Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2017 • EIN 43-1458163

Feb 01, 2016 to Jan 31, 2017 • Filed on Jul 26, 2017

2258 Weldon ParkwaySaint Louis, MO 63146

(888) 873-8539

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

44th percentile

0.06x

Higher debt load relative to assets than 44% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

44th percentile

0.07x

Higher debt load relative to revenue than 44% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

76th percentile

18%

Higher net margin than 76% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

59th percentile

$79,184

Higher top officer pay than 59% of similar nonprofits.

Top officer pay equals 4.2% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

79th percentile

19%

Faster asset growth than 79% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

79th percentile

29%

Faster revenue growth than 79% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Assets

Up

$2,270,209

Up $361,033 (+19%) from 2016

Net Assets

Up

$2,130,271

Up $343,431 (+19%) from 2016

Liabilities

Up

$139,938

Up $17,602 (+14%) from 2016

Revenue

Up

$1,895,283

Up $421,779 (+29%) from 2016

Expenses

Up

$1,560,312

Up $93,827 (+6.4%) from 2016

Net Income

Up

$334,971

Up $327,952 (+4672%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $693,721Liabilities 2011: $81,326Net Assets 2011: $612,3952011Assets 2012: $837,124Liabilities 2012: $85,618Net Assets 2012: $751,5062012Assets 2013: $1,324,637Liabilities 2013: $127,115Net Assets 2013: $1,197,5222013Assets 2014: $1,480,748Liabilities 2014: $85,589Net Assets 2014: $1,395,1592014Assets 2015: $1,900,876Liabilities 2015: $111,946Net Assets 2015: $1,788,9302015Assets 2016: $1,909,176Liabilities 2016: $122,336Net Assets 2016: $1,786,8402016Assets 2017: $2,270,209Liabilities 2017: $139,938Net Assets 2017: $2,130,2712017Assets 2018: $2,694,370Liabilities 2018: $221,692Net Assets 2018: $2,472,6782018Assets 2019: $3,154,666Liabilities 2019: $242,108Net Assets 2019: $2,912,5582019Assets 2020: $3,817,643Liabilities 2020: $222,600Net Assets 2020: $3,595,0432020Assets 2021: $4,250,542Liabilities 2021: $223,938Net Assets 2021: $4,026,6042021Assets 2022: $5,164,940Liabilities 2022: $246,147Net Assets 2022: $4,918,7932022Assets 2023: $2,107,930Liabilities 2023: $2,107,930Net Assets 2023: $02023

Highlighted filing

2017

Assets$2,270,209
Liabilities$139,938
Net Assets$2,130,271

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$5.0M$0-$5.0MExpenses 2011: $1,065,0552011Expenses 2012: $990,7442012Revenue 2013: $1,539,476Expenses 2013: $1,100,596Net Income 2013: $438,8802013Revenue 2014: $1,435,222Expenses 2014: $1,242,305Net Income 2014: $192,9172014Revenue 2015: $1,657,357Expenses 2015: $1,264,756Net Income 2015: $392,6012015Revenue 2016: $1,473,504Expenses 2016: $1,466,485Net Income 2016: $7,0192016Revenue 2017: $1,895,283Expenses 2017: $1,560,312Net Income 2017: $334,9712017Revenue 2018: $2,037,141Expenses 2018: $1,714,126Net Income 2018: $323,0152018Revenue 2019: $2,334,249Expenses 2019: $1,840,332Net Income 2019: $493,9172019Revenue 2020: $2,529,811Expenses 2020: $1,928,784Net Income 2020: $601,0272020Revenue 2021: $2,227,885Expenses 2021: $1,959,915Net Income 2021: $267,9702021Revenue 2022: $2,624,591Expenses 2022: $1,921,281Net Income 2022: $703,3102022Revenue 2023: -$31,306Expenses 2023: $4,466,361Net Income 2023: -$4,497,6672023

Highlighted filing

2017

Revenue$1,895,283
Expenses$1,560,312
Net Income$334,971
Jump To
Filing Snapshot
Filing Period
Feb 1, 2016 to Jan 31, 2017
Signed
Jul 26, 2017
Return Version
2016v3.0
Gross Receipts
$2,056,960
Mission and Program Overview

Mission

Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

To discover treatments and a cure for als, and to serve, advocate for, and empower people affected by als to live their lives to the fullest.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,016,166$1,210,806▲ $194,640
Land, Buildings, and Equipment, Net$360,333$381,910▲ $21,577
Pledges and Grants Receivable$240,380$368,433▲ $128,053
Investments Other Securities$120,091$123,652▲ $3,561
Investments in Publicly Traded Securities$106,040$118,701▲ $12,661
Savings and Temporary Cash Investments$58,013$58,031▲ $18
Prepaid Expenses and Deferred Charges$3,653$4,176▲ $523
Total Assets$1,909,176$2,270,209▲ $361,033
Other Assets Total$4,500$4,500→ $0
Liabilities
Accounts Payable and Accrued Expenses$122,336$139,938▲ $17,602
Total Liabilities$122,336$139,938▲ $17,602
Net Assets / Fund Balance
Unrestricted Net Assets$1,415,158$1,744,983▲ $329,825
Temporarily Rstr Net Assets$264,050$277,656▲ $13,606
Permanently Rstr Net Assets$107,632$107,632→ $0
Total Net Assets Fund Balance$1,786,840$2,130,271▲ $343,431
Total Liabilities and Net Assets / Fund Balance$1,909,176$2,270,209▲ $361,033

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$381,910$458,615$840,525
Other Securities$123,652--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$120,091-▲ $3,561-$123,652
2016$115,611-▲ $4,480-$120,091
2015$122,876-▲ $5,416$12,681$115,611
2014$125,376-▲ $5,565$8,065$122,876
2013$127,162-▲ $5,583$7,369$125,376
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Maureen Barber-hillPresident/CEOFT$72,827$6,357$79,184

Board Members and Trustees

NameTitle
David J Van De RietBoard Chair
Dr HayatAdvisory Director
Dr Tim MillerAdvisory Director
Clayton TrolardBoard Fellow
Joe MillerBoard Fellow
Josh RogersBoard Secretary
Zachary LeedsBoard Treasurer
Beth BarrettDirector
Brenda K Mason ShepherdDirector
Bryan ThomasDirector
Charles a CafazzaDirector
Colleen EwellDirector
Darlene BeeDirector
Dave ColletDirector
David G BuskerDirector
Evan WaldmanDirector
Frederick R KosteckiDirector
James SobuleDirector
Julie BarberDirector
Kevin HemenwayDirector
Kim MurphyDirector
Scott WanamakerDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$1,900,579
Program Service Revenue
$2,687
Investment Income
$774
Other Revenue
$-8,757
All Other Contributions
$905,628
Change in Net Assets
$334,971

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table9$159,643Appraisal
Other Non Cash Contri Table1$1,575Appraisal
Other Non Cash Contri Table4$991Appraisal
Total Noncash Contributions14$162,209-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,895,283
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$8,460
Total Revenue per Audited Statements
$1,903,743
Total Revenue per Form 990
$1,895,283
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$693,038
Other Expenses$687,956
Total Fundraising Expense$224,044
Grants and Similar Amounts Paid$179,318
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$411,817$35,656$87,615$535,088
Payments to Affiliates$203,797$11,676$30,448$245,921
Grants to Domestic Individuals$179,318--$179,318
Depreciation Depletion$142,372$377$1,087$143,836
Current Officers, Directors, Trustees, and Key Employees$56,076$4,370$12,381$72,827
Office Expenses$41,058$2,065$19,416$62,539
Occupancy$39,720$3,090$8,909$51,719
Other Employee Benefits$36,358$1,586$3,925$41,869
Payroll Taxes$30,534$2,427$6,532$39,493
All Other Expenses$10,916$863$24,415$36,194
Travel$30,633$291$3,925$34,849
Information Technology$17,879$1,399$7,250$26,528
Fees for Services Accounting$805$20,663$182$21,650
Conferences and Meetings$12,102$437$7,729$20,268
Fees for Services Management$9,112$135$6,395$15,642
Insurance$6,846$517$1,502$8,865
Pension Plan Contributions$2,990$192$579$3,761
Fees for Services Other$2,442$189$551$3,182
Other Expenses$394$31$89$514
Total Functional Expenses$1,250,255$86,013$224,044$1,560,312

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,560,312
Total Expenses per Audited Statements$1,560,312
Total Expenses per Form 990$1,560,312
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$154,672
Fundraising Gross Income$145,915
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala Event$235,243$88,880$16,545$72,335
Walk to Defeat Als$623,017$38,640$38,639$1
Total Events$954,810$145,915$154,671$-8,756
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

1. Julie barber, the niece of maureen barber-hill (president/ceo), is a director and receives no compensation. 2. Wayne barber jr., the brother of maureen barber-hill (president/ceo), is a director emeritus. He previously sat on the board but is no longer an active board member and receives no compensation.

Form 990, Part VI, Section B, Line 11B

An electronic copy of the 990 was reviewed and approved by the board of directors before filing.

Form 990, Part VI, Section B, Line 12C

On an annual basis employees and board of directors must read and sign a statement of duality that states whether or not they have any outside interests or activities that might cause a conflict of interest.

Form 990, Part VI, Section B, Line 15A

The board of directors approve all salaries, raises, and discretionary bonuses, if applicable, based on performance/operations during the fiscal year.

Form 990, Part VI, Section C, Line 19

These documents are available upon request.

Filing and Contact Details

Filer

Filer Name
The Amyotrophic Lateral Sclerosis
EIN
43-1458163
Phone
8888738539
Address
2258 WELDON PARKWAY, SAINT LOUIS, MO 63146

Signing Officer

Name
Maureen Barber-hill
Title
President/CEO
Phone
8888738539
Signed
2017-07-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Maureen Barber-hill
Formed
1984
Legal Domicile
Mo
Voting Board Members
21
Independent Board Members
21
Employees
15
Volunteers
415

Preparer

Firm
Lopata Flegel & Company Llp
Address
600 MASON RIDGE CENTER DR STE 100, ST LOUIS, MO 63141
Preparer
Patricia a Myers
Phone
3145148881
Supplemental Narrative

Financial Statement Notes

PART V, LINE 4:

Part v, line 4: permanently restricted net assets are comprised of endowment funds of donations from the bronstein memorial endowment fund which will be held in a separate investment account in perpetuity. Income from the investment is restricted to fund als-related research awards to st. Louis universities with the understanding that, if there are no such current awards/projects authorized, the endowment's income will be carried forward for up to 3 years pending such awards/projects to the extent, at the end of 3 years there are no such current awards/projects authorized, the endowment's income can then be used, temporarily, for als-related research anywhere in the united states (until such time that st. Louis awards are subsequently determined, at which point, the endowment income will again be applied in st. Louis).

PART X, LINE 2:

The organization is exempt from income taxes pursuant to section 501(c)(3)of the internal revenue service code. Therefore, no provision is made for taxes on income. On july 1,2010, the organization adopted the provisions of fasb asc 740 (formerly fin 48) accounting for uncertainty in income taxes. Fasb asc 740 requires that a tax position be recognized or derecognized based on a "more likely than not" threshold. This applies to positions taken or expected to be taken in a tax return. The implementation of fasb asc 740 had no impact on the organization's statement of financial position or statement of activities. The organization does not believe its financial statements include (or reflect) any uncertain tax positions. The organization's forms 990,return of organization exempt from income tax, for the years ending in 2014, 2015 and 2016 could be subject to examination by the irs, generally for three years after they are filed.

Raw XML AppendixShowing 400 of 735 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
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IRS990/Desc0PATIENT CARE SERVICES: CASE MANAGEMENT SERVICES TO 299 INDIVIDUALS DIAGNOSED WITH ALS EACH YEAR IN EASTERN MISSOURI AND CENTRAL AND SOUTHERN ILLINOIS. SUPPORT SERVICES AND PROGRAMS ARE FREE OF CHARGE. CARE SERVICE COORDINATORS HELP FAMILY NAVIGATE THROUGH HEALTHCARE SYSTEM AND STRIVE TO INCREASE FUNCTIONAL INDEPENDENCE AND IMPROVE QUALITY OF LIFE FOR PATIENT AND FAMILY MEMBERS. WE ASSESS PATIENT / FAMILY NEEDS, DEVISE INDIVIDUALIZED CARE PLANS THAT INCLUDE HOME VISITS, COUNSELING, END OF LIFE CARE PLANNING, GRIEF COUNSELING; WE HAVE COMMUNITY PARTNERSHIPS WITH ALS MULTIDISCIPLINARY TREATMENT CENTER AT ST. LOUIS UNIVERSITY AND ST. FRANCIS ALS CLINIC IN CAPE GIRARDEAU AND WORK COLLABORATIVELY WITH THEM AND DURABLE MEDICAL EQUIPMENT PROVIDERS, SEATING / MOBILITY PROVIDERS, HOSPICE / HOME HEALTH CARE PROVIDERS; WE PROVIDE HOME MODIFICATION GRANTS , MEDICAL EQUIPMENT , NUTRITIONAL SUPPLEMENTS, TRANSPORTATION ASSISTANCE, PT, OT AND SPEECH THERAPIES, AUGMENTATIVE COMMUNICATION AND ASSISTIVE TECHNOLOGY EQUIPMENT LOAN. DUE TO THE DISABLING NATURE OF ALS, ISOLATION IS COMMON SO WE ALSO PROVIDE COMMUNITY LINK VISITING VOLUNTEER PROGRAM.
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IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD SECRETARY
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IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt19BOARD FELLOW
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IRS990/Form990PartVIISectionAGrp/TitleTxt22PRESIDENT/CEO
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IRS990/MembersOrStockholdersInd00
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IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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IRS990/ProgramServiceRevenueGrp/Desc0EDUCATION SERVICES
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IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION, AWARENESS AND ADVOCACY: COMMUNITY EDUCATION WORKING TO STIMULATE PUBLIC AWARENESS THROUGH ADVOCACY ACTIVITIES ON STATE AND NATIONAL LEVEL. WE PROVIDE AN EDUCATIONAL INSTITUTE FOR HEALTH CARE PROFESSIONALS, MONTHLY PATIENT INFORMATION UPDATES, PRINTED, VIDEO AND CD LENDING LIBRARY, ALS EDUCATIONAL ACTIVITY BOOKS FOR CHILDREN AND PRINTED AND ON LINE RESOURCE MANUALS FOR ASSISTED TECHNOLOGY, LOSS AND GRIEF, VA HEALTHCARE, NEW PATIENT AND VA BENEFITS. CARE CONNECTIONS PROGRAM TO ORGANIZE EFFORTS OF FAMILY AND FRIENDS TO PROVIDE PATIENT AND FAMILY ADDITIONAL HELP, CARE AND SUPPORT. THROUGH PUBLIC OUTREACH EFFORTS, MEDIA RELATIONS, SOCIAL MEDIA AND THE INTERNET WE CONTINUALLY TELL OUR STORY AND THE STORY OF THOSE BATTLING THIS DISEASE TO IMPRESS UPON THE IMPORTANCE OF OUR SERVICES AND CONTINUED FUNDING NEEDED FOR CARE SERVICES AND ALS RESEARCH.
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IRS990/ProgSrvcAccomActy2Grp/RevenueAmt02687
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH: OUR CHAPTER WORKS WITH 39 OTHER CHAPTERS ACROSS THE COUNTRY TO SUPPORT GLOBAL RESEARCH AND OUR EFFORTS ARE FOCUSED TOWARDS A SINGLE VISION OF A WORLD WITHOUT ALS. OUR CHAPTER DEDICATES FUNDS EACH YEAR DIRECTED TOWARDS SOME OF THE MOST PROMISING ALS RESEARCH PROJECTS. THESE PROJECTS ARE ALL RELATED TO FINDING THE CAUSE, A TREATMENT AND A CURE AND PATIENTS ARE ABLE TO ENROLL IN CLINICAL TRIALS. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION AS A WHOLE FUNDS AGGRESSIVE, CUTTING EDGE RESEARCH USING THE NEWEST TECHNIQUES WHILE FOSTERING COLLABORATIVE INITIATIVES AMONG GOVERNMENT AGENCIES, THE PRIVATE SECTOR AND SCIENTISTS WHO ARE INVESTED IN TRANSLATIONAL RESEARCH. THANKS TO THE ALS ICE BUCKET CHALLENGE WE HAVE BEEN ABLE TO REINVEST IN OUR 3 CORE SERVICE AREAS; MORE THAN DOUBLING THE FINANCIAL SUPPORT TO OUR CERTIFIED TREATMENT CENTERS, INCREASED GRANTS FOR RESPITE CARE, INCREASED THE AMOUNT OF MEDICAL EQUIPMENT AND NUTRITIONAL SUPPLEMENTS THAT WE NORMALLY PROVIDE.
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Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$2.11$2.11$0.00$0.03$4.47$4.50
2022Detailed filing. Detailed filing data is available for this year.$5.16$0.25$4.92$2.62$1.92$0.70
2021Detailed filing. Detailed filing data is available for this year.$4.25$0.22$4.03$2.23$1.96$0.27
2020Detailed filing. Detailed filing data is available for this year.$3.82$0.22$3.60$2.53$1.93$0.60
2019Detailed filing. Detailed filing data is available for this year.$3.15$0.24$2.91$2.33$1.84$0.49
2018Detailed filing. Detailed filing data is available for this year.$2.69$0.22$2.47$2.04$1.71$0.32
2017Detailed filing. Detailed filing data is available for this year.$2.27$0.14$2.13$1.90$1.56$0.33
2016Detailed filing. Detailed filing data is available for this year.$1.91$0.12$1.79$1.47$1.47$0.01
2015Detailed filing. Detailed filing data is available for this year.$1.90$0.11$1.79$1.66$1.26$0.39
2014Detailed filing. Detailed filing data is available for this year.$1.48$0.09$1.40$1.44$1.24$0.19
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.32$0.13$1.20$1.54$1.10$0.44
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.84$0.09$0.75$0.99
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.69$0.08$0.61$1.07