Liabilities / Assets
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
National Neutropenia Network Inc.
990EZ • Fiscal year 2014 • EIN 38-3207136
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
68th percentile
Higher net margin than 68% of similar nonprofits.
Top Officer Pay
80th percentile
Higher top officer pay than 80% of similar nonprofits.
Top officer pay equals 21.1% of source-year revenue.
Asset Growth
82nd percentile
Faster asset growth than 82% of similar nonprofits.
Revenue Growth
100th percentile
Faster revenue growth than 100% of similar nonprofits.
Balance Sheet
Assets
Up$29,266
Up $8,734 (+43%) from 2013
Net Assets
Up$29,266
Up $8,734 (+43%) from 2013
Liabilities
Flat$0
Flat from 2013
Revenue And Expenses
Revenue
Up$70,987
Up $67,902 (+2201%) from 2013
Expenses
Up$62,253
Up $47,281 (+316%) from 2013
Net Income
Up$8,734
Up $20,621 (+173%) from 2013
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2014 to Dec 31, 2014
- Signed
- May 13, 2015
- Return Version
- 2014v5.0
- Gross Receipts
- $70,987
Mission and Program Overview
Mission
The mission of the national neutropenia network is to promote awareness, education, research and to provide a support system for patients with severe chronic neutropenia (scn) and their families through a national resource network.
The primary purpose of the National Neutropenia Network is to promote awareness education and research and provide a support system for individuals with severe chronic neutropenia and their families through a national resource network.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| The Neutropenia Family Conference is a life-changing event for patients and families. The Conference gives them the rare opportunity to meet with expert physicians who have treated many patients with neutropenia as well as devoting many years of their professional life to research related to this bone marrow failure condition. Thirty five private patient-physician consultations took place at the 2015 Family Conference. For some patients these meetings resulted in life-changing advice. Attendees also meet others who understand what it's like to live with the rare and often bewildering condition of severe chronic neutropenia. Children enjoy a camp experience where activities centered on their neutropenia are an important part of the program while having fun is the centerpiece. They leave camp with new friends and with a sense of belonging that often eludes them in their daily life. The 2014 Family Conference was well attended with almost fifty children participating in the Kids Kamp. Many of our patients experience major financial challenges when a with a rare disease. Some face daunting medical bills and income loss as they grapple with neutropenia. They cannot attend the Conference without financial assistance. Thirteen families attended the 2015 Family Conference with the help of hardship grants given to them by the NNN. | $4,473 | $48,060 |
| The National Neutropenia Network produces a newsletter filled with information of clinical interest and medical value to patients. We include stories on the latest treatment and features on individuals with exceptional experiences managing their neutropenia. It reaches close to 800 patients. | $0 | $2,036 |
| With the internet serving as the primary information source for patients seeking knowledge about their neutropenia and guidance on how to manage it, we have upgraded our website neutropenianet.org with important new features. Newly diagnosed patients can sign up for a free information packet complete with a patient handbook authored by expert physicians and a customizable ER card to present to hospital emergency personnel. Information packets are shipped at no cost to all who ask. We have added short videos of expert hematologists speaking about the diagnosis and treatment of chronic neutropenia. Patients are invited to share their stories which we post for others to read. The firsthand knowledge of the struggle other patients face gives comfort and eases the isolation that comes from living with an extremely rare disease. We are continuing with our Peer Support program linking patients with peer support volunteers who have participated in a training program. We respond personally to hundreds of inquiries from patients and families seeking specific information or guidance related to their neutropenia. In 2014 we had over 23,000 new visitors to our website with average page sessions nearly two minutes. Nearly 6,000 returning visitors spent an average of 2.55 minutes per visit. For some patients their visit to our website opens up a new path for them, one that leads to medical information that changes their life. | $0 | $571 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Marylee Reeves | Executive Director | PT | $14,977 | - | $14,977 |
| Lucy Lyman | Director | - | $0 | - | - |
| Kate Bottiger | Chairman | - | $0 | - | - |
| Sharon White | Secretary | - | $0 | - | - |
| Rajan Lakhia | Director | - | $0 | - | - |
| Krista Moroder | Director | - | $0 | - | - |
| Mariel Lewis | Director | - | $0 | - | - |
| Taylor Carlton | Treasurer | - | $0 | - | - |
| Ron Bloxham | Director | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- National Neutropenia Network
- EIN
- 38-3207136
- Phone
- 5172940736
- Address
- US, PO Box 1693, Brighton, MI 48116
Signing Officer
- Name
- Marylee Reeves
- Title
- President/Director
- Phone
- 5172940736
- Signed
- 2015-05-13
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 8
“Sale of misc. items at Family Conference”
Form 990-EZ, Part I, Line 10
“Financial Assistance Grants for patients with significant financial challenges that prohibited them from attending the Family Conference without support. These grants covered Conference costs such as lodging, meals and in some cases help with travel. We gave financial assistance grants to thirteen families.”
Form 990-EZ, Part I, Line 16
“Other expenses include: primarily conference costs as well as website management, office supplies, patient support programs.”
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | The primary purpose of the National Neutropenia Network is to promote awareness education and research and provide a support system for individuals with severe chronic neutropenia and their families through a national resource network. |
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | The Neutropenia Family Conference is a life-changing event for patients and families. The Conference gives them the rare opportunity to meet with expert physicians who have treated many patients with neutropenia as well as devoting many years of their professional life to research related to this bone marrow failure condition. Thirty five private patient-physician consultations took place at the 2015 Family Conference. For some patients these meetings resulted in life-changing advice. Attendees also meet others who understand what it's like to live with the rare and often bewildering condition of severe chronic neutropenia. Children enjoy a camp experience where activities centered on their neutropenia are an important part of the program while having fun is the centerpiece. They leave camp with new friends and with a sense of belonging that often eludes them in their daily life. The 2014 Family Conference was well attended with almost fifty children participating in the Kids Kamp. Many of our patients experience major financial challenges when a with a rare disease. Some face daunting medical bills and income loss as they grapple with neutropenia. They cannot attend the Conference without financial assistance. Thirteen families attended the 2015 Family Conference with the help of hardship grants given to them by the NNN. |
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | The National Neutropenia Network produces a newsletter filled with information of clinical interest and medical value to patients. We include stories on the latest treatment and features on individuals with exceptional experiences managing their neutropenia. It reaches close to 800 patients. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Sale of misc. items at Family Conference |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Financial Assistance Grants for patients with significant financial challenges that prohibited them from attending the Family Conference without support. These grants covered Conference costs such as lodging, meals and in some cases help with travel. We gave financial assistance grants to thirteen families. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Other expenses include: primarily conference costs as well as website management, office supplies, patient support programs. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 8 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990-EZ, Part I, Line 10 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990-EZ, Part I, Line 16 |
| ReturnHeader/BuildTS | 0 | 2016-03-07 17:11:31Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Marylee Reeves |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President/Director |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 5172940736 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2015-05-13 |
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| ReturnHeader/Filer/PhoneNum | 0 | 5172940736 |
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| ReturnHeader/Filer/USAddress/AddressLine2Txt | 0 | PO Box 1693 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Brighton |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MI |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 48116 |
| ReturnHeader/ReturnTs | 0 | 2015-05-15T00:48:48-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2014-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2014-12-31 |
| ReturnHeader/TaxYr | 0 | 2014 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2014 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $29,266
- Liabilities
- $0
- Net assets
- $29,266
- Revenue
- $70,987
- Expenses
- $62,253
- Net income
- $8,734