Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2014 • EIN 43-1458163

Feb 01, 2013 to Jan 31, 2014 • Filed on Aug 26, 2014

Organization ProfileHTTP//WEBSTL.ALSA.ORG

View Organization Page

2258 Weldon ParkwaySaint Louis, MO 63146

(888) 873-8539

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

41st percentile

0.06x

Higher debt load relative to assets than 41% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

38th percentile

0.06x

Higher debt load relative to revenue than 38% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

72nd percentile

13%

Higher net margin than 72% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

68th percentile

$95,348

Higher top officer pay than 68% of similar nonprofits.

Top officer pay equals 6.6% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

73rd percentile

12%

Faster asset growth than 73% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

25th percentile

-6.8%

Faster revenue growth than 25% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets41st percentile

Assets

Up

$1,480,748

Up $156,111 (+12%) from 2013

Net Assets

Up

$1,395,159

Up $197,637 (+17%) from 2013

Liabilities

Down

$85,589

Down $41,526 (-33%) from 2013

Revenue And Expenses
Liabilities / Revenue38th percentileNet Margin72nd percentile

Revenue

Down

$1,435,222

Down $104,254 (-6.8%) from 2013

Expenses

Up

$1,242,305

Up $141,709 (+13%) from 2013

Net Income

Down

$192,917

Down $245,963 (-56%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth73rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $693,721Liabilities 2011: $81,326Net Assets 2011: $612,3952011Assets 2012: $837,124Liabilities 2012: $85,618Net Assets 2012: $751,5062012Assets 2013: $1,324,637Liabilities 2013: $127,115Net Assets 2013: $1,197,5222013Assets 2014: $1,480,748Liabilities 2014: $85,589Net Assets 2014: $1,395,1592014Assets 2015: $1,900,876Liabilities 2015: $111,946Net Assets 2015: $1,788,9302015Assets 2016: $1,909,176Liabilities 2016: $122,336Net Assets 2016: $1,786,8402016Assets 2017: $2,270,209Liabilities 2017: $139,938Net Assets 2017: $2,130,2712017Assets 2018: $2,694,370Liabilities 2018: $221,692Net Assets 2018: $2,472,6782018Assets 2019: $3,154,666Liabilities 2019: $242,108Net Assets 2019: $2,912,5582019Assets 2020: $3,817,643Liabilities 2020: $222,600Net Assets 2020: $3,595,0432020Assets 2021: $4,250,542Liabilities 2021: $223,938Net Assets 2021: $4,026,6042021Assets 2022: $5,164,940Liabilities 2022: $246,147Net Assets 2022: $4,918,7932022Assets 2023: $2,107,930Liabilities 2023: $2,107,930Net Assets 2023: $02023

Highlighted filing

2014

Assets$1,480,748
Liabilities$85,589
Net Assets$1,395,159
Open 2014 Filing

Operations Trend

Revenue Growth25th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$5.0M$0-$5.0MExpenses 2011: $1,065,0552011Expenses 2012: $990,7442012Revenue 2013: $1,539,476Expenses 2013: $1,100,596Net Income 2013: $438,8802013Revenue 2014: $1,435,222Expenses 2014: $1,242,305Net Income 2014: $192,9172014Revenue 2015: $1,657,357Expenses 2015: $1,264,756Net Income 2015: $392,6012015Revenue 2016: $1,473,504Expenses 2016: $1,466,485Net Income 2016: $7,0192016Revenue 2017: $1,895,283Expenses 2017: $1,560,312Net Income 2017: $334,9712017Revenue 2018: $2,037,141Expenses 2018: $1,714,126Net Income 2018: $323,0152018Revenue 2019: $2,334,249Expenses 2019: $1,840,332Net Income 2019: $493,9172019Revenue 2020: $2,529,811Expenses 2020: $1,928,784Net Income 2020: $601,0272020Revenue 2021: $2,227,885Expenses 2021: $1,959,915Net Income 2021: $267,9702021Revenue 2022: $2,624,591Expenses 2022: $1,921,281Net Income 2022: $703,3102022Revenue 2023: -$31,306Expenses 2023: $4,466,361Net Income 2023: -$4,497,6672023

Highlighted filing

2014

Revenue$1,435,222
Expenses$1,242,305
Net Income$192,917
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Feb 1, 2013 to Jan 31, 2014
Signed
Aug 26, 2014
Return Version
2013v3.0
Gross Receipts
$1,536,658
Mission and Program Overview

Mission

Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

Leading the fight to treat and cure als through global research and nationwide advocacy while alsoempowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$449,248$500,025▲ $50,777
Land, Buildings, and Equipment, Net$287,965$361,941▲ $73,976
Pledges and Grants Receivable$314,750$335,315▲ $20,565
Investments Other Securities$125,376$122,876▼ $2,500
Investments in Publicly Traded Securities$83,821$97,158▲ $13,337
Savings and Temporary Cash Investments$57,983$57,988▲ $5
Prepaid Expenses and Deferred Charges$994$945▼ $49
Total Assets$1,324,637$1,480,748▲ $156,111
Other Assets Total$4,500$4,500→ $0
Liabilities
Accounts Payable and Accrued Expenses$110,081$85,589▼ $24,492
Deferred Revenue$17,034--
Total Liabilities$127,115$85,589▼ $41,526
Net Assets / Fund Balance
Unrestricted Net Assets$763,858$933,432▲ $169,574
Temporarily Rstr Net Assets$326,032$354,095▲ $28,063
Permanently Rstr Net Assets$107,632$107,632→ $0
Total Net Assets Fund Balance$1,197,522$1,395,159▲ $197,637
Total Liabilities and Net Assets / Fund Balance$1,324,637$1,480,748▲ $156,111

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$361,941$283,453$645,394
Other Securities$122,876--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2014$125,376-▲ $5,565$8,065$122,876
2013$127,162-▲ $5,583$7,369$125,376
2012$134,465-▲ $5,330$2,721$127,162
2011$128,625-▲ $5,840-$134,465
2010$129,093-▲ $1,406$1,874$128,625
Compensation and Service Providers
Top Officer Pay68th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Maureen Barber-hillPresident/CEOFT$89,685$5,663$95,348

Board Members and Trustees

NameTitle
David J Van De RietBoard Chair
Kathi HensonBoard Vice Chair
Josh RogersBoard Secretary
Zachary LeedsBoard Treasurer
Benjamin M DentDirector
Beth BarrettDirector
Brenda K Mason ShepherdDirector
Charles a CafazzaDirector
Darlene BeeDirector
David G BuskerDirector
Evan WaldmanDirector
Frederick R KosteckiDirector
James SobuleDirector
Julie ZuberDirector
Kevin HemenwayDirector
Scott WanamakerDirector
Terra HillDirector
William C KekerisDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$1,429,073
Program Service Revenue
$1,150
Investment Income
$7,031
Other Revenue
$-2,032
All Other Contributions
$696,799
Change in Net Assets
$192,917

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table7$132,531Appraisal
Other Non Cash Contri Table6$44,000Appraisal
Total Noncash Contributions13$176,531-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,435,222
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$4,720
Total Revenue per Audited Statements
$1,439,942
Total Revenue per Form 990
$1,435,222
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$584,920
Other Expenses$550,214
Total Fundraising Expense$161,390
Grants and Similar Amounts Paid$107,171
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$324,845$48,811$60,671$434,327
Payments to Affiliates$141,049$11,595$21,600$174,244
Depreciation Depletion$109,414$588$918$110,920
Current Officers, Directors, Trustees, and Key Employees$71,748$4,484$13,453$89,685
Grants to Domestic Individuals$71,331--$71,331
Office Expenses$37,339$2,978$12,868$53,185
Occupancy$36,000$4,294$6,712$47,006
Payroll Taxes$27,665$3,142$5,180$35,987
Grants to Domestic Orgs$35,840--$35,840
Fees for Services Management$16,701$1,944$7,938$26,583
All Other Expenses$12,072$1,747$12,622$26,441
Other Employee Benefits$18,713$1,561$2,343$22,617
Information Technology$14,213$1,710$5,089$21,012
Travel$13,390$551$4,131$18,072
Fees for Services Accounting-$17,500-$17,500
Conferences and Meetings$10,513$486$3,450$14,449
Insurance$8,611$1,021$1,494$11,126
Other Expenses$3,103$373$582$4,058
Fees for Services Other$2,897$349$543$3,789
Pension Plan Contributions$1,879$243$182$2,304
Total Functional Expenses$977,451$103,464$161,390$1,242,305

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,242,305
Total Expenses per Audited Statements$1,242,305
Total Expenses per Form 990$1,242,305
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
13-3271855-501(c)(3)Researchresearch$35,840
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$94,279
Fundraising Gross Income$92,247
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$521,066$35,626$35,625$1
Event 2$89,728$26,300$6,322$19,978
Total Events$646,079$92,247$94,279$-2,032
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“1. Julie zuber, the niece of maureen barber-hill (president/ceo), is a director and receives no compensation. 2. Wayne barber jr., the brother of maureen barber-hill (president/ceo), is a director emeritus. He previously sat on the board but is no longer an active board member and receives no compensation.”

Form 990, Part VI, Section B, Line 11

“An electronic copy of the 990 was reviewed and approved by the board of directors before filing.”

Form 990, Part VI, Section B, Line 12C

“On an annual basis employees and board of directors must read and sign a statement of duality that states whether or not they have any outside interests or activities that might cause a conflict of interest.”

Form 990, Part VI, Section B, Line 15A

“The board of directors approve all salaries, raises, and discretionary bonuses, if applicable, based on performance/operations during the fiscal year.”

Form 990, Part VI, Section C, Line 19

“These documents are available upon request.”

Filing and Contact Details

Filer

EIN
43-1458163
Phone
8888738539

Signing Officer

Name
Maureen Barber-hill
Title
President/CEO
Phone
8888738539
Signed
2014-08-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Maureen Barber-hill
Formed
1984
Legal Domicile
Mo
Voting Board Members
19
Independent Board Members
19
Employees
15
Volunteers
242

Preparer

Preparer
Patricia a Myers
Phone
3145148881
Supplemental Narrative

Financial Statement Notes

PART V, LINE 4:

“Part v, line 4: permanently restricted net assets are comprised of endowment funds of donations from the bronstein memorial endowment fund which will be held in a separate investment account in perpetuity. Income from the investment is restricted to fund als-related research awards to st. Louis universities with the understanding that, if there are no such current awards/projects authorized, the endowment's income will be carried forward for up to 3 years pending such awards/projects to the extent, at the end of 3 years there are no such current awards/projects authorized, the endowment's income can then be used, temporarily, for als-related research anywhere in the united states (until such time that st. Louis awards are subsequently determined, at which point, the endowment income will again be applied in st. Louis).”

PART X, LINE 2:

“The organization is exempt from income taxes pursuant to section 501(c)(3)of the internal revenue service code. Therefore, no provision is made for taxes on income. On july 1,2010, the organization adopted the provisions of fasb asc 740 (formerly fin 48) accounting for uncertainty in income taxes. Fasb asc 740 requires that a tax position be recognized or derecognized based on a "more likely than not" threshold. This applies to positions taken or expected to be taken in a tax return. The implementation of fasb asc 740 had no impact on the organization's statement of financial position or statement of activities. The organization does not believe its financial statements include (or reflect) any uncertain tax positions. The organization's forms 990,return of organization exempt from income tax, for the years ending in 2012,2013, and 2014 could be subject to examination by the irs, generally for three years after they are filed.”

Raw XML AppendixShowing 400 of 703 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSOEMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
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IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine10MAUREEN BARBER-HILL
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IRS990/BooksInCareOfDetail/USAddress/AddressLine102258 WELDON PARKWAY
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IRS990/Desc0PATIENT CARE SERVICES: CELEBRATING 30 YEARS OF HEALTH, HELP AND HOPE BY PROVIDING CASE MANAGEMENT SERVICES TO APPROXIMATELY 300 INDIVIDUALS DIAGNOSED WITH ALS EACH YEAR IN EASTERN MISSOURI AND CENTRAL AND SOUTHERN ILLINOIS. THESE COMPREHENSIVE SUPPORT SERVICES AND RESOURCES ARE FREE OF CHARGE. CARE SERVICE COORDINATORS HELP FAMILIES NAVIGATE THROUGH HEALTHCARE SYSTEM AND STRIVE TO INCREASE FUNCTIONAL INDEPENDENCE AND IMPROVE QUALITY OF LIFE FOR PATIENT AND FAMILY MEMBERS. WE ASSESS PATIENT AND FAMILY NEEDS AND DEVISE AN INDIVIDUALIZED CARE PLAN THAT INCLUDES PERSONALIZED HOME VISITS, IN-HOME COUNSELING, END OF LIFE CARE PLANNING AND GRIEF COUNSELING. WE HAVE COMMUNITY PARTNERSHIPS WITH ALSA MULTIDISCIPLINARY CLINICS AT ST. LOUIS UNIVERSITY AND ST. FRANCIS IN CAPE GIRARDEAU. WE SUPPORT THEM WHILE WORKING COLLABORATIVELY WITH THEM AND DURABLE MEDICAL EQUIPMENT PROVIDERS, SEATING AND MOBILITY PROVIDERS, HOSPICE AND HOME HEALTH CARE PROVIDERS WHO HELP US PROVIDE APPROPRIATE CARE, HOME ACCESSIBILITY MODIFICATIONS, MEDICAL EQUIPMENT AND OTHER SUPPORTIVE SERVICES. THE LATTER INCLUDES NUTRITIONAL SUPPLEMENTS, TRANSPORTATION ASSISTANCE, PT, OT AND SPEECH THERAPIES, AUGMENTATIVE COMMUNICATION AND ASSISTIVE TECHNOLOGY EQUIPMENT LOANS. ALL OF THIS KEEPS THE PATIENT ACTIVE AND ABLE TO PARTICIPATE IN EVERYDAY LIVING ACTIVITIES. DUE TO THE DISABLING NATURE OF ALS, ISOLATION IS COMMON, SO WE ALSO PROVIDE A "SHARE OUR STRENGTH" MENTORING PROGRAM WITH A VOLUNTEER NETWORK AND COMMUNITY LINK VISITING VOLUNTEER PROGRAM.
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IRS990/Form990PartVIISectionAGrp/PersonNm2ZACHARY LEEDS
IRS990/Form990PartVIISectionAGrp/PersonNm3JOSH ROGERS
IRS990/Form990PartVIISectionAGrp/PersonNm4BETH BARRETT
IRS990/Form990PartVIISectionAGrp/PersonNm5DARLENE BEE
IRS990/Form990PartVIISectionAGrp/PersonNm6DAVID G BUSKER
IRS990/Form990PartVIISectionAGrp/PersonNm7CHARLES A CAFAZZA
IRS990/Form990PartVIISectionAGrp/PersonNm8BENJAMIN M DENT
IRS990/Form990PartVIISectionAGrp/PersonNm9KEVIN HEMENWAY
IRS990/Form990PartVIISectionAGrp/PersonNm10TERRA HILL
IRS990/Form990PartVIISectionAGrp/PersonNm11WILLIAM C KEKERIS
IRS990/Form990PartVIISectionAGrp/PersonNm12FREDERICK R KOSTECKI
IRS990/Form990PartVIISectionAGrp/PersonNm13BRENDA K MASON SHEPHERD
IRS990/Form990PartVIISectionAGrp/PersonNm14JAMES SOBULE
IRS990/Form990PartVIISectionAGrp/PersonNm15EVAN WALDMAN
IRS990/Form990PartVIISectionAGrp/PersonNm16SCOTT WANAMAKER
IRS990/Form990PartVIISectionAGrp/PersonNm17JULIE ZUBER
IRS990/Form990PartVIISectionAGrp/PersonNm18MAUREEN BARBER-HILL
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
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IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18PRESIDENT/CEO
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IRS990/GrantsToOrganizationsInd01
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IRS990/IndoorTanningServicesInd00
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IRS990/InfoInScheduleOPartVIInd0X
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IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01710
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IRS990/InformationTechnologyGrp/TotalAmt021012
IRS990/InsuranceGrp/FundraisingAmt01494
IRS990/InsuranceGrp/ManagementAndGeneralAmt01021
IRS990/InsuranceGrp/ProgramServicesAmt08611
IRS990/InsuranceGrp/TotalAmt011126
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IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt014188
IRS990/InvestmentInJointVentureInd00
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IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt0122876
IRS990/InvestmentsPubTradedSecGrp/BOYAmt083821
IRS990/InvestmentsPubTradedSecGrp/EOYAmt097158
IRS990/IRPDocumentCnt023
IRS990/IRPDocumentW2GCnt00
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IRS990/LandBldgEquipBasisNetGrp/EOYAmt0361941
IRS990/LandBldgEquipCostOrOtherBssAmt0645394
IRS990/LegalDomicileStateCd0MO
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IRS990/LicensedMoreThanOneStateInd00
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01197522
IRS990/NetAssetsOrFundBalancesEOYAmt01395159
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-7157
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-7157
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-2032
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-2032
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt04720
IRS990/NoncashContributionsAmt0176531
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt06712
IRS990/OccupancyGrp/ManagementAndGeneralAmt04294
IRS990/OccupancyGrp/ProgramServicesAmt036000
IRS990/OccupancyGrp/TotalAmt047006
IRS990/OfficeExpensesGrp/FundraisingAmt012868
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02978
IRS990/OfficeExpensesGrp/ProgramServicesAmt037339
IRS990/OfficeExpensesGrp/TotalAmt053185
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind00
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IRS990/OtherAssetsTotalGrp/EOYAmt04500
IRS990/OtherChangesInNetAssetsAmt00
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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01561
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt018713
IRS990/OtherEmployeeBenefitsGrp/TotalAmt022617
IRS990/OtherExpensesGrp/Desc0TRANSPORTATION
IRS990/OtherExpensesGrp/Desc1REPAIRS AND MAINTENANCE
IRS990/OtherExpensesGrp/FundraisingAmt01614
IRS990/OtherExpensesGrp/FundraisingAmt1582
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt087
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1373
IRS990/OtherExpensesGrp/ProgramServicesAmt020128
IRS990/OtherExpensesGrp/ProgramServicesAmt13103
IRS990/OtherExpensesGrp/TotalAmt021829
IRS990/OtherExpensesGrp/TotalAmt14058
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt060671
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt048811
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0324845
IRS990/OtherSalariesAndWagesGrp/TotalAmt0434327
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IRS990/PaymentsToAffiliatesGrp/FundraisingAmt021600
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt011595
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0141049
IRS990/PaymentsToAffiliatesGrp/TotalAmt0174244
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05180
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03142
IRS990/PayrollTaxesGrp/ProgramServicesAmt027665
IRS990/PayrollTaxesGrp/TotalAmt035987
IRS990/PensionPlanContributionsGrp/FundraisingAmt0182
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0243
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt01879
IRS990/PensionPlanContributionsGrp/TotalAmt02304
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt0107632
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt0107632
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0314750
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0335315
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0994
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0945
IRS990/PrincipalOfficerNm0MAUREEN BARBER-HILL
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0EDUCATION SERVICES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt01150
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt01150
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION, AWARENESS AND ADVOCACY: THE CHAPTER PROVIDES COMMUNITY EDUCATION AND WORKS TO STIMULATE PUBLIC AWARENESS THROUGH ADVOCACY ACTIVITIES ON THE STATE AND NATIONAL LEVEL. WE PROVIDE AN EDUCATIONAL INSTITUTE FOR HEALTH CARE PROFESSIONALS, MONTHLY PATIENT INFORMATION UPDATES, PRINTED, VIDEO AND CD LENDING LIBRARY, ALS EDUCATIONAL ACTIVITY BOOKS FOR CHILDREN, PRINTED AND ON-LINE RESOURCE MANUALS FOR ASSISTED TECHNOLOGY, LOSS AND GRIEF, VA HEALTHCARE, NEW PATIENT AND VA BENEFITS. WHEN ALS STRIKES, FRIENDS AND FAMILY OFTEN NEED HELP AND EDUCATION ON THE DISEASE AS WELL, SO WE ALSO SPONSOR RESOURCE FAIRS AND A CARE CONNECTIONS PROGRAM THAT PROVIDES A FRAMEWORK WITHIN THE ORGANIZATION TO ORGANIZE EFFORTS OF FAMILY AND FRIENDS IN PROVIDING ADDITIONAL HELP, CARE AND SUPPORT TO THOSE AFFECTED BY THE DISEASE. THROUGH PUBLIC OUTREACH EFFORTS, MEDIA RELATIONS, SOCIAL MEDIA AND THE INTERNET, WE CONTINUALLY TELL OUR STORY AND THE STORY OF THOSE BATTLING THIS DISEASE TO IMPRESS UPON THEM THE IMPORTANCE OF OUR SERVICES AND CONTINUED FUNDING FOR CARE SERVICES AND ALS RESEARCH. ON AVERAGE EACH MONTH, 2,000 PEOPLE VISIT OUR WEBSITE, A VITAL SOURCE OF INFORMATION FOR THOSE LOOKING FOR THE MOST RECENT NEWS AND INFORMATION ABOUT THE DISEASE. WE HAVE EXPANDED OUR E-LIST SIZE TO APPROXIMATELY 9,000 FOR THOSE RECEIVING E-NEWS AND E-NEWSLETTERS AND ALSO HAVE ESTABLISHED SOCIAL NETWORKING PLATFORMS SUCH AS FACEBOOK AND TWITTER.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0318917
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt01150
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH: OUR CHAPTER WORKS WITH 37 OTHER CHAPTERS ACROSS THE COUNTRY TO SUPPORT GLOBAL RESEARCH. OUR EFFORTS ARE FOCUSED ON A SINGLE VISION OF A WORLD WITHOUT ALS. THE CHAPTER DEDICATES FUNDS EACH YEAR DIRECTED TOWARD SOME OF THE MOST PROMISING ALS RESEARCH PROJECTS, ALL OF WHICH ARE RELATED TO FINDING A CAUSE, A TREATMENT AND A CURE. PATIENTS ARE ABLE TO ENROLL IN CLINICAL TRIALS. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION AS A WHOLE FUNDS AGGRESSIVE, CUTTING EDGE RESEARCH USING THE NEWEST TECHNIQUES, WHILE FOSTERING COLLABORATIVE INITIATIVES AMONG GOVERNMENT AGENCIES, THE PRIVATE SECTOR ANDSCIENTISTS WHO ARE INVESTED IN TRANSLATIONAL RESEARCH.
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IRS990/ProgSrvcAccomActy3Grp/GrantAmt035840
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IRS990/PYOtherRevenueAmt011876
IRS990/PYProgramServiceRevenueAmt0900
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IRS990/PYTotalRevenueAmt01539476
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
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IRS990/ReconcilationRevenueExpnssAmt0192917
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
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IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt057983

Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,480,748
Liabilities
$85,589
Net assets
$1,395,159
Revenue
$1,435,222
Expenses
$1,242,305
Net income
$192,917
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$2.11$2.11$0.00$0.03$4.47$4.50
2022Detailed filing. Detailed filing data is available for this year.$5.16$0.25$4.92$2.62$1.92$0.70
2021Detailed filing. Detailed filing data is available for this year.$4.25$0.22$4.03$2.23$1.96$0.27
2020Detailed filing. Detailed filing data is available for this year.$3.82$0.22$3.60$2.53$1.93$0.60
2019Detailed filing. Detailed filing data is available for this year.$3.15$0.24$2.91$2.33$1.84$0.49
2018Detailed filing. Detailed filing data is available for this year.$2.69$0.22$2.47$2.04$1.71$0.32
2017Detailed filing. Detailed filing data is available for this year.$2.27$0.14$2.13$1.90$1.56$0.33
2016Detailed filing. Detailed filing data is available for this year.$1.91$0.12$1.79$1.47$1.47$0.01
2015Detailed filing. Detailed filing data is available for this year.$1.90$0.11$1.79$1.66$1.26$0.39
2014Detailed filing. Detailed filing data is available for this year.$1.48$0.09$1.40$1.44$1.24$0.19
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.32$0.13$1.20$1.54$1.10$0.44
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.84$0.09$0.75$0.99
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.69$0.08$0.61$1.07