Civic Intelligence

T1D Exchange Inc.

990 • Fiscal year 2019 • EIN 45-1623549

Jan 01, 2019 to Dec 31, 2019 • Filed on Sep 28, 2020

Organization ProfileWWW.T1DEXCHANGE.ORG

View Organization Page

11 Avenue DE Lafayette 5th FloorBoston, MA 02111

(617) 892-6100

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

30th percentile

0.06x

Higher debt load relative to assets than 30% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Liabilities / Revenue

74th percentile

0.71x

Higher debt load relative to revenue than 74% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Net Margin

1st percentile

-799%

Higher net margin than 1% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Top Officer Pay

70th percentile

$251,893

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 27.4% of source-year revenue.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Asset Growth

1st percentile

-41%

Faster asset growth than 1% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Revenue Growth

1st percentile

-95%

Faster revenue growth than 1% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets30th percentile

Assets

Down

$10,850,233

Down $7,598,434 (-41%) from 2018

Net Assets

Down

$10,196,380

Down $7,351,031 (-42%) from 2018

Liabilities

Down

$653,853

Down $247,403 (-27%) from 2018

Revenue And Expenses
Liabilities / Revenue74th percentileNet Margin1st percentile

Revenue

Down

$920,513

Down $16,124,124 (-95%) from 2018

Expenses

Up

$8,271,545

Up $664,209 (+8.7%) from 2018

Net Income

Down

-$7,351,032

Down $16,788,333 (-178%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth1st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$30M$20M$10M$0Assets 2011: $1,129,933Liabilities 2011: $1,095,927Net Assets 2011: $34,0062011Assets 2012: $6,135,991Liabilities 2012: $62,816Net Assets 2012: $6,073,1752012Assets 2013: $5,269,202Liabilities 2013: $1,271,917Net Assets 2013: $3,997,2852013Assets 2014: $3,022,646Liabilities 2014: $352,626Net Assets 2014: $2,670,0202014Assets 2015: $6,563,169Liabilities 2015: $235,977Net Assets 2015: $6,327,1922015Assets 2016: $13,249,795Liabilities 2016: $649,618Net Assets 2016: $12,600,1772016Assets 2017: $8,933,069Liabilities 2017: $822,959Net Assets 2017: $8,110,1102017Assets 2018: $18,448,667Liabilities 2018: $901,256Net Assets 2018: $17,547,4112018Assets 2019: $10,850,233Liabilities 2019: $653,853Net Assets 2019: $10,196,3802019Assets 2020: $15,898,353Liabilities 2020: $1,048,040Net Assets 2020: $14,850,3132020Assets 2021: $11,137,600Liabilities 2021: $1,301,040Net Assets 2021: $9,836,5602021Assets 2022: $20,993,358Liabilities 2022: $1,774,253Net Assets 2022: $19,219,1052022Assets 2023: $15,599,458Liabilities 2023: $2,284,739Net Assets 2023: $13,314,7192023Assets 2024: $11,048,909Liabilities 2024: $2,237,402Net Assets 2024: $8,811,5072024

Highlighted filing

2019

Assets$10,850,233
Liabilities$653,853
Net Assets$10,196,380
Open 2019 Filing

Operations Trend

Revenue Growth1st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$10M$0-$10MRevenue 2011: $3,251,526Expenses 2011: $3,217,520Net Income 2011: $34,0062011Revenue 2012: $12,074,465Expenses 2012: $6,035,296Net Income 2012: $6,039,1692012Revenue 2013: $3,237,053Expenses 2013: $5,312,943Net Income 2013: -$2,075,8902013Revenue 2014: $3,520,962Expenses 2014: $4,848,227Net Income 2014: -$1,327,2652014Revenue 2015: $8,876,714Expenses 2015: $5,219,542Net Income 2015: $3,657,1722015Revenue 2016: $12,172,867Expenses 2016: $5,899,882Net Income 2016: $6,272,9852016Revenue 2017: $2,553,528Expenses 2017: $7,043,595Net Income 2017: -$4,490,0672017Revenue 2018: $17,044,637Expenses 2018: $7,607,336Net Income 2018: $9,437,3012018Revenue 2019: $920,513Expenses 2019: $8,271,545Net Income 2019: -$7,351,0322019Revenue 2020: $12,562,518Expenses 2020: $7,908,585Net Income 2020: $4,653,9332020Revenue 2021: $4,868,668Expenses 2021: $9,871,029Net Income 2021: -$5,002,3612021Revenue 2022: $19,538,753Expenses 2022: $10,156,208Net Income 2022: $9,382,5452022Revenue 2023: $4,275,092Expenses 2023: $10,179,478Net Income 2023: -$5,904,3862023Revenue 2024: $5,447,366Expenses 2024: $9,950,578Net Income 2024: -$4,503,2122024

Highlighted filing

2019

Revenue$920,513
Expenses$8,271,545
Net Income-$7,351,032
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Sep 28, 2020
Return Version
2019v5.1
Gross Receipts
$920,513
Mission and Program Overview

Mission

T1d exchange is a leading provider of real-world evidence, dedicated to improving outcomes for the entire t1d population through driving collaborative change. T1d exchange actively supports quality improvement and innovation through its quality improvement collaborative, patient registry, and data-oriented research services. It plays an active role in creating real-world impact with this integrated data by providing clinicians, researchers, industry partners and advocates with the resources and services they need for better decision support and population health management.

SEE SCHEDULE O

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$11,835,784--
Cash and Non-Interest-Bearing Accounts$1,589,925$5,012,421▲ $3,422,496
Intangible Assets$1,370,821$2,398,677▲ $1,027,856
Savings and Temporary Cash Investments$1,896,696$1,900,350▲ $3,654
Investments in Publicly Traded Securities$1,023,250$1,043,254▲ $20,004
Prepaid Expenses and Deferred Charges$433,449$229,492▼ $203,957
Land, Buildings, and Equipment, Net$137,960$128,758▼ $9,202
Accounts Receivable$110,535$78,076▼ $32,459
Total Assets$18,448,667$10,850,233▼ $7,598,434
Other Assets Total$50,247$59,205▲ $8,958
Liabilities
Accounts Payable and Accrued Expenses$415,567$559,062▲ $143,495
Grants Payable$100,000$0▼ $100,000
Deferred Revenue$258,403$49,000▼ $209,403
Other Liabilities$127,286$45,791▼ $81,495
Total Liabilities$901,256$653,853▼ $247,403
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$5,114,138$6,951,744▲ $1,837,606
Net Assets With Donor Restrictions$12,433,273$3,244,636▼ $9,188,637
Total Net Assets Fund Balance$17,547,411$10,196,380▼ $7,351,031
Total Liabilities and Net Assets / Fund Balance$18,448,667$10,850,233▼ $7,598,434

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$77,452$163,236$240,688
Leasehold Improvements$51,306$45,315$96,621
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Rebecca ParkesChief Operating OfficerFT$191,707$60,186$251,893
Wendy WolfVP of RegistryFT$212,567$6,687$219,254
Dara ShusterCEO Untill 4/19FT$200,592$7,659$208,251
Jaya PlmanabhanChief Technology OfficerFT$172,706$16,657$189,363
Alicia Mcauliffe-fogartyVP Patient-centered ResearchFT$162,817$19,696$182,513
Trisha GuraDirector Marketing/communicationsFT$138,893$14,221$153,114
Nicole RiolesAssoc. Director Quality ImprovementFT$137,718$3,331$141,049
David WaltonDirector/CEOFT$131,196$1,509$132,705

Board Members and Trustees

NameTitle
Keith RyanChairman of Board
Christina CsimmaDirector
Dominique HurleyDirector
Haydon KeitnerDirector
Jay MohrDirector
Jennifer MccabeDirector
Marijane Norris-gearyDirector
Abbie CeinikerDirector Until 1/19
Deborah PineDirector Until 5/19
Gina AgiostratdouDirector Until 5/19
John CollinsTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Newfire LLCSoftware Design & Development210 BROADWAY ST SUITE 201, Cambridge, MA 02139$1,058,203
BbkMarketing117 KENDRICK STREET, Needham, MA 02494$401,500
University Of WashingtonResearchPO BOX 354966, Seattle, WA 98195$183,355
AccountempsTemporary Services12400 COLLECTIONS CENTER DRIVE, Chicago, IL 60693$119,189
Revenue and Support

Revenue Composition

Contributions and Grants
$441,894
Program Service Revenue
$433,617
Investment Income
$45,002
Other Revenue
$0
All Other Contributions
$207,894
Change in Net Assets
$-7,351,032

Audited Revenue Reconciliation

Revenue per Audited Statements
$920,513
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$342
Total Revenue per Audited Statements
$920,855
Total Revenue per Form 990
$920,513
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$4,909,522
Other Expenses$3,362,023
Total Fundraising Expense$1,025,930
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,243,608$1,170,936$623,261$3,037,805
Current Officers, Directors, Trustees, and Key Employees$1,088,338$123,023$266,782$1,478,143
Depreciation Depletion$480,524$87,070$102$567,696
Occupancy$239,351$250,877$47,498$537,726
Advertising$373,900$84,312$6,087$464,299
Other Employee Benefits$32,544$352,388$8,642$393,574
Travel$148,332$54,426$46,062$248,820
Fees for Services Legal$63,530$113,677-$177,207
Fees for Services Accounting-$84,300-$84,300
Conferences and Meetings$27,209$20,575$14,465$62,249
Other Expenses$10,480$37,435$3,739$51,654
All Other Expenses$-24,923$56,390-$31,467
Insurance$15,361$12,568$2,871$30,800
Office Expenses$25,157$-15,300$6,390$16,247
Fees for Services Other$69,907$-105,051$-11,807$-46,951
Total Functional Expenses$4,649,192$2,596,423$1,025,930$8,271,545

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$8,271,887
Expenses per Audited Statements$8,271,545
Total Expenses per Form 990$8,271,545
Expenses Not Reported on Form 990$342
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Officers Retirement Plan Liability$39,205
Deferred Rent$6,586
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

“The member is those persons serving from time to time as the board of directors.”

Form 990, Part VI, Section A, Line 7A

“T1d exchange is a membership corporation. The member is those persons serving from time to time as the board of directors.”

Form 990, Part VI, Section B, Line 11B

“Prior to filing from 990 the completed form 990 is distributed to the board of directors.”

Form 990, Part VI, Section B, Line 12C

“The organization continually monitors and enforces the conflict of interest policy by (1) requiring all new board members to sign the policy and identify any conflicts that may exist, and (2) annually re-affirm with all members of the board of directors and identify and conflicts of interest that may have occured in the prior year.”

Form 990, Part VI, Section B, Line 15

“The board of directors is reponsible for the yearly performance evaluation and salary review of the chief executive officer and chief operating officer. The board uses salary survey's as a benchmark for each position, utilizing comparables from other similar organizations and other available data.”

Form 990, Part VI, Section C, Line 18

“The organization makes its form 1023, and 990s available to the public upon request.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
T1d Exchange Inc
EIN
45-1623549
Phone
6178926100
Address
11 AVENUE DE LAFAYETTE 5TH FLOOR, BOSTON, MA 02111

Signing Officer

Name
Rebecca Parkes
Title
Chief Operating Officer
Phone
6178926100
Signed
2020-09-28
Discuss with paid preparer
Yes

Organization Details

Principal Officer
David Walton
Formed
2011
Legal Domicile
De
Voting Board Members
9
Independent Board Members
8
Employees
46
Volunteers
11

Preparer

Firm
Cbiz Mhm LLC
Address
500 BOYLSTON STREET, BOSTON, MA 02116
Preparer
Brenda L Booth
Phone
6177610600
Supplemental Narrative

Additional Explanations

Part I, Line 1

“T1d exchange is a leading provider of real-world evidence, dedicated to improving care for people affected by type 1 diabetes. T1d exchange actively supports quality improvement and innovation through its quality improvement collaborative, patient registry, data-oriented research services and biennial diabetes innovation challenge. It plays an active role in creating real-world impact with this integrated data by providing clinicians, researchers, industry partners and advocates with the resources and services they need for better decision support and population health management.”

FORM 990, PART XI, LINE 9:

“ROUNDING VARIANCE 1.”

Financial Statement Notes

PART X, LINE 2:

“T1d exchange and the foundation are both nonprofit organizations as described in section 501(c)(3) of the internal revenue code and each is exempt from federal and state income taxes. As a result, no provision for income taxes is presented in these consolidated financial statements. However, in certain circumstances, the organization may be subject to federal and state income taxes for profits generated from unrelated trade or business income. As december 31, 2018 and 2017, management's position is that the organization does not have any liabilities associated with unrelated trade or business income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the consolidated financial statements. The organization's policy is to recognize interest and penalties accrued on uncertain tax positions as a component of income tax expenses, if any, in its consolidated statements of activities.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0T1D EXCHANGE MAINTAINS TWO KEY PROGRAMS, THE T1D EXCHANGE REGISTRY AND THE QUALITY IMPROVEMENT COLLABORATIVE. THE T1D EXCHANGE REGISTRY IS A COLLECTION OF INDIVIDUALS WITH TYPE 1 DIABETES AND THEIR SUPPORTERS WHO PARTICIPATE IN RESEARCH. THE T1D EXCHANGE QUALITY IMPROVEMENT COLLABORATIVE CONSISTS OF A LEARNING COLLABORATIVE AND DATA PLATFORM TO REDEFINE BEST PRACTICES, ENHANCE THE QUALITY OF CARE, AND ULTIMATELY GENERATE BETTER OUTCOMES. THIS MODEL HELPS FILL THE GAP BETWEEN THE SURGE OF DIABETES INNOVATION, DRUGS, AND TECHNOLOGY, AND THE LACK OF CORRESPONDING UPTAKE OR BENEFIT BY PATIENTS.
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR UNTIL 5/19
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR UNTIL 1/19
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR/CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR UNTIL 5/19
IRS990/Form990PartVIISectionAGrp/TitleTxt11CHAIRMAN OF BOARD
IRS990/Form990PartVIISectionAGrp/TitleTxt12CEO UNTILL 4/19
IRS990/Form990PartVIISectionAGrp/TitleTxt13CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt14CHIEF TECHNOLOGY OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt15VP OF REGISTRY
IRS990/Form990PartVIISectionAGrp/TitleTxt16VP PATIENT-CENTERED RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIR. MARKETING/COMMUNICATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt18ASSOC. DIR. QUALITY IMPROVEMENT
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IRS990/LocalChaptersInd00
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IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0T1D EXCHANGE IS A LEADING PROVIDER OF REAL-WORLD EVIDENCE, DEDICATED TO IMPROVING CARE FOR PEOPLE AFFECTED BY TYPE 1 DIABETES. T1D EXCHANGE ACTIVELY SUPPORTS QUALITY IMPROVEMENT AND INNOVATION THROUGH ITS QUALITY IMPROVEMENT COLLABORATIVE, PATIENT REGISTRY, DATA-ORIENTED RESEARCH SERVICES AND BIENNIAL DIABETES INNOVATION CHALLENGE. IT PLAYS AN ACTIVE ROLE IN CREATING REAL-WORLD IMPACT WITH THIS INTEGRATED DATA BY PROVIDING CLINICIANS, RESEARCHERS, INDUSTRY PARTNERS AND ADVOCATES WITH THE RESOURCES AND SERVICES THEY NEED FOR BETTER DECISION SUPPORT AND POPULATION HEALTH MANAGEMENT.
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Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$10,850,233
Liabilities
$653,853
Net assets
$10,196,380
Revenue
$920,513
Expenses
$8,271,545
Net income
-$7,351,032
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$11.0$2.24$8.81$5.45$9.95$4.50
2023Detailed filing. Detailed filing data is available for this year.$15.6$2.28$13.3$4.28$10.2$5.90
2022Detailed filing. Detailed filing data is available for this year.$21.0$1.77$19.2$19.5$10.2$9.38
2021Detailed filing. Detailed filing data is available for this year.$11.1$1.30$9.84$4.87$9.87$5.00
2020Detailed filing. Detailed filing data is available for this year.$15.9$1.05$14.9$12.6$7.91$4.65
2019Detailed filing. Detailed filing data is available for this year.$10.9$0.65$10.2$0.92$8.27$7.35
2018Detailed filing. Detailed filing data is available for this year.$18.4$0.90$17.5$17.0$7.61$9.44
2017Detailed filing. Detailed filing data is available for this year.$8.93$0.82$8.11$2.55$7.04$4.49
2016Detailed filing. Detailed filing data is available for this year.$13.2$0.65$12.6$12.2$5.90$6.27
2015Detailed filing. Detailed filing data is available for this year.$6.56$0.24$6.33$8.88$5.22$3.66
2014Detailed filing. Detailed filing data is available for this year.$3.02$0.35$2.67$3.52$4.85$1.33
2013Detailed filing. Detailed filing data is available for this year.$5.27$1.27$4.00$3.24$5.31$2.08
2012Summary only. Only limited summary data is available for this year.$6.14$0.06$6.07$12.1$6.04$6.04
2011Summary only. Only limited summary data is available for this year.$1.13$1.10$0.03$3.25$3.22$0.03