Civic Intelligence

Lumind Research Down Syndrome

990 • Fiscal year 2019 • EIN 37-1483975

Oct 01, 2018 to Sep 30, 2019 • Filed on Sep 08, 2020

Organization ProfileLUMINDIDSC.ORG

View Organization Page

20 Mall RoadBurlington, MA 01803

(781) 825-1300

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

84th percentile

0.60x

Higher debt load relative to assets than 84% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

81st percentile

0.60x

Higher debt load relative to revenue than 81% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

64th percentile

9.1%

Higher net margin than 64% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

96th percentile

$367,158

Higher top officer pay than 96% of similar nonprofits.

Top officer pay equals 9.6% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

83rd percentile

24%

Faster asset growth than 83% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

56th percentile

6.3%

Faster revenue growth than 56% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets84th percentile

Assets

Up

$3,828,926

Up $744,505 (+24%) from 2018

Net Assets

Up

$1,548,117

Up $347,248 (+29%) from 2018

Liabilities

Up

$2,280,809

Up $397,257 (+21%) from 2018

Revenue And Expenses
Liabilities / Revenue81st percentileNet Margin64th percentile

Revenue

Up

$3,832,527

Up $227,969 (+6.3%) from 2018

Expenses

Up

$3,485,278

Up $887,849 (+34%) from 2018

Net Income

Down

$347,249

Down $659,880 (-66%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth83rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2013: $1,469,558Liabilities 2013: $943,264Net Assets 2013: $526,2942013Assets 2016: $2,247,784Liabilities 2016: $1,470,876Net Assets 2016: $776,9082016Assets 2017: $2,225,185Liabilities 2017: $2,031,445Net Assets 2017: $193,7402017Assets 2018: $3,084,421Liabilities 2018: $1,883,552Net Assets 2018: $1,200,8692018Assets 2019: $3,828,926Liabilities 2019: $2,280,809Net Assets 2019: $1,548,1172019Assets 2020: $2,462,353Liabilities 2020: $1,621,197Net Assets 2020: $841,1562020Assets 2021: $4,487,214Liabilities 2021: $1,746,769Net Assets 2021: $2,740,4452021Assets 2022: $2,166,575Liabilities 2022: $720,107Net Assets 2022: $1,446,4682022Assets 2024: $848,403Liabilities 2024: $174,292Net Assets 2024: $674,1112024

Highlighted filing

2019

Assets$3,828,926
Liabilities$2,280,809
Net Assets$1,548,117
Open 2019 Filing

Operations Trend

Revenue Growth56th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2013: $1,757,3672013Revenue 2016: $2,509,676Expenses 2016: $2,584,886Net Income 2016: -$75,2102016Revenue 2017: $2,238,631Expenses 2017: $2,821,799Net Income 2017: -$583,1682017Revenue 2018: $3,604,558Expenses 2018: $2,597,429Net Income 2018: $1,007,1292018Revenue 2019: $3,832,527Expenses 2019: $3,485,278Net Income 2019: $347,2492019Revenue 2020: $1,863,831Expenses 2020: $2,570,792Net Income 2020: -$706,9612020Revenue 2021: $5,267,215Expenses 2021: $3,367,926Net Income 2021: $1,899,2892021Revenue 2022: $2,742,364Expenses 2022: $4,726,857Net Income 2022: -$1,984,4932022Revenue 2024: $4,039,327Expenses 2024: $3,991,706Net Income 2024: $47,6212024

Highlighted filing

2019

Revenue$3,832,527
Expenses$3,485,278
Net Income$347,249
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2018 to Sep 30, 2019
Signed
Sep 8, 2020
Return Version
2018v3.2
Gross Receipts
$3,940,189
Mission and Program Overview

Mission

To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

To accelerate research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$2,223,042$2,615,959▲ $392,917
Savings and Temporary Cash Investments$566,218$890,168▲ $323,950
Cash and Non-Interest-Bearing Accounts$191,627$137,309▼ $54,318
Prepaid Expenses and Deferred Charges$45,087$90,384▲ $45,297
Accounts Receivable$42,692$53,809▲ $11,117
Land, Buildings, and Equipment, Net$0$16,374▲ $16,374
Investments in Publicly Traded Securities$2,651$11,819▲ $9,168
Total Assets$3,084,421$3,828,926▲ $744,505
Other Assets Total$13,104$13,104→ $0
Liabilities
Grants Payable$1,634,444$1,994,854▲ $360,410
Accounts Payable and Accrued Expenses$150,862$116,540▼ $34,322
Other Liabilities$48,100$108,420▲ $60,320
Deferred Revenue$50,146$60,995▲ $10,849
Total Liabilities$1,883,552$2,280,809▲ $397,257
Net Assets / Fund Balance
Temporarily Rstr Net Assets$1,198,042$1,394,950▲ $196,908
Unrestricted Net Assets$2,827$153,167▲ $150,340
Total Net Assets Fund Balance$1,200,869$1,548,117▲ $347,248
Total Liabilities and Net Assets / Fund Balance$3,084,421$3,828,926▲ $744,505

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$16,374$12,665$29,039
Compensation and Service Providers
Top Officer Pay96th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Hampus HillerstromPresident and CEOFT$271,908$95,250$367,158

Board Members and Trustees

NameTitle
Michael J Mannor PhdBoard Chair
Tony HungBoard Vice Chair
Patrick KannanBoard Member Treasurer
Anthony ProvidentiMember
Anula JayasuryaMember
Beverly PaperielloMember
Christopher LisMember
Claudia MoreiraMember
Hector GuinnessMember
Jeff W StrobelMember
Jennifer SmolkaMember
Kim WarrenMember
Ryan M HartmanMember
Sohail MasoodMember
Maria DellapinaMember, Executive Committee
Paul MuraskoMember, Executive Committee
Revenue and Support

Revenue Composition

Contributions and Grants
$3,589,169
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$243,358
All Other Contributions
$3,589,169
Change in Net Assets
$347,249

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,832,527
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$3,832,527
Total Revenue per Form 990
$3,832,527
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,439,030
Salaries, Compensation, and Employee Benefits$1,038,853
Other Expenses$1,007,395
Total Fundraising Expense$515,136
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,439,030--$1,439,030
Fees for Services Management$401,679$13,300$76,935$491,914
Other Salaries and Wages$257,200$61,947$159,068$478,215
Current Officers, Directors, Trustees, and Key Employees$231,000$33,000$66,000$330,000
Other Employee Benefits$80,993$14,860$56,632$152,485
Conferences and Meetings$129,942-$7,941$137,883
Travel$74,969$176-$75,145
Information Technology$12,182$420$62,169$74,771
Payroll Taxes$32,628$5,143$20,671$58,442
Occupancy$32,184$5,072$20,394$57,650
Fees for Services Accounting-$46,588-$46,588
Office Expenses$14,383$4,184$7,438$26,005
Pension Plan Contributions$11,004$1,735$6,972$19,711
Other Expenses$8,903$13,343$5,078$13,343
All Other Expenses$8,070$193$4,098$12,361
Advertising$10,686--$10,686
Insurance-$8,456-$8,456
Fees for Services Legal-$3,320-$3,320
Depreciation Depletion-$2,729-$2,729
Total Functional Expenses$2,753,711$216,431$515,136$3,485,278

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,485,278
Total Expenses per Audited Statements$3,485,278
Total Expenses per Form 990$3,485,278
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Down Syndrome Clinical Trials Network Multiple GrantsFramington, CT, CA501(c)(3)To Support Down Syndrome Cognition Medical Research$832,630
Film Project With Alana Foundation--Film Project Called Forget Me Not, About Inclusion in Society of People Living With Down Syndrome$400,000
Dgi ClinicalBoston, MA-Goal Attainment Scaling to Measure Dementia$60,000
Uconn Health--To Study Combinatorial Dosage Correction in Down Syndrome$50,000
Massachuesetts General Hospital--TO SUPPORT DEVELOPMENT OF DR. BRIAN SKOTKO'S DOWN SYNDROME CLINI TO YOU$45,000
Kings CollegeBoston, MA, Uk501(c)(3)To Support Down Syndrome Cognition Medical Research$36,400
Massachusetts Eye and Ear Hospital--To Support Study of Hypoglossal Nerve Stimulation for Children and Adolescents With Down Syndrome and Osa$15,000

International Summary

Offices
0
Employees
0
Spending
$96,400

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
CanadaGrants to Fund ResearchMEDICAL ALZHEIMER'S RESEARCH00$60,000
United KingdomGrants to Fund ResearchMEDICAL ALZHEIMER'S RESEARCH00$36,400
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$329,728
Fundraising Direct Expenses$107,662
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Chicago Funding Futures$155,601$155,601$2,500$153,101
Summer Double Dip$79,759$79,759$32,000$47,759
Total Events$329,728$329,728$107,662$222,066
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Wages and Taxes Payable$86,214
Credit Card$22,206
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization's process to review the final form 990 is to have the finance committee review the final return prior to submission and then the return is signed by an authorized officer.”

Form 990, Part VI, Section B, Line 12C

“The process for monitoring this is by addressing activity in quarterly board meetings and ad hoc calls as needed.”

Form 990, Part VI, Section B, Line 15

“Compensation for key employees are approved by the board of directors and increases are approved in the budget.”

Form 990, Part VI, Section C, Line 18

“Form 1023 and form 990 are available upon request and available online through public non profit websites.”

Form 990, Part VI, Section C, Line 19

“Governing documents disclosure, conflict of interest policy and financial statements are available upon request.”

Filing and Contact Details

Filer

Filer Name
Lumind Idsc Foundation
EIN
37-1483975
Phone
7818251300
Address
20 MALL ROAD, BURLINGTON, MA 01803

Signing Officer

Name
Hampus Hillerstrom
Title
President/CEO
Phone
7818251300
Signed
2020-09-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Hampus Hillerstrom
Formed
2003
Legal Domicile
CA
Voting Board Members
15
Independent Board Members
15
Employees
7
Volunteers
0

Preparer

Firm
R A HALL & CO LLC CPA'S
Address
183 STATE STREET, BOSTON, MA 02109
Preparer
Eric J Hall
Phone
6177233333
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

“Community engagement program for research awareness, research participation and empowering families with resources and medical information.”

FORM 990, PART XI, LINE 9:

“ROUNDING -1.”

FORM 990, PART XII, LINE 2C:

“The organization has an audit committee to oversee and review the audit and form 990 prior to submission. The process has not been changed in current year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is exempt from taxation under the provision of section 501(c)(3) of the internal revenue code, except on any net income derived from unrelated business activities. The organization has also been classified as an entity that is not a private foundation within the meaning of section 509(a)(1) and qualifies for deductible contributions as provided in section 170(b)(1)(a)(vi). Accordingly, no provision for income taxes is included in the financial statements. The organization follows the recognition requirements for uncertain income tax positions as required by generally accepted accounting principles by annually evaluating its tax status and tax positions with respect to its operations and financial position. Lumind has not recorded any reserves, or related accruals for interest and penalties for uncertain income tax provisions at september 30, 2019 and 2018. The federal information returns of the organization for the years ended september 30, 2019 and 2018 and 2017 are subject to examination by the internal revenue service generally for three years after they were filed.”

Raw XML AppendixShowing 400 of 731 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0150862
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0116540
IRS990/AccountsReceivableGrp/BOYAmt042692
IRS990/AccountsReceivableGrp/EOYAmt053809
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO ACCELERATE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT.
IRS990/AdvertisingGrp/ProgramServicesAmt010686
IRS990/AdvertisingGrp/TotalAmt010686
IRS990/AllOtherContributionsAmt03589169
IRS990/AllOtherExpensesGrp/FundraisingAmt04098
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0193
IRS990/AllOtherExpensesGrp/ProgramServicesAmt08070
IRS990/AllOtherExpensesGrp/TotalAmt012361
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/PersonNm0HAMPUS HILLERSTROM PRESIDENT AND C
IRS990/BooksInCareOfDetail/PhoneNum07818251300
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt020 BURLINGTON MALL ROAD SUITE 200
IRS990/BooksInCareOfDetail/USAddress/CityNm0BURLINGTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd001803
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOfficerEntInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0191627
IRS990/CashNonInterestBearingGrp/EOYAmt0137309
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt066000
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt033000
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0231000
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0330000
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConferencesMeetingsGrp/FundraisingAmt07941
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt0129942
IRS990/ConferencesMeetingsGrp/TotalAmt0137883
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt03589169
IRS990/CYGrantsAndSimilarPaidAmt01439030
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt01007395
IRS990/CYOtherRevenueAmt0243358
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0347249
IRS990/CYSalariesCompEmpBnftPaidAmt01038853
IRS990/CYTotalExpensesAmt03485278
IRS990/CYTotalFundraisingExpenseAmt0515136
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt03832527
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/BOYAmt050146
IRS990/DeferredRevenueGrp/EOYAmt060995
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt02729
IRS990/DepreciationDepletionGrp/TotalAmt02729
IRS990/Desc0DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt07
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0907676
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt046588
IRS990/FeesForServicesAccountingGrp/TotalAmt046588
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt03320
IRS990/FeesForServicesLegalGrp/TotalAmt03320
IRS990/FeesForServicesManagementGrp/FundraisingAmt076935
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt013300
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt0401679
IRS990/FeesForServicesManagementGrp/TotalAmt0491914
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt01.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt23.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt101.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt111.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt121.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt131.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt141.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt151.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1640.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd7X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1635250
IRS990/Form990PartVIISectionAGrp/PersonNm0RYAN M HARTMAN
IRS990/Form990PartVIISectionAGrp/PersonNm1PATRICK KANNAN
IRS990/Form990PartVIISectionAGrp/PersonNm2MICHAEL J MANNOR PHD
IRS990/Form990PartVIISectionAGrp/PersonNm3PAUL MURASKO
IRS990/Form990PartVIISectionAGrp/PersonNm4TONY HUNG
IRS990/Form990PartVIISectionAGrp/PersonNm5HECTOR GUINNESS
IRS990/Form990PartVIISectionAGrp/PersonNm6ANULA JAYASURYA
IRS990/Form990PartVIISectionAGrp/PersonNm7ANTHONY PROVIDENTI
IRS990/Form990PartVIISectionAGrp/PersonNm8CHRISTOPHER LIS
IRS990/Form990PartVIISectionAGrp/PersonNm9JEFF W STROBEL
IRS990/Form990PartVIISectionAGrp/PersonNm10CLAUDIA MOREIRA
IRS990/Form990PartVIISectionAGrp/PersonNm11SOHAIL MASOOD
IRS990/Form990PartVIISectionAGrp/PersonNm12MARIA DELLAPINA
IRS990/Form990PartVIISectionAGrp/PersonNm13JENNIFER SMOLKA
IRS990/Form990PartVIISectionAGrp/PersonNm14KIM WARREN
IRS990/Form990PartVIISectionAGrp/PersonNm15BEVERLY PAPERIELLO
IRS990/Form990PartVIISectionAGrp/PersonNm16HAMPUS HILLERSTROM
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16331908
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3MEMBER, EXECUTIVE COMMITTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt5MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12MEMBER, EXECUTIVE COMMITTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt13MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16PRESIDENT AND CEO
IRS990/Form990ProvidedToGvrnBodyInd00
IRS990/FormationYr02003
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt0107662
IRS990/FundraisingGrossIncomeAmt0329728
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantAmt0907676
IRS990/GrantsPayableGrp/BOYAmt01634444
IRS990/GrantsPayableGrp/EOYAmt01994854
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01439030
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01439030
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt03940189
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt062169
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0420
IRS990/InformationTechnologyGrp/ProgramServicesAmt012182
IRS990/InformationTechnologyGrp/TotalAmt074771
IRS990/InsuranceGrp/ManagementAndGeneralAmt08456
IRS990/InsuranceGrp/TotalAmt08456
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt02651
IRS990/InvestmentsPubTradedSecGrp/EOYAmt011819
IRS990/IRPDocumentCnt014
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt012665
IRS990/LandBldgEquipBasisNetGrp/BOYAmt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt016374
IRS990/LandBldgEquipCostOrOtherBssAmt029039
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ACCELERATE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt01200869
IRS990/NetAssetsOrFundBalancesEOYAmt01548117
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0222066
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0222066
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt020394
IRS990/OccupancyGrp/ManagementAndGeneralAmt05072
IRS990/OccupancyGrp/ProgramServicesAmt032184
IRS990/OccupancyGrp/TotalAmt057650
IRS990/OfficeExpensesGrp/FundraisingAmt07438
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt04184
IRS990/OfficeExpensesGrp/ProgramServicesAmt014383
IRS990/OfficeExpensesGrp/TotalAmt026005
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt013104
IRS990/OtherAssetsTotalGrp/EOYAmt013104
IRS990/OtherChangesInNetAssetsAmt0-1
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt056632
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt014860
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt080993
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0152485
IRS990/OtherExpensesGrp/Desc0BANK FEES AND CREDIT CA
IRS990/OtherExpensesGrp/Desc1COMMUNICATION SERVICES
IRS990/OtherExpensesGrp/Desc2PRINTING
IRS990/OtherExpensesGrp/Desc3STATE FILING FEES
IRS990/OtherExpensesGrp/FundraisingAmt016073
IRS990/OtherExpensesGrp/FundraisingAmt15667
IRS990/OtherExpensesGrp/FundraisingAmt25078
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0556
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11409
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt213343
IRS990/OtherExpensesGrp/ProgramServicesAmt0-85
IRS990/OtherExpensesGrp/ProgramServicesAmt18943
IRS990/OtherExpensesGrp/ProgramServicesAmt28903
IRS990/OtherExpensesGrp/TotalAmt016544
IRS990/OtherExpensesGrp/TotalAmt116019
IRS990/OtherExpensesGrp/TotalAmt213981
IRS990/OtherExpensesGrp/TotalAmt313343
IRS990/OtherLiabilitiesGrp/BOYAmt048100
IRS990/OtherLiabilitiesGrp/EOYAmt0108420
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
IRS990/OtherRevenueMiscGrp/ExclusionAmt021292
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt021292
IRS990/OtherRevenueTotalAmt021292
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0159068
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt061947
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0257200
IRS990/OtherSalariesAndWagesGrp/TotalAmt0478215
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt020671
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt05143
IRS990/PayrollTaxesGrp/ProgramServicesAmt032628
IRS990/PayrollTaxesGrp/TotalAmt058442
IRS990/PensionPlanContributionsGrp/FundraisingAmt06972
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt01735
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt011004
IRS990/PensionPlanContributionsGrp/TotalAmt019711
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt02223042
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt02615959
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt045087
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt090384
IRS990/PrincipalOfficerNm0HAMPUS HILLERSTROM
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS, RESEARCHPARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES AND MEDICAL INFORMATION. INCLUDES COSTS TO DEVELOP MY DOWN SYNDROME COMMUNITY (MYDSC) LAUNCHED IN AUGUST 2020
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0877206
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0A FILM PROJECT CALLED FORGET ME NOT ABOUT INCLUSION IN SOCIETY OF PEOPLE LIVING WITH DOWN SYNDROME IN PARTNERSHIP WITH ALANA FOUNDATION.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0400000
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00
IRS990/ProgSrvcAccomActyOtherGrp/Desc0PROGRAMS TO ACCELERATE RESEARCH TO INCREASE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC, AND MEDICAL CARE OPTIONS AND WE EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS, AND SUPPORT.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0568829
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt0531354
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03261080
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01400500
IRS990/PYInvestmentIncomeAmt0601
IRS990/PYOtherExpensesAmt0537004
IRS990/PYOtherRevenueAmt0342877
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt01007129
IRS990/PYSalariesCompEmpBnftPaidAmt0659925
IRS990/PYTotalExpensesAmt02597429
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03604558
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/ReconcilationRevenueExpnssAmt0347249
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0566218
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0890168
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt03555527
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01378038
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01420558
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01451150
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01426436
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt09231709
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt01890
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0601
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt01241
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0152
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0306
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt04190
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt021292
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt0240
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt010
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt0976
IRS990ScheduleA/OtherIncome170Grp/TotalAmt022518
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99710
IRS990ScheduleA/PublicSupportPY170Pct00.99930
IRS990ScheduleA/PublicSupportTotal170Amt09231709
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,828,926
Liabilities
$2,280,809
Net assets
$1,548,117
Revenue
$3,832,527
Expenses
$3,485,278
Net income
$347,249
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.85$0.17$0.67$4.04$3.99$0.05
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.17$0.72$1.45$2.74$4.73$1.98
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.49$1.75$2.74$5.27$3.37$1.90
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.46$1.62$0.84$1.86$2.57$0.71
2019Detailed filing. Detailed filing data is available for this year.$3.83$2.28$1.55$3.83$3.49$0.35
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.08$1.88$1.20$3.60$2.60$1.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.23$2.03$0.19$2.24$2.82$0.58
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.25$1.47$0.78$2.51$2.58$0.08
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.47$0.94$0.53$1.76