Liabilities / Assets
90th percentile
Higher debt load relative to assets than 90% of similar nonprofits.
990 • Fiscal year 2017 • EIN 37-1483975
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
90th percentile
Higher debt load relative to assets than 90% of similar nonprofits.
Liabilities / Revenue
84th percentile
Higher debt load relative to revenue than 84% of similar nonprofits.
Net Margin
11th percentile
Higher net margin than 11% of similar nonprofits.
Top Officer Pay
88th percentile
Higher top officer pay than 88% of similar nonprofits.
Top officer pay equals 8.3% of source-year revenue.
Asset Growth
34th percentile
Faster asset growth than 34% of similar nonprofits.
Revenue Growth
19th percentile
Faster revenue growth than 19% of similar nonprofits.
Assets
Down$2,225,185
Down $22,599 (-1.0%) from 2016
Net Assets
Down$193,740
Down $583,168 (-75%) from 2016
Liabilities
Up$2,031,445
Up $560,569 (+38%) from 2016
Revenue
Down$2,238,631
Down $271,045 (-11%) from 2016
Expenses
Up$2,821,799
Up $236,913 (+9.2%) from 2016
Net Income
Down-$583,168
Down $507,958 (-675%) from 2016
To accelerate the research that will increase the availability of therapeutic, diagnostic and medical care options to improve health and independence for people with down syndrome and to empower families through education, connections and support.
To stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition for individuals with down syndrome.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Pledges and Grants Receivable | $298,855 | $1,123,029 | ▲ $824,174 |
| Savings and Temporary Cash Investments | $1,601,397 | $811,138 | ▼ $790,259 |
| Cash and Non-Interest-Bearing Accounts | $249,122 | $250,829 | ▲ $1,707 |
| Accounts Receivable | $32,762 | $26,063 | ▼ $6,699 |
| Prepaid Expenses and Deferred Charges | $56,845 | $11,646 | ▼ $45,199 |
| Investments in Publicly Traded Securities | - | $1,136 | - |
| Land, Buildings, and Equipment, Net | $0 | $0 | → $0 |
| Total Assets | $2,247,784 | $2,225,185 | ▼ $22,599 |
| Other Assets Total | $8,803 | $1,344 | ▼ $7,459 |
| Liabilities | |||
| Grants Payable | $1,323,750 | $1,857,750 | ▲ $534,000 |
| Accounts Payable and Accrued Expenses | $48,092 | $127,760 | ▲ $79,668 |
| Deferred Revenue | $42,554 | $33,541 | ▼ $9,013 |
| Other Liabilities | $56,480 | $12,394 | ▼ $44,086 |
| Total Liabilities | $1,470,876 | $2,031,445 | ▲ $560,569 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $25,000 | $240,000 | ▲ $215,000 |
| Unrestricted Net Assets | $751,908 | $-46,260 | ▼ $798,168 |
| Total Net Assets Fund Balance | $776,908 | $193,740 | ▼ $583,168 |
| Total Liabilities and Net Assets / Fund Balance | $2,247,784 | $2,225,185 | ▼ $22,599 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $0 | $9,936 | $9,936 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Michael M Harpold Phd | Chief Scientific Officer | FT | $185,452 | $185,452 |
| Carolyn Cronin | Former Executive Director | FT | $130,789 | $130,789 |
| Name | Title |
|---|---|
| Virginia Bennett Flynn | Audit Committee Chair |
| Ryan M Hartman | Board Chair and President |
| Paul Murasko | Member, Marketing Chair |
| Patrick Kannan | Treasurer, Finance Chair |
| Hampus Hillerstrom | President and CEO |
| Amy Allison | Member |
| Bjoern Sperling Md | Member |
| Christopher Lis | Member |
| Hector Guinness | Member |
| Sarah Wernikoff | Member at Large |
| Michael J Mannor Phd | Secretary |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $1,839,000 |
| Salaries, Compensation, and Employee Benefits | $550,135 |
| Other Expenses | $432,664 |
| Total Fundraising Expense | $317,970 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $1,839,000 | - | - | $1,839,000 |
| Other Salaries and Wages | $330,377 | $129,890 | $40,211 | $500,478 |
| Fees for Services Management | - | - | $196,674 | $196,674 |
| Travel | $35,109 | - | $15,768 | $50,877 |
| Payroll Taxes | $29,139 | $10,939 | $3,268 | $43,346 |
| Advertising | $11,519 | $121 | $30,331 | $41,971 |
| Occupancy | $23,884 | $3,274 | $2,714 | $29,872 |
| Fees for Services Accounting | $16,940 | $6,360 | $1,900 | $25,200 |
| Conferences and Meetings | $15,296 | $-149 | $7,501 | $22,648 |
| Fees for Services Other | $6,081 | $2,283 | $682 | $9,046 |
| Office Expenses | $4,075 | $3,105 | $924 | $8,104 |
| Information Technology | $4,910 | $1,531 | $458 | $6,899 |
| Fees for Services Legal | $4,635 | - | $1,710 | $6,345 |
| Other Employee Benefits | $3,950 | $829 | $680 | $5,459 |
| Insurance | $3,260 | $1,224 | $366 | $4,850 |
| Other Expenses | $2,429 | $0 | $2,260 | $4,689 |
| Pension Plan Contributions | $573 | $215 | $64 | $852 |
| Total Functional Expenses | $2,340,199 | $163,630 | $317,970 | $2,821,799 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $2,821,799 |
| Total Expenses per Audited Statements | $2,821,799 |
| Total Expenses per Form 990 | $2,821,799 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Emory University | Farmington, CT | - | To Support Down Syndrome Cognition Medical Research | $300,000 |
| University of Connecticut Health Center | Nashville, TN | - | To Support Down Syndrome Cognition Medical Research | $269,000 |
| Massachusetts Institute of Technology | Cambridge, MA | - | To Support Down Syndrome Cognition Medical Research | $220,000 |
| University of Arizona | Tuscon, AZ | - | To Support Down Syndrome Cognition Medical Research | $215,000 |
| Ac Immune | Atlanta, GA | - | To Support Down Syndrome Cognition Medical Research | $200,000 |
| Stanford University | Stanford, CA | - | To Support Down Syndrome Cognition Medical Research | $160,000 |
| Key Opinion Leader Meetings | - | - | To Support Down Syndrome Cognition Medical Research | $150,000 |
| Johns Hopkins University | Baltimore, MD, Sz | - | To Support Down Syndrome Cognition Medical Research | $125,000 |
| Vanderbilt University | Marlborough, MA | - | To Support Down Syndrome Cognition Medical Research | $125,000 |
| University of California at San Diego | La Jolla, CA | - | To Support Down Syndrome Cognition Medical Research | $75,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $757,629 |
| Fundraising Direct Expenses | $218,307 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Hayes Mechanical Golf | $273,044 | $273,044 | $81,454 | $191,590 |
| Funding Futures | $103,668 | $103,668 | $20,679 | $82,989 |
| Total Events | $757,629 | $757,629 | $218,307 | $539,322 |
| Liability | Amount |
|---|---|
| Wages and Taxes Payable | $12,493 |
| Credit Card | $-99 |
“The organization's process to review the final form 990 is to have the board and finance committee review the final return prior to submission and then the return is signed by an authorized officer.”
“The process for monitoring this is by addressing activity in monthly board meetings.”
“Compensation for key employees are approved by the board of directors and increases are approved in the budget.”
“Form 1023 and form 990 are available upon request and available online through public non profit websites.”
“Governing documents disclosure, conflict of interest policy and financial statements are available upon request.”
“The organization has an audit committee to oversee and review the audit and form 990 prior to submission. The process has not been changed in current year.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 48092 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 127760 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 32762 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 26063 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 30331 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 121 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 11519 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 41971 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | HAMPUS HILLERSTROM PRESIDENT AND C |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 5086302177 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 225 CEDAR HILL STREET SUITE 200 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | MARLBOROUGH |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 01752 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 249122 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 250829 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 7501 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | -149 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 15296 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 22648 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1698058 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1839000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1241 |
| IRS990/CYOtherExpensesAmt | 0 | 432664 |
| IRS990/CYOtherRevenueAmt | 0 | 539332 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -583168 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 550135 |
| IRS990/CYTotalExpensesAmt | 0 | 2821799 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 317970 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2238631 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 42554 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 33541 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | EMORY UNIVERSITY SCHOOL OF MEDICINE -- CONTINUATION AND EXPANSION OF THE DOWN SYNDROME COGNITION PROJECT (DSCP) WILL SIGNIFICANTLY INCREASE RECRUITMENT OF INDIVIDUALS WITH DS TO DETERMINE AND DOCUMENT VARIABILITY OF COGNITIVE FUNCTION IN DS ASSOCIATED WITH DEVELOPMENTAL ID AS WELL AS CORRELATIONS WITH CO-OCCURRING MEDICAL CONDITIONS AND IDENTIFY GENETIC FACTORS ASSOCIATED WITH THE VARIABILITY AND CORRELATIONS CRITICAL FOR NEW THERAPEUTIC DEVELOPMENT. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 300000 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 1698058 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 1900 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 6360 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 16940 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 25200 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 1710 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 4635 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 6345 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 196674 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 196674 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 682 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 2283 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 6081 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 9046 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/FormerOfcrDirectorTrusteeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | RYAN M HARTMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | BJOERN SPERLING MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | PATRICK KANNAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | MICHAEL J MANNOR PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | AMY ALLISON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | HAMPUS HILLERSTROM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | HECTOR GUINNESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | SARAH WERNIKOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | PAUL MURASKO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | CHRISTOPHER LIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | VIRGINIA BENNETT FLYNN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | MICHAEL M HARPOLD PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | CAROLYN CRONIN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 185452 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 130789 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | BOARD CHAIR AND PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER, FINANCE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | PRESIDENT AND CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | MEMBER AT LARGE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | MEMBER, MARKETING CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | AUDIT COMMITTEE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | CHIEF SCIENTIFIC OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | FORMER EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2003 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 1 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 218307 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 757629 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | -157 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GrantAmt | 0 | 300000 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 1323750 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 1857750 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 1839000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 1839000 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 2457095 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 458 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1531 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 4910 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 6899 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 366 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1224 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 3260 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 4850 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 1398 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1398 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1136 |
| IRS990/IRPDocumentCnt | 0 | 7 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 9936 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 9936 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 157 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 776908 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 193740 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | -157 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -157 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 539322 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 539322 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 2714 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 3274 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 23884 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 29872 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 924 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 3105 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 4075 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 8104 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 8803 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 1344 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 680 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 829 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 3950 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 5459 |
| IRS990/OtherExpensesGrp/Desc | 0 | BANK FEES AND CREDIT CA |
| IRS990/OtherExpensesGrp/Desc | 1 | STATE FILING FEES |
| IRS990/OtherExpensesGrp/Desc | 2 | POSTAGE AND SHIPPING |
| IRS990/OtherExpensesGrp/Desc | 3 | PRINTING |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 10621 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 965 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 873 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 2260 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1038 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 2011 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 959 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 5432 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 3590 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 2429 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 11659 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 8408 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 5422 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 4689 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 56480 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 12394 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | OTHER INCOME |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 10 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 10 |
| IRS990/OtherRevenueTotalAmt | 0 | 10 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 40211 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 129890 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 330377 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 500478 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3268 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 10939 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 29139 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 43346 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 64 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 215 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 573 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 852 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 298855 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 1123029 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 56845 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 11646 |
| IRS990/PrincipalOfficerNm | 0 | HAMPUS HILLERSTROM |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | UNIVERISTY OF CONNECTICUT - TRISOMY 21 (T21) IS THE MOST FREQUENT VIABLE ANEUPLOIDY IN HUMANS (1 IN 700 LIVE BIRTHS), AND CAUSES DOWN'S SYNDROME (DS) THROUGH INCREASED GENE DOSAGE FROM CHROMOSOME 21. DS ENCOMPASSES A RANGE OF PHENOTYPES THAT AFFECT ANATOMY, COGNITION, AS WELL AS CARDIOVASCULAR AND ENDOCRINE SYSTEMS. THE MAIN GOAL OF THIS PROJECT IS TO CREATE A DUAL-USE GENETIC RESOURCE FOR ADDRESSING FUNDAMENTAL AND TRANSLATIONAL QUESTIONS IN DOWN SYNDROME RESEARCH. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 269000 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 269000 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | MASSACHUSETTS INSTITUTE OF TECHNOLOGY - EXPANSION OF IT'S COMMITMENT TO DOWN SYNDROME STUDIES WILL HELP PROVIDE FUNDS TO CREATE A GENERATION OF MIT RESEARCHERS TRAINED TO WORK IN THE FIELDS OF DS AND CUTTING-EDGE NEUROSCIENCE TECHNIQUES, WHILE EXPANDING A NEW RESEARCH AREA AT MIT, AND BUILDING A COLLABORATIVE APPROACH THAT WILL ENCOURAGE GREATER AWARENESS AND INVOLVEMENT WITH DS RESEARCH BY FACULTY AT MIT AND WITH OTHER LEADING RESEARCH INSTITUTIONS. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 220000 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 220000 |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 1551199 |
| IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt | 0 | 1050000 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 1576150 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 1615000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 153 |
| IRS990/PYOtherExpensesAmt | 0 | 349110 |
| IRS990/PYOtherRevenueAmt | 0 | 933373 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -75210 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 620776 |
| IRS990/PYTotalExpensesAmt | 0 | 2584886 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 2509676 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -583168 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 1601397 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 811138 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1420558 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1451150 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1426436 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1510791 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1539394 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 7348329 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 1241 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 152 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 306 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1793 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1293 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 4785 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 10 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 976 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1036 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 2022 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.99910 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.99890 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 7348329 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1420558 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1451150 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1426436 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1510791 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1539394 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 7348329 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 7355136 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 2821799 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 0 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 9936 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 9936 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 12493 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 1 | -99 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | WAGES AND TAXES PAYABLE |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 1 | CREDIT CARD |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 0 |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.