Civic Intelligence

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd

990 • Fiscal year 2019 • EIN 36-2916466

Jan 01, 2019 to Dec 31, 2019 • Filed on Jun 16, 2020

5550 West Touhy Ave No 302Skokie, IL 60077-3254

(847) 679-3311

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

74th percentile

0.34x

Higher debt load relative to assets than 74% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

67th percentile

0.23x

Higher debt load relative to revenue than 67% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

30th percentile

-3.4%

Higher net margin than 30% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

89th percentile

$190,000

Higher top officer pay than 89% of similar nonprofits.

Top officer pay equals 5.2% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

11th percentile

-11%

Faster asset growth than 11% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

72nd percentile

18%

Faster revenue growth than 72% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Assets

Down

$2,454,778

Down $290,918 (-11%) from 2018

Net Assets

Down

$1,627,151

Down $123,333 (-7.0%) from 2018

Liabilities

Down

$827,627

Down $167,585 (-17%) from 2018

Revenue

Up

$3,673,033

Up $558,581 (+18%) from 2018

Expenses

Up

$3,796,366

Up $1,197,884 (+46%) from 2018

Net Income

Down

-$123,333

Down $639,303 (-124%) from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2015: $3,027,507Liabilities 2015: $1,384,922Net Assets 2015: $1,642,5852015Assets 2016: $2,510,840Liabilities 2016: $1,199,125Net Assets 2016: $1,311,7152016Assets 2017: $2,310,150Liabilities 2017: $1,075,636Net Assets 2017: $1,234,5142017Assets 2018: $2,745,696Liabilities 2018: $995,212Net Assets 2018: $1,750,4842018Assets 2019: $2,454,778Liabilities 2019: $827,627Net Assets 2019: $1,627,1512019Assets 2020: $3,428,851Liabilities 2020: $1,174,723Net Assets 2020: $2,254,1282020Assets 2021: $3,335,798Liabilities 2021: $1,044,440Net Assets 2021: $2,291,3582021Assets 2022: $3,764,134Liabilities 2022: $1,598,867Net Assets 2022: $2,165,2672022Assets 2023: $3,286,760Liabilities 2023: $1,795,025Net Assets 2023: $1,491,7352023Assets 2024: $4,414,309Liabilities 2024: $1,731,071Net Assets 2024: $2,683,2382024

Highlighted filing

2019

Assets$2,454,778
Liabilities$827,627
Net Assets$1,627,151

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2015: $3,478,188Expenses 2015: $4,601,751Net Income 2015: -$1,123,5632015Revenue 2016: $2,297,445Expenses 2016: $2,628,315Net Income 2016: -$330,8702016Revenue 2017: $2,391,944Expenses 2017: $2,469,145Net Income 2017: -$77,2012017Revenue 2018: $3,114,452Expenses 2018: $2,598,482Net Income 2018: $515,9702018Revenue 2019: $3,673,033Expenses 2019: $3,796,366Net Income 2019: -$123,3332019Revenue 2020: $3,551,407Expenses 2020: $2,924,430Net Income 2020: $626,9772020Revenue 2021: $3,120,220Expenses 2021: $3,082,990Net Income 2021: $37,2302021Revenue 2022: $2,660,033Expenses 2022: $2,786,124Net Income 2022: -$126,0912022Revenue 2023: $2,682,408Expenses 2023: $3,355,940Net Income 2023: -$673,5322023Revenue 2024: $4,524,784Expenses 2024: $3,333,281Net Income 2024: $1,191,5032024

Highlighted filing

2019

Revenue$3,673,033
Expenses$3,796,366
Net Income-$123,333
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Jun 16, 2020
Return Version
2019v5.1
Gross Receipts
$4,485,918
Mission and Program Overview

Mission

The les turner als foundation was organized as a not-for-profit organization to advance scientific research into the causes, treatments and prevention of als, provide people living with als, their families and caregivers exceptional clinical care and support services, and to increase awareness and education of als.

To find a cure for als, provide patient and family support and increase public awareness.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$2,368,143$2,164,505▼ $203,638
Accounts Receivable$206,826$161,429▼ $45,397
Prepaid Expenses and Deferred Charges$108,717$89,091▼ $19,626
Land, Buildings, and Equipment, Net$28,056$26,147▼ $1,909
Pledges and Grants Receivable$24,192--
Total Assets$2,745,696$2,454,778▼ $290,918
Other Assets Total$9,762$13,606▲ $3,844
Liabilities
Grants Payable$802,500$756,250▼ $46,250
Accounts Payable and Accrued Expenses$61,252$40,417▼ $20,835
Deferred Revenue$131,460$30,960▼ $100,500
Total Liabilities$995,212$827,627▼ $167,585
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,081,098$939,372▼ $141,726
Net Assets Without Donor Restrictions$669,386$687,779▲ $18,393
Total Net Assets Fund Balance$1,750,484$1,627,151▼ $123,333
Total Liabilities and Net Assets / Fund Balance$2,745,696$2,454,778▼ $290,918

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$20,780$223,359$244,139
Leasehold Improvements$2,136$46,741$48,877
Other Land Buildings$3,231$42,372$45,603
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Andrea Pauls BackmanChief Executive OfficerFT$190,000$190,000

Board Members and Trustees

NameTitle
Ken HoffmanBoard Chair
Joel a SchechterVice Chair
Robin FernVice Chair
Thomas F BolekyVice Chair
Bonny GaffenDirector
Daniel LibitDirector
David T HoppeDirector
Deborah CrockettDirector
Diana PisoneDirector
Erin Reardon CohnDirector
Jodi M HarrisDirector
John Coleman Iii MdDirector
Joshua NewsomeDirector
Mary Lou PisoneDirector
Matthew BrownDirector
Meg RooneyDirector
Melissa WilderDirector
Philip SchwarzDirector
Sarvesh SoiDirector
Janene JonasSecretary
Harvey GaffenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$4,154,728
Program Service Revenue
$0
Investment Income
$61,872
Other Revenue
$-543,567
All Other Contributions
$2,286,292
Change in Net Assets
$-123,333

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,673,033
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$3,673,033
Total Revenue per Form 990
$3,673,033
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,277,344
Salaries, Compensation, and Employee Benefits$1,066,663
Other Expenses$452,359
Total Fundraising Expense$236,258
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,277,344--$2,277,344
Other Salaries and Wages$645,574$24,510$91,923$762,007
Current Officers, Directors, Trustees, and Key Employees$47,500$38,000$47,500$133,000
Other Employee Benefits$87,149$1,555$4,978$93,682
Payroll Taxes$47,404$3,899$9,467$60,770
Occupancy$20,324$24,545$14,143$59,012
Office Expenses$21,946$16,996$16,292$55,234
Information Technology$15,485$13,226$16,877$45,588
Fees for Services Accounting-$23,815-$23,815
All Other Expenses$9,883$4,171$6,090$20,144
Pension Plan Contributions$12,437$1,662$3,105$17,204
Insurance$1,127$14,297-$15,424
Depreciation Depletion$611$13,370-$13,981
Other Expenses$6,461$2,717$4,757$13,935
Conferences and Meetings$9,232$2,184$1,012$12,428
Total Functional Expenses$3,371,283$188,825$236,258$3,796,366

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,796,366
Total Expenses per Audited Statements$3,796,366
Total Expenses per Form 990$3,796,366
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
I Am AlsChicago, IL501(c)(3)Pursuant to Fiscal Sponsorship Agreement$1,262,344
Northwestern University Feinberg School of MedicineChicago, IL501(c)(3)Research to Find a Cure$525,000
Lois Insolia Als ClinicChicago, IL501(c)(3)Clinic for the Therapy of Als Patients$370,000
Northwestern University Feinberg School of MedicineChicago, IL501(c)(3)Endowment for Als Research and Patient Center$100,000
Northwestern University Feinberg School of MedicineChicago, IL501(c)(3)Education$20,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$812,885
Fundraising Gross Income$269,318
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Dinner Dance Gala$779,897$111,400$54,145$57,255
Walk for Life$759,628$13,404$116,951$-103,547
Total Events$2,032,718$269,318$812,885$-543,567
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Two directors within the organization are married. Two other directors are mother and daughter.

Form 990, Part VI, Section B, Line 11B

A copy of the 990, along with the audit report is provided to each board member prior to filing.

Form 990, Part VI, Section B, Line 12C

Annually, each executive and board member is required to state all affiliations. Employment changes are monitored as well.

Form 990, Part VI, Section B, Line 15

Changes in key personnel require a compensation analysis by the executive committee.

Form 990, Part VI, Section C, Line 19

All documents are available upon request. Financial statements are included in the annual report.

Filing and Contact Details

Filer

Filer Name
Les Turner Amyotrophic
EIN
36-2916466
Phone
8476793311
Address
5550 WEST TOUHY AVE NO 302, SKOKIE, IL 60077-3254

Signing Officer

Name
Andrea Pauls Backman
Title
CEO
Phone
8476793311
Signed
2020-06-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Andrea Pauls Backman
Formed
1977
Legal Domicile
Il
Voting Board Members
21
Independent Board Members
21
Employees
21
Volunteers
600

Preparer

Firm
Wipfli Llp
Address
625 N NORTH COURT SUITE 200, PALATINE, IL 60067
Preparer
Michael W Zuckerman
Phone
8473581170
Supplemental Narrative

Additional Explanations

Form 990, Part XII. Line 2C

Precedures are consistent with prior years.

Financial Statement Notes

PART IV, LINE 2B:

The foundation and i am als entered into a fiscal sponsorship agreement during september 2018. The fiscal sponsorship agreement required the foundation to receive donations on behalf of i am als in a restricted bank account and to disburse these monies as grants at the foundations's discretion upon request of i am als until such time as i am als received its 501(c)(3) status. The agreement terminated on september 16, 2019 as a result of i am als receiving its tax exempt status.

PART X, LINE 2:

The foundation is a tax-exempt corporation as permitted by section 501(c)(3) of the internal revenue code. The foundation believes it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements.

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IRS990/Desc0THE FOUNDATION CURRENTLY MAKES GRANTS TO THE LES TURNER ALS CENTER AT NORTHWESTERN MEDICINE FOR ALS RESEARCH DONE AT FOUR LES TURNER ALS RESEARCH LABORATORIES, THE LOIS INSOLIA ALS CLINIC AND OTHER ALS EDUCATIONAL AND SCIENTIFIC ACTIVITIES. IN ADDITION, THE FOUNDATION SPONSORS SUPPORT GROUPS, PROVIDES EQUIPMENT AND OTHER PROGRAM SERVICES TO PEOPLE WITH ALS AND THEIR FAMILIES. THE FOUNDATION ALSO INCREASES PUBLIC AWARENESS OF THE DISEASE THROUGH EDUCATIONAL PROGRAMS AND INITIATIVES.
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