Civic Intelligence

Lumind Research Down Syndrome

990 • Fiscal year 2020 • EIN 37-1483975

Oct 01, 2019 to Sep 30, 2020 • Filed on Aug 13, 2021

Organization ProfileLUMINDRDS.ORG

View Organization Page

20 Burlington Mall Road No 200Burlington, MA 01803

(781) 825-1300

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

86th percentile

0.66x

Higher debt load relative to assets than 86% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

84th percentile

0.87x

Higher debt load relative to revenue than 84% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

9th percentile

-38%

Higher net margin than 9% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

95th percentile

$329,164

Higher top officer pay than 95% of similar nonprofits.

Top officer pay equals 17.7% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

2nd percentile

-36%

Faster asset growth than 2% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

7th percentile

-51%

Faster revenue growth than 7% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets86th percentile

Assets

Down

$2,462,353

Down $1,366,573 (-36%) from 2019

Net Assets

Down

$841,156

Down $706,961 (-46%) from 2019

Liabilities

Down

$1,621,197

Down $659,612 (-29%) from 2019

Revenue And Expenses
Liabilities / Revenue84th percentileNet Margin9th percentile

Revenue

Down

$1,863,831

Down $1,968,696 (-51%) from 2019

Expenses

Down

$2,570,792

Down $914,486 (-26%) from 2019

Net Income

Down

-$706,961

Down $1,054,210 (-304%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth2nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2013: $1,469,558Liabilities 2013: $943,264Net Assets 2013: $526,2942013Assets 2016: $2,247,784Liabilities 2016: $1,470,876Net Assets 2016: $776,9082016Assets 2017: $2,225,185Liabilities 2017: $2,031,445Net Assets 2017: $193,7402017Assets 2018: $3,084,421Liabilities 2018: $1,883,552Net Assets 2018: $1,200,8692018Assets 2019: $3,828,926Liabilities 2019: $2,280,809Net Assets 2019: $1,548,1172019Assets 2020: $2,462,353Liabilities 2020: $1,621,197Net Assets 2020: $841,1562020Assets 2021: $4,487,214Liabilities 2021: $1,746,769Net Assets 2021: $2,740,4452021Assets 2022: $2,166,575Liabilities 2022: $720,107Net Assets 2022: $1,446,4682022Assets 2024: $848,403Liabilities 2024: $174,292Net Assets 2024: $674,1112024

Highlighted filing

2020

Assets$2,462,353
Liabilities$1,621,197
Net Assets$841,156
Open 2020 Filing

Operations Trend

Revenue Growth7th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2013: $1,757,3672013Revenue 2016: $2,509,676Expenses 2016: $2,584,886Net Income 2016: -$75,2102016Revenue 2017: $2,238,631Expenses 2017: $2,821,799Net Income 2017: -$583,1682017Revenue 2018: $3,604,558Expenses 2018: $2,597,429Net Income 2018: $1,007,1292018Revenue 2019: $3,832,527Expenses 2019: $3,485,278Net Income 2019: $347,2492019Revenue 2020: $1,863,831Expenses 2020: $2,570,792Net Income 2020: -$706,9612020Revenue 2021: $5,267,215Expenses 2021: $3,367,926Net Income 2021: $1,899,2892021Revenue 2022: $2,742,364Expenses 2022: $4,726,857Net Income 2022: -$1,984,4932022Revenue 2024: $4,039,327Expenses 2024: $3,991,706Net Income 2024: $47,6212024

Highlighted filing

2020

Revenue$1,863,831
Expenses$2,570,792
Net Income-$706,961
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2019 to Sep 30, 2020
Signed
Aug 13, 2021
Return Version
2019v5.2
Gross Receipts
$1,945,026
Mission and Program Overview

Mission

To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

To accelerate research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$2,615,959$1,823,377▼ $792,582
Savings and Temporary Cash Investments$890,168$244,092▼ $646,076
Land, Buildings, and Equipment, Net$16,374$236,871▲ $220,497
Prepaid Expenses and Deferred Charges$90,384$85,191▼ $5,193
Cash and Non-Interest-Bearing Accounts$137,309$39,147▼ $98,162
Investments Other Securities$11,819--
Accounts Receivable$53,809$2,925▼ $50,884
Total Assets$3,828,926$2,462,353▼ $1,366,573
Other Assets Total$13,104$30,750▲ $17,646
Liabilities
Grants Payable$1,994,854$1,202,036▼ $792,818
Accounts Payable and Accrued Expenses$116,540$218,501▲ $101,961
Other Liabilities$108,420$200,060▲ $91,640
Deferred Revenue$60,995$600▼ $60,395
Total Liabilities$2,280,809$1,621,197▼ $659,612
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,394,950$723,951▼ $670,999
Net Assets Without Donor Restrictions$153,167$117,205▼ $35,962
Total Net Assets Fund Balance$1,548,117$841,156▼ $706,961
Total Liabilities and Net Assets / Fund Balance$3,828,926$2,462,353▼ $1,366,573

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$236,871$23,091$259,962
Compensation and Service Providers
Top Officer Pay95th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Hampus HillerstromPresident and CEOFT$288,978$40,186$329,164
Dr James HendrixChief Scientific OfficerFT$170,105$17,667$187,772
Michelle PetronioChief Development OfficerFT$128,032$4,261$132,293

Board Members and Trustees

NameTitle
Michael J Mannor PhdBoard Chair
Tony HungVice Chair
Patrick KannanBoard Member
Anthony ProvidentiMember
Bev PaperielloMember
Christopher LisMember
Claudia MoreiraMember
Hector GuinnessMember
Jeff W StrobelMember
Jennifer SmolkaMember
Kim WarrenMember
Maria DellapinaMember
Paul MuraskoMember
Sohail MasoodMember
Anula JayasuryaSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$1,577,945
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$285,886
All Other Contributions
$1,577,945
Change in Net Assets
$-706,961

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,863,831
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$1,863,831
Total Revenue per Form 990
$1,863,831
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,020,395
Salaries, Compensation, and Employee Benefits$956,058
Other Expenses$594,339
Total Fundraising Expense$421,316
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,020,395--$1,020,395
Other Salaries and Wages$396,096$105,819$263,251$765,166
Fees for Services Management$238,354$30,254$4,592$273,200
Information Technology$19,237$13,723$72,251$105,211
Other Employee Benefits$70,172$7,737$6,514$84,423
Payroll Taxes$35,985$9,614$23,916$69,515
Occupancy$27,238$7,277$18,103$52,618
Travel$42,304--$42,304
Pension Plan Contributions$19,130$5,111$12,713$36,954
Office Expenses$13,045$4,530$1,758$19,333
Fees for Services Accounting-$17,540-$17,540
Conferences and Meetings$16,559-$617$17,176
Interest$7,161$1,913$4,759$13,833
Fees for Services Legal-$10,489-$10,489
Depreciation Depletion$10,426--$10,426
Advertising$5,068--$5,068
Other Expenses$2,577$-3,246$7,035$3,789
Insurance-$-6,095-$-6,095
Total Functional Expenses$1,926,934$222,542$421,316$2,570,792

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,570,792
Total Expenses per Audited Statements$2,570,792
Total Expenses per Form 990$2,570,792
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Down Syndrome Clinical Trials Network Multiple GrantsCambridge, MA-To Support Down Syndrome Cognition Medical Research$451,723
Massachusetts Institute of TechnologyFramington, CT-To Study the Genetic Understanding for Down Syndrome$110,000
Uconn Health - PinterLos Angeles, CA-To Support Gene Therapy Research for Down Syndrome$65,000
Ucsd--To Support the Initial Feasibility of the Ds-ctn Network$50,000
Stanford UniversityStanford, CA-To Support Cognition Research for Down Syndrome$18,750
University of ArizonaTuscon, AZ-To Support Cognition and Sleep Apnea Research for Down Syndrome$7,500

International Summary

Offices
0
Employees
0
Spending
$178,222

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
SwitzerlandGrant to Fund ResearchTO SUPPORT CLINICAL TRIAL OF ACI-024 FOR DOWN SYNDROME ASSOCIATED ALZHEIMER'S DISEASE--$100,000
CanadaGrant to Fund ResearchGoal Attainment Scaling to Measure Dementia--$78,222
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$339,736
Fundraising Direct Expenses$81,195
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Chicago Funding Futures$193,590$193,590$8,370$185,220
Summer Double Dip$75,500$75,500$37,750$37,750
Total Events$339,736$339,736$93,109$246,627
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Ppp Loan$153,800
Wages and Tax Payable$39,081
Credit Card$7,179
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization's process to review the final form 990 is to have the board and finance committee review the final return prior to submission and then the return is signed by an authorized officer.”

Form 990, Part VI, Section B, Line 12C

“The process for monitoring this is by addressing activity in quarterly board meetings and ad hoc calls as needed.”

Form 990, Part VI, Section B, Line 15

“Compensation for key employees are approved by the board of directors and increases are approved in the budget.”

Form 990, Part VI, Section C, Line 18

“Form 1023 and form 990 are available upon request and available online through public non profit websites.”

Form 990, Part VI, Section C, Line 19

“Governing documents disclosure, conflict of interest policy and financial statements are available upon request.”

Filing and Contact Details

Filer

Filer Name
Lumind Idsc Foundation
EIN
37-1483975
Phone
7818251300
Address
20 BURLINGTON MALL ROAD NO 200, BURLINGTON, MA 01803

Signing Officer

Name
Hampus Hillerstrom
Title
President/CEO
Phone
7818251300
Signed
2021-08-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Hampus Hillerstrom
Formed
2003
Legal Domicile
CA
Voting Board Members
15
Independent Board Members
15
Employees
12
Volunteers
0

Preparer

Firm
R A HALL & CO LLC CPA'S
Address
183 STATE STREET, BOSTON, MA 02109
Preparer
Eric J Hall
Phone
6177233333
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

“Community engagement program for research awareness, research participation and empowering families with resources and medical information.”

FORM 990, PART XII, LINE 2C:

“The organization has an audit committee to oversee and review the audit and form 990 prior to submission. The process has not been changed in current year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is exempt from taxation under the provision of section 501(c)(3) of the internal revenue code, except on any net income derived from unrelated business activities. The organization has also been classified as an entity that is not a private foundation within the meaning of section 509(a)(1) and qualifies for deductible contributions as provided in section 170(b)(1)(a)(vi). Accordingly, no provision for income taxes is included in the financial statements. The organization follows the recognition requirements for uncertain income tax positions as required by generally accepted accounting principles by annually evaluating its tax status and tax positions with respect to its operations and financial position. Lumind has not recorded any reserves, or related accruals for interest and penalties for uncertain income tax provisions at september 30, 2019 and 2018. The federal information returns of the organization for the years ended september 30, 2019 and 2018 and 2017 are subject to examination by the internal revenue service generally for three years after they were filed.”

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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17170105
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18128032
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4PRESIDENT AND CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt5MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt7MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt17CHIEF SCIENTIFIC OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt18CHIEF DEVELOPMENT OFFICER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02003
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt081195
IRS990/FundraisingGrossIncomeAmt0339736
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantAmt0696000
IRS990/GrantsPayableGrp/BOYAmt01994854
IRS990/GrantsPayableGrp/EOYAmt01202036
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01020395
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01020395
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt01945026
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt03
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt072251
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt013723
IRS990/InformationTechnologyGrp/ProgramServicesAmt019237
IRS990/InformationTechnologyGrp/TotalAmt0105211
IRS990/InsuranceGrp/ManagementAndGeneralAmt0-6095
IRS990/InsuranceGrp/TotalAmt0-6095
IRS990/InterestGrp/FundraisingAmt04759
IRS990/InterestGrp/ManagementAndGeneralAmt01913
IRS990/InterestGrp/ProgramServicesAmt07161
IRS990/InterestGrp/TotalAmt013833
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt011819
IRS990/IRPDocumentCnt014
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt023091
IRS990/LandBldgEquipBasisNetGrp/BOYAmt016374
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0236871
IRS990/LandBldgEquipCostOrOtherBssAmt0259962
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ACCELERATE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01548117
IRS990/NetAssetsOrFundBalancesEOYAmt0841156
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0258541
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0258541
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0153167
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0117205
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt018103
IRS990/OccupancyGrp/ManagementAndGeneralAmt07277
IRS990/OccupancyGrp/ProgramServicesAmt027238
IRS990/OccupancyGrp/TotalAmt052618
IRS990/OfficeExpensesGrp/FundraisingAmt01758
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt04530
IRS990/OfficeExpensesGrp/ProgramServicesAmt013045
IRS990/OfficeExpensesGrp/TotalAmt019333
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt013104
IRS990/OtherAssetsTotalGrp/EOYAmt030750
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt06514
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt07737
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt070172
IRS990/OtherEmployeeBenefitsGrp/TotalAmt084423
IRS990/OtherExpensesGrp/Desc0STATE FILING FEES
IRS990/OtherExpensesGrp/Desc1PRINTING
IRS990/OtherExpensesGrp/Desc2POSTAGE AND SHIPPING
IRS990/OtherExpensesGrp/Desc3BANK FEES AND CREDIT CA
IRS990/OtherExpensesGrp/FundraisingAmt03870
IRS990/OtherExpensesGrp/FundraisingAmt11937
IRS990/OtherExpensesGrp/FundraisingAmt27035
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt017470
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1406
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2-3246
IRS990/OtherExpensesGrp/ProgramServicesAmt03187
IRS990/OtherExpensesGrp/ProgramServicesAmt12577
IRS990/OtherExpensesGrp/TotalAmt017470
IRS990/OtherExpensesGrp/TotalAmt17057
IRS990/OtherExpensesGrp/TotalAmt24920
IRS990/OtherExpensesGrp/TotalAmt33789
IRS990/OtherLiabilitiesGrp/BOYAmt0108420
IRS990/OtherLiabilitiesGrp/EOYAmt0200060
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
IRS990/OtherRevenueMiscGrp/ExclusionAmt027345
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt027345
IRS990/OtherRevenueTotalAmt027345
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0263251
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0105819
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0396096
IRS990/OtherSalariesAndWagesGrp/TotalAmt0765166
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt023916
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt09614
IRS990/PayrollTaxesGrp/ProgramServicesAmt035985
IRS990/PayrollTaxesGrp/TotalAmt069515
IRS990/PensionPlanContributionsGrp/FundraisingAmt012713
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt05111
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt019130
IRS990/PensionPlanContributionsGrp/TotalAmt036954
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt02615959
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt01823377
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt090384
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt085191
IRS990/PrincipalOfficerNm0HAMPUS HILLERSTROM
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH AND MEDICAL GRANTS PROGRAM LUMIND IDSC RESEARCH AND MEDICAL GRANTS PROGRAM SUPPORTED 10 PROJECTS THIS YEAR COVERING PROJECTS IN SLEEP APNEA, ALZHEIMER'S, COVID19, GENE THEREAPY, INDEPENDENCE, MEDICAL CARE AND REGULATORY.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0498000
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0324000
IRS990/ProgSrvcAccomActy3Grp/Desc0COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS AND PARTICIPATION PARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COSTS RELATED TO LUMIND IDSC'S MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC).
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0558934
IRS990/ProgSrvcAccomActyOtherGrp/Desc0PROGRAMS TO ACCELERATE RESEARCH TO INCREASE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC, AND MEDICAL CARE OPTIONS AND WE EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS, AND SUPPORT.
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt0395
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03589169
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01439030
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt01007395
IRS990/PYOtherRevenueAmt0243358
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0347249
IRS990/PYSalariesCompEmpBnftPaidAmt01038853
IRS990/PYTotalExpensesAmt03485278
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03832527
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/ReconcilationRevenueExpnssAmt0-706961
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0890168
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0244092
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01577945
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01378038
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01420558
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01451150
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt05827691
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt01301
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0601
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01241
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0152
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt03295
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt0240
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt010
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0250
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99940

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,462,353
Liabilities
$1,621,197
Net assets
$841,156
Revenue
$1,863,831
Expenses
$2,570,792
Net income
-$706,961
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.85$0.17$0.67$4.04$3.99$0.05
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.72$1.45$2.74$4.73$1.98
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.49$1.75$2.74$5.27$3.37$1.90
2020Detailed filing. Detailed filing data is available for this year.$2.46$1.62$0.84$1.86$2.57$0.71
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.83$2.28$1.55$3.83$3.49$0.35
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.08$1.88$1.20$3.60$2.60$1.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.23$2.03$0.19$2.24$2.82$0.58
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.25$1.47$0.78$2.51$2.58$0.08
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.47$0.94$0.53$1.76