Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2015 • EIN 43-1458163

Feb 01, 2014 to Jan 31, 2015 • Filed on Aug 04, 2015

Organization ProfileHTTP//WEBSTL.ALSA.ORG

View Organization Page

2258 Weldon ParkwaySaint Louis, MO 63146

(888) 873-8539

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

42nd percentile

0.06x

Higher debt load relative to assets than 42% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Liabilities / Revenue

41st percentile

0.07x

Higher debt load relative to revenue than 41% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Net Margin

82nd percentile

24%

Higher net margin than 82% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Top Officer Pay

70th percentile

$100,819

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 6.1% of source-year revenue.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Asset Growth

86th percentile

28%

Faster asset growth than 86% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Revenue Growth

72nd percentile

15%

Faster revenue growth than 72% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets42nd percentile

Assets

Up

$1,900,876

Up $420,128 (+28%) from 2014

Net Assets

Up

$1,788,930

Up $393,771 (+28%) from 2014

Liabilities

Up

$111,946

Up $26,357 (+31%) from 2014

Revenue And Expenses
Liabilities / Revenue41st percentileNet Margin82nd percentile

Revenue

Up

$1,657,357

Up $222,135 (+15%) from 2014

Expenses

Up

$1,264,756

Up $22,451 (+1.8%) from 2014

Net Income

Up

$392,601

Up $199,684 (+104%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth86th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $693,721Liabilities 2011: $81,326Net Assets 2011: $612,3952011Assets 2012: $837,124Liabilities 2012: $85,618Net Assets 2012: $751,5062012Assets 2013: $1,324,637Liabilities 2013: $127,115Net Assets 2013: $1,197,5222013Assets 2014: $1,480,748Liabilities 2014: $85,589Net Assets 2014: $1,395,1592014Assets 2015: $1,900,876Liabilities 2015: $111,946Net Assets 2015: $1,788,9302015Assets 2016: $1,909,176Liabilities 2016: $122,336Net Assets 2016: $1,786,8402016Assets 2017: $2,270,209Liabilities 2017: $139,938Net Assets 2017: $2,130,2712017Assets 2018: $2,694,370Liabilities 2018: $221,692Net Assets 2018: $2,472,6782018Assets 2019: $3,154,666Liabilities 2019: $242,108Net Assets 2019: $2,912,5582019Assets 2020: $3,817,643Liabilities 2020: $222,600Net Assets 2020: $3,595,0432020Assets 2021: $4,250,542Liabilities 2021: $223,938Net Assets 2021: $4,026,6042021Assets 2022: $5,164,940Liabilities 2022: $246,147Net Assets 2022: $4,918,7932022Assets 2023: $2,107,930Liabilities 2023: $2,107,930Net Assets 2023: $02023

Highlighted filing

2015

Assets$1,900,876
Liabilities$111,946
Net Assets$1,788,930
Open 2015 Filing

Operations Trend

Revenue Growth72nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$5.0M$0-$5.0MExpenses 2011: $1,065,0552011Expenses 2012: $990,7442012Revenue 2013: $1,539,476Expenses 2013: $1,100,596Net Income 2013: $438,8802013Revenue 2014: $1,435,222Expenses 2014: $1,242,305Net Income 2014: $192,9172014Revenue 2015: $1,657,357Expenses 2015: $1,264,756Net Income 2015: $392,6012015Revenue 2016: $1,473,504Expenses 2016: $1,466,485Net Income 2016: $7,0192016Revenue 2017: $1,895,283Expenses 2017: $1,560,312Net Income 2017: $334,9712017Revenue 2018: $2,037,141Expenses 2018: $1,714,126Net Income 2018: $323,0152018Revenue 2019: $2,334,249Expenses 2019: $1,840,332Net Income 2019: $493,9172019Revenue 2020: $2,529,811Expenses 2020: $1,928,784Net Income 2020: $601,0272020Revenue 2021: $2,227,885Expenses 2021: $1,959,915Net Income 2021: $267,9702021Revenue 2022: $2,624,591Expenses 2022: $1,921,281Net Income 2022: $703,3102022Revenue 2023: -$31,306Expenses 2023: $4,466,361Net Income 2023: -$4,497,6672023

Highlighted filing

2015

Revenue$1,657,357
Expenses$1,264,756
Net Income$392,601
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Feb 1, 2014 to Jan 31, 2015
Signed
Aug 4, 2015
Return Version
2014v5.0
Gross Receipts
$1,784,637
Mission and Program Overview

Mission

Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

Leading the fight to treat and cure als through global research and nationwide advocacy while alsoempowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$500,025$946,051▲ $446,026
Land, Buildings, and Equipment, Net$361,941$345,297▼ $16,644
Pledges and Grants Receivable$335,315$319,370▼ $15,945
Investments Other Securities$122,876$115,611▼ $7,265
Investments in Publicly Traded Securities$97,158$107,356▲ $10,198
Savings and Temporary Cash Investments$57,988$57,994▲ $6
Prepaid Expenses and Deferred Charges$945$4,697▲ $3,752
Total Assets$1,480,748$1,900,876▲ $420,128
Other Assets Total$4,500$4,500→ $0
Liabilities
Accounts Payable and Accrued Expenses$85,589$111,946▲ $26,357
Total Liabilities$85,589$111,946▲ $26,357
Net Assets / Fund Balance
Unrestricted Net Assets$933,432$1,393,364▲ $459,932
Temporarily Rstr Net Assets$354,095$287,934▼ $66,161
Permanently Rstr Net Assets$107,632$107,632→ $0
Total Net Assets Fund Balance$1,395,159$1,788,930▲ $393,771
Total Liabilities and Net Assets / Fund Balance$1,480,748$1,900,876▲ $420,128

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$345,297$386,806$732,103
Other Securities$115,611--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2015$122,876-▲ $5,416$12,681$115,611
2014$125,376-▲ $5,565$8,065$122,876
2013$127,162-▲ $5,583$7,369$125,376
2012$134,465-▲ $5,330$2,721$127,162
2011$128,625-▲ $5,840-$134,465
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Maureen Barber-hillPresident/CEOFT$93,203$7,616$100,819

Board Members and Trustees

NameTitle
David J Van De RietBoard Chair
Kathi HensonBoard Vice Chair
Josh RogersBoard Secretary
Zachary LeedsBoard Treasurer
Beth BarrettDirector
Brenda K Mason ShepherdDirector
Bryan ThomasDirector
Charles a CafazzaDirector
Colleen EwellDirector
Darlene BeeDirector
Dave ColletDirector
David G BuskerDirector
Evan WaldmanDirector
Frederick R KosteckiDirector
James SobuleDirector
Julie ZuberDirector
Kevin HemenwayDirector
Kim MurphyDirector
Scott WanamakerDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$1,645,225
Program Service Revenue
$3,501
Investment Income
$14,326
Other Revenue
$-5,695
All Other Contributions
$868,730
Change in Net Assets
$392,601

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table2$39,631Appraisal
Other Non Cash Contri Table3$27,740Appraisal
Total Noncash Contributions5$67,371-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,657,357
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$3,695
Total Revenue per Audited Statements
$1,661,052
Total Revenue per Form 990
$1,657,357
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$615,775
Other Expenses$537,532
Total Fundraising Expense$161,206
Grants and Similar Amounts Paid$111,449
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$338,242$48,252$69,321$455,815
Payments to Affiliates$116,157$236$440$116,833
Depreciation Depletion$112,442$402$606$113,450
Grants to Domestic Individuals$111,449--$111,449
Current Officers, Directors, Trustees, and Key Employees$73,631$7,456$12,116$93,203
Office Expenses$50,032$5,090$20,937$76,059
Occupancy$37,136$4,628$6,968$48,732
Payroll Taxes$28,627$3,678$5,658$37,963
All Other Expenses$18,180$2,265$14,397$34,842
Other Employee Benefits$20,130$2,806$2,756$25,692
Information Technology$16,557$2,064$5,159$23,780
Travel$17,982$293$4,707$22,982
Fees for Services Accounting$667$21,383$125$22,175
Fees for Services Management$10,954$2,221$8,638$21,813
Conferences and Meetings$15,193$748$4,261$20,202
Insurance$9,482$1,099$1,843$12,424
Pension Plan Contributions$2,251$352$499$3,102
Fees for Services Other$1,898$237$356$2,491
Other Expenses$1,343$168$252$1,763
Total Functional Expenses$999,816$103,734$161,206$1,264,756

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,267,281
Expenses per Audited Statements$1,264,756
Total Expenses per Form 990$1,264,756
Expenses Not Reported on Form 990$2,525
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$127,156
Fundraising Gross Income$121,461
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala Event$131,689$56,553$48,784$7,769
Walk to Defeat Als$502,357$42,155$42,155$0
Total Events$718,777$121,461$127,156$-5,695
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“1. Julie zuber, the niece of maureen barber-hill (president/ceo), is a director and receives no compensation. 2. Wayne barber jr., the brother of maureen barber-hill (president/ceo), is a director emeritus. He previously sat on the board but is no longer an active board member and receives no compensation.”

Form 990, Part VI, Section B, Line 11

“An electronic copy of the 990 was reviewed and approved by the board of directors before filing.”

Form 990, Part VI, Section B, Line 12C

“On an annual basis employees and board of directors must read and sign a statement of duality that states whether or not they have any outside interests or activities that might cause a conflict of interest.”

Form 990, Part VI, Section B, Line 15A

“The board of directors approve all salaries, raises, and discretionary bonuses, if applicable, based on performance/operations during the fiscal year.”

Form 990, Part VI, Section C, Line 19

“These documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
The Amyotrophic Lateral Sclerosis
EIN
43-1458163
Phone
8888738539
Address
2258 WELDON PARKWAY, SAINT LOUIS, MO 63146

Signing Officer

Name
Maureen Barber-hill
Title
President/CEO
Phone
8888738539
Signed
2015-08-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Maureen Barber-hill
Formed
1984
Legal Domicile
Mo
Voting Board Members
19
Independent Board Members
19
Employees
15
Volunteers
254

Preparer

Firm
Lopata Flegel & Company Llp
Address
600 MASON RIDGE CENTER DR STE 100, ST LOUIS, MO 63141
Preparer
Patricia a Myers
Phone
3145148881
Supplemental Narrative

Financial Statement Notes

PART V, LINE 4:

“Part v, line 4: permanently restricted net assets are comprised of endowment funds of donations from the bronstein memorial endowment fund which will be held in a separate investment account in perpetuity. Income from the investment is restricted to fund als-related research awards to st. Louis universities with the understanding that, if there are no such current awards/projects authorized, the endowment's income will be carried forward for up to 3 years pending such awards/projects to the extent, at the end of 3 years there are no such current awards/projects authorized, the endowment's income can then be used, temporarily, for als-related research anywhere in the united states (until such time that st. Louis awards are subsequently determined, at which point, the endowment income will again be applied in st. Louis).”

PART X, LINE 2:

“The organization is exempt from income taxes pursuant to section 501(c)(3)of the internal revenue service code. Therefore, no provision is made for taxes on income. On july 1,2010, the organization adopted the provisions of fasb asc 740 (formerly fin 48) accounting for uncertainty in income taxes. Fasb asc 740 requires that a tax position be recognized or derecognized based on a "more likely than not" threshold. This applies to positions taken or expected to be taken in a tax return. The implementation of fasb asc 740 had no impact on the organization's statement of financial position or statement of activities. The organization does not believe its financial statements include (or reflect) any uncertain tax positions. The organization's forms 990,return of organization exempt from income tax, for the years ending in 2012,2013, and 2014 could be subject to examination by the irs, generally for three years after they are filed.”

Raw XML AppendixShowing 400 of 705 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSOEMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
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IRS990/Desc0PATIENT CARE SERVICES: CASE MANAGEMENT SERVICES TO APPROXIMATELY 300 INDIVIDUALS DIAGNOSED WITH ALS EACH YEAR IN EASTERN MISSOURI AND CENTRAL AND SOUTHERN ILLINOIS. SUPPORT SERVICES AND PROGRAMS ARE FREE OF CHARGE. CARE SERVICE COORDINATORS HELP FAMILY NAVIGATE THROUGH HEALTHCARE SYSTEM AND STRIVE TO INCREASE FUNCTIONAL INDEPENDENCE AND IMPROVE QUALITY OF LIFE FOR PATIENT AND FAMILY MEMBERS. WE ASSESS PATIENT / FAMILY NEEDS, DEVISE INDIVIDUALIZED CARE PLANS THAT INCLUDE HOME VISITS, COUNSELING, END OF LIFE CARE PLANNING, GRIEF COUNSELING; WE HAVE COMMUNITY PARTNERSHIPS WITH ALS MULTIDISCIPLINARY TREATMENT CENTER AT ST. LOUIS UNIVERSITY AND ST. FRANCIS ALS CLINIC IN CAPE GIRARDEAU AND WORK COLLABORATIVELY WITH THEM AND DURABLE MEDICAL EQUIPMENT PROVIDERS, SEATING / MOBILITY PROVIDERS, HOSPICE / HOME HEALTH CARE PROVIDERS; WE PROVIDE HOME MODIFICATION GRANTS , MEDICAL EQUIPMENT , NUTRITIONAL SUPPLEMENTS, TRANSPORTATION ASSISTANCE, PT, OT AND SPEECH THERAPIES, AUGMENTATIVE COMMUNICATION AND ASSISTIVE TECHNOLOGY EQUIPMENT LOAN. DUE TO THE DISABLING NATURE OF ALS, ISOLATION IS COMMON SO WE ALSO PROVIDE COMMUNITY LINK VISITING VOLUNTEER PROGRAM.
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IRS990/Form990PartVIISectionAGrp/PersonNm0DAVID J VAN DE RIET
IRS990/Form990PartVIISectionAGrp/PersonNm1KATHI HENSON
IRS990/Form990PartVIISectionAGrp/PersonNm2ZACHARY LEEDS
IRS990/Form990PartVIISectionAGrp/PersonNm3JOSH ROGERS
IRS990/Form990PartVIISectionAGrp/PersonNm4BETH BARRETT
IRS990/Form990PartVIISectionAGrp/PersonNm5DARLENE BEE
IRS990/Form990PartVIISectionAGrp/PersonNm6DAVID G BUSKER
IRS990/Form990PartVIISectionAGrp/PersonNm7CHARLES A CAFAZZA
IRS990/Form990PartVIISectionAGrp/PersonNm8KEVIN HEMENWAY
IRS990/Form990PartVIISectionAGrp/PersonNm9FREDERICK R KOSTECKI
IRS990/Form990PartVIISectionAGrp/PersonNm10BRENDA K MASON SHEPHERD
IRS990/Form990PartVIISectionAGrp/PersonNm11JAMES SOBULE
IRS990/Form990PartVIISectionAGrp/PersonNm12EVAN WALDMAN
IRS990/Form990PartVIISectionAGrp/PersonNm13SCOTT WANAMAKER
IRS990/Form990PartVIISectionAGrp/PersonNm14JULIE ZUBER
IRS990/Form990PartVIISectionAGrp/PersonNm15DAVE COLLET
IRS990/Form990PartVIISectionAGrp/PersonNm16COLLEEN EWELL
IRS990/Form990PartVIISectionAGrp/PersonNm17KIM MURPHY
IRS990/Form990PartVIISectionAGrp/PersonNm18BRYAN THOMAS
IRS990/Form990PartVIISectionAGrp/PersonNm19MAUREEN BARBER-HILL
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1993203
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19PRESIDENT/CEO
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IRS990/FormationYr01984
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IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0597316
IRS990/FundraisingDirectExpensesAmt0127156
IRS990/FundraisingGrossIncomeAmt0121461
IRS990/GainOrLossGrp/OtherAmt0-124
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt019
IRS990/GrantAmt0111449
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0111449
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0111449
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt01784637
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt019
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt05159
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt02064
IRS990/InformationTechnologyGrp/ProgramServicesAmt016557
IRS990/InformationTechnologyGrp/TotalAmt023780
IRS990/InsuranceGrp/FundraisingAmt01843
IRS990/InsuranceGrp/ManagementAndGeneralAmt01099
IRS990/InsuranceGrp/ProgramServicesAmt09482
IRS990/InsuranceGrp/TotalAmt012424
IRS990/InvestmentIncomeGrp/ExclusionAmt014450
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt014450
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt0122876
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt0115611
IRS990/InvestmentsPubTradedSecGrp/BOYAmt097158
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0107356
IRS990/IRPDocumentCnt035
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0386806
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0361941
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0345297
IRS990/LandBldgEquipCostOrOtherBssAmt0732103
IRS990/LegalDomicileStateCd0MO
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt0124
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01395159
IRS990/NetAssetsOrFundBalancesEOYAmt01788930
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-124
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-124
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-5695
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-5695
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt01170
IRS990/NoncashContributionsAmt064846
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt06968
IRS990/OccupancyGrp/ManagementAndGeneralAmt04628
IRS990/OccupancyGrp/ProgramServicesAmt037136
IRS990/OccupancyGrp/TotalAmt048732
IRS990/OfficeExpensesGrp/FundraisingAmt020937
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt05090
IRS990/OfficeExpensesGrp/ProgramServicesAmt050032
IRS990/OfficeExpensesGrp/TotalAmt076059
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt04500
IRS990/OtherAssetsTotalGrp/EOYAmt04500
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt02756
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02806
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt020130
IRS990/OtherEmployeeBenefitsGrp/TotalAmt025692
IRS990/OtherExpensesGrp/Desc0TRANSPORTATION
IRS990/OtherExpensesGrp/Desc1REPAIRS AND MAINTENANCE
IRS990/OtherExpensesGrp/FundraisingAmt02167
IRS990/OtherExpensesGrp/FundraisingAmt1252
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0356
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1168
IRS990/OtherExpensesGrp/ProgramServicesAmt017463
IRS990/OtherExpensesGrp/ProgramServicesAmt11343
IRS990/OtherExpensesGrp/TotalAmt019986
IRS990/OtherExpensesGrp/TotalAmt11763
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt069321
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt048252
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0338242
IRS990/OtherSalariesAndWagesGrp/TotalAmt0455815
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/FundraisingAmt0440
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt0236
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0116157
IRS990/PaymentsToAffiliatesGrp/TotalAmt0116833
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05658
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03678
IRS990/PayrollTaxesGrp/ProgramServicesAmt028627
IRS990/PayrollTaxesGrp/TotalAmt037963
IRS990/PensionPlanContributionsGrp/FundraisingAmt0499
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0352
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt02251
IRS990/PensionPlanContributionsGrp/TotalAmt03102
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt0107632
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt0107632
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0335315
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0319370
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0945
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt04697
IRS990/PrincipalOfficerNm0MAUREEN BARBER-HILL
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0EDUCATION SERVICES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt03501
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt03501
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION, AWARENESS AND ADVOCACY: COMMUNITY EDUCATION WORKING TO STIMULATE PUBLIC AWARENESS THROUGH ADVOCACY ACTIVITIES ON STATE AND NATIONAL LEVEL. WE PROVIDE AN EDUCATIONAL INSTITUTE FOR HEALTH CARE PROFESSIONALS, MONTHLY PATIENT INFORMATION UPDATES, PRINTED, VIDEO AND CD LENDING LIBRARY, ALS EDUCATIONAL ACTIVITY BOOKS FOR CHILDREN AND PRINTED AND ON LINE RESOURCE MANUALS FOR ASSISTED TECHNOLOGY, LOSS AND GRIEF, VA HEALTHCARE, NEW PATIENT AND VA BENEFITS. CARE CONNECTIONS PROGRAM TO ORGANIZE EFFORTS OF FAMILY AND FRIENDS TO PROVIDE PATIENT AND FAMILY ADDITIONAL HELP, CARE AND SUPPORT. THROUGH PUBLIC OUTREACH EFFORTS, MEDIA RELATIONS, SOCIAL MEDIA AND THE INTERNET WE CONTINUALLY TELL OUR STORY AND THE STORY OF THOSE BATTLING THIS DISEASE TO IMPRESS UPON THE IMPORTANCE OF OUR SERVICES AND CONTINUED FUNDING NEEDED FOR CARE SERVICES AND ALS RESEARCH.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0317451
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt03501
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH: OUR CHAPTER WORKS WITH 39 OTHER CHAPTERS ACROSS THE COUNTRY TO SUPPORT GLOBAL RESEARCH AND OUR EFFORTS ARE FOCUSED TOWARDS A SINGLE VISION OF A WORLD WITHOUT ALS. OUR CHAPTER DEDICATES FUNDS EACH YEAR DIRECTED TOWARDS SOME OF THE MOST PROMISING ALS RESEARCH PROJECTS. THESE PROJECTS ARE ALL RELATED TO FINDING THE CAUSE, A TREATMENT AND A CURE AND PATIENTS ARE ABLE TO ENROLL IN CLINICAL TRIALS. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION AS A WHOLE FUNDS AGGRESSIVE, CUTTING EDGE RESEARCH USING THE NEWEST TECHNIQUES WHILE FOSTERING COLLABORATIVE INITIATIVES AMONG GOVERNMENT AGENCIES, THE PRIVATE SECTOR AND SCIENTISTS WHO ARE INVESTED IN TRANSLATIONAL RESEARCH. THANKS TO THE ALS ICE BUCKET CHALLENGE WE HAVE BEEN ABLE TO REINVEST IN OUR 3 CORE SERVICE AREAS; MORE THAN DOUBLING THE FINANCIAL SUPPORT TO OUR CERTIFIED TREATMENT CENTERS, INCREASED GRANTS FOR RESPITE CARE, INCREASED THE AMOUNT OF MEDICAL EQUIPMENT AND NUTRITIONAL SUPPLEMENTS THAT WE NORMALLY PROVIDE.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt00
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01429073
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0107171
IRS990/PYInvestmentIncomeAmt07031
IRS990/PYOtherExpensesAmt0550214
IRS990/PYOtherRevenueAmt0-2032
IRS990/PYProgramServiceRevenueAmt01150
IRS990/PYRevenuesLessExpensesAmt0192917
IRS990/PYSalariesCompEmpBnftPaidAmt0584920
IRS990/PYTotalExpensesAmt01242305
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01435222
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0392601
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd01
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00

Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,900,876
Liabilities
$111,946
Net assets
$1,788,930
Revenue
$1,657,357
Expenses
$1,264,756
Net income
$392,601
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$2.11$2.11$0.00$0.03$4.47$4.50
2022Detailed filing. Detailed filing data is available for this year.$5.16$0.25$4.92$2.62$1.92$0.70
2021Detailed filing. Detailed filing data is available for this year.$4.25$0.22$4.03$2.23$1.96$0.27
2020Detailed filing. Detailed filing data is available for this year.$3.82$0.22$3.60$2.53$1.93$0.60
2019Detailed filing. Detailed filing data is available for this year.$3.15$0.24$2.91$2.33$1.84$0.49
2018Detailed filing. Detailed filing data is available for this year.$2.69$0.22$2.47$2.04$1.71$0.32
2017Detailed filing. Detailed filing data is available for this year.$2.27$0.14$2.13$1.90$1.56$0.33
2016Detailed filing. Detailed filing data is available for this year.$1.91$0.12$1.79$1.47$1.47$0.01
2015Detailed filing. Detailed filing data is available for this year.$1.90$0.11$1.79$1.66$1.26$0.39
2014Detailed filing. Detailed filing data is available for this year.$1.48$0.09$1.40$1.44$1.24$0.19
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.32$0.13$1.20$1.54$1.10$0.44
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.84$0.09$0.75$0.99
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.69$0.08$0.61$1.07