National Neutropenia Network Inc.

990EZ • Fiscal year 2013 • EIN 38-3207136

Jan 01, 2013 to Dec 31, 2013 • Filed on May 14, 2014

Organization Profile neutropenianet.org

USPO Box 1693Cincinnati, OH 48116

(517) 294-0736

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

-385%

Higher net margin than 2% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

$7,113

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 230.6% of source-year revenue.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

-37%

Faster asset growth than 12% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

-95%

Faster revenue growth than 2% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

Balance Sheet

Liabilities / Assets55th percentile

Assets

Down

$20,532

Down $11,886 (-37%) from 2012

Net Assets

$20,532

No earlier filing loaded for comparison.

Liabilities

Flat

Flat from 2012

Revenue And Expenses

Liabilities / Revenue56th percentile Net Margin2nd percentile

Revenue

Down

$3,085

Down $58,052 (-95%) from 2012

Expenses

Down

$14,972

Down $39,971 (-73%) from 2012

Net Income

Down

-$11,887

Down $18,081 (-292%) from 2012

Historical Trend

Balance Sheet Trend

Asset Growth12th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

Highlighted filing

2013

Assets$20,532

Liabilities$0

Net Assets$20,532

Open 2013 Filing

Operations Trend

Revenue Growth2nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

Highlighted filing

2013

Revenue$3,085

Expenses$14,972

Net Income-$11,887

Open 2013 Filing

Jump To

Filing Snapshot

Filing Period: Jan 1, 2013 to Dec 31, 2013
Signed: May 14, 2014
Return Version: 2013v3.0
Gross Receipts: $3,085

Mission and Program Overview

Mission

The mission of the national neutropenia network is to promote awareness, education, research and to provide a support system for patients with severe chronic neutropenia (scn) and their families through a national resource network.

The primary purpose of the National Neutropenia Network is to promote awareness education and research and provide a support system for individuals with severe chronic neutropenia and their families through a national resource network.

Program Services

Description	Grants	Expenses
Patient Support: The Peer Support Volunteer Program instituted in 2012 responds to requests for support from patients and/or family members experiencing stress, confusion and isolation regarding the management of their neutropenia. We match the support seeker with a more seasoned patient or caregiver who has faced similar circumstances. All Peer Support Volunteers are provided with one-on-one training and a workbook. In cases where the need is primarily medical we refer them to physicians who serve on the Severe Chronic Neutropenia International Advisory Council. We matched more than twenty five patients in 2013, and responded to approximately two hundred email inquiries for information and guidance. We gave a $500 grant to a struggling college student who has severe lifelong neutropenia.	$500	$4,906
Our newsletter is full of information patients want to know related to the medical management of neutropenia and stories about other patients whose lives have been impacted by neutropenia. The newsletter is made available to all visitors to our website, approximately 30,000 per year. It is also mailed directly to over 900 patients with severe chronic neutropenia	$0	$2,390
In 2013 we took a break after ten years of producing the Neutropenia Family Conference. We studied five years of feedback forms setting in place significant changes to the Conference format. Our planning and work in 2013 has set in motion plans for a new improved and expanded Conference in 2014.	$0	$725

Compensation and Service Providers

Top Officer Pay76th percentile

Employees

Name	Title	Full / Part Time	Base	Other	Total
Marylee Reeves	President/Director	PT	$7,113	-	$7,113
Lucy Lyman	Chairman	-	$0	-	-
Kate Bottiger	Treasurer/Vice Chairman	-	$0	-	-
Sharon White	Secretary	-	$0	-	-
Rajan Lakhia	Director	-	$0	-	-
Krista Moroder	Director	-	$0	-	-
Mariel Lewis	Director	-	$0	-	-

Filing and Contact Details

Filer

EIN: 38-3207136
Phone: 5172940736

Signing Officer

Name: Marylee Reeves
Title: President/Director
Phone: 5172940736
Signed: 2014-05-14

Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16

“Includes website upgrades, supplies, general postage”

Raw XML Appendix199 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc	0	Form 990-EZ, Part I, Line 16
ReturnHeader/BuildTS	0	2015-11-30 17:44:51Z
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ReturnHeader/ReturnTs	0	2014-05-14T19:08:49-07:00
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ReturnHeader/TaxPeriodEndDt	0	2013-12-31
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Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2013 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing

Assets: $20,532
Liabilities: $0
Net assets: $20,532
Revenue: $3,085
Expenses: $14,972
Net income: -$11,887

	Balance Sheet			Operations
Year	Assets	Liabilities	Net Assets	Revenue	Expenses	Net Income
2024Detailed filing. Detailed filing data is available for this year.	$2.51	$0.00	$2.51	$0.74	$0.33	$0.41
2023Detailed filing. Detailed filing data is available for this year.	$2.10	$0.00	$2.10	$1.15	$0.68	$0.46
2019Detailed filing. Detailed filing data is available for this year.	$0.61	$0.00	$0.61	$0.52	$0.17	$0.35
2018Detailed filing. Detailed filing data is available for this year.	$0.25	$0.00	$0.25	$0.49	$0.48	$0.01
2017Detailed filing. Detailed filing data is available for this year.	$0.24	$0.00	$0.24	$0.17	$0.17	$0.00
2016Detailed filing. Detailed filing data is available for this year.	$0.24	$0.00	$0.24	$0.46	$0.49	$0.03
2015Detailed filing. Detailed filing data is available for this year.	$0.27	$0.00	$0.27	$0.66	$0.69	$0.02
2014Detailed filing. Detailed filing data is available for this year.	$0.29	$0.00	$0.29	$0.71	$0.62	$0.09
2013Detailed filing. Detailed filing data is available for this year.	$0.21	$0.00	$0.21	$0.03	$0.15	$0.12
2012Summary only. Only limited summary data is available for this year.	$0.32	$0.00		$0.61	$0.55	$0.06
2011Summary only. Only limited summary data is available for this year.	$0.26	$0.00		$0.51	$0.44	$0.06
2009Summary only. Only limited summary data is available for this year.	$0.22	$0.00		$0.36	$0.35	$0.01