Liabilities / Assets
84th percentile
Higher debt load relative to assets than 84% of similar nonprofits.
990 • Fiscal year 2023 • EIN 37-1483975
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
84th percentile
Higher debt load relative to assets than 84% of similar nonprofits.
Liabilities / Revenue
65th percentile
Higher debt load relative to revenue than 65% of similar nonprofits.
Net Margin
13th percentile
Higher net margin than 13% of similar nonprofits.
Top Officer Pay
95th percentile
Higher top officer pay than 95% of similar nonprofits.
Top officer pay equals 10.1% of source-year revenue.
Asset Growth
3rd percentile
Faster asset growth than 3% of similar nonprofits.
Revenue Growth
62nd percentile
Faster revenue growth than 62% of similar nonprofits.
Assets
Down$1,258,775
Down $907,800 (-42%) from 2022
Net Assets
Down$626,489
Down $819,979 (-57%) from 2022
Liabilities
Down$632,286
Down $87,821 (-12%) from 2022
Revenue
Up$3,159,544
Up $417,180 (+15%) from 2022
Expenses
Down$3,979,523
Down $747,334 (-16%) from 2022
Net Income
Up-$819,979
Up $1,164,514 (+59%) from 2022
To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $943,623 | $707,582 | ▼ $236,041 |
| Land, Buildings, and Equipment, Net | $420,990 | $330,165 | ▼ $90,825 |
| Pledges and Grants Receivable | $754,462 | $139,169 | ▼ $615,293 |
| Prepaid Expenses and Deferred Charges | $21,585 | $22,408 | ▲ $823 |
| Inventories for Sale or Use | $13,726 | - | - |
| Total Assets | $2,166,575 | $1,258,775 | ▼ $907,800 |
| Other Assets Total | $12,189 | $59,451 | ▲ $47,262 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $347,366 | $363,026 | ▲ $15,660 |
| Deferred Revenue | $38,130 | $131,169 | ▲ $93,039 |
| Grants Payable | $334,611 | $94,000 | ▼ $240,611 |
| Other Liabilities | $0 | $44,091 | ▲ $44,091 |
| Total Liabilities | $720,107 | $632,286 | ▼ $87,821 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | $1,870,836 | $743,165 | ▼ $1,127,671 |
| Net Assets Without Donor Restrictions | $-424,368 | $-116,676 | ▲ $307,692 |
| Total Net Assets Fund Balance | $1,446,468 | $626,489 | ▼ $819,979 |
| Total Liabilities and Net Assets / Fund Balance | $2,166,575 | $1,258,775 | ▼ $907,800 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $330,165 | $318,318 | $648,483 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Hampus Hillerstrom | President and CEO | FT | $286,161 | $34,394 | $320,555 |
| Angela Britton | VP of Clinical Officer | FT | $208,000 | - | $208,000 |
| Michelle Petronio | Chief Development Officer | FT | $162,311 | $34,394 | $196,705 |
| KATHERINE O'NEILL | Chief Operating Officer | FT | $94,103 | $14,530 | $108,633 |
| Name | Title |
|---|---|
| Anthony Providenti | Board Chair |
| Tony Hung | Board Vice Chair |
| Ann Caldwell | Director |
| Beverly Paperiello | Director |
| Chris Senna | Director |
| Claudia Moreira | Director |
| Hector Guinness | Director |
| Jeff Strobel | Director |
| Lasandra Brill | Director |
| Paul Murasko | Director |
| Sohail Masood | Director |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Dicicco Gulman Co LLP | Accounting Services | 150 PRESIDENTIAL WAY SUITE 510, Woburn, MA 01801 | $127,250 |
| Line Item | Amount |
|---|---|
| Other Expenses | $2,269,891 |
| Salaries, Compensation, and Employee Benefits | $1,709,632 |
| Total Fundraising Expense | $525,891 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $627,497 | $39,905 | $206,505 | $873,907 |
| Other Salaries and Wages | $364,133 | $41,154 | $139,250 | $544,537 |
| Fees for Services Other | $198,811 | $127,405 | $4,742 | $330,958 |
| Depreciation Depletion | $113,475 | $9,276 | $39,566 | $162,317 |
| Other Employee Benefits | $103,876 | $8,490 | $36,219 | $148,585 |
| Fees for Services Accounting | - | $142,272 | - | $142,272 |
| Payroll Taxes | $70,478 | $5,761 | $24,574 | $100,813 |
| Conferences and Meetings | $73,189 | - | - | $73,189 |
| Information Technology | $42,601 | $3,482 | $14,854 | $60,937 |
| Occupancy | $40,249 | $3,291 | $14,033 | $57,573 |
| Travel | $30,441 | - | $15,493 | $45,934 |
| Pension Plan Contributions | $29,215 | $2,388 | $10,187 | $41,790 |
| Fees for Services Legal | $23,853 | $1,950 | $8,317 | $34,120 |
| Office Expenses | $19,008 | $1,535 | $6,547 | $27,090 |
| All Other Expenses | $22,963 | $691 | $2,447 | $26,101 |
| Insurance | - | $19,387 | - | $19,387 |
| Advertising | $7,450 | $7,430 | $2,510 | $17,390 |
| Other Expenses | $5,225 | $152 | $647 | $6,024 |
| Total Functional Expenses | $3,025,943 | $427,689 | $525,891 | $3,979,523 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $4,056,823 |
| Expenses per Audited Statements | $3,979,523 |
| Total Expenses per Form 990 | $3,979,523 |
| Expenses Not Reported on Form 990 | $77,300 |
| Expenses Not Reported on Financial Statements | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $95,355 |
| Fundraising Gross Income | $48,734 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Double Dip | $146,007 | - | $51,453 | - |
| Arts & Blues | $50,753 | $29,071 | $1,684 | $27,387 |
| Total Events | $284,636 | $48,734 | $95,355 | $-46,621 |
| Liability | Amount |
|---|---|
| Operating Lease Liability | $44,091 |
“The organization's process to review the final form 990 is to have management review the return prior to submission and then the return is signed by an authorized officer.”
“The process for monitoring this is by addressing in quarterly board meetings and ad hoc calls as needed.”
“Compensation for the ceo is approved by the board of directors. Other employees are benchmarked and based on salary ranges and use of employee compensation policy. Increases are approved in the budget.”
“Form 1023 and form 990 are available upon request and available through public non profit websites.”
“Governing documents disclosure, conflict of interest policy and financial statements are available upon request.”
“The research and medical grants program was discontinued as no grants were distributed during the fiscal year.”
“The organization has management oversee and review the audit and form 990 prior to submission. The process has not been changed in the current year.”
“The organization has adopted the requirements for accounting for uncertain tax positions and management has determined that the organization was not required to record a liability related to uncertain tax positions as of september 30, 2023.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 347366 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 363026 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 2510 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 7430 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 7450 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 17390 |
| IRS990/AllOtherContributionsAmt | 0 | 2608188 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 2447 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 691 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 22963 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 26101 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | THE ORGANIZATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7818251300 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 110 WINN STREET SUITE 105 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | WOBURN |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 01801 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 943623 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 707582 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 206505 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 39905 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 627497 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 873907 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 73189 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 73189 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 127250 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 150 PRESIDENTIAL WAY SUITE 510 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | WOBURN |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 01801 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | DICICCO GULMAN CO LLP |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | ACCOUNTING SERVICES |
| IRS990/ContriRptFundraisingEventAmt | 0 | 235902 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 3191064 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 14309 |
| IRS990/CYOtherExpensesAmt | 0 | 2269891 |
| IRS990/CYOtherRevenueAmt | 0 | -45829 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -819979 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1709632 |
| IRS990/CYTotalExpensesAmt | 0 | 3979523 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 525891 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 3159544 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 38130 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 131169 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 39566 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 9276 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 113475 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 162317 |
| IRS990/Desc | 0 | DS-STN SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENT TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1870836 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 743165 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 20 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2020048 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 142272 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 142272 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 8317 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 1950 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 23853 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 34120 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 4742 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 127405 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 198811 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 330958 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 34394 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 14530 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 34394 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | ANTHONY PROVIDENTI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | TONY HUNG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | LASANDRA BRILL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ANN CALDWELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | HECTOR GUINNESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | SOHAIL MASOOD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | CLAUDIA MOREIRA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | PAUL MURASKO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | BEVERLY PAPERIELLO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | CHRIS SENNA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | JEFF STROBEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | HAMPUS HILLERSTROM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | KATHERINE O'NEILL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | ANGELA BRITTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | MICHELLE PETRONIO |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 286161 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 94103 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 208000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 162311 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | PRESIDENT AND CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | CHIEF OPERATING OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | VP OF CLINICAL OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | CHIEF DEVELOPMENT OFFICER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2003 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 235902 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 95355 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 48734 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GovernmentGrantsAmt | 0 | 346974 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 334611 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 94000 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 3254899 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 14854 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 3482 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 42601 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 60937 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 19387 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 19387 |
| IRS990/InventoriesForSaleOrUseGrp/BOYAmt | 0 | 13726 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 14309 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 14309 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 17 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 318318 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 420990 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 330165 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 648483 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1446468 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 626489 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -46621 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -46621 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | -424368 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | -116676 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 14033 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 3291 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 40249 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 57573 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 6547 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1535 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 19008 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 27090 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 12189 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 59451 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 36219 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 8490 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 103876 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 148585 |
| IRS990/OtherExpensesGrp/Desc | 0 | SITE EXPENSES AND RESEA |
| IRS990/OtherExpensesGrp/Desc | 1 | TAXES, FEES, AND LICENS |
| IRS990/OtherExpensesGrp/Desc | 2 | PRINTING AND COPYING |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 647 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 13120 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 152 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 1253479 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 5225 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 1253479 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 13120 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 6024 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 44091 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | OTHER |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 792 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 792 |
| IRS990/OtherRevenueTotalAmt | 0 | 792 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 139250 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 41154 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 364133 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 544537 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 24574 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 5761 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 70478 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 100813 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 10187 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 2388 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 29215 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 41790 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 754462 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 139169 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 21585 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 22408 |
| IRS990/PrincipalOfficerNm | 0 | HAMPUS HILLERSTROM |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | COMMUNITY PROGRAMS FOR TREATMENT ACCESS EQUITY, RESEARCH AWARENESS AND PARTICIPATION, AND FOR EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION, AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COST RELATED TO IDSCS MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC). |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 1005895 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 2544017 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 447000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 2465 |
| IRS990/PYOtherExpensesAmt | 0 | 2115637 |
| IRS990/PYOtherRevenueAmt | 0 | 195882 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -1984493 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 2164220 |
| IRS990/PYTotalExpensesAmt | 0 | 4726857 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 2742364 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -819979 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 3191064 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2544017 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 5112405 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1577945 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 3589169 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 16014600 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 14309 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2465 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1503 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 18277 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 792 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 27345 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 21292 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 49429 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.69710 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.69070 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 11789326 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 4225274 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 3191064 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 2544017 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 5112405 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1577945 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 3589169 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 16014600 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 16912102 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt | 0 | 195882 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 153307 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 258541 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 222066 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 829796 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
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Displayed year
2023 • Form 990Detailed filing. Detailed filing data is available for this year.