Civic Intelligence

Lumind Research Down Syndrome

990 • Fiscal year 2018 • EIN 37-1483975

Oct 01, 2017 to Sep 30, 2018 • Filed on Aug 12, 2019

20 Burlington Mall Road No 200Burlington, MA 01803

(781) 825-1300

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

84th percentile

0.61x

Higher debt load relative to assets than 84% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

79th percentile

0.52x

Higher debt load relative to revenue than 79% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

83rd percentile

28%

Higher net margin than 83% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

89th percentile

$196,245

Higher top officer pay than 89% of similar nonprofits.

Top officer pay equals 5.4% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

89th percentile

39%

Faster asset growth than 89% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

90th percentile

61%

Faster revenue growth than 90% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Assets

Up

$3,084,421

Up $859,236 (+39%) from 2017

Net Assets

Up

$1,200,869

Up $1,007,129 (+520%) from 2017

Liabilities

Down

$1,883,552

Down $147,893 (-7.3%) from 2017

Revenue

Up

$3,604,558

Up $1,365,927 (+61%) from 2017

Expenses

Down

$2,597,429

Down $224,370 (-8.0%) from 2017

Net Income

Up

$1,007,129

Up $1,590,297 (+273%) from 2017

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2013: $1,469,558Liabilities 2013: $943,264Net Assets 2013: $526,2942013Assets 2016: $2,247,784Liabilities 2016: $1,470,876Net Assets 2016: $776,9082016Assets 2017: $2,225,185Liabilities 2017: $2,031,445Net Assets 2017: $193,7402017Assets 2018: $3,084,421Liabilities 2018: $1,883,552Net Assets 2018: $1,200,8692018Assets 2019: $3,828,926Liabilities 2019: $2,280,809Net Assets 2019: $1,548,1172019Assets 2020: $2,462,353Liabilities 2020: $1,621,197Net Assets 2020: $841,1562020Assets 2021: $4,487,214Liabilities 2021: $1,746,769Net Assets 2021: $2,740,4452021Assets 2022: $2,166,575Liabilities 2022: $720,107Net Assets 2022: $1,446,4682022Assets 2024: $848,403Liabilities 2024: $174,292Net Assets 2024: $674,1112024

Highlighted filing

2018

Assets$3,084,421
Liabilities$1,883,552
Net Assets$1,200,869

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2013: $1,757,3672013Revenue 2016: $2,509,676Expenses 2016: $2,584,886Net Income 2016: -$75,2102016Revenue 2017: $2,238,631Expenses 2017: $2,821,799Net Income 2017: -$583,1682017Revenue 2018: $3,604,558Expenses 2018: $2,597,429Net Income 2018: $1,007,1292018Revenue 2019: $3,832,527Expenses 2019: $3,485,278Net Income 2019: $347,2492019Revenue 2020: $1,863,831Expenses 2020: $2,570,792Net Income 2020: -$706,9612020Revenue 2021: $5,267,215Expenses 2021: $3,367,926Net Income 2021: $1,899,2892021Revenue 2022: $2,742,364Expenses 2022: $4,726,857Net Income 2022: -$1,984,4932022Revenue 2024: $4,039,327Expenses 2024: $3,991,706Net Income 2024: $47,6212024

Highlighted filing

2018

Revenue$3,604,558
Expenses$2,597,429
Net Income$1,007,129
Jump To
Filing Snapshot
Filing Period
Oct 1, 2017 to Sep 30, 2018
Signed
Aug 12, 2019
Return Version
2017v2.3
Gross Receipts
$3,772,270
Mission and Program Overview

Mission

To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

To stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition for individuals with down syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$1,123,029$2,223,042▲ $1,100,013
Savings and Temporary Cash Investments$811,138$566,218▼ $244,920
Cash and Non-Interest-Bearing Accounts$250,829$191,627▼ $59,202
Prepaid Expenses and Deferred Charges$11,646$45,087▲ $33,441
Accounts Receivable$26,063$42,692▲ $16,629
Investments in Publicly Traded Securities$1,136$2,651▲ $1,515
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$2,225,185$3,084,421▲ $859,236
Other Assets Total$1,344$13,104▲ $11,760
Liabilities
Grants Payable$1,857,750$1,634,444▼ $223,306
Accounts Payable and Accrued Expenses$127,760$150,862▲ $23,102
Deferred Revenue$33,541$50,146▲ $16,605
Other Liabilities$12,394$48,100▲ $35,706
Total Liabilities$2,031,445$1,883,552▼ $147,893
Net Assets / Fund Balance
Temporarily Rstr Net Assets$240,000$1,198,042▲ $958,042
Unrestricted Net Assets$-46,260$2,827▲ $49,087
Total Net Assets Fund Balance$193,740$1,200,869▲ $1,007,129
Total Liabilities and Net Assets / Fund Balance$2,225,185$3,084,421▲ $859,236

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$9,936$9,936
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Association Development SolutionsFundraising and ConsultinFT$196,245-$196,245
Michael M Harpold PhdFormer Chief Scientific OfficerFT$147,375-$147,375
Hampus HillerstromPresident and CEOFT$90,988$7,715$98,703

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$3,261,080
Program Service Revenue
$0
Investment Income
$601
Other Revenue
$342,877
All Other Contributions
$3,250,636
Change in Net Assets
$1,007,129

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,604,558
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$3,604,558
Total Revenue per Form 990
$3,604,558
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,400,500
Salaries, Compensation, and Employee Benefits$659,925
Other Expenses$537,004
Total Fundraising Expense$361,439
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,400,500--$1,400,500
Other Salaries and Wages$401,134$68,264$74,729$544,127
Fees for Services Management--$165,000$165,000
Fees for Services Legal-$81,533-$81,533
Occupancy$63,328$6,589$5,515$75,432
Other Employee Benefits$53,107$9,040$9,894$72,041
Advertising$605$2,894$46,448$49,947
Fees for Services Other$20,155$15,965$9,182$45,302
Payroll Taxes$26,927$4,582$5,016$36,525
Travel$8,690-$16,503$25,193
Office Expenses$20,257$2,087$2,285$24,629
Conferences and Meetings$17,396-$1,765$19,161
Insurance$5,343$909$995$7,247
Pension Plan Contributions$5,327$916$989$7,232
Information Technology$4,007$682$746$5,435
Other Expenses$4,291$287$-89$4,489
Total Functional Expenses$2,040,992$194,998$361,439$2,597,429

Audited Expense Reconciliation

Line ItemAmount
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Expenses per Audited Statements$0
Total Expenses per Audited Statements$0
Total Expenses per Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Down Syndrome Clinical Trials Network Multiple Grants--To Support Down Syndrome Cognition Medical Research$825,000
Ac ImmuneFarmington, CT-To Support Down Syndrome Cognition Medical Research$200,000
University of Connecticut Health Center--To Support Down Syndrome Cognition Medical Research$120,000
University of California at San DiegoLa Jolla, CA, Sz-To Support Down Syndrome Cognition Medical Research$100,000
Stanford UniversityStanford, CA-To Support Down Syndrome Cognition Medical Research$75,000
Kings College--To Support Down Syndrome Cognition Medical Research$50,500
University of ArizonaTuscon, AZ, Uk-To Support Down Syndrome Cognition Medical Research$30,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$509,685
Fundraising Direct Expenses$167,048
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Funding Futures$196,277$196,277$85,404$110,873
Hayes Mechanical Golf$42,005$42,005-$42,005
Total Events$509,685$509,685$167,048$342,637
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Wages and Taxes Payable$43,202
Credit Card$4,898
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The organization's process to review the final form 990 is to have the board and finance committee review the final return prior to submission and then the return is signed by an authorized officer.

Form 990, Part VI, Section B, Line 12C

The process for monitoring this is by addressing activity in quarterly board meetings and ad hoc calls as needed.

Form 990, Part VI, Section B, Line 15

Compensation for key employees are approved by the board of directors and increases are approved in the budget.

Form 990, Part VI, Section C, Line 18

Form 1023 and form 990 are available upon request and available online through public non profit websites.

Form 990, Part VI, Section C, Line 19

Governing documents disclosure, conflict of interest policy and financial statements are available upon request.

Filing and Contact Details

Filer

Filer Name
Lumind Research Down Syndrome
EIN
37-1483975
Phone
7818251300
Address
20 BURLINGTON MALL ROAD NO 200, BURLINGTON, MA 01803

Signing Officer

Name
Hampus Hillerstrom
Title
President/CEO
Phone
7818251300
Signed
2019-08-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Hampus Hillerstrom
Formed
2003
Legal Domicile
CA
Voting Board Members
15
Independent Board Members
15
Employees
7
Volunteers
0

Preparer

Firm
R A HALL & CO LLC CPA'S
Address
183 STATE STREET, BOSTON, MA 02109
Preparer
Eric J Hall
Phone
6177233333
Raw XML AppendixShowing 400 of 662 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt0127760
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0150862
IRS990/AccountsReceivableGrp/BOYAmt026063
IRS990/AccountsReceivableGrp/EOYAmt042692
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME.
IRS990/AddressChangeInd0X
IRS990/AdvertisingGrp/FundraisingAmt046448
IRS990/AdvertisingGrp/ManagementAndGeneralAmt02894
IRS990/AdvertisingGrp/ProgramServicesAmt0605
IRS990/AdvertisingGrp/TotalAmt049947
IRS990/AllOtherContributionsAmt03250636
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/PersonNm0HAMPUS HILLERSTROM PRESIDENT AND C
IRS990/BooksInCareOfDetail/PhoneNum07818251300
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt020 BURLINGTON MALL ROAD SUITE 200
IRS990/BooksInCareOfDetail/USAddress/CityNm0BURLINGTON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd001803
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOfficerEntInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0250829
IRS990/CashNonInterestBearingGrp/EOYAmt0191627
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConferencesMeetingsGrp/FundraisingAmt01765
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt017396
IRS990/ConferencesMeetingsGrp/TotalAmt019161
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt03261080
IRS990/CYGrantsAndSimilarPaidAmt01400500
IRS990/CYInvestmentIncomeAmt0601
IRS990/CYOtherExpensesAmt0537004
IRS990/CYOtherRevenueAmt0342877
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt01007129
IRS990/CYSalariesCompEmpBnftPaidAmt0659925
IRS990/CYTotalExpensesAmt02597429
IRS990/CYTotalFundraisingExpenseAmt0361439
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt03604558
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/BOYAmt033541
IRS990/DeferredRevenueGrp/EOYAmt050146
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc0DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt07
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0825000
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FederatedCampaignsAmt010444
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt081533
IRS990/FeesForServicesLegalGrp/TotalAmt081533
IRS990/FeesForServicesManagementGrp/FundraisingAmt0165000
IRS990/FeesForServicesManagementGrp/TotalAmt0165000
IRS990/FeesForServicesOtherGrp/FundraisingAmt09182
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt015965
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt020155
IRS990/FeesForServicesOtherGrp/TotalAmt045302
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt05.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt640.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt101.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt111.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt121.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1340.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1440.00
IRS990/Form990PartVIISectionAGrp/FormerOfcrDirectorTrusteeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt67715
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/PersonNm0RYAN M HARTMAN
IRS990/Form990PartVIISectionAGrp/PersonNm1BJOERN SPERLING MD
IRS990/Form990PartVIISectionAGrp/PersonNm2PATRICK KANNAN
IRS990/Form990PartVIISectionAGrp/PersonNm3MICHAEL J MANNOR PHD
IRS990/Form990PartVIISectionAGrp/PersonNm4PAUL MURASKO
IRS990/Form990PartVIISectionAGrp/PersonNm5TONY HUNG
IRS990/Form990PartVIISectionAGrp/PersonNm6HAMPUS HILLERSTROM
IRS990/Form990PartVIISectionAGrp/PersonNm7HECTOR GUINNESS
IRS990/Form990PartVIISectionAGrp/PersonNm8ANULA JAYASURYA
IRS990/Form990PartVIISectionAGrp/PersonNm9ANTHONY PROVIDENTI
IRS990/Form990PartVIISectionAGrp/PersonNm10CHRISTOPHER LIS
IRS990/Form990PartVIISectionAGrp/PersonNm11JEFF W STROBEL
IRS990/Form990PartVIISectionAGrp/PersonNm12CLAUDIA MOREIRA
IRS990/Form990PartVIISectionAGrp/PersonNm13ASSOCIATION DEVELOPMENT SOLUTIONS
IRS990/Form990PartVIISectionAGrp/PersonNm14MICHAEL M HARPOLD PHD
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt690988
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt13196245
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14147375
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/TitleTxt0MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6PRESIDENT AND CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt7MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13FUNDRAISING AND CONSULTIN
IRS990/Form990PartVIISectionAGrp/TitleTxt14FORMER CHIEF SCIENTIFIC OFFICER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02003
IRS990/FormerOfcrEmployeesListedInd01
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt0167048
IRS990/FundraisingGrossIncomeAmt0509685
IRS990/GainOrLossGrp/SecuritiesAmt0-664
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantAmt0825000
IRS990/GrantsPayableGrp/BOYAmt01857750
IRS990/GrantsPayableGrp/EOYAmt01634444
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01400500
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01400500
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt03772270
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0746
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0682
IRS990/InformationTechnologyGrp/ProgramServicesAmt04007
IRS990/InformationTechnologyGrp/TotalAmt05435
IRS990/InsuranceGrp/FundraisingAmt0995
IRS990/InsuranceGrp/ManagementAndGeneralAmt0909
IRS990/InsuranceGrp/ProgramServicesAmt05343
IRS990/InsuranceGrp/TotalAmt07247
IRS990/InvestmentIncomeGrp/ExclusionAmt01265
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt01265
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt01136
IRS990/InvestmentsPubTradedSecGrp/EOYAmt02651
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt09936
IRS990/LandBldgEquipBasisNetGrp/BOYAmt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt09936
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0664
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0193740
IRS990/NetAssetsOrFundBalancesEOYAmt01200869
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-664
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-664
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0342637
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0342637
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt05515
IRS990/OccupancyGrp/ManagementAndGeneralAmt06589
IRS990/OccupancyGrp/ProgramServicesAmt063328
IRS990/OccupancyGrp/TotalAmt075432
IRS990/OfficeExpensesGrp/FundraisingAmt02285
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02087
IRS990/OfficeExpensesGrp/ProgramServicesAmt020257
IRS990/OfficeExpensesGrp/TotalAmt024629
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt01344
IRS990/OtherAssetsTotalGrp/EOYAmt013104
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt09894
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt09040
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt053107
IRS990/OtherEmployeeBenefitsGrp/TotalAmt072041
IRS990/OtherExpensesGrp/Desc0BANK FEES AND CREDIT CA
IRS990/OtherExpensesGrp/Desc1PRINTING
IRS990/OtherExpensesGrp/Desc2POSTAGE AND SHIPPING
IRS990/OtherExpensesGrp/Desc3STATE FILING FEES
IRS990/OtherExpensesGrp/FundraisingAmt012093
IRS990/OtherExpensesGrp/FundraisingAmt17137
IRS990/OtherExpensesGrp/FundraisingAmt23231
IRS990/OtherExpensesGrp/FundraisingAmt3-89
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0795
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1455
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2287
IRS990/OtherExpensesGrp/ProgramServicesAmt07
IRS990/OtherExpensesGrp/ProgramServicesAmt13949
IRS990/OtherExpensesGrp/ProgramServicesAmt25969
IRS990/OtherExpensesGrp/ProgramServicesAmt34291
IRS990/OtherExpensesGrp/TotalAmt012895
IRS990/OtherExpensesGrp/TotalAmt111086
IRS990/OtherExpensesGrp/TotalAmt29655
IRS990/OtherExpensesGrp/TotalAmt34489
IRS990/OtherLiabilitiesGrp/BOYAmt012394
IRS990/OtherLiabilitiesGrp/EOYAmt048100
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
IRS990/OtherRevenueMiscGrp/ExclusionAmt0240
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0240
IRS990/OtherRevenueTotalAmt0240
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt074729
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt068264
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0401134
IRS990/OtherSalariesAndWagesGrp/TotalAmt0544127
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05016
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04582
IRS990/PayrollTaxesGrp/ProgramServicesAmt026927
IRS990/PayrollTaxesGrp/TotalAmt036525
IRS990/PensionPlanContributionsGrp/FundraisingAmt0989
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0916
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt05327
IRS990/PensionPlanContributionsGrp/TotalAmt07232
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt01123029
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt02223042
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt011646
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt045087
IRS990/PrincipalOfficerNm0HAMPUS HILLERSTROM
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0UNIVERISTY OF CONNECTICUT - TRISOMY 21 (T21) IS THE MOST FREQUENT VIABLE ANEUPLOIDY IN HUMANS (1 IN 700 LIVE BIRTHS), AND CAUSES DOWN'S SYNDROME (DS) THROUGH INCREASED GENE DOSAGE FROM CHROMOSOME 21. DS ENCOMPASSES A RANGE OF PHENOTYPES THAT AFFECT ANATOMY, COGNITION, AS WELL AS CARDIOVASCULAR AND ENDOCRINE SYSTEMS. THE MAIN GOAL OF THIS PROJECT IS TO CREATE A DUAL-USE GENETIC RESOURCE FOR ADDRESSING FUNDAMENTAL AND TRANSLATIONAL QUESTIONS IN DOWN SYNDROME RESEARCH.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0120000
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0120000
IRS990/ProgSrvcAccomActy3Grp/Desc0OTHER GRANTS AND SUPPORT TO SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt01095992
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0455500
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01698058
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01839000
IRS990/PYInvestmentIncomeAmt01241
IRS990/PYOtherExpensesAmt0432664
IRS990/PYOtherRevenueAmt0539332
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-583168
IRS990/PYSalariesCompEmpBnftPaidAmt0550135
IRS990/PYTotalExpensesAmt02821799
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02238631
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt01007129
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0811138
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0566218
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01378038
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01420558
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01451150
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01426436
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01510791
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt07186973
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0601
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt01241
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0152
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0306
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt01793
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt04093
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt0240
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt010
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0976
IRS990ScheduleA/OtherIncome170Grp/TotalAmt01226
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99930
IRS990ScheduleA/PublicSupportPY170Pct00.99910
IRS990ScheduleA/PublicSupportTotal170Amt07186973
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01378038
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01420558
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01451150
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt01426436
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01510791
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt07186973
IRS990ScheduleA/TotalSupportAmt07192292
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt00
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt00
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt09936
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt09936
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt04898
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt143202
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CREDIT CARD
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc1WAGES AND TAXES PAYABLE
IRS990ScheduleD/RevenueNotReportedAmt00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings