Civic Intelligence

The Familial Hypercholesterolemia Foundation DBA the Fh Foundation

990 • Fiscal year 2016 • EIN 45-4597425

Jan 01, 2016 to Dec 31, 2016 • Filed on Apr 27, 2017

Organization Profilewww.thefhfoundation.org

View Organization Page

959 E Walnut Street No 220Pasadena, CA 91106

(626) 583-4674

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

23rd percentile

0.03x

Higher debt load relative to assets than 23% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Liabilities / Revenue

16th percentile

0.03x

Higher debt load relative to revenue than 16% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Net Margin

87th percentile

34%

Higher net margin than 87% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Top Officer Pay

86th percentile

$266,026

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 4.3% of source-year revenue.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2016

Asset Growth

92nd percentile

44%

Faster asset growth than 92% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2015 to 2016

Revenue Growth

88th percentile

42%

Faster revenue growth than 88% of similar nonprofits.

2016 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets23rd percentile

Assets

Up

$6,970,129

Up $2,133,710 (+44%) from 2015

Net Assets

Up

$6,790,864

Up $2,072,221 (+44%) from 2015

Liabilities

Up

$179,265

Up $61,489 (+52%) from 2015

Revenue And Expenses
Liabilities / Revenue16th percentileNet Margin87th percentile

Revenue

Up

$6,162,693

Up $1,813,123 (+42%) from 2015

Expenses

Up

$4,090,472

Up $908,557 (+29%) from 2015

Net Income

Up

$2,072,221

Up $904,566 (+77%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth92nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2012: $444,503Liabilities 2012: $0Net Assets 2012: $444,5032012Assets 2013: $366,923Liabilities 2013: $5,346Net Assets 2013: $361,5772013Assets 2014: $3,582,214Liabilities 2014: $31,226Net Assets 2014: $3,550,9882014Assets 2015: $4,836,419Liabilities 2015: $117,776Net Assets 2015: $4,718,6432015Assets 2016: $6,970,129Liabilities 2016: $179,265Net Assets 2016: $6,790,8642016Assets 2017: $7,642,582Liabilities 2017: $180,835Net Assets 2017: $7,461,7472017Assets 2018: $5,284,854Liabilities 2018: $463,353Net Assets 2018: $4,821,5012018Assets 2019: $3,585,638Liabilities 2019: $219,414Net Assets 2019: $3,366,2242019Assets 2020: $4,371,270Liabilities 2020: $307,977Net Assets 2020: $4,063,2932020Assets 2021: $6,401,928Liabilities 2021: $384,859Net Assets 2021: $6,017,0692021Assets 2022: $4,488,377Liabilities 2022: $554,614Net Assets 2022: $3,933,7632022Assets 2023: $5,313,676Liabilities 2023: $1,133,524Net Assets 2023: $4,180,1522023Assets 2024: $7,350,370Liabilities 2024: $2,079,880Net Assets 2024: $5,270,4902024

Highlighted filing

2016

Assets$6,970,129
Liabilities$179,265
Net Assets$6,790,864
Open 2016 Filing

Operations Trend

Revenue Growth88th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MExpenses 2012: $138,3382012Revenue 2013: $762,377Expenses 2013: $845,303Net Income 2013: -$82,9262013Revenue 2014: $3,099,878Expenses 2014: $1,448,127Net Income 2014: $1,651,7512014Revenue 2015: $4,349,570Expenses 2015: $3,181,915Net Income 2015: $1,167,6552015Revenue 2016: $6,162,693Expenses 2016: $4,090,472Net Income 2016: $2,072,2212016Revenue 2017: $5,690,012Expenses 2017: $5,037,196Net Income 2017: $652,8162017Revenue 2018: $3,098,812Expenses 2018: $5,685,786Net Income 2018: -$2,586,9742018Revenue 2019: $3,459,476Expenses 2019: $5,012,467Net Income 2019: -$1,552,9912019Revenue 2020: $3,755,847Expenses 2020: $3,120,676Net Income 2020: $635,1712020Revenue 2021: $4,759,952Expenses 2021: $2,857,007Net Income 2021: $1,902,9452021Revenue 2022: $2,813,780Expenses 2022: $4,729,443Net Income 2022: -$1,915,6632022Revenue 2023: $6,535,608Expenses 2023: $6,362,500Net Income 2023: $173,1082023Revenue 2024: $8,891,212Expenses 2024: $7,841,100Net Income 2024: $1,050,1122024

Highlighted filing

2016

Revenue$6,162,693
Expenses$4,090,472
Net Income$2,072,221
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Apr 27, 2017
Return Version
2016v3.0
Gross Receipts
$6,162,693
Mission and Program Overview

Mission

The Familial Hypercholesterolemia Foundation ("The FH Foundation") was incorporated February 17, 2012 as a California nonprofit corporation. The FH Foundation is a patient-centered nonprofit dedicated to education, advocacy, and research of familial hypercholesterolemia (FH). Our mission is to save generations of families from heart disease through timely identification and improved care of familial hypercholesterolemia and Lipoprotein(a). Through research, advocacy, and education we play a critical role in driving change, and empower families to navigate their own health.

The Familial Hypercholesterolemia Foundation's (FH) mission is to raise awareness and save lives by increasing the rate of early diagnosis and encouraging proactive treatment. If left untreated, FH leads to aggressive and premature heart disease in women, men and children of all racial and ethnic backgrounds.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$2,806,053$5,058,937▲ $2,252,884
Cash and Non-Interest-Bearing Accounts$719,560$1,352,119▲ $632,559
Pledges and Grants Receivable$1,280,237$486,000▼ $794,237
Accounts Receivable-$50,680-
Land, Buildings, and Equipment, Net$17,515$16,616▼ $899
Prepaid Expenses and Deferred Charges$2,600$0▼ $2,600
Total Assets$4,836,419$6,970,129▲ $2,133,710
Other Assets Total$10,454$5,777▼ $4,677
Liabilities
Accounts Payable and Accrued Expenses$117,776$179,265▲ $61,489
Total Liabilities$117,776$179,265▲ $61,489
Net Assets / Fund Balance
Unrestricted Net Assets$1,907,517$4,151,554▲ $2,244,037
Temporarily Rstr Net Assets$2,811,126$2,639,310▼ $171,816
Total Net Assets Fund Balance$4,718,643$6,790,864▲ $2,072,221
Total Liabilities and Net Assets / Fund Balance$4,836,419$6,970,129▲ $2,133,710

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$10,049$2,447$12,496
Equipment$6,567$5,209$11,776
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Katherine WilemonCEOFT$241,026$25,000$266,026
Carole KingDirector of DevelopmentFT$125,000-$125,000

Board Members and Trustees

NameTitle
William NealChair
Stacey LaneVice Chair
Barry BrooksBoard Member
Christian JacobsBoard Member
Dan RaderBoard Member
Joshua KnowlesBoard Member
Seth BaumSecretary/Treasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
DcriConsultingPO Box 17969, Durham, NC 27715$617,113
AtomoConsulting700 Lavaca Ste 1400-2480, Austin, TX 78701$450,000
IMS Health IncConsultingPO Box 8500-4290, Philadelphia, PA 19178$393,600
DmdConsulting10255 West Higgins Rd Ste 280, Rosemont, IL 60018$172,870
Revenue and Support

Revenue Composition

Contributions and Grants
$3,993,797
Program Service Revenue
$2,166,100
Investment Income
$2,796
Other Revenue
$0
All Other Contributions
$3,993,797
Change in Net Assets
$2,072,221

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,162,693
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$6,162,693
Total Revenue per Form 990
$6,162,693
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,151,331
Salaries, Compensation, and Employee Benefits$939,141
Total Fundraising Expense$225,819
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$1,460,356$17,567$1,449$1,479,372
Other Salaries and Wages$404,146$61,042$124,468$589,656
Current Officers, Directors, Trustees, and Key Employees$168,782$37,244$60,000$266,026
Travel$225,960$11,692$4,012$241,664
Advertising$105,824$9,897$2,353$118,074
Fees for Services Legal$95,660$1,065$97$96,822
Payroll Taxes$56,924$7,901$18,634$83,459
Office Expenses$48,167$16,883$4,630$69,680
Occupancy$49,248$15,306$4,249$68,803
Fees for Services Accounting$51,988$579$53$52,620
Information Technology$13,528$4,770$1,346$19,644
Other Expenses$13,353$387$58$13,798
Conferences and Meetings$1,826$3,005$848$5,679
Depreciation Depletion$3,088$632-$3,720
Insurance$4,211$-1,999$89$2,301
All Other Expenses$464$467$132$1,063
Total Functional Expenses$3,661,706$202,947$225,819$4,090,472

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$4,090,472
Total Expenses per Audited Statements$4,090,472
Total Expenses per Form 990$4,090,472
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“The Form 990 is e-mailed to each member and reviewed via electronic media prior to filing.”

Form 990, Part VI, Section B, line 12C

“Conflicts of interest are monitored annually and reviewed by the governing body prior to approval or determination of action.”

Form 990, Part VI, Section B, line 15A

“The CEO's salary is reviewed on an annual basis by the Board of Directors and then approved by the Executive Committee. Part VI, line 15(b) was answered "no" as there were no other officers or key employees as defined in Form 990 instructions who received compensation.”

Form 990, Part VI, Section C, line 19

“All documents are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
The Familial Hypercholesterolemia
EIN
45-4597425
Phone
6265834674
Address
959 E Walnut Street No 220, Pasadena, CA 91106
Doing Business As
The FH Foundation

Signing Officer

Name
Katherine Wilemon
Title
CEO
Phone
6265834674
Signed
2017-04-27
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Katherine Wilemon
Formed
2012
Legal Domicile
CA
Voting Board Members
8
Independent Board Members
7
Employees
11
Volunteers
50

Preparer

Firm
Harrington Group CPAs LLP
Address
234 East Colorado Blvd Suite M150, Pasadena, CA 91101
Preparer
Tonetta L Conner
Phone
6264036801
Supplemental Narrative

Additional Explanations

Form 990, Part IX, line 11G

“Consultants/temporary staff: Program service expenses 1,460,356. Management and general expenses 17,567. Fundraising expenses 1,449. Total expenses 1,479,372.”

Financial Statement Notes

Part X, Line 2:

“The FH Foundation is exempt from taxation under Internal Revenue Code Section 501(c)(3) and California Revenue and Taxation Code Section 23701d. Generally accepted accounting principles provide accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes that all of the positions taken by The FH Foundation in its federal and state exempt organization tax returns are more likely than not to be sustained upon examination. The FH Foundation's returns are subject to examination by federal and state taxing authorities, generally for three and four years, respectively, after they are filed.”

Raw XML AppendixShowing 400 of 532 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/MissionDesc0The FH Foundation is a patient-centered nonprofit organization dedicated to education, advocacy, and research of Familial Hypercholesterolemia(FH).
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IRS990/PrincipalOfficerNm0Katherine Wilemon
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IRS990/ProgSrvcAccomActy2Grp/Desc0The Cascade Screening for Awareness and Detection of Familial Hypercholesterolemia (CASCADE FH Registry) is the only active national registry for patients with heterozygous and homozygous FH in the United States. It serves as a key instrument in supporting health service planning, increasing knowledge of the disease, pooling data for epidemiological research, evaluating trends over time, and promoting clinical outcomes. The CASCADE FH Registry launched in 2013 with an innovative hybrid design to maximize data collection: (A) data is collected from partnering clinical sites, and (B) patients can directly enter their data via a user-friendly patient portal hosted on the FH Foundation website. Data entered through both methods are secure and can be accessed through queries. Data includes baseline and follow-up information on demographics, laboratory values, treatment, and clinical events.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01218035
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IRS990/ProgSrvcAccomActy3Grp/Desc0Summit - The FH Global Summit is an annual event solely dedicated to the science and treatment of FH. It is a global gathering of medical experts, patient advocacy organizations, health care providers, and individuals with FH. The two-day event features compelling presentations that provide a platform to share insights and practices for improved awareness, diagnosis and treatment of FH.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0Advocates for Awareness - The Advocates for Awareness program recruits volunteers who represent the FH Foundation and the larger FH community by sharing their experiences with FH and helping others through their own journeys.
IRS990/ProgSrvcAccomActyOtherGrp/Desc1FOCUS - FH Optimal Care in the US (FOCUS) creates and disseminates effective tools for patients, healthcare providers, policy makers, payers, and other partners to be used throughout the diagnosis, treatment, and long-term management phases of FH. FOCUS provides data-backed assistance utilizing clinical, economic, and humanistic outcomes to better inform the path forward.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0The FH Foundation is exempt from taxation under Internal Revenue Code Section 501(c)(3) and California Revenue and Taxation Code Section 23701d. Generally accepted accounting principles provide accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes that all of the positions taken by The FH Foundation in its federal and state exempt organization tax returns are more likely than not to be sustained upon examination. The FH Foundation's returns are subject to examination by federal and state taxing authorities, generally for three and four years, respectively, after they are filed.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X, Line 2:
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Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$6,970,129
Liabilities
$179,265
Net assets
$6,790,864
Revenue
$6,162,693
Expenses
$4,090,472
Net income
$2,072,221
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.35$2.08$5.27$8.89$7.84$1.05
2023Detailed filing. Detailed filing data is available for this year.$5.31$1.13$4.18$6.54$6.36$0.17
2022Detailed filing. Detailed filing data is available for this year.$4.49$0.55$3.93$2.81$4.73$1.92
2021Detailed filing. Detailed filing data is available for this year.$6.40$0.38$6.02$4.76$2.86$1.90
2020Detailed filing. Detailed filing data is available for this year.$4.37$0.31$4.06$3.76$3.12$0.64
2019Detailed filing. Detailed filing data is available for this year.$3.59$0.22$3.37$3.46$5.01$1.55
2018Detailed filing. Detailed filing data is available for this year.$5.28$0.46$4.82$3.10$5.69$2.59
2017Detailed filing. Detailed filing data is available for this year.$7.64$0.18$7.46$5.69$5.04$0.65
2016Detailed filing. Detailed filing data is available for this year.$6.97$0.18$6.79$6.16$4.09$2.07
2015Detailed filing. Detailed filing data is available for this year.$4.84$0.12$4.72$4.35$3.18$1.17
2014Detailed filing. Detailed filing data is available for this year.$3.58$0.03$3.55$3.10$1.45$1.65
2013Detailed filing. Detailed filing data is available for this year.$0.37$0.01$0.36$0.76$0.85$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.44$0.00$0.44$0.14