Civic Intelligence

Lumind Research Down Syndrome

990 • Fiscal year 2021 • EIN 37-1483975

Oct 01, 2020 to Sep 30, 2021 • Filed on Feb 03, 2022

Organization ProfileLUMINDRDS.ORG

View Organization Page

20 Burlington Mall Road No 200Burlington, MA 01803

(781) 825-1300

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

74th percentile

0.39x

Higher debt load relative to assets than 74% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Liabilities / Revenue

66th percentile

0.33x

Higher debt load relative to revenue than 66% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Net Margin

79th percentile

36%

Higher net margin than 79% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Top Officer Pay

89th percentile

$304,592

Higher top officer pay than 89% of similar nonprofits.

Top officer pay equals 5.8% of source-year revenue.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Asset Growth

94th percentile

82%

Faster asset growth than 94% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Revenue Growth

93rd percentile

183%

Faster revenue growth than 93% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets74th percentile

Assets

Up

$4,487,214

Up $2,024,861 (+82%) from 2020

Net Assets

Up

$2,740,445

Up $1,899,289 (+226%) from 2020

Liabilities

Up

$1,746,769

Up $125,572 (+7.7%) from 2020

Revenue And Expenses
Liabilities / Revenue66th percentileNet Margin79th percentile

Revenue

Up

$5,267,215

Up $3,403,384 (+183%) from 2020

Expenses

Up

$3,367,926

Up $797,134 (+31%) from 2020

Net Income

Up

$1,899,289

Up $2,606,250 (+369%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth94th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2013: $1,469,558Liabilities 2013: $943,264Net Assets 2013: $526,2942013Assets 2016: $2,247,784Liabilities 2016: $1,470,876Net Assets 2016: $776,9082016Assets 2017: $2,225,185Liabilities 2017: $2,031,445Net Assets 2017: $193,7402017Assets 2018: $3,084,421Liabilities 2018: $1,883,552Net Assets 2018: $1,200,8692018Assets 2019: $3,828,926Liabilities 2019: $2,280,809Net Assets 2019: $1,548,1172019Assets 2020: $2,462,353Liabilities 2020: $1,621,197Net Assets 2020: $841,1562020Assets 2021: $4,487,214Liabilities 2021: $1,746,769Net Assets 2021: $2,740,4452021Assets 2022: $2,166,575Liabilities 2022: $720,107Net Assets 2022: $1,446,4682022Assets 2024: $848,403Liabilities 2024: $174,292Net Assets 2024: $674,1112024

Highlighted filing

2021

Assets$4,487,214
Liabilities$1,746,769
Net Assets$2,740,445
Open 2021 Filing

Operations Trend

Revenue Growth93rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2013: $1,757,3672013Revenue 2016: $2,509,676Expenses 2016: $2,584,886Net Income 2016: -$75,2102016Revenue 2017: $2,238,631Expenses 2017: $2,821,799Net Income 2017: -$583,1682017Revenue 2018: $3,604,558Expenses 2018: $2,597,429Net Income 2018: $1,007,1292018Revenue 2019: $3,832,527Expenses 2019: $3,485,278Net Income 2019: $347,2492019Revenue 2020: $1,863,831Expenses 2020: $2,570,792Net Income 2020: -$706,9612020Revenue 2021: $5,267,215Expenses 2021: $3,367,926Net Income 2021: $1,899,2892021Revenue 2022: $2,742,364Expenses 2022: $4,726,857Net Income 2022: -$1,984,4932022Revenue 2024: $4,039,327Expenses 2024: $3,991,706Net Income 2024: $47,6212024

Highlighted filing

2021

Revenue$5,267,215
Expenses$3,367,926
Net Income$1,899,289
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2020 to Sep 30, 2021
Signed
Feb 3, 2022
Return Version
2020v4.2
Gross Receipts
$5,338,658
Mission and Program Overview

Mission

To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

We accelerate research to increase availability of therapeutic, diagnostic, and medical care options and we empower families through education, connections, and support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$1,823,377$2,655,533▲ $832,156
Cash and Non-Interest-Bearing Accounts$39,147$914,870▲ $875,723
Savings and Temporary Cash Investments$244,092$637,017▲ $392,925
Land, Buildings, and Equipment, Net$236,871$216,053▼ $20,818
Prepaid Expenses and Deferred Charges$85,191$34,321▼ $50,870
Accounts Receivable$2,925$0▼ $2,925
Total Assets$2,462,353$4,487,214▲ $2,024,861
Other Assets Total$30,750$29,420▼ $1,330
Liabilities
Grants Payable$1,202,036$1,563,845▲ $361,809
Accounts Payable and Accrued Expenses$218,501$167,209▼ $51,292
Deferred Revenue$600$12,555▲ $11,955
Other Liabilities$200,060$3,160▼ $196,900
Total Liabilities$1,621,197$1,746,769▲ $125,572
Net Assets / Fund Balance
Net Assets With Donor Restrictions$723,951$1,908,417▲ $1,184,466
Net Assets Without Donor Restrictions$117,205$832,028▲ $714,823
Total Net Assets Fund Balance$841,156$2,740,445▲ $1,899,289
Total Liabilities and Net Assets / Fund Balance$2,462,353$4,487,214▲ $2,024,861

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$216,053$88,673$304,726
Compensation and Service Providers
Top Officer Pay89th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Hampus HillerstromPresident and CEOFT$278,723$25,869$304,592
Dr James HendrixChief Scientific OfficerFT$181,202$29,271$210,473
Michelle PetronioChief Development OfficerFT$156,294$17,261$173,555
Angella BrittonVice President, Clinical OperationsFT$105,250-$105,250

Board Members and Trustees

NameTitle
Michael J Mannor PhdBoard Chair
Tony HungVice Chair
Patrick KannanBoard Member Treasurer
Anthony ProvidentiMember
Bev PaperielloMember
Christopher LisMember
Claudia MoreiraMember
Hector GuinnessMember
Jeff W StrobelMember
Maria DellapinaMember
Paul MuraskoMember
Sohail MasoodMember
Revenue and Support

Revenue Composition

Contributions and Grants
$5,112,405
Program Service Revenue
$0
Investment Income
$1,503
Other Revenue
$153,307
All Other Contributions
$4,788,334
Change in Net Assets
$1,899,289

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,267,215
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$47,270
Total Revenue per Audited Statements
$5,314,485
Total Revenue per Form 990
$5,267,215
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,507,000
Salaries, Compensation, and Employee Benefits$1,279,452
Other Expenses$581,474
Total Fundraising Expense$470,641
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,507,000--$1,507,000
Current Officers, Directors, Trustees, and Key Employees$646,801$50,411$197,710$894,922
Comp Disqual Persons$20,763$35,514$95,667$151,944
Information Technology$69,721$8,751$39,844$118,316
Other Employee Benefits$80,069$11,351$10,021$101,441
Payroll Taxes$58,430$7,521$25,678$91,629
Fees for Services Legal$40,300$5,735$43,216$89,251
Fees for Services Accounting-$86,538-$86,538
Depreciation Depletion-$65,582-$65,582
Office Expenses$23,226$17,859$9,876$50,961
Occupancy$31,587$4,483$9,018$45,088
Pension Plan Contributions$25,200$3,244$11,072$39,516
Fees for Services Other-$29,657-$29,657
Insurance-$27,724-$27,724
Advertising$22,218--$22,218
Conferences and Meetings$4,110-$8$4,118
Other Expenses$1,650$234$1,036$2,920
All Other Expenses$1,788$254$510$2,552
Total Functional Expenses$2,537,107$360,178$470,641$3,367,926

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,415,196
Expenses per Audited Statements$3,367,926
Total Expenses per Form 990$3,367,926
Expenses Not Reported on Form 990$47,270
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Down Syndrome Clinical Trials Network Multiple GrantsBurlington, MA-To Support Down Syndrome Medical Research$1,290,000
Uconn Health - PinterFramington, CT-To Support Gene Therapy Research for Down Syndrome$100,000
Dsc2uBoston, MA-To Support Down Syndrome Medical Information$45,000
Advocate Health ResourcesDowners Grove, IL-To Support Down Syndrome Medical Information$30,000
EmoryAtlanta, GA-Covid Research$27,000
Gdpr It Governance USA IncNew York, NY-Security Implementation$15,000

International Summary

Offices
0
Employees
0
Spending
$130,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
CanadaGrant to Fund ResearchGoal Attainment Scaling to Measure Dementia00$130,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$224,750
Fundraising Direct Expenses$71,443
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Summer Double Dip$100,806$100,806$43,467$57,339
Ashley Rose$42,333$42,333$1,520$40,813
Total Events$224,750$224,750$71,443$153,307
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Card$3,160
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization's process to review the final form 990 is to have management review return prior to submission and then the return is signed by an authorized officer.”

Form 990, Part VI, Section B, Line 12C

“The process for monitoring this is by addressing activity in quarterly board meetings and ad hoc calls as needed.”

Form 990, Part VI, Section B, Line 15

“Compensation for ceo is approved by the board of directors, other employees are benchmarked and based on salary ranges and use of employee compensation policy. Increases are approved in the budget.”

Form 990, Part VI, Section C, Line 18

“Form 1023 and form 990 are available upon request and available online through public non profit websites.”

Form 990, Part VI, Section C, Line 19

“Governing documents disclosure, conflict of interest policy and financial statements are available upon request.”

Filing and Contact Details

Filer

Filer Name
Lumind Idsc Foundation
EIN
37-1483975
Phone
7818251300
Address
20 BURLINGTON MALL ROAD NO 200, BURLINGTON, MA 01803

Signing Officer

Name
Hampus Hillerstrom
Title
President/CEO
Phone
7818251300
Signed
2022-02-03
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Hampus Hillerstrom
Formed
2003
Legal Domicile
CA
Voting Board Members
15
Independent Board Members
15
Employees
14
Volunteers
0

Preparer

Firm
R A HALL & CO LLC CPA'S
Address
183 STATE STREET, BOSTON, MA 02109
Preparer
Eric J Hall
Phone
6177233333
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has management oversee and review the audit and form 990 prior to submission. The process has not been changed in current year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is exempt from taxation under the provision of section 501(c)(3) of the internal revenue code, except on any net income derived from unrelated business activities. The organization has also been classified as an entity that is not a private foundation within the meaning of section 509(a)(1) and qualifies for deductible contributions as provided in section 170(b)(1)(a)(vi). Accordingly, no provision for income taxes is included in the financial statements. The organization follows the recognition requirements for uncertain income tax positions as required by generally accepted accounting principles by annually evaluating its tax status and tax positions with respect to its operations and financial position. Lumind has not recorded any reserves, or related accruals for interest and penalties for uncertain income tax provisions at september 30, 2021 and 2020. The federal information returns of the organization for the years ended september 30, 2021, 2020 and 2019 are subject to examination by the internal revenue service generally for three years after they were filed.”

Raw XML AppendixShowing 400 of 713 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0218501
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0167209
IRS990/AccountsReceivableGrp/BOYAmt02925
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0WE ACCELERATE RESEARCH TO INCREASE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC, AND MEDICAL CARE OPTIONS AND WE EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS, AND SUPPORT.
IRS990/AdvertisingGrp/ProgramServicesAmt022218
IRS990/AdvertisingGrp/TotalAmt022218
IRS990/AllOtherContributionsAmt04788334
IRS990/AllOtherExpensesGrp/FundraisingAmt0510
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0254
IRS990/AllOtherExpensesGrp/ProgramServicesAmt01788
IRS990/AllOtherExpensesGrp/TotalAmt02552
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/PersonNm0HAMPUS HILLERSTROM PRESIDENT AND C
IRS990/BooksInCareOfDetail/PhoneNum07818251300
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt020 BURLINGTON MALL ROAD SUITE 200
IRS990/BooksInCareOfDetail/USAddress/CityNm0BURLINGTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd001803
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt039147
IRS990/CashNonInterestBearingGrp/EOYAmt0914870
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt0197710
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt050411
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0646801
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0894922
IRS990/CompDisqualPersonsGrp/FundraisingAmt095667
IRS990/CompDisqualPersonsGrp/ManagementAndGeneralAmt035514
IRS990/CompDisqualPersonsGrp/ProgramServicesAmt020763
IRS990/CompDisqualPersonsGrp/TotalAmt0151944
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConferencesMeetingsGrp/FundraisingAmt08
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt04110
IRS990/ConferencesMeetingsGrp/TotalAmt04118
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt05112405
IRS990/CYGrantsAndSimilarPaidAmt01507000
IRS990/CYInvestmentIncomeAmt01503
IRS990/CYOtherExpensesAmt0581474
IRS990/CYOtherRevenueAmt0153307
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt01899289
IRS990/CYSalariesCompEmpBnftPaidAmt01279452
IRS990/CYTotalExpensesAmt03367926
IRS990/CYTotalFundraisingExpenseAmt0470641
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt05267215
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/BOYAmt0600
IRS990/DeferredRevenueGrp/EOYAmt012555
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt065582
IRS990/DepreciationDepletionGrp/TotalAmt065582
IRS990/Desc0DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0723951
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt01908417
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt014
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt01290000
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt086538
IRS990/FeesForServicesAccountingGrp/TotalAmt086538
IRS990/FeesForServicesLegalGrp/FundraisingAmt043216
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt05735
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt040300
IRS990/FeesForServicesLegalGrp/TotalAmt089251
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt029657
IRS990/FeesForServicesOtherGrp/TotalAmt029657
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt440.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt101.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt111.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt121.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1340.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1440.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1540.00
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt425869
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1329271
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1417261
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/PersonNm0PATRICK KANNAN
IRS990/Form990PartVIISectionAGrp/PersonNm1MICHAEL J MANNOR PHD
IRS990/Form990PartVIISectionAGrp/PersonNm2PAUL MURASKO
IRS990/Form990PartVIISectionAGrp/PersonNm3TONY HUNG
IRS990/Form990PartVIISectionAGrp/PersonNm4HAMPUS HILLERSTROM
IRS990/Form990PartVIISectionAGrp/PersonNm5HECTOR GUINNESS
IRS990/Form990PartVIISectionAGrp/PersonNm6ANTHONY PROVIDENTI
IRS990/Form990PartVIISectionAGrp/PersonNm7CHRISTOPHER LIS
IRS990/Form990PartVIISectionAGrp/PersonNm8JEFF W STROBEL
IRS990/Form990PartVIISectionAGrp/PersonNm9CLAUDIA MOREIRA
IRS990/Form990PartVIISectionAGrp/PersonNm10SOHAIL MASOOD
IRS990/Form990PartVIISectionAGrp/PersonNm11BEV PAPERIELLO
IRS990/Form990PartVIISectionAGrp/PersonNm12MARIA DELLAPINA
IRS990/Form990PartVIISectionAGrp/PersonNm13DR JAMES HENDRIX
IRS990/Form990PartVIISectionAGrp/PersonNm14MICHELLE PETRONIO
IRS990/Form990PartVIISectionAGrp/PersonNm15ANGELLA BRITTON
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt4278723
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13181202
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14156294
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15105250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4PRESIDENT AND CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt5MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt14CHIEF DEVELOPMENT OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt15VICE PRESIDENT, CLINICAL OPERATIONS
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02003
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt071443
IRS990/FundraisingGrossIncomeAmt0224750
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GovernmentGrantsAmt0324071
IRS990/GrantAmt01290000
IRS990/GrantsPayableGrp/BOYAmt01202036
IRS990/GrantsPayableGrp/EOYAmt01563845
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01507000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01507000
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt05338658
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt039844
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt08751
IRS990/InformationTechnologyGrp/ProgramServicesAmt069721
IRS990/InformationTechnologyGrp/TotalAmt0118316
IRS990/InsuranceGrp/ManagementAndGeneralAmt027724
IRS990/InsuranceGrp/TotalAmt027724
IRS990/InvestmentIncomeGrp/ExclusionAmt01503
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt01503
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt013
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt088673
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0236871
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0216053
IRS990/LandBldgEquipCostOrOtherBssAmt0304726
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ACCELERATE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0841156
IRS990/NetAssetsOrFundBalancesEOYAmt02740445
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0153307
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0153307
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0117205
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0832028
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt09018
IRS990/OccupancyGrp/ManagementAndGeneralAmt04483
IRS990/OccupancyGrp/ProgramServicesAmt031587
IRS990/OccupancyGrp/TotalAmt045088
IRS990/OfficeExpensesGrp/FundraisingAmt09876
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt017859
IRS990/OfficeExpensesGrp/ProgramServicesAmt023226
IRS990/OfficeExpensesGrp/TotalAmt050961
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt030750
IRS990/OtherAssetsTotalGrp/EOYAmt029420
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt010021
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt011351
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt080069
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0101441
IRS990/OtherExpensesGrp/Desc0BANK FEES AND CREDIT CA
IRS990/OtherExpensesGrp/Desc1STATE FILING FEES
IRS990/OtherExpensesGrp/Desc2PRINTING
IRS990/OtherExpensesGrp/Desc3POSTAGE AND SHIPPING
IRS990/OtherExpensesGrp/FundraisingAmt012255
IRS990/OtherExpensesGrp/FundraisingAmt19263
IRS990/OtherExpensesGrp/FundraisingAmt25467
IRS990/OtherExpensesGrp/FundraisingAmt31036
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt04520
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1800
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2234
IRS990/OtherExpensesGrp/ProgramServicesAmt04244
IRS990/OtherExpensesGrp/ProgramServicesAmt11650
IRS990/OtherExpensesGrp/TotalAmt016775
IRS990/OtherExpensesGrp/TotalAmt110063
IRS990/OtherExpensesGrp/TotalAmt29711
IRS990/OtherExpensesGrp/TotalAmt32920
IRS990/OtherLiabilitiesGrp/BOYAmt0200060
IRS990/OtherLiabilitiesGrp/EOYAmt03160
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt025678
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt07521
IRS990/PayrollTaxesGrp/ProgramServicesAmt058430
IRS990/PayrollTaxesGrp/TotalAmt091629
IRS990/PensionPlanContributionsGrp/FundraisingAmt011072
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt03244
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt025200
IRS990/PensionPlanContributionsGrp/TotalAmt039516
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt01823377
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt02655533
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt085191
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt034321
IRS990/PrincipalOfficerNm0HAMPUS HILLERSTROM
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH AND MEDICAL GRANTS PROGRAM LUMIND IDSC RESEARCH AND MEDICAL GRANTS PROGRAM SUPPORTED 10 PROJECTS THIS YEAR COVERING PROJECTS IN COVID19, GENE THEREAPY, INDEPENDENCE, MEDICAL CARE AND REGULATORY.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0217000
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0217000
IRS990/ProgSrvcAccomActy3Grp/Desc0COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS AND PARTICIPATION PARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COSTS RELATED TO LUMIND IDSC'S MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC).
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt01030107
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01577945
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01020395
IRS990/PYInvestmentIncomeAmt01301
IRS990/PYOtherExpensesAmt0594339
IRS990/PYOtherRevenueAmt0284585
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-706961
IRS990/PYSalariesCompEmpBnftPaidAmt0956058
IRS990/PYTotalExpensesAmt02570792
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01863831
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/ReconcilationRevenueExpnssAmt01899289
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0244092
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0637017
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt05112405
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01577945
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt03589169
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01378038
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01420558
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt013078115
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt01503
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt01301
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt01890
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0601
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt01241
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt06536
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt02161528
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt026044
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt019393
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0240
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt010
IRS990ScheduleA/OtherIncome170Grp/TotalAmt045687
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99600
IRS990ScheduleA/PublicSupportPY170Pct00.99940
IRS990ScheduleA/PublicSupportTotal170Amt013078115
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt05112405
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01577945
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt03589169
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01378038
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01420558
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt013078115
IRS990ScheduleA/TotalSupportAmt013130338
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$4,487,214
Liabilities
$1,746,769
Net assets
$2,740,445
Revenue
$5,267,215
Expenses
$3,367,926
Net income
$1,899,289
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.85$0.17$0.67$4.04$3.99$0.05
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.72$1.45$2.74$4.73$1.98
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.49$1.75$2.74$5.27$3.37$1.90
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.46$1.62$0.84$1.86$2.57$0.71
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.83$2.28$1.55$3.83$3.49$0.35
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.08$1.88$1.20$3.60$2.60$1.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.23$2.03$0.19$2.24$2.82$0.58
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.25$1.47$0.78$2.51$2.58$0.08
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.47$0.94$0.53$1.76