Usagainstalzheimer'S Network

“The form 990 was prepared by the outside accountants and reviewed by one of the directors and the chief financial officer. A copy of the form 990 was provided to the organization's governing body before it was filed with the irs.”

“Each director, principal officer and member of a committee with governing board delegated powers annually signs a statement which affirms that each he/she: a. Has received a copy of the conflicts of interest policy, b. Has read and understands the policy, c. Has agreed to comply with the policy, and d. Understands that the organization is a non-profit public benefit corporation and, in order to maintain its federal tax exemption, it must engage primarily in activities which accomplish one or more of its tax-exempt purposes. In connection with any actual or possible conflict of interest, an interested person must disclose the existence of the financial interest and be given the opportunity to disclose all material facts to the directors and members of committees with governing board delegated powers considering the proposed transaction or arrangement. After disclosure of the financial interest and all material facts, and after any discussion with the interested person, he/she leaves the governing board or committee meeting while the determination of a conflict of interest is discussed and voted upon. The remaining board or committee members decide if a conflict of interest exists.”

“Compensation is discussed with the board chairman, who uses information from a review of coo compensation at other non-profits, and a performance review is conducted. The compensation is then approved by the board when it approves the budget. The most recent compensation review took place in december 2019.”

“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

“Usagainstalzheimer's (usa2) and usagainstalzheimer's action (usa2action), an unrelated organization for tax purposes, have entered into a cost-sharing arrangement under which usa2action reimburses usa2 for usa2action's allocable share of the compensation of certain employees for services provided to usa2action. Pursuant to this agreement, usa2action reimbursed usa2 for its share of officer compensation as follows: russell paulsen: $16,233 form 990, part vii, line 1: meryl comer received compensation for her work as a senior project advisor. Her compensation is unrelated to her duties as a board member. Greg o'brien received compensation for his work as an advocate and communications consultant. His compensation is unrelated to his duties as a board member.”

“We work to accomplish this through effective leadership, collaboration and strategic investments - all guided and informed by the perspectives of people living with the disease and their caregivers. Through networks and coalitions, we engage the most deeply affected communities (women, african americans, latinos, patients, caregivers, veterans, clergy, and researchers) to: - focus attention on the unique burden of alzheimer's on women and communities of color, given the disparate impact of the disease on these communities. - give greater voice to individuals living with alzheimer's and related dementias -and their caregivers-in scientific and regulatory decisions. - increase the speed, efficiency of and participation in clinical research. - ensure that consumers, healthcare providers, and policymakers treat brain health as an integral element of overall good health and see the importance of identifying cognitive decline early. - alleviate the economic and human burdens of caregiving through family-friendly federal and workplace policies, such as paid family and medical leave for alzheimer's and dementia caregivers. Our theory of change is based on the belief that it will take all of "us" to address a major health challenge like alzheimer's. This means cross-sector collaboration around common goals and initiatives. It means being nimble and responsive to partners, communities, policymakers, and the changing healthcare landscape. Collaboration is a core part of the dna of usagainstalzheimer's and central to our theory of change.”

“Program management/strategy: program service expenses 1,819,786. Management and general expenses 11,273. Fundraising expenses 0. Total expenses 1,831,059. Project funds: program service expenses 2,804,489. Management and general expenses 4,076. Fundraising expenses 218,484. Total expenses 3,027,049. Communications: program service expenses 588,961. Management and general expenses 0. Fundraising expenses 17,981. Total expenses 606,942. Other professional fees: program service expenses 155,362. Management and general expenses 15,209. Fundraising expenses 106,437. Total expenses 277,008.”

“For many services, usa2 contracts with firms to provide core capacities, including policy/legislative affairs, communications and media, digital marketing, and to lead two of our core networks (researchersagainstalzheimer's and womenagainstalzheimer's).”