dec.)
Keith FerdinandBoard Member (start Jan.)
Allison JamisonTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Bass Berry & Sims PLCLegal Services150 3rd Ave S, Nashville, TN 37201$384,284
Atomo IncConsulting1603 Falcon Ledge Dr, Austin, TX 78746$360,000
Merryman Communications INCMedia Outreach/Advertising260 Via Buena Ventura, Redondo Beach, CA 90277$305,008
Source Heathcare Analytics LLCLab Data sets4130 ParkLake Ave Ste 400, Raleigh, NC 27612$238,393
Lighthouse Consulting LLCContract labor9 Pinewood Village Road, West Lebanon, NH 03784$172,427
Revenue and Support

Revenue Composition

Contributions and Grants
$6,160,613
Program Service Revenue
$318,396
Investment Income
$31,584
Other Revenue
$25,015
All Other Contributions
$5,973,051
Change in Net Assets
$173,108

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,535,608
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$73,281
Total Revenue per Audited Statements
$6,608,889
Total Revenue per Form 990
$6,535,608
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,764,416
Salaries, Compensation, and Employee Benefits$2,598,084
Total Fundraising Expense$134,985
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,430,894$318,716$28,511$1,778,121
Advertising$746,004$19,797$2,557$768,358
Conferences and Meetings$519,180$557$13,627$533,364
Current Officers, Directors, Trustees, and Key Employees$370,721$49,731$31,647$452,099
Fees for Services Other$412,176$6,438$10,632$429,246
Fees for Services Legal$254,835$123,045-$377,880
Travel$318,606$12,574$13,692$344,872
Other Employee Benefits$168,504$39,734$5,051$213,289
Pension Plan Contributions$83,869$19,242$2,805$105,916
Fees for Services Accounting-$104,461-$104,461
Insurance$72,156$15,462$15,462$103,080
Office Expenses$47,871$44,351$7,018$99,240
Payroll Taxes$38,530$8,840$1,289$48,659
Information Technology$2,478$25,187-$27,665
Occupancy$6,864$3,550$1,420$11,834
Depreciation Depletion$4,916$657$983$6,556
Other Expenses$220$784$90$1,004
Total Functional Expenses$5,424,199$803,316$134,985$6,362,500

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$6,362,500
Total Expenses per Audited Statements$6,362,500
Total Expenses per Form 990$6,362,500
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease liabilities - operating leases$20,691
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“The Form 990 is e-mailed to each member and reviewed via electronic media prior to filing.”

Form 990, Part VI, Section B, line 12C

“Conflicts of interest are monitored annually and reviewed by the governing body prior to approval or determination of action.”

Form 990, Part VI, Section B, line 15A

“The CEO's salary is reviewed on an annual basis by the Board of Directors and then approved by the Executive Committee. Part VI, line 15(b) was answered "no" as there were no other officers or key employees as defined in Form 990 instructions who received compensation.”

Form 990, Part VI, Section C, line 19

“All documents are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
The Familial Hypercholesterolemia
EIN
45-4597425
Phone
6265834674
Address
5548 First Coast Hwy 204, Fernandina Beach, FL 32034
Doing Business As
Family Heart Foundation

Signing Officer

Name
Katherine Wilemon
Title
CEO
Phone
6265834674
Signed
2024-11-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Katherine Wilemon
Formed
2012
Legal Domicile
CA
Voting Board Members
7
Independent Board Members
6
Employees
17
Volunteers
202

Preparer

Firm
Harrington Group CPAs LLP
Address
2698 Mataro Street, Pasadena, CA 91107
Preparer
Carlos A Davis CPA
Phone
6264036801
Supplemental Narrative

Additional Explanations

Form 990, Part I, line 1, Description of Organization Mission:

“through timely identification and improved care of familial hypercholesterolemia (FH) and elevated lipoprotein(a) (Lp(a)). Through research, advocacy, and education we play a critical role in driving change and empower families to navigate their own health. Programs and Initiatives are: Family Heart Awareness and Engagement Campaigns Community in Action Family Heart Advocates for Awareness CASCADE FH Registry Family Heart Database FIND Lp(a)TM FIND FH Patient, Practitioner, and Payer Lipid Lowering Landscape Analysis Getting On Appropriate Lipid Lowering ("GOAL") Program Care Navigation Center Family Heart Global Summit Global Network Research Partnerships”

Financial Statement Notes

Part X, Line 2:

“Family Heart Foundation is exempt from taxation under Internal Revenue Code Section 501(c)(3) and California Revenue and Taxation Code Section 23701d. Generally accepted accounting principles provide accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes that all of the positions taken by Family Heart Foundation in its federal and state exempt organization tax returns are more likely than not to be sustained upon examination. Family Heart Foundation's returns are subject to examination by federal and state taxing authorities, generally for three and four years, respectively, after they are filed.”

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IRS990/MissionDesc0The Family Heart Foundation was incorporated February 17, 2012 as a California nonprofit corporation, originally as The Familial Hypercholesterolemia Foundation (the "FH Foundation"). This remains the legal name, with "Family Heart Foundation" added dba or doing business as. The name of the organization was changed in December of 2021 to reflect a broader mission. The Family Heart Foundation is a patient-centered nonprofit dedicated to improving the diagnosis and management of inherited lipid disorders, including familial hypercholesterolemia ("FH") and elevated lipoprotein (a) ("Lp(a). Through research, advocacy, and education, the Family Heart Foundation drives change, and empowers families to navigate their own health.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Research Partnerships - In addition to research drawing on the CASCADE FH Registry and the Family Heart Database, the Family Heart Foundation partnered on five (5) federally-funded grants in 2023.A National Institutes of Health ("NIH") grant with Columbia University and Boston Children's Hospital utilizes a health policy computer simulation model to assess and compare the societal value of various FH screening approaches. Drawing upon multiple data sources and using computer simulation models of FH screening, including using the Family Heart Database and FIND FH Model, Family Heart Foundation teams are working to quantify the potential benefits and possible harms of childhood and/or adult treatment. The Family Heart Foundation is focused on determining the optimal age for first screening and the incremental value of adding confirmatory genetic testing or family cascade screening.Another NIH funded grant in partnership with Geisinger, IMPACT-FH, is learning from both genetic screening and machine learning methods for flagging FH, including FIND FH. Once an FH diagnosis has been made, the research team is working to optimize and test novel strategies to improve family communication and uptake of cascade family screening. The ultimate goal of this program is to utilize tools from Implementation Science to develop a comprehensive FH cascade screening program that can be scaled to reach more families. The Family Heart Foundation is partnering with Penn Medicine, University of Pennsylvania Health System, on The BEAT FH grant funded by the Department of Defense Peer Reviewed Medical Research Program. This project is using Family Heart Foundation's FIND FH Model to "flag" individuals within Penn Medicine's electronic health record database who warrant screening for FH. The Family Heart Foundation is utilizing behavior economics to design and implement innovative approaches to facilitate outreach and engagement as well as guideline-recommended evaluation and medical care for patients flagged by the model. In addition, at Penn Medicine and Northwestern University, Family Heart Foundation is partnering on an NIH funded grant to use both implementation science and behavioral economics to improve cascade family screening for FH while addressing racial, ethnic, and gender disparities. This randomized controlled study will design and test multiple approaches to cascade family screening including direct outreach by Family Heart Foundation's care navigation team. Lastly, the Family Heart Foundation is involved in a Department of Defense Grant with UT Southwestern and Dallas-VA Health systems (DISCOVER FH). This grant involves family cascade screening for FH with the Family Heart Foundation acting as a centralized screening hub for family members of individuals already diagnosed with FH. The screening will include genetic testing and lipid testing for family members.Lastly, the Family Heart Foundation is involved in a Department of Defense Grant with UT Southwestern and Dallas-VA Healths Systems (DISCOVER FH). This grant involves family cascade screening for FH with the Family Heart Foundation acting as a centralized screening hub for family members of individuals already diagnosed with FH. The screening will include genetic testing and lipid testing for family members.
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IRS990/ProgSrvcAccomActy3Grp/Desc0FIND FH Program - FIND FH is a national precision screening initiative that utilizes machine learning, natural language processing, and data mining techniques to identify individuals whose profiles are consistent with FH. FIND FH includes the development, validation, and implementation of data models to flag individuals who need to be screened by a clinician for a possible FH diagnosis. This initiative directly addresses the fact that most individuals with FH are currently undiagnosed and do not have the opportunity to reduce their risk of early and aggressive cardiovascular disease. The FIND FH model searches healthcare encounter data sets including lab results, claims data, and electronic health record systems. With the results, the Family Heart Foundation identifies healthcare providers ("HCP") with patients who have medical records containing key features consistent with an individual having FH.Nationally, FIND FH has identified over 1.3 million individuals with profiles consistent with FH. The Family Heart Foundation is implementing HCP and individual engagement practices at multiple major health systems participating in the Flag Identify Network Deliver Collaborative Learning Network. These large-scale implementation projects are designed to reduce barriers to evidence-based care and to improve patient outcomes. At each health system, the Family Heart Foundation engages stakeholders and act as a hub for learning across roles within the health system. The Family Heart Foundation has identified and addressed numerous barriers and facilitators to implementation. This growing expertise positions us as a leading organization to implement FH programs in clinical settings across the US.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0Family Heart Awareness and Engagement Campaigns - The Family Heart Foundation has launched several global awareness initiatives since its founding, beginning with the establishment of September 24th as FH Awareness Day in 2012. This day has since been recognized across the globe each year, reaching millions of people. In 2021, the Family Heart Foundation announced that the first-ever Lp(a) Awareness Day would be March 24, 2022 and is now celebrated annually. FH Awareness Day and Lp(a) Awareness Day are recognized across medical societies, advocacy associations, corporate organizations, and public health institutions at home and abroad.In addition to the annual awareness days, we invested in two major campaigns: More Families, More Hearts CampaignTM and the LDL Safe Zone.More Families, More Hearts is a national communications campaign aimed to reach a large audience and drive the urgency to address family heart disease. Key messages were developed with the goal of activating people who may never have heard of FH or Lp(a) to recognize and understand lipid disorders as causes of heart disease and stroke. The campaign was designed to motivate individuals to visit to Family Heart Foundation website to learn more about inherited lipid disorders and what they can do to manage their elevated LDL-C and/or Lp(a) in order to lower not only their individual risk for atherosclerotic cardiovascular disease ("ASCVD"), but also their family's risk. One aspect of the campaign focused on the increased risk faced by members of America's Black population. Our efforts included Consumer, health, and wellness online and print outlets highlighting genetic conditions that increase the risk of early heart disease among Black /African Americans. At the completion of this campaign, we received a PRism award from the PRSA-LA in the Integrated Communications for Not-for-Profits category.In 2022, the Family Heart Foundation launched the Getting to GOAL (Getting On Appropriate Lipid Management) Program in response to findings from the PPPLLL (Patient, Payer, Practitioner Lipid Lowering Landscape) Analysis. It showed that millions of high-risk Americans never get their LDL to recommended levels, leaving them in the "Danger Zone."In 2023, the Family Heart Foundation launched the "Safe Zone" campaign. The national, patient-facing awareness campaign focused on encouraging action to manage lipids to prevent cardiovascular disease and future repeat cardiovascular events. The campaign lead audiences to the landing page, LDLSafeZone.org, to understand the risks of high LDL cholesterol and learn more about their "Safe Zone." From there, they were directed to the Care Navigation Center.On the evening of Sunday, March 5, 2023 The Atlantic hosted a roundtable discussion exclusively underwritten by Amgen with support from the Family Heart Foundation. Aligned with the American College of Cardiology Conference in New Orleans, the roundtable fostered an environment for candid and constructive discourse about the state of cardiovascular care. The discussion was anchored in findings from the Family Heart Foundation's PPPLLL analysis and focused on the central question:How can healthcare providers, payers and advocacy groups come together to improve the state of ASCVD care in the U.S. by optimizing LDL management, addressing disparities in care, and reducing barriers patients face in diagnosis and achieving treatment goals?A high-level and diverse group of opinion leaders joined for the dynamic conversation, which was led by AtlanticLIVE Contributor Kathleen Koch. Family Heart Foundation Founder Katherine Wilemon provided key insights during the conversation along with Cat Davis Ahmed and Amgen's Jyothis George.In April of 2023, we were invited to moderate and participate in the Health Equity Summit sponsored by The Atlantic called "Heart of the Matter: Addressing a Public Health Crisis of Inequitable Proportion." The session had over 60 in-person attendees and was viewed by m
IRS990/ProgSrvcAccomActyOtherGrp/Desc1FIND Lp(a)TM Program - In 2023, the Family Heart Foundation was successful in expanding the success of the Flag, Identify, Network Deliver (FIND) Initiative to identify those at risk for high lipoprotein(a), also known as Lp(a). The FIND Lp(a) program, which launched in August 2023, is a precision screening program focused on empowering patients and their medical teams with critical knowledge that can improve cardiovascular disease outcomes in high-risk populations. FIND Lp(a) aims to dramatically accelerate Lp(a) testing in major health systems across the U.S. by leveraging artificial intelligence to recognize individuals with heart disease who are most likely to have a genetic condition that causes inflammation, clotting, and clogging in the vascular system.The FIND Lp(a) program will support participating health system partners to offer screening, diagnosis, medical care, and resources to individuals who have elevated Lp(a), and who might otherwise remain undetected by current practices. Learnings from this innovative initiative will facilitate the creation of sustainable strategies for addressing elevated Lp(a) and the development of best practices and tools which will be made available to other health systems so that Lp(a) screening can become part of routine care.Patient, Practitioner, and Payer Lipid Lowering Landscape ("PPPLLL") Analysis - Pronounced "People", this analysis explores the barriers to achieving guideline-recommended low-density lipoprotein-cholesterol LDL-C goals for high-risk patients. The Family Heart Foundation "People" analysis utilized the Family Heart Foundation's national database, and patient and provider insights, to identify the barriers to achieving LDL-C goals, and the points along the patient journey where targeted interventions with multiple stakeholders could address those barriers and improve access to care. The quantitative and qualitative insights from the "People" analysis have informed the GOAL program.Care Navigation Center -The Family Heart Foundation provides individual support to help people living with or at risk for early heart disease due to FH, HoFH, and elevated Lp(a) through its Care Navigation Center services. The Family Heart Foundation guides and support patients, family members, and health care providers as they navigate the patient journey and access care. This includes connecting patients and caregivers with a specialist using the Family Heart Foundation's interactive "Find a Specialist" map, offering tools and services developed by the Family Heart Foundation to support diagnosis, treatment, insurance navigation, family screening, and clinical trial participation, advocating with payers to improve access to care on behalf of individual patients, as well as connecting patients and caregivers with peer support. Family Heart Global Summit - The Family Heart Global Summit is the only scientific conference devoted to the care and treatment of FH and elevated Lp(a). This annual event convenes world-renowned experts in FH, Lp(a), genetics, public health, healthcare policy, implementation science, and precision health. The conference features compelling and cutting-edge presentations that highlight the latest data, explore real-world implementation, and leverage perspectives from individuals with FH and elevated Lp(a) to improve identification, diagnosis, and care of inherited lipid disorders. The Family Heart Global Summit drives collaborative developments and effective solutions in an accelerated and thoughtful manner to stop premature heart disease and stroke. Global Network - The Global Network convenes stakeholders from around the world to improve outcomes for those living with FH and elevated Lp(a). Through visionary, strategic initiatives, the Family Heart Foundation serves as a global resource for patients, healthcare professionals, researchers, and policy makers around the world. The Global Network is the Family Heart Foundation's effort to extend its mission and impa
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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,313,676
Liabilities
$1,133,524
Net assets
$4,180,152
Revenue
$6,535,608
Expenses
$6,362,500
Net income
$173,108
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.35$2.08$5.27$8.89$7.84$1.05
2023Detailed filing. Detailed filing data is available for this year.$5.31$1.13$4.18$6.54$6.36$0.17
2022Detailed filing. Detailed filing data is available for this year.$4.49$0.55$3.93$2.81$4.73$1.92
2021Detailed filing. Detailed filing data is available for this year.$6.40$0.38$6.02$4.76$2.86$1.90
2020Detailed filing. Detailed filing data is available for this year.$4.37$0.31$4.06$3.76$3.12$0.64
2019Detailed filing. Detailed filing data is available for this year.$3.59$0.22$3.37$3.46$5.01$1.55
2018Detailed filing. Detailed filing data is available for this year.$5.28$0.46$4.82$3.10$5.69$2.59
2017Detailed filing. Detailed filing data is available for this year.$7.64$0.18$7.46$5.69$5.04$0.65
2016Detailed filing. Detailed filing data is available for this year.$6.97$0.18$6.79$6.16$4.09$2.07
2015Detailed filing. Detailed filing data is available for this year.$4.84$0.12$4.72$4.35$3.18$1.17
2014Detailed filing. Detailed filing data is available for this year.$3.58$0.03$3.55$3.10$1.45$1.65
2013Detailed filing. Detailed filing data is available for this year.$0.37$0.01$0.36$0.76$0.85$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.44$0.00$0.44$0.14