Liabilities / Assets
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
National Neutropenia Network Inc.
990EZ • Fiscal year 2015 • EIN 38-3207136
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
55th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
32nd percentile
Higher net margin than 32% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 23.5% of source-year revenue.
Asset Growth
30th percentile
Faster asset growth than 30% of similar nonprofits.
Revenue Growth
38th percentile
Faster revenue growth than 38% of similar nonprofits.
Balance Sheet
Assets
Down$26,644
Down $2,622 (-9.0%) from 2014
Net Assets
Down$26,644
Down $2,622 (-9.0%) from 2014
Liabilities
Flat$0
Flat from 2014
Revenue And Expenses
Revenue
Down$66,489
Down $4,498 (-6.3%) from 2014
Expenses
Up$68,961
Up $6,708 (+11%) from 2014
Net Income
Down-$2,472
Down $11,206 (-128%) from 2014
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2015 to Dec 31, 2015
- Signed
- May 14, 2016
- Return Version
- 2015v2.1
- Gross Receipts
- $67,302
Mission and Program Overview
Mission
The primary purpose of the National Neutropenia Network is to promote awareness education and research and provide a support system for individuals with severe chronic neutropenia and their families through a national resource network.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| The Neutropenia Family Conference is a life-changing event for patients and families. The Conference gives them the rare opportunity to meet with expert physicians who have treated many patients with neutropenia as well as devoting many years of their professional life to research related to this bone marrow failure condition. Twenty eight private patient-physician consultations took place at the 2015 Family Conference. For some patients these meetings resulted in life-changing advice. In addition to educational sessions, programs are designed to give patients and families plenty of time to meet and mingle. With the isolation that comes from living with a rare disease like neutropenia, this is a rare and wonderful opportunity. Children had a fantastic time at Neutropenia Kids Kamp where activities centered on understanding their disease are an important part of the program while having fun is the centerpiece. They leave camp with new friends and with a sense of belonging that often eludes them in their daily life. The 2015 Family Conference also gave patients access to the professional staff at the Severe Chronic Neutropenia International Registry. Many patients have worked with the staff for decades but never met them. This was a moving and meaningful experience for both staff and patients. Many of our patients experience major financial challenges as part of living with a rare disease. Some face daunting medical bills and income loss as they grapple with neutropenia. They cannot attend the Conference without financial assistance. We were able to help eleven families attended the 2015 Family Conference with the help of hardship grants awarded to cover partial expenses. | $4,745 | $50,280 |
| The National Neutropenia Network produces a newsletter filled with information of clinical interest and medical value to patients. We include stories on the latest treatment and features on individuals with exceptional experiences managing their neutropenia. It reaches close to 800 patients. For those patients who do not use the internet, many of them seniors, the newsletter is a valuable benefit. | $0 | $2,105 |
| With the internet serving as the primary information source for patients seeking knowledge about their neutropenia, our website Neutropenianet.org provides a reliable resource to help them sort through the confusion and misguided advice that can come from visiting various social networking sites. Neutropenianet.org provides the latest information related to diagnosis and treatment of neutropenia in a language that is accessible to the layperson. Information from our website is often used by patients to help educate their physicians who rarely have any experience treating this disease. In 2015 we mailed out well over a hundred Patient Information Packets requested through our website. The packet includes: a patient handbook authored by expert physicians and a customizable ER card to present to hospital emergency personnel, and our most recent newsletters. Information packets are shipped at no cost to patients and families. The website gives patients who cannot attend the Conference an alternate option as they can watch videos of educational sessions presented by top experts on neutropenia at the Family Conference. Patient stories are another popular feature of our website. The firsthand knowledge of the struggle other patients face eases the isolation that comes from living with an extremely rare disease. We respond personally to hundreds of inquiries from patients and families seeking specific information or guidance related to their neutropenia. In 2015 we had over 25,000 new visitors to our website with average page sessions nearly two minutes. Over 6,000 returning visitors spent an average of 2.58 minutes per visit. For some patients their visit to our website opens up a new path for them, one that leads to medical information and care that changes their life. | $0 | $1,588 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Marylee Reeves | Executive Director | PT | $15,600 | - | $15,600 |
| Kate Bottiger | Chairman | - | $0 | - | - |
| Sharon White | Secretary | - | $0 | - | - |
| Taylor Carlton | Treasurer | - | $0 | - | - |
| Lucy Lyman | Director | - | $0 | - | - |
| Mariel Lewis | Director | - | $0 | - | - |
| Rajan Lakhia | Director | - | $0 | - | - |
| Krista Moroder | Director | - | $0 | - | - |
| Ron Bloxham | Director | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- National Neutropenia Network
- EIN
- 38-3207136
- Phone
- 5172940736
- Address
- US PO Box 1693, Brighton, MI 48116
Signing Officer
- Name
- Marylee Reeves
- Title
- President/Director
- Phone
- 5172940736
- Signed
- 2016-05-14
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 8
“Sale of t-shirts and books at Neutropenia Family Conference”
Form 990-EZ, Part I, Line 10
“We give financial support through patient assistance grants to individuals and families who cannot afford the full cost of attending the Neutropenia Family Conference. The grants are usually partial but make attendance possible for families experiencing the stress and financial difficulties of living with a rare and chronic disease. This can be life-changing for some patients as it can lead to better understanding and more effective management of their chronic neutropenia.”
Form 990-EZ, Part I, Line 16
“"Other expenses" are primarily related to the cost of producing the Neutropenia Family Conference. They include the travel and lodging expenses of physicians, presenters and Conference staff; audio visual services; the children's two day camp program; printed materials distributed at the Conference and website costs related to registering and tracking participants. They also covered the expense of professionally videoing Conference presentations and educational sessions which are now available for all who visit neutropenianet.org.”
Form 990-EZ, Part I, Line 20
“Chase bank recorded a $150.00 expense on 12/31/15 that should be a 2016 expense”
Form 990-EZ, Part II, Line 24
“Accounts Receivable from 2015 carried to 2016”
Raw XML Appendix228 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | The primary purpose of the National Neutropenia Network is to promote awareness education and research and provide a support system for individuals with severe chronic neutropenia and their families through a national resource network. |
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | The Neutropenia Family Conference is a life-changing event for patients and families. The Conference gives them the rare opportunity to meet with expert physicians who have treated many patients with neutropenia as well as devoting many years of their professional life to research related to this bone marrow failure condition. Twenty eight private patient-physician consultations took place at the 2015 Family Conference. For some patients these meetings resulted in life-changing advice. In addition to educational sessions, programs are designed to give patients and families plenty of time to meet and mingle. With the isolation that comes from living with a rare disease like neutropenia, this is a rare and wonderful opportunity. Children had a fantastic time at Neutropenia Kids Kamp where activities centered on understanding their disease are an important part of the program while having fun is the centerpiece. They leave camp with new friends and with a sense of belonging that often eludes them in their daily life. The 2015 Family Conference also gave patients access to the professional staff at the Severe Chronic Neutropenia International Registry. Many patients have worked with the staff for decades but never met them. This was a moving and meaningful experience for both staff and patients. Many of our patients experience major financial challenges as part of living with a rare disease. Some face daunting medical bills and income loss as they grapple with neutropenia. They cannot attend the Conference without financial assistance. We were able to help eleven families attended the 2015 Family Conference with the help of hardship grants awarded to cover partial expenses. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | With the internet serving as the primary information source for patients seeking knowledge about their neutropenia, our website Neutropenianet.org provides a reliable resource to help them sort through the confusion and misguided advice that can come from visiting various social networking sites. Neutropenianet.org provides the latest information related to diagnosis and treatment of neutropenia in a language that is accessible to the layperson. Information from our website is often used by patients to help educate their physicians who rarely have any experience treating this disease. In 2015 we mailed out well over a hundred Patient Information Packets requested through our website. The packet includes: a patient handbook authored by expert physicians and a customizable ER card to present to hospital emergency personnel, and our most recent newsletters. Information packets are shipped at no cost to patients and families. The website gives patients who cannot attend the Conference an alternate option as they can watch videos of educational sessions presented by top experts on neutropenia at the Family Conference. Patient stories are another popular feature of our website. The firsthand knowledge of the struggle other patients face eases the isolation that comes from living with an extremely rare disease. We respond personally to hundreds of inquiries from patients and families seeking specific information or guidance related to their neutropenia. In 2015 we had over 25,000 new visitors to our website with average page sessions nearly two minutes. Over 6,000 returning visitors spent an average of 2.58 minutes per visit. For some patients their visit to our website opens up a new path for them, one that leads to medical information and care that changes their life. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 2 | The National Neutropenia Network produces a newsletter filled with information of clinical interest and medical value to patients. We include stories on the latest treatment and features on individuals with exceptional experiences managing their neutropenia. It reaches close to 800 patients. For those patients who do not use the internet, many of them seniors, the newsletter is a valuable benefit. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Sale of t-shirts and books at Neutropenia Family Conference |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | We give financial support through patient assistance grants to individuals and families who cannot afford the full cost of attending the Neutropenia Family Conference. The grants are usually partial but make attendance possible for families experiencing the stress and financial difficulties of living with a rare and chronic disease. This can be life-changing for some patients as it can lead to better understanding and more effective management of their chronic neutropenia. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | "Other expenses" are primarily related to the cost of producing the Neutropenia Family Conference. They include the travel and lodging expenses of physicians, presenters and Conference staff; audio visual services; the children's two day camp program; printed materials distributed at the Conference and website costs related to registering and tracking participants. They also covered the expense of professionally videoing Conference presentations and educational sessions which are now available for all who visit neutropenianet.org. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Chase bank recorded a $150.00 expense on 12/31/15 that should be a 2016 expense |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | Accounts Receivable from 2015 carried to 2016 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 8 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990-EZ, Part I, Line 10 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990-EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990-EZ, Part I, Line 20 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Form 990-EZ, Part II, Line 24 |
| ReturnHeader/BuildTS | 0 | 2016-12-15 16:53:06Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Marylee Reeves |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President/Director |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 5172940736 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2016-05-14 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | National Neutropenia Network |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | NATI |
| ReturnHeader/Filer/EIN | 0 | 383207136 |
| ReturnHeader/Filer/PhoneNum | 0 | 5172940736 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | US PO Box 1693 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Brighton |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MI |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 48116 |
| ReturnHeader/ReturnTs | 0 | 2016-08-12T14:00:54-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2015-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2015-12-31 |
| ReturnHeader/TaxYr | 0 | 2015 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2015 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $26,644
- Liabilities
- $0
- Net assets
- $26,644
- Revenue
- $66,489
- Expenses
- $68,961
- Net income
- -$2,472