Liabilities / Assets
37th percentile
Higher debt load relative to assets than 37% of similar nonprofits.
990 • Fiscal year 2020 • EIN 37-1667986
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
37th percentile
Higher debt load relative to assets than 37% of similar nonprofits.
Liabilities / Revenue
36th percentile
Higher debt load relative to revenue than 36% of similar nonprofits.
Net Margin
62nd percentile
Higher net margin than 62% of similar nonprofits.
Top Officer Pay
64th percentile
Higher top officer pay than 64% of similar nonprofits.
Top officer pay equals 8.2% of source-year revenue.
Asset Growth
65th percentile
Faster asset growth than 65% of similar nonprofits.
Revenue Growth
68th percentile
Faster revenue growth than 68% of similar nonprofits.
Assets
Up$1,787,541
Up $217,466 (+14%) from 2019
Net Assets
Up$1,719,313
Up $201,208 (+13%) from 2019
Liabilities
Up$68,228
Up $16,258 (+31%) from 2019
Revenue
Up$1,075,944
Up $115,927 (+12%) from 2019
Expenses
Up$947,373
Up $104,905 (+12%) from 2019
Net Income
Up$128,571
Up $11,022 (+9.4%) from 2019
Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.
To lead the fight to cure and treat als through global, cutting edge research and patient care.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $1,048,992 | $1,322,829 | ▲ $273,837 |
| Cash and Non-Interest-Bearing Accounts | $318,688 | $337,524 | ▲ $18,836 |
| Savings and Temporary Cash Investments | $165,013 | $100,354 | ▼ $64,659 |
| Land, Buildings, and Equipment, Net | $18,399 | $13,395 | ▼ $5,004 |
| Prepaid Expenses and Deferred Charges | $4,693 | $9,691 | ▲ $4,998 |
| Accounts Receivable | $13,072 | $2,530 | ▼ $10,542 |
| Total Assets | $1,570,075 | $1,787,541 | ▲ $217,466 |
| Other Assets Total | $1,218 | $1,218 | → $0 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $51,970 | $68,228 | ▲ $16,258 |
| Total Liabilities | $51,970 | $68,228 | ▲ $16,258 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,518,105 | $1,717,813 | ▲ $199,708 |
| Net Assets With Donor Restrictions | $0 | $1,500 | ▲ $1,500 |
| Total Net Assets Fund Balance | $1,518,105 | $1,719,313 | ▲ $201,208 |
| Total Liabilities and Net Assets / Fund Balance | $1,570,075 | $1,787,541 | ▲ $217,466 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Buildings | $13,395 | $61,398 | $74,793 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Elizabeth Krisanda | Executive Director | FT | $83,043 | $5,301 | $88,344 |
| Name | Title |
|---|---|
| Bob Doren | President |
| Scott Solomon | President (2/2019 to 4/2019) |
| Brian Dumond | Vice President |
| Charles Robinson | Director |
| Craig Jacobs | Director |
| Jeffrey Thomas | Director |
| Mary Lou Watson | Director |
| Nicole Woodall | Director |
| PATRICK O'NEIL | Director |
| Tom Brown | Director |
| Bill Soffel | Secretary |
| Julie Burgess | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $563,962 |
| Salaries, Compensation, and Employee Benefits | $383,411 |
| Total Fundraising Expense | $87,699 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $167,164 | $8,350 | $32,938 | $208,452 |
| Current Officers, Directors, Trustees, and Key Employees | $52,526 | $23,875 | $19,100 | $95,501 |
| Other Employee Benefits | $40,825 | $4,984 | $9,497 | $55,306 |
| All Other Expenses | $30,629 | $5,724 | $3,635 | $39,988 |
| Other Expenses | $35,936 | $4,049 | $18,472 | $39,985 |
| Office Expenses | $25,462 | $5,616 | - | $31,078 |
| Travel | $23,220 | $566 | - | $23,786 |
| Payroll Taxes | $16,878 | $1,132 | $3,444 | $21,454 |
| Fees for Services Other | $1,307 | $19,286 | - | $20,593 |
| Occupancy | $12,654 | $3,615 | - | $16,269 |
| Fees for Services Accounting | - | $11,419 | - | $11,419 |
| Depreciation Depletion | $5,911 | $412 | $412 | $6,735 |
| Pension Plan Contributions | $2,497 | - | $201 | $2,698 |
| Fees for Services Legal | - | $665 | - | $665 |
| Total Functional Expenses | $760,745 | $98,929 | $87,699 | $947,373 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $982,098 |
| Expenses per Audited Statements | $947,373 |
| Total Expenses per Form 990 | $947,373 |
| Expenses Not Reported on Form 990 | $34,725 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $34,725 |
| Fundraising Gross Income | $34,725 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Als Walk | $706,281 | - | $10,326 | - |
| Golf Tournament | $27,023 | $6,572 | $4,327 | $2,245 |
| Total Events | $751,289 | $24,557 | $34,725 | $-10,168 |
“The 990 is reviewed by management and provided to the board of directors for their approval prior to filing.”
“Board members are required to complete an annual conflict of interest statement.”
“The executive director and other employee compensation is approved by the board of directors.”
“The organizational documents are available upon request.”
“Direct fundraising expenses 34,725.”
“Direct fundraising expenses 34,725.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 51970 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 68228 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 13072 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 2530 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING EDGE RESEARCH AND PATIENT CARE. |
| IRS990/AllOtherContributionsAmt | 0 | 328688 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 3635 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 5724 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 30629 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 39988 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | ELIZABETH KRISANDA EXECUTIVE DIRECTOR |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3154130121 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 135 OLD COVE RD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | LIVERPOOL |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 13090 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 318688 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 337524 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 19100 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 23875 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 52526 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 95501 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 716564 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1074231 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1637 |
| IRS990/CYOtherExpensesAmt | 0 | 563962 |
| IRS990/CYOtherRevenueAmt | 0 | 76 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 128571 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 383411 |
| IRS990/CYTotalExpensesAmt | 0 | 947373 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 87699 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1075944 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 412 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 412 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 5911 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 6735 |
| IRS990/Desc | 0 | THE ALS ASSOCIATION UPSTATE NEW YORK CHAPTER OFFERS THE FOLLOWING PROGRAMS AND SERVICES FREE-OF-CHARGE TO PERSONS WITH ALS, PLS AND PMA AND RESIDE WITHIN OUR 48-COUNTY SERVICE AREA: LOCAL AND NATIONAL RESOURCE INFORMATION AND REFERRAL SERVICES, HOME VISITS, GRANT PROGRAMS (TO INCLUDE CAREGIVER RESPITE AND PATIENT ASSISTANCE), EDUCATION AND AWARENESS SUPPORT GROUPS, BOOKS AND DVDS FOR LOAN ON RELATED-TOPICS OF INTEREST, AND AN EQUIPMENT LOAN PROGRAM TO INCLUDE SPEECH GENERATING DEVICES. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1500 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 9 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 760745 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 23788 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 11419 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 11419 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 665 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 665 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 19286 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 1307 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 20593 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 5301 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | BOB DOREN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | BRIAN DUMOND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | BILL SOFFEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JULIE BURGESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | CHARLES ROBINSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | TOM BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | PATRICK O'NEIL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CRAIG JACOBS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MARY LOU WATSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | NICOLE WOODALL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | JEFFREY THOMAS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | ELIZABETH KRISANDA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | SCOTT SOLOMON |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 83043 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | PRESIDENT (2/2019 TO 4/2019) |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2011 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 716564 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 34725 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 34725 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 1110669 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1637 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1637 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 1048992 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1322829 |
| IRS990/IRPDocumentCnt | 0 | 2 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 61398 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 18399 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 13395 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 74793 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1518105 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1719313 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 72637 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1518105 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1717813 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 3615 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 12654 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 16269 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 5616 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 25462 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 31078 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 1218 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 1218 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 9497 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 4984 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 40825 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 55306 |
| IRS990/OtherExpensesGrp/Desc | 0 | NATIONAL REVENUE SHARE |
| IRS990/OtherExpensesGrp/Desc | 1 | ASSISTANCE GRANTS |
| IRS990/OtherExpensesGrp/Desc | 2 | PATIENT SERVICES |
| IRS990/OtherExpensesGrp/Desc | 3 | SPECIAL EVENTS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 18472 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 9236 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 4049 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 104233 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 125016 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 116487 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 35936 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 131941 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 125016 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 116487 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 39985 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 76 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 76 |
| IRS990/OtherRevenueTotalAmt | 0 | 76 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 32938 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 8350 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 167164 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 208452 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3444 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1132 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 16878 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 21454 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 201 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 2497 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 2698 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 4693 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 9691 |
| IRS990/PrincipalOfficerNm | 0 | ELIZABETH KRISANDA |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 954737 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 5080 |
| IRS990/PYOtherExpensesAmt | 0 | 441759 |
| IRS990/PYOtherRevenueAmt | 0 | 200 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 117549 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 400709 |
| IRS990/PYTotalExpensesAmt | 0 | 842468 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 960017 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 128571 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/RelatedOrganizationsAmt | 0 | 5191 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 165013 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 100354 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1109169 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 929859 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 954086 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 700576 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 728015 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 4421705 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 1712 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 5080 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 4158 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 8389 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2539 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 21878 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99510 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.99510 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 4421705 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1109169 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 929859 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 954086 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 700576 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 728015 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 4421705 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 4443583 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/BuildingsGrp/BookValueAmt | 0 | 13395 |
| IRS990ScheduleD/BuildingsGrp/DepreciationAmt | 0 | 61398 |
| IRS990ScheduleD/BuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 74793 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 34725 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 947373 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 72637 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 34725 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 34725 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 107362 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 1075944 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | DIRECT FUNDRAISING EXPENSES 34,725. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | DIRECT FUNDRAISING EXPENSES 34,725. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 13395 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 947373 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 1075944 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 1183306 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 982098 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent1Amt | 0 | 332 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent2Amt | 0 | 565 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesTotalEventsAmt | 0 | 897 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 726732 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 706281 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 20451 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 34725 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | ALS WALK |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | GOLF TOURNAMENT |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 3937 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 4642 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 8579 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 706281 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 27023 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 17985 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 751289 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 6572 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 17985 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 24557 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | -10168 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 3619 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 18272 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 10326 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 4327 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 1 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 6977 |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.