Liabilities / Assets
84th percentile
Higher debt load relative to assets than 84% of similar nonprofits.
990 • Fiscal year 2018 • EIN 37-1483975
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
84th percentile
Higher debt load relative to assets than 84% of similar nonprofits.
Liabilities / Revenue
79th percentile
Higher debt load relative to revenue than 79% of similar nonprofits.
Net Margin
83rd percentile
Higher net margin than 83% of similar nonprofits.
Top Officer Pay
89th percentile
Higher top officer pay than 89% of similar nonprofits.
Top officer pay equals 5.4% of source-year revenue.
Asset Growth
89th percentile
Faster asset growth than 89% of similar nonprofits.
Revenue Growth
90th percentile
Faster revenue growth than 90% of similar nonprofits.
Assets
Up$3,084,421
Up $859,236 (+39%) from 2017
Net Assets
Up$1,200,869
Up $1,007,129 (+520%) from 2017
Liabilities
Down$1,883,552
Down $147,893 (-7.3%) from 2017
Revenue
Up$3,604,558
Up $1,365,927 (+61%) from 2017
Expenses
Down$2,597,429
Down $224,370 (-8.0%) from 2017
Net Income
Up$1,007,129
Up $1,590,297 (+273%) from 2017
To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.
To stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition for individuals with down syndrome.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Pledges and Grants Receivable | $1,123,029 | $2,223,042 | ▲ $1,100,013 |
| Savings and Temporary Cash Investments | $811,138 | $566,218 | ▼ $244,920 |
| Cash and Non-Interest-Bearing Accounts | $250,829 | $191,627 | ▼ $59,202 |
| Prepaid Expenses and Deferred Charges | $11,646 | $45,087 | ▲ $33,441 |
| Accounts Receivable | $26,063 | $42,692 | ▲ $16,629 |
| Investments in Publicly Traded Securities | $1,136 | $2,651 | ▲ $1,515 |
| Land, Buildings, and Equipment, Net | $0 | $0 | → $0 |
| Total Assets | $2,225,185 | $3,084,421 | ▲ $859,236 |
| Other Assets Total | $1,344 | $13,104 | ▲ $11,760 |
| Liabilities | |||
| Grants Payable | $1,857,750 | $1,634,444 | ▼ $223,306 |
| Accounts Payable and Accrued Expenses | $127,760 | $150,862 | ▲ $23,102 |
| Deferred Revenue | $33,541 | $50,146 | ▲ $16,605 |
| Other Liabilities | $12,394 | $48,100 | ▲ $35,706 |
| Total Liabilities | $2,031,445 | $1,883,552 | ▼ $147,893 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $240,000 | $1,198,042 | ▲ $958,042 |
| Unrestricted Net Assets | $-46,260 | $2,827 | ▲ $49,087 |
| Total Net Assets Fund Balance | $193,740 | $1,200,869 | ▲ $1,007,129 |
| Total Liabilities and Net Assets / Fund Balance | $2,225,185 | $3,084,421 | ▲ $859,236 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $0 | $9,936 | $9,936 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Association Development Solutions | Fundraising and Consultin | FT | $196,245 | - | $196,245 |
| Michael M Harpold Phd | Former Chief Scientific Officer | FT | $147,375 | - | $147,375 |
| Hampus Hillerstrom | President and CEO | FT | $90,988 | $7,715 | $98,703 |
| Name | Title |
|---|---|
| Bjoern Sperling Md | Board Chair |
| Michael J Mannor Phd | Board Vice Chair |
| Patrick Kannan | Board Member Treasurer |
| Anthony Providenti | Member |
| Anula Jayasurya | Member |
| Christopher Lis | Member |
| Claudia Moreira | Member |
| Hector Guinness | Member |
| Jeff W Strobel | Member |
| Paul Murasko | Member |
| Ryan M Hartman | Member |
| Tony Hung | Member |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $1,400,500 |
| Salaries, Compensation, and Employee Benefits | $659,925 |
| Other Expenses | $537,004 |
| Total Fundraising Expense | $361,439 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $1,400,500 | - | - | $1,400,500 |
| Other Salaries and Wages | $401,134 | $68,264 | $74,729 | $544,127 |
| Fees for Services Management | - | - | $165,000 | $165,000 |
| Fees for Services Legal | - | $81,533 | - | $81,533 |
| Occupancy | $63,328 | $6,589 | $5,515 | $75,432 |
| Other Employee Benefits | $53,107 | $9,040 | $9,894 | $72,041 |
| Advertising | $605 | $2,894 | $46,448 | $49,947 |
| Fees for Services Other | $20,155 | $15,965 | $9,182 | $45,302 |
| Payroll Taxes | $26,927 | $4,582 | $5,016 | $36,525 |
| Travel | $8,690 | - | $16,503 | $25,193 |
| Office Expenses | $20,257 | $2,087 | $2,285 | $24,629 |
| Conferences and Meetings | $17,396 | - | $1,765 | $19,161 |
| Insurance | $5,343 | $909 | $995 | $7,247 |
| Pension Plan Contributions | $5,327 | $916 | $989 | $7,232 |
| Information Technology | $4,007 | $682 | $746 | $5,435 |
| Other Expenses | $4,291 | $287 | $-89 | $4,489 |
| Total Functional Expenses | $2,040,992 | $194,998 | $361,439 | $2,597,429 |
| Line Item | Amount |
|---|---|
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Expenses per Audited Statements | $0 |
| Total Expenses per Audited Statements | $0 |
| Total Expenses per Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Down Syndrome Clinical Trials Network Multiple Grants | - | - | To Support Down Syndrome Cognition Medical Research | $825,000 |
| Ac Immune | Farmington, CT | - | To Support Down Syndrome Cognition Medical Research | $200,000 |
| University of Connecticut Health Center | - | - | To Support Down Syndrome Cognition Medical Research | $120,000 |
| University of California at San Diego | La Jolla, CA, Sz | - | To Support Down Syndrome Cognition Medical Research | $100,000 |
| Stanford University | Stanford, CA | - | To Support Down Syndrome Cognition Medical Research | $75,000 |
| Kings College | - | - | To Support Down Syndrome Cognition Medical Research | $50,500 |
| University of Arizona | Tuscon, AZ, Uk | - | To Support Down Syndrome Cognition Medical Research | $30,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $509,685 |
| Fundraising Direct Expenses | $167,048 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Funding Futures | $196,277 | $196,277 | $85,404 | $110,873 |
| Hayes Mechanical Golf | $42,005 | $42,005 | - | $42,005 |
| Total Events | $509,685 | $509,685 | $167,048 | $342,637 |
| Liability | Amount |
|---|---|
| Wages and Taxes Payable | $43,202 |
| Credit Card | $4,898 |
“The organization's process to review the final form 990 is to have the board and finance committee review the final return prior to submission and then the return is signed by an authorized officer.”
“The process for monitoring this is by addressing activity in quarterly board meetings and ad hoc calls as needed.”
“Compensation for key employees are approved by the board of directors and increases are approved in the budget.”
“Form 1023 and form 990 are available upon request and available online through public non profit websites.”
“Governing documents disclosure, conflict of interest policy and financial statements are available upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 127760 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 150862 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 26063 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 42692 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 46448 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 2894 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 605 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 49947 |
| IRS990/AllOtherContributionsAmt | 0 | 3250636 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | HAMPUS HILLERSTROM PRESIDENT AND C |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7818251300 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 20 BURLINGTON MALL ROAD SUITE 200 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BURLINGTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 01803 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 250829 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 191627 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 1765 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 17396 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 19161 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 3261080 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1400500 |
| IRS990/CYInvestmentIncomeAmt | 0 | 601 |
| IRS990/CYOtherExpensesAmt | 0 | 537004 |
| IRS990/CYOtherRevenueAmt | 0 | 342877 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 1007129 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 659925 |
| IRS990/CYTotalExpensesAmt | 0 | 2597429 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 361439 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 3604558 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 33541 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 50146 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 825000 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 10444 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 81533 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 81533 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 165000 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 165000 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 9182 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 15965 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 20155 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 45302 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/FormerOfcrDirectorTrusteeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 7715 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | RYAN M HARTMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | BJOERN SPERLING MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | PATRICK KANNAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | MICHAEL J MANNOR PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | PAUL MURASKO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | TONY HUNG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | HAMPUS HILLERSTROM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | HECTOR GUINNESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | ANULA JAYASURYA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ANTHONY PROVIDENTI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | CHRISTOPHER LIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JEFF W STROBEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | CLAUDIA MOREIRA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | ASSOCIATION DEVELOPMENT SOLUTIONS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | MICHAEL M HARPOLD PHD |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 90988 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 196245 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 147375 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD MEMBER TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | BOARD VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | PRESIDENT AND CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | FUNDRAISING AND CONSULTIN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | FORMER CHIEF SCIENTIFIC OFFICER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2003 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 1 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 167048 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 509685 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | -664 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 15 |
| IRS990/GrantAmt | 0 | 825000 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 1857750 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 1634444 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 1400500 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 1400500 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 3772270 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 15 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 746 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 682 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 4007 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 5435 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 995 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 909 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 5343 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 7247 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 1265 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1265 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 1136 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 2651 |
| IRS990/IRPDocumentCnt | 0 | 7 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 9936 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 9936 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 664 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 193740 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1200869 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | -664 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -664 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 342637 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 342637 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 5515 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 6589 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 63328 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 75432 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 2285 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 2087 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 20257 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 24629 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 1344 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 13104 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 9894 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 9040 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 53107 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 72041 |
| IRS990/OtherExpensesGrp/Desc | 0 | BANK FEES AND CREDIT CA |
| IRS990/OtherExpensesGrp/Desc | 1 | PRINTING |
| IRS990/OtherExpensesGrp/Desc | 2 | POSTAGE AND SHIPPING |
| IRS990/OtherExpensesGrp/Desc | 3 | STATE FILING FEES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 12093 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 7137 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 3231 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | -89 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 795 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 455 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 287 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 7 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 3949 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 5969 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 4291 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 12895 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 11086 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 9655 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 4489 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 12394 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 48100 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | OTHER INCOME |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 240 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 240 |
| IRS990/OtherRevenueTotalAmt | 0 | 240 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 74729 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 68264 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 401134 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 544127 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 5016 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 4582 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 26927 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 36525 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 989 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 916 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 5327 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 7232 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 1123029 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 2223042 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 11646 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 45087 |
| IRS990/PrincipalOfficerNm | 0 | HAMPUS HILLERSTROM |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | UNIVERISTY OF CONNECTICUT - TRISOMY 21 (T21) IS THE MOST FREQUENT VIABLE ANEUPLOIDY IN HUMANS (1 IN 700 LIVE BIRTHS), AND CAUSES DOWN'S SYNDROME (DS) THROUGH INCREASED GENE DOSAGE FROM CHROMOSOME 21. DS ENCOMPASSES A RANGE OF PHENOTYPES THAT AFFECT ANATOMY, COGNITION, AS WELL AS CARDIOVASCULAR AND ENDOCRINE SYSTEMS. THE MAIN GOAL OF THIS PROJECT IS TO CREATE A DUAL-USE GENETIC RESOURCE FOR ADDRESSING FUNDAMENTAL AND TRANSLATIONAL QUESTIONS IN DOWN SYNDROME RESEARCH. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 120000 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 120000 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | OTHER GRANTS AND SUPPORT TO SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 1095992 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 455500 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 1698058 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 1839000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1241 |
| IRS990/PYOtherExpensesAmt | 0 | 432664 |
| IRS990/PYOtherRevenueAmt | 0 | 539332 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -583168 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 550135 |
| IRS990/PYTotalExpensesAmt | 0 | 2821799 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 2238631 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 1007129 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 811138 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 566218 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1378038 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1420558 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1451150 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1426436 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1510791 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 7186973 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 601 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1241 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 152 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 306 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1793 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 4093 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 240 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 10 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 976 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 1226 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99930 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.99910 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 7186973 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1378038 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1420558 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1451150 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1426436 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1510791 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 7186973 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 7192292 |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 0 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 0 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 9936 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 9936 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 4898 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 1 | 43202 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | CREDIT CARD |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 1 | WAGES AND TAXES PAYABLE |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 0 |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.