Civic Intelligence

Lumind Research Down Syndrome

990 • Fiscal year 2017 • EIN 37-1483975

Oct 01, 2016 to Sep 30, 2017 • Filed on Jun 26, 2018

225 Cedar Hill Street No 200Marlborough, MA 01752

(508) 630-2177

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

90th percentile

0.91x

Higher debt load relative to assets than 90% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

84th percentile

0.91x

Higher debt load relative to revenue than 84% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

11th percentile

-26%

Higher net margin than 11% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

88th percentile

$185,452

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 8.3% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

34th percentile

-1.0%

Faster asset growth than 34% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

19th percentile

-11%

Faster revenue growth than 19% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Assets

Down

$2,225,185

Down $22,599 (-1.0%) from 2016

Net Assets

Down

$193,740

Down $583,168 (-75%) from 2016

Liabilities

Up

$2,031,445

Up $560,569 (+38%) from 2016

Revenue

Down

$2,238,631

Down $271,045 (-11%) from 2016

Expenses

Up

$2,821,799

Up $236,913 (+9.2%) from 2016

Net Income

Down

-$583,168

Down $507,958 (-675%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2013: $1,469,558Liabilities 2013: $943,264Net Assets 2013: $526,2942013Assets 2016: $2,247,784Liabilities 2016: $1,470,876Net Assets 2016: $776,9082016Assets 2017: $2,225,185Liabilities 2017: $2,031,445Net Assets 2017: $193,7402017Assets 2018: $3,084,421Liabilities 2018: $1,883,552Net Assets 2018: $1,200,8692018Assets 2019: $3,828,926Liabilities 2019: $2,280,809Net Assets 2019: $1,548,1172019Assets 2020: $2,462,353Liabilities 2020: $1,621,197Net Assets 2020: $841,1562020Assets 2021: $4,487,214Liabilities 2021: $1,746,769Net Assets 2021: $2,740,4452021Assets 2022: $2,166,575Liabilities 2022: $720,107Net Assets 2022: $1,446,4682022Assets 2024: $848,403Liabilities 2024: $174,292Net Assets 2024: $674,1112024

Highlighted filing

2017

Assets$2,225,185
Liabilities$2,031,445
Net Assets$193,740

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2013: $1,757,3672013Revenue 2016: $2,509,676Expenses 2016: $2,584,886Net Income 2016: -$75,2102016Revenue 2017: $2,238,631Expenses 2017: $2,821,799Net Income 2017: -$583,1682017Revenue 2018: $3,604,558Expenses 2018: $2,597,429Net Income 2018: $1,007,1292018Revenue 2019: $3,832,527Expenses 2019: $3,485,278Net Income 2019: $347,2492019Revenue 2020: $1,863,831Expenses 2020: $2,570,792Net Income 2020: -$706,9612020Revenue 2021: $5,267,215Expenses 2021: $3,367,926Net Income 2021: $1,899,2892021Revenue 2022: $2,742,364Expenses 2022: $4,726,857Net Income 2022: -$1,984,4932022Revenue 2024: $4,039,327Expenses 2024: $3,991,706Net Income 2024: $47,6212024

Highlighted filing

2017

Revenue$2,238,631
Expenses$2,821,799
Net Income-$583,168
Jump To
Filing Snapshot
Filing Period
Oct 1, 2016 to Sep 30, 2017
Signed
Jun 26, 2018
Return Version
2016v3.0
Gross Receipts
$2,457,095
Mission and Program Overview

Mission

To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.

To stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition for individuals with down syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$298,855$1,123,029▲ $824,174
Savings and Temporary Cash Investments$1,601,397$811,138▼ $790,259
Cash and Non-Interest-Bearing Accounts$249,122$250,829▲ $1,707
Accounts Receivable$32,762$26,063▼ $6,699
Prepaid Expenses and Deferred Charges$56,845$11,646▼ $45,199
Investments in Publicly Traded Securities-$1,136-
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$2,247,784$2,225,185▼ $22,599
Other Assets Total$8,803$1,344▼ $7,459
Liabilities
Grants Payable$1,323,750$1,857,750▲ $534,000
Accounts Payable and Accrued Expenses$48,092$127,760▲ $79,668
Deferred Revenue$42,554$33,541▼ $9,013
Other Liabilities$56,480$12,394▼ $44,086
Total Liabilities$1,470,876$2,031,445▲ $560,569
Net Assets / Fund Balance
Temporarily Rstr Net Assets$25,000$240,000▲ $215,000
Unrestricted Net Assets$751,908$-46,260▼ $798,168
Total Net Assets Fund Balance$776,908$193,740▼ $583,168
Total Liabilities and Net Assets / Fund Balance$2,247,784$2,225,185▼ $22,599

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$9,936$9,936
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Michael M Harpold PhdChief Scientific OfficerFT$185,452$185,452
Carolyn CroninFormer Executive DirectorFT$130,789$130,789

Board Members and Trustees

NameTitle
Virginia Bennett FlynnAudit Committee Chair
Ryan M HartmanBoard Chair and President
Paul MuraskoMember, Marketing Chair
Patrick KannanTreasurer, Finance Chair
Hampus HillerstromPresident and CEO
Amy AllisonMember
Bjoern Sperling MdMember
Christopher LisMember
Hector GuinnessMember
Sarah WernikoffMember at Large
Michael J Mannor PhdSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$1,698,058
Program Service Revenue
$0
Investment Income
$1,241
Other Revenue
$539,332
Change in Net Assets
$-583,168

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,238,631
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$2,238,631
Total Revenue per Form 990
$2,238,631
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,839,000
Salaries, Compensation, and Employee Benefits$550,135
Other Expenses$432,664
Total Fundraising Expense$317,970
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,839,000--$1,839,000
Other Salaries and Wages$330,377$129,890$40,211$500,478
Fees for Services Management--$196,674$196,674
Travel$35,109-$15,768$50,877
Payroll Taxes$29,139$10,939$3,268$43,346
Advertising$11,519$121$30,331$41,971
Occupancy$23,884$3,274$2,714$29,872
Fees for Services Accounting$16,940$6,360$1,900$25,200
Conferences and Meetings$15,296$-149$7,501$22,648
Fees for Services Other$6,081$2,283$682$9,046
Office Expenses$4,075$3,105$924$8,104
Information Technology$4,910$1,531$458$6,899
Fees for Services Legal$4,635-$1,710$6,345
Other Employee Benefits$3,950$829$680$5,459
Insurance$3,260$1,224$366$4,850
Other Expenses$2,429$0$2,260$4,689
Pension Plan Contributions$573$215$64$852
Total Functional Expenses$2,340,199$163,630$317,970$2,821,799

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,821,799
Total Expenses per Audited Statements$2,821,799
Total Expenses per Form 990$2,821,799
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Emory UniversityFarmington, CT-To Support Down Syndrome Cognition Medical Research$300,000
University of Connecticut Health CenterNashville, TN-To Support Down Syndrome Cognition Medical Research$269,000
Massachusetts Institute of TechnologyCambridge, MA-To Support Down Syndrome Cognition Medical Research$220,000
University of ArizonaTuscon, AZ-To Support Down Syndrome Cognition Medical Research$215,000
Ac ImmuneAtlanta, GA-To Support Down Syndrome Cognition Medical Research$200,000
Stanford UniversityStanford, CA-To Support Down Syndrome Cognition Medical Research$160,000
Key Opinion Leader Meetings--To Support Down Syndrome Cognition Medical Research$150,000
Johns Hopkins UniversityBaltimore, MD, Sz-To Support Down Syndrome Cognition Medical Research$125,000
Vanderbilt UniversityMarlborough, MA-To Support Down Syndrome Cognition Medical Research$125,000
University of California at San DiegoLa Jolla, CA-To Support Down Syndrome Cognition Medical Research$75,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$757,629
Fundraising Direct Expenses$218,307
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Hayes Mechanical Golf$273,044$273,044$81,454$191,590
Funding Futures$103,668$103,668$20,679$82,989
Total Events$757,629$757,629$218,307$539,322
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Wages and Taxes Payable$12,493
Credit Card$-99
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The organization's process to review the final form 990 is to have the board and finance committee review the final return prior to submission and then the return is signed by an authorized officer.

Form 990, Part VI, Section B, Line 12C

The process for monitoring this is by addressing activity in monthly board meetings.

Form 990, Part VI, Section B, Line 15

Compensation for key employees are approved by the board of directors and increases are approved in the budget.

Form 990, Part VI, Section C, Line 18

Form 1023 and form 990 are available upon request and available online through public non profit websites.

Form 990, Part VI, Section C, Line 19

Governing documents disclosure, conflict of interest policy and financial statements are available upon request.

Filing and Contact Details

Filer

Filer Name
Lumind Research Down Syndrome
EIN
37-1483975
Phone
5086302177
Address
225 CEDAR HILL STREET NO 200, MARLBOROUGH, MA 01752

Signing Officer

Name
Hampus Hillerstrom
Title
President/CEO
Phone
5086302177
Signed
2018-06-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Hampus Hillerstrom
Formed
2003
Legal Domicile
CA
Voting Board Members
9
Independent Board Members
9
Employees
7
Volunteers
0

Preparer

Firm
R A HALL & CO LLC CPA'S
Address
183 STATE STREET, BOSTON, MA 02109
Preparer
Eric J Hall
Phone
6177233333
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

The organization has an audit committee to oversee and review the audit and form 990 prior to submission. The process has not been changed in current year.

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IRS990/MembersOrStockholdersInd00
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IRS990/MissionDesc0TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME.
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IRS990/OtherExpensesGrp/Desc1STATE FILING FEES
IRS990/OtherExpensesGrp/Desc2POSTAGE AND SHIPPING
IRS990/OtherExpensesGrp/Desc3PRINTING
IRS990/OtherExpensesGrp/FundraisingAmt010621
IRS990/OtherExpensesGrp/FundraisingAmt1965
IRS990/OtherExpensesGrp/FundraisingAmt2873
IRS990/OtherExpensesGrp/FundraisingAmt32260
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IRS990/PayrollTaxesGrp/FundraisingAmt03268
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IRS990/PayrollTaxesGrp/TotalAmt043346
IRS990/PensionPlanContributionsGrp/FundraisingAmt064
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IRS990/PrincipalOfficerNm0HAMPUS HILLERSTROM
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IRS990/ProgSrvcAccomActy2Grp/Desc0UNIVERISTY OF CONNECTICUT - TRISOMY 21 (T21) IS THE MOST FREQUENT VIABLE ANEUPLOIDY IN HUMANS (1 IN 700 LIVE BIRTHS), AND CAUSES DOWN'S SYNDROME (DS) THROUGH INCREASED GENE DOSAGE FROM CHROMOSOME 21. DS ENCOMPASSES A RANGE OF PHENOTYPES THAT AFFECT ANATOMY, COGNITION, AS WELL AS CARDIOVASCULAR AND ENDOCRINE SYSTEMS. THE MAIN GOAL OF THIS PROJECT IS TO CREATE A DUAL-USE GENETIC RESOURCE FOR ADDRESSING FUNDAMENTAL AND TRANSLATIONAL QUESTIONS IN DOWN SYNDROME RESEARCH.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0269000
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IRS990/ProgSrvcAccomActy3Grp/Desc0MASSACHUSETTS INSTITUTE OF TECHNOLOGY - EXPANSION OF IT'S COMMITMENT TO DOWN SYNDROME STUDIES WILL HELP PROVIDE FUNDS TO CREATE A GENERATION OF MIT RESEARCHERS TRAINED TO WORK IN THE FIELDS OF DS AND CUTTING-EDGE NEUROSCIENCE TECHNIQUES, WHILE EXPANDING A NEW RESEARCH AREA AT MIT, AND BUILDING A COLLABORATIVE APPROACH THAT WILL ENCOURAGE GREATER AWARENESS AND INVOLVEMENT WITH DS RESEARCH BY FACULTY AT MIT AND WITH OTHER LEADING RESEARCH INSTITUTIONS.
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