Liabilities / Assets
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
National Neutropenia Network Inc.
990EZ • Fiscal year 2016 • EIN 38-3207136
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
28th percentile
Higher net margin than 28% of similar nonprofits.
Top Officer Pay
78th percentile
Higher top officer pay than 78% of similar nonprofits.
Top officer pay equals 13.8% of source-year revenue.
Asset Growth
28th percentile
Faster asset growth than 28% of similar nonprofits.
Revenue Growth
17th percentile
Faster revenue growth than 17% of similar nonprofits.
Balance Sheet
Assets
Down$23,824
Down $2,820 (-11%) from 2015
Net Assets
Down$23,824
Down $2,820 (-11%) from 2015
Liabilities
Flat$0
Flat from 2015
Revenue And Expenses
Revenue
Down$46,056
Down $20,433 (-31%) from 2015
Expenses
Down$49,026
Down $19,935 (-29%) from 2015
Net Income
Down-$2,970
Down $498 (-20%) from 2015
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2016 to Dec 31, 2016
- Signed
- May 15, 2017
- Return Version
- 2016v3.0
- Gross Receipts
- $46,056
Mission and Program Overview
Mission
The mission of the National Neutropenia Network is to promote awareness, education, research and to provide a support system for patients with severe chronic Neutropenia(SCN)and their families through a national resource network..
The primary purpose of the National Neutropenia Network is to promote awareness education and research and provide a support system for individuals with severe chronic neutropenia and their families through a national resource network.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| The Neutropenia Family Conference is a life-changing event for patients and families. The Conference gives them the rare opportunity to meet with expert physicians who have treated many patients with neutropenia as well as devoting many years of their professional life to research related to this bone marrow failure condition. Private patient-physician consultations take place at our conference and for some patients these meetings result in life-changing advice. In addition to educational sessions, programs are designed to give patients and families plenty of time to meet and mingle. With the isolation that comes from living with a rare disease like neutropenia, this is a rare and wonderful opportunity. Children had a fantastic time at Neutropenia Kids Kamp where activities centered on understanding their disease are an important part of the program while having fun is the centerpiece. They leave camp with new friends and with a sense of belonging that often eludes them in their daily life. Our Family Conference also give patients access to the professional staff at the Severe Chronic Neutropenia International Registry. Many patients have worked with the staff for decades but never met them. This is a moving and meaningful experience for both staff and patients. Many of our patients experience major financial challenges as part of living with a rare disease. Some face daunting medical bills and income loss as they grapple with neutropenia. They cannot attend the Conference without financial assistance. | $17,230 | $38,157 |
| The National Neutropenia Network produces a newsletter filled with information of clinical interest and medical value to patients. We include stories on the latest treatment and features on individuals with exceptional experiences managing their neutropenia. It reaches close to 800 patients. For those patients who do not use the internet, many of them seniors, the newsletter is a valuable benefit. | $0 | $1,843 |
| With the internet serving as the primary information source for patients seeking knowledge about their neutropenia, our website Neutropenianet.org provides a reliable resource to help them sort through the confusion and misguided advice that can come from visiting various social networking sites. Neutropenianet.org provides the latest information related to diagnosis and treatment of neutropenia in a language that is accessible to the layperson. Information from our website is often used by patients to help educate their physicians who rarely have any experience treating this disease. In 2016 we mailed out well over a hundred Patient Information Packets requested through our website. The packet includes: a patient handbook authored by expert physicians and a customizable ER card to present to hospital emergency personnel, and our most recent newsletters. Information packets are shipped at no cost to patients and families. The website gives patients who cannot attend the Conference an alternate option as they can watch videos of educational sessions presented by top experts on neutropenia at the Family Conference. Patient stories are another popular feature of our website. The firsthand knowledge of the struggle other patients face eases the isolation that comes from living with an extremely rare disease. We respond personally to hundreds of inquiries from patients and families seeking specific information or guidance related to their neutropenia. In 2016, we had more than 20,000 new visitors to our website with average page sessions nearly two minutes. More than 4,500 were return visitors to our website. For some patients their visit to our website opens up a new path for them, one that leads to medical information and care that changes their life. | $0 | $860 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Marylee Reeves | Executive Director | PT | $6,350 | - | $6,350 |
| Kate Bottiger | Chair | - | $0 | - | - |
| Sharon White | Director | - | $0 | - | - |
| Taylor Carlton | Treasurer | - | $0 | - | - |
| Lucy Lyman | Director | - | $0 | - | - |
| Mariel Lewis | Director | - | $0 | - | - |
| Rajan Lakhia | Director | - | $0 | - | - |
| Krista Moroder | Director | - | $0 | - | - |
| Ron Bloxham | Director | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- National Neutropenia Network
- EIN
- 38-3207136
- Phone
- 8773267117
- Address
- US PO Box 1693, Brighton, MI 48116
Signing Officer
- Name
- Kate Bottiger
- Title
- Director
- Phone
- 5172940736
- Signed
- 2017-05-15
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 8
“Sale of memorabilia”
Form 990-EZ, Part I, Line 10
“Form 990-EZ , Part 1, line 10 - Financial assistance grants for patients with significant financial challenges that prohibited them from attending the family conference without support. These grants covered conference costs such as lodging, meals and in some cases help with travel.”
Form 990-EZ, Part I, Line 16
“Form 990-EZ line 16 - Other expenses include: primary conference costs as well as website management, office supplies and patient support programs.”
Form 990-EZ, Part I, Line 20
“Due to the Chase Bank on line payment on 12/02/2015 of $150.00 and a second on line payment of $150.00 on 12/31/2015, the double payment confused the year end balance. In the 2015 part 1 line 20 the adjustment of $150.00 was recorded and now in the 2016 part 1 line 20 the item is reversed.”
Raw XML Appendix227 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | The primary purpose of the National Neutropenia Network is to promote awareness education and research and provide a support system for individuals with severe chronic neutropenia and their families through a national resource network. |
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | The Neutropenia Family Conference is a life-changing event for patients and families. The Conference gives them the rare opportunity to meet with expert physicians who have treated many patients with neutropenia as well as devoting many years of their professional life to research related to this bone marrow failure condition. Private patient-physician consultations take place at our conference and for some patients these meetings result in life-changing advice. In addition to educational sessions, programs are designed to give patients and families plenty of time to meet and mingle. With the isolation that comes from living with a rare disease like neutropenia, this is a rare and wonderful opportunity. Children had a fantastic time at Neutropenia Kids Kamp where activities centered on understanding their disease are an important part of the program while having fun is the centerpiece. They leave camp with new friends and with a sense of belonging that often eludes them in their daily life. Our Family Conference also give patients access to the professional staff at the Severe Chronic Neutropenia International Registry. Many patients have worked with the staff for decades but never met them. This is a moving and meaningful experience for both staff and patients. Many of our patients experience major financial challenges as part of living with a rare disease. Some face daunting medical bills and income loss as they grapple with neutropenia. They cannot attend the Conference without financial assistance. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | With the internet serving as the primary information source for patients seeking knowledge about their neutropenia, our website Neutropenianet.org provides a reliable resource to help them sort through the confusion and misguided advice that can come from visiting various social networking sites. Neutropenianet.org provides the latest information related to diagnosis and treatment of neutropenia in a language that is accessible to the layperson. Information from our website is often used by patients to help educate their physicians who rarely have any experience treating this disease. In 2016 we mailed out well over a hundred Patient Information Packets requested through our website. The packet includes: a patient handbook authored by expert physicians and a customizable ER card to present to hospital emergency personnel, and our most recent newsletters. Information packets are shipped at no cost to patients and families. The website gives patients who cannot attend the Conference an alternate option as they can watch videos of educational sessions presented by top experts on neutropenia at the Family Conference. Patient stories are another popular feature of our website. The firsthand knowledge of the struggle other patients face eases the isolation that comes from living with an extremely rare disease. We respond personally to hundreds of inquiries from patients and families seeking specific information or guidance related to their neutropenia. In 2016, we had more than 20,000 new visitors to our website with average page sessions nearly two minutes. More than 4,500 were return visitors to our website. For some patients their visit to our website opens up a new path for them, one that leads to medical information and care that changes their life. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | The National Neutropenia Network produces a newsletter filled with information of clinical interest and medical value to patients. We include stories on the latest treatment and features on individuals with exceptional experiences managing their neutropenia. It reaches close to 800 patients. For those patients who do not use the internet, many of them seniors, the newsletter is a valuable benefit. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Form 990-EZ , Part 1, line 10 - Financial assistance grants for patients with significant financial challenges that prohibited them from attending the family conference without support. These grants covered conference costs such as lodging, meals and in some cases help with travel. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Form 990-EZ line 16 - Other expenses include: primary conference costs as well as website management, office supplies and patient support programs. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Due to the Chase Bank on line payment on 12/02/2015 of $150.00 and a second on line payment of $150.00 on 12/31/2015, the double payment confused the year end balance. In the 2015 part 1 line 20 the adjustment of $150.00 was recorded and now in the 2016 part 1 line 20 the item is reversed. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 8 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990-EZ, Part I, Line 10 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990-EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990-EZ, Part I, Line 20 |
| ReturnHeader/BuildTS | 0 | 2017-02-10 21:41:12Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Kate Bottiger |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Director |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 5172940736 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2017-05-15 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | National Neutropenia Network |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | NATI |
| ReturnHeader/Filer/EIN | 0 | 383207136 |
| ReturnHeader/Filer/PhoneNum | 0 | 8773267117 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | US PO Box 1693 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Brighton |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MI |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 48116 |
| ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt | 0 | 204.73.55.132 |
| ReturnHeader/ReturnTs | 0 | 2017-05-15T11:39:18-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2016-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2016-12-31 |
| ReturnHeader/TaxYr | 0 | 2016 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2016 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $23,824
- Liabilities
- $0
- Net assets
- $23,824
- Revenue
- $46,056
- Expenses
- $49,026
- Net income
- -$2,970