Civic Intelligence

Amyotrophic Lateral Sclerosis Association

EIN 37-1667986 • 501(c)3 • Liverpool, NY

View Organization Page

Profile

Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

135 Old Cove RdLiverpool, NY 13090

www.alsaupstateny.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

45th percentile

0.04x

Higher debt load relative to assets than 45% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

51st percentile

0.08x

Higher debt load relative to revenue than 51% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

40th percentile

0.5%

Higher net margin than 40% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

80th percentile

$140,940

Higher top officer pay than 80% of similar nonprofits.

Top officer pay equals 12.9% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

28th percentile

-3.3%

Faster asset growth than 28% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

39th percentile

1.2%

Faster revenue growth than 39% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets45th percentile

Assets

Down

$2,170,858

Down $74,567 (-3.3%) from 2022

Liabilities

Down

$89,230

Down $2,237 (-2.4%) from 2022

Net Assets

Down

$2,081,628

Down $72,330 (-3.4%) from 2022

Operations
Liabilities / Revenue51st percentileNet Margin40th percentile

Revenue

Up

$1,095,012

Up $12,723 (+1.2%) from 2022

Expenses

Up

$1,089,830

Up $167,312 (+18%) from 2022

Net Income

Down

$5,182

Down $154,589 (-97%) from 2022

Trend Graphs

Balance Sheet Trend

Asset Growth28th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2013: $369,410Liabilities 2013: $21,813Net Assets 2013: $347,5972013Assets 2014: $525,437Liabilities 2014: $36,946Net Assets 2014: $488,4912014Assets 2015: $1,086,837Liabilities 2015: $17,663Net Assets 2015: $1,069,1742015Assets 2016: $1,266,661Liabilities 2016: $62,080Net Assets 2016: $1,204,5812016Assets 2017: $1,281,796Liabilities 2017: $93,598Net Assets 2017: $1,188,1982017Assets 2018: $1,502,472Liabilities 2018: $87,877Net Assets 2018: $1,414,5952018Assets 2019: $1,570,075Liabilities 2019: $51,970Net Assets 2019: $1,518,1052019Assets 2020: $1,787,541Liabilities 2020: $68,228Net Assets 2020: $1,719,3132020Assets 2021: $2,040,082Liabilities 2021: $68,030Net Assets 2021: $1,972,0522021Assets 2022: $2,245,425Liabilities 2022: $91,467Net Assets 2022: $2,153,9582022Assets 2023: $2,170,858Liabilities 2023: $89,230Net Assets 2023: $2,081,6282023

Highlighted filing

2023

Assets$2,170,858
Liabilities$89,230
Net Assets$2,081,628
Open 2023 Filing

Operations Trend

Revenue Growth39th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2013: $555,013Expenses 2013: $403,398Net Income 2013: $151,6152013Revenue 2014: $620,612Expenses 2014: $479,718Net Income 2014: $140,8942014Revenue 2015: $1,035,106Expenses 2015: $454,423Net Income 2015: $580,6832015Revenue 2016: $702,124Expenses 2016: $565,064Net Income 2016: $137,0602016Revenue 2017: $676,083Expenses 2017: $739,095Net Income 2017: -$63,0122017Revenue 2018: $920,141Expenses 2018: $757,895Net Income 2018: $162,2462018Revenue 2019: $960,017Expenses 2019: $842,468Net Income 2019: $117,5492019Revenue 2020: $1,075,944Expenses 2020: $947,373Net Income 2020: $128,5712020Revenue 2021: $1,001,847Expenses 2021: $865,760Net Income 2021: $136,0872021Revenue 2022: $1,082,289Expenses 2022: $922,518Net Income 2022: $159,7712022Revenue 2023: $1,095,012Expenses 2023: $1,089,830Net Income 2023: $5,1822023

Highlighted filing

2023

Revenue$1,095,012
Expenses$1,089,830
Net Income$5,182
Open 2023 Filing

Filings

Most recent year

2023 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$2,170,858
Liabilities
$89,230
Net assets
$2,081,628
Revenue
$1,095,012
Expenses
$1,089,830
Net income
$5,182
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.09$2.08$1.10$1.09$0.01
2022Detailed filing. Detailed filing data is available for this year.$2.25$0.09$2.15$1.08$0.92$0.16
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.04$0.07$1.97$1.00$0.87$0.14
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.79$0.07$1.72$1.08$0.95$0.13
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.57$0.05$1.52$0.96$0.84$0.12
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.50$0.09$1.41$0.92$0.76$0.16
2017Detailed filing. Detailed filing data is available for this year.$1.28$0.09$1.19$0.68$0.74$0.06
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.27$0.06$1.20$0.70$0.57$0.14
2015Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$1.09$0.02$1.07$1.04$0.45$0.58
2014Detailed filing. Detailed filing data is available for this year.$0.53$0.04$0.49$0.62$0.48$0.14
2013Summary only. Only limited summary data is available for this year.$0.37$0.02$0.35$0.56$0.40$0.15
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Feb 1, 2022 to Jan 31, 2023
Signed
Nov 8, 2023
Return Version
2022v5.0
Gross Receipts
$1,126,006
Mission and Program Overview

Mission

Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

To lead the fight to cure and treat als through global, cutting edge research and patient care.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,468,148$1,395,653▼ $72,495
Cash and Non-Interest-Bearing Accounts$575,346$348,121▼ $227,225
Prepaid Expenses and Deferred Charges-$216,669-
Savings and Temporary Cash Investments$100,787$100,908▲ $121
Land, Buildings, and Equipment, Net$7,926$32,963▲ $25,037
Accounts Receivable$92,000$18,169▼ $73,831
Total Assets$2,245,425$2,170,858▼ $74,567
Other Assets Total$1,218$58,375▲ $57,157
Liabilities
Accounts Payable and Accrued Expenses$91,467$50,883▼ $40,584
Other Liabilities$0$38,347▲ $38,347
Total Liabilities$91,467$89,230▼ $2,237
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,153,958$2,081,628▼ $72,330
Total Net Assets Fund Balance$2,153,958$2,081,628▼ $72,330
Total Liabilities and Net Assets / Fund Balance$2,245,425$2,170,858▼ $74,567

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$32,963$80,326$113,289
Compensation and Service Providers
Top Officer Pay80th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Elizabeth KrisandaExecutive DirectorFT$114,119$26,821$140,940

Board Members and Trustees

NameTitle
Brian DumondPresident
Tom BrownVice President
Bill SoffelDirector
Charlie RobinsonDirector
Eileen JevisDirector
Jeffrey ThomasDirector
Joe VivianoDirector
Julie BurgessDirector
Robert DorenDirector
Russ FullerDirector
Katrina FulcherSecretary
Nicole WoodallTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,088,451
Program Service Revenue
$0
Investment Income
$6,561
Other Revenue
$0
All Other Contributions
$351,330
Change in Net Assets
$5,182

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,095,012
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-46,517
Total Revenue per Audited Statements
$1,048,495
Total Revenue per Form 990
$1,095,012
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$558,910
Other Expenses$530,920
Total Fundraising Expense$116,645
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$278,145$18,170$56,566$352,881
Current Officers, Directors, Trustees, and Key Employees$82,318$37,417$29,934$149,669
Other Expenses$31,230$3,519$18,737$34,749
All Other Expenses$26,350$4,991$5$31,346
Payroll Taxes$24,056$1,772$4,974$30,802
Occupancy$20,824$5,950$2,975$29,749
Office Expenses$24,797$3,326-$28,123
Fees for Services Legal-$25,962-$25,962
Other Employee Benefits$18,705-$1,148$19,853
Fees for Services Other$2,074$14,489-$16,563
Travel$12,527$306-$12,833
Fees for Services Accounting-$9,320-$9,320
Depreciation Depletion$4,827$2,201$1,439$8,467
Pension Plan Contributions$4,781$57$867$5,705
Total Functional Expenses$836,336$136,849$116,645$1,089,830

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,120,825
Expenses per Audited Statements$1,089,831
Total Expenses per Form 990$1,089,831
Expenses Not Reported on Form 990$30,994
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$30,994
Fundraising Gross Income$30,994
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Als Walk$588,310$17,005$16,649$356
Strike Out Als$22,487$10,296$8,356$1,940
Total Events$619,887$30,994$30,994$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Current Portion of Operating Lease Liabilities$38,347
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by management and provided to the board of directors for their approval prior to filing.”

Form 990, Part VI, Section B, Line 12C

“Board members are required to complete an annual conflict of interest statement.”

Form 990, Part VI, Section B, Line 15

“The executive director and other employee compensation is approved by the board of directors.”

Form 990, Part VI, Section C, Line 19

“The organizational documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Als Association Upstate New York
EIN
37-1667986
Phone
3154130121
Address
135 OLD COVE RD, LIVERPOOL, NY 13090

Signing Officer

Name
Elizabeth Krisanda
Title
Executive Director
Phone
3154130121
Signed
2023-11-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Elizabeth Krisanda
Formed
2011
Legal Domicile
Ny
Voting Board Members
12
Independent Board Members
12
Employees
10
Volunteers
11

Preparer

Firm
Bonadio & Co Llp
Address
432 NORTH FRANKLIN STREET, SYRACUSE, NY 13204
Preparer
Lisa Hann
Phone
3154227109
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“Process has not changed from the prior year.”

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising expenses 30,994.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising expenses 30,994.”

Raw XML AppendixShowing 400 of 501 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt091467
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt050883
IRS990/AccountsReceivableGrp/BOYAmt092000
IRS990/AccountsReceivableGrp/EOYAmt018169
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING EDGE RESEARCH AND PATIENT CARE.
IRS990/AllOtherContributionsAmt0351330
IRS990/AllOtherExpensesGrp/FundraisingAmt05
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt04991
IRS990/AllOtherExpensesGrp/ProgramServicesAmt026350
IRS990/AllOtherExpensesGrp/TotalAmt031346
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0ELIZABETH KRISANDA EXECUTIVE DIRECTOR
IRS990/BooksInCareOfDetail/PhoneNum03154130121
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0135 OLD COVE RD
IRS990/BooksInCareOfDetail/USAddress/CityNm0LIVERPOOL
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0NY
IRS990/BooksInCareOfDetail/USAddress/ZIPCd013090
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0575346
IRS990/CashNonInterestBearingGrp/EOYAmt0348121
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt029934
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt037417
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt082318
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0149669
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt0588893
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt01088451
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt06561
IRS990/CYOtherExpensesAmt0530920
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt05182
IRS990/CYSalariesCompEmpBnftPaidAmt0558910
IRS990/CYTotalExpensesAmt01089830
IRS990/CYTotalFundraisingExpenseAmt0116645
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt01095012
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/FundraisingAmt01439
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt02201
IRS990/DepreciationDepletionGrp/ProgramServicesAmt04827
IRS990/DepreciationDepletionGrp/TotalAmt08467
IRS990/Desc0THE ALS ASSOCIATION UPSTATE NEW YORK CHAPTER OFFERS THE FOLLOWING PROGRAMS AND SERVICES FREE-OF-CHARGE TO PERSONS WITH ALS, PLS, PBP AND PMA AND RESIDE WITHIN OUR 48-COUNTY SERVICE AREA: LOCAL AND NATIONAL RESOURCE INFORMATION AND REFERRAL SERVICES, HOME VISITS, GRANT PROGRAMS (TO INCLUDE CAREGIVER RESPITE AND PATIENT ASSISTANCE), EDUCATION AND AWARENESS SUPPORT GROUPS, BOOKS AND DVDS FOR LOAN ON RELATED-TOPICS OF INTEREST, AND AN EQUIPMENT LOAN PROGRAM TO INCLUDE SPEECH GENERATING DEVICES.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt010
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0836336
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FederatedCampaignsAmt016978
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt09320
IRS990/FeesForServicesAccountingGrp/TotalAmt09320
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt025962
IRS990/FeesForServicesLegalGrp/TotalAmt025962
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt014489
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt02074
IRS990/FeesForServicesOtherGrp/TotalAmt016563
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt101.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1240.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1226821
IRS990/Form990PartVIISectionAGrp/PersonNm0ROBERT DOREN
IRS990/Form990PartVIISectionAGrp/PersonNm1BRIAN DUMOND
IRS990/Form990PartVIISectionAGrp/PersonNm2BILL SOFFEL
IRS990/Form990PartVIISectionAGrp/PersonNm3JULIE BURGESS
IRS990/Form990PartVIISectionAGrp/PersonNm4CHARLIE ROBINSON
IRS990/Form990PartVIISectionAGrp/PersonNm5TOM BROWN
IRS990/Form990PartVIISectionAGrp/PersonNm6NICOLE WOODALL
IRS990/Form990PartVIISectionAGrp/PersonNm7JEFFREY THOMAS
IRS990/Form990PartVIISectionAGrp/PersonNm8RUSS FULLER
IRS990/Form990PartVIISectionAGrp/PersonNm9JOE VIVIANO
IRS990/Form990PartVIISectionAGrp/PersonNm10EILEEN JEVIS
IRS990/Form990PartVIISectionAGrp/PersonNm11KATRINA FULCHER
IRS990/Form990PartVIISectionAGrp/PersonNm12ELIZABETH KRISANDA
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt12114119
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt6TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt12EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02011
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0588893
IRS990/FundraisingDirectExpensesAmt030994
IRS990/FundraisingGrossIncomeAmt030994
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GovernmentGrantsAmt0131250
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt01126006
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt012
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InvestmentIncomeGrp/ExclusionAmt06561
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt06561
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt01468148
IRS990/InvestmentsPubTradedSecGrp/EOYAmt01395653
IRS990/IRPDocumentCnt01
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt080326
IRS990/LandBldgEquipBasisNetGrp/BOYAmt07926
IRS990/LandBldgEquipBasisNetGrp/EOYAmt032963
IRS990/LandBldgEquipCostOrOtherBssAmt0113289
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt02153958
IRS990/NetAssetsOrFundBalancesEOYAmt02081628
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-77511
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt02153958
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt02081628
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt02975
IRS990/OccupancyGrp/ManagementAndGeneralAmt05950
IRS990/OccupancyGrp/ProgramServicesAmt020824
IRS990/OccupancyGrp/TotalAmt029749
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt03326
IRS990/OfficeExpensesGrp/ProgramServicesAmt024797
IRS990/OfficeExpensesGrp/TotalAmt028123
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt01218
IRS990/OtherAssetsTotalGrp/EOYAmt058375
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01148
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt018705
IRS990/OtherEmployeeBenefitsGrp/TotalAmt019853
IRS990/OtherExpensesGrp/Desc0NATIONAL REVENUE SHARE
IRS990/OtherExpensesGrp/Desc1ASSISTANCE GRANTS
IRS990/OtherExpensesGrp/Desc2PATIENT SERVICES
IRS990/OtherExpensesGrp/Desc3SPECIAL EVENTS
IRS990/OtherExpensesGrp/FundraisingAmt018737
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt09369
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt13519
IRS990/OtherExpensesGrp/ProgramServicesAmt0105731
IRS990/OtherExpensesGrp/ProgramServicesAmt1106440
IRS990/OtherExpensesGrp/ProgramServicesAmt293531
IRS990/OtherExpensesGrp/ProgramServicesAmt331230
IRS990/OtherExpensesGrp/TotalAmt0133837
IRS990/OtherExpensesGrp/TotalAmt1106440
IRS990/OtherExpensesGrp/TotalAmt293531
IRS990/OtherExpensesGrp/TotalAmt334749
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt038347
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt056566
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt018170
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0278145
IRS990/OtherSalariesAndWagesGrp/TotalAmt0352881
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04974
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01772
IRS990/PayrollTaxesGrp/ProgramServicesAmt024056
IRS990/PayrollTaxesGrp/TotalAmt030802
IRS990/PensionPlanContributionsGrp/FundraisingAmt0867
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt057
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt04781
IRS990/PensionPlanContributionsGrp/TotalAmt05705
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0216669
IRS990/PrincipalOfficerNm0ELIZABETH KRISANDA
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01078866
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt03423
IRS990/PYOtherExpensesAmt0503442
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0159771
IRS990/PYSalariesCompEmpBnftPaidAmt0419076
IRS990/PYTotalExpensesAmt0922518
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01082289
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt05182
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0100787
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0100908
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01124956
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01105013
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01021329
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01109169
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0929859
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt05290326
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt06561
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt03423
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt03541
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01712
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt05080
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt020317
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99620
IRS990ScheduleA/PublicSupportPY170Pct00.99650
IRS990ScheduleA/PublicSupportTotal170Amt05290326
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01124956
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01105013
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01021329
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01109169
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0929859
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt05290326
IRS990ScheduleA/TotalSupportAmt05310643
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/BuildingsGrp/BookValueAmt032963
IRS990ScheduleD/BuildingsGrp/DepreciationAmt080326
IRS990ScheduleD/BuildingsGrp/OtherCostOrOtherBasisAmt0113289
IRS990ScheduleD/ExpensesNotReportedAmt030994
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt01089831
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-77511
IRS990ScheduleD/OtherExpensesIncludedAmt030994
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt038347
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CURRENT PORTION OF OPERATING LEASE LIABILITIES
IRS990ScheduleD/OtherRevenueAmt030994
IRS990ScheduleD/RevenueNotReportedAmt0-46517
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt01095012
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0DIRECT FUNDRAISING EXPENSES 30,994.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1DIRECT FUNDRAISING EXPENSES 30,994.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt032963
IRS990ScheduleD/TotalExpensesPerForm990Amt01089831
IRS990ScheduleD/TotalLiabilityAmt038347
IRS990ScheduleD/TotalRevenuePerForm990Amt01095012
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt01048495
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01120825
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0588893
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0571305
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt012191
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt05397
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt030994
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0ALS WALK
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0STRIKE OUT ALS
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt0780
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt0780
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0588310
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt022487
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt09090
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0619887
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt017005
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt010296
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt03693
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt030994
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt00
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt0356
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt0356
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt03693
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt028698
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt016649
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt08356
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt01
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt01160
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt01160

Document Assets

No mirrored PDF or thumbnail assets are attached yet.