Civic Intelligence

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd

990 • Fiscal year 2017 • EIN 36-2916466

Jan 01, 2017 to Dec 31, 2017 • Filed on Jun 19, 2018

5550 West Touhy Ave No 302Skokie, IL 60077-3254

(847) 679-3311

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

79th percentile

0.47x

Higher debt load relative to assets than 79% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

76th percentile

0.45x

Higher debt load relative to revenue than 76% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

30th percentile

-3.2%

Higher net margin than 30% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

88th percentile

$181,000

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 7.6% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

14th percentile

-8.0%

Faster asset growth than 14% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

49th percentile

4.1%

Faster revenue growth than 49% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Assets

Down

$2,310,150

Down $200,690 (-8.0%) from 2016

Net Assets

Down

$1,234,514

Down $77,201 (-5.9%) from 2016

Liabilities

Down

$1,075,636

Down $123,489 (-10%) from 2016

Revenue

Up

$2,391,944

Up $94,499 (+4.1%) from 2016

Expenses

Down

$2,469,145

Down $159,170 (-6.1%) from 2016

Net Income

Up

-$77,201

Up $253,669 (+77%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2015: $3,027,507Liabilities 2015: $1,384,922Net Assets 2015: $1,642,5852015Assets 2016: $2,510,840Liabilities 2016: $1,199,125Net Assets 2016: $1,311,7152016Assets 2017: $2,310,150Liabilities 2017: $1,075,636Net Assets 2017: $1,234,5142017Assets 2018: $2,745,696Liabilities 2018: $995,212Net Assets 2018: $1,750,4842018Assets 2019: $2,454,778Liabilities 2019: $827,627Net Assets 2019: $1,627,1512019Assets 2020: $3,428,851Liabilities 2020: $1,174,723Net Assets 2020: $2,254,1282020Assets 2021: $3,335,798Liabilities 2021: $1,044,440Net Assets 2021: $2,291,3582021Assets 2022: $3,764,134Liabilities 2022: $1,598,867Net Assets 2022: $2,165,2672022Assets 2023: $3,286,760Liabilities 2023: $1,795,025Net Assets 2023: $1,491,7352023Assets 2024: $4,414,309Liabilities 2024: $1,731,071Net Assets 2024: $2,683,2382024

Highlighted filing

2017

Assets$2,310,150
Liabilities$1,075,636
Net Assets$1,234,514

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2015: $3,478,188Expenses 2015: $4,601,751Net Income 2015: -$1,123,5632015Revenue 2016: $2,297,445Expenses 2016: $2,628,315Net Income 2016: -$330,8702016Revenue 2017: $2,391,944Expenses 2017: $2,469,145Net Income 2017: -$77,2012017Revenue 2018: $3,114,452Expenses 2018: $2,598,482Net Income 2018: $515,9702018Revenue 2019: $3,673,033Expenses 2019: $3,796,366Net Income 2019: -$123,3332019Revenue 2020: $3,551,407Expenses 2020: $2,924,430Net Income 2020: $626,9772020Revenue 2021: $3,120,220Expenses 2021: $3,082,990Net Income 2021: $37,2302021Revenue 2022: $2,660,033Expenses 2022: $2,786,124Net Income 2022: -$126,0912022Revenue 2023: $2,682,408Expenses 2023: $3,355,940Net Income 2023: -$673,5322023Revenue 2024: $4,524,784Expenses 2024: $3,333,281Net Income 2024: $1,191,5032024

Highlighted filing

2017

Revenue$2,391,944
Expenses$2,469,145
Net Income-$77,201
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Jun 19, 2018
Return Version
2017v2.2
Gross Receipts
$3,186,935
Mission and Program Overview

Mission

The les turner als foundation was organized as a not-for-profit organization to advance scientific research into the causes, treatments and prevention of als, provide people living with als, their families and caregivers exceptional clinical care and support services, and to increase awareness and education of als.

To find a cure for als, provide patient and family support and increase public awareness.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$549,816$1,336,290▲ $786,474
Savings and Temporary Cash Investments$1,723,964$719,695▼ $1,004,269
Accounts Receivable$50,470$105,029▲ $54,559
Pledges and Grants Receivable$84,192$54,192▼ $30,000
Prepaid Expenses and Deferred Charges$50,189$52,575▲ $2,386
Land, Buildings, and Equipment, Net$26,758$24,939▼ $1,819
Total Assets$2,510,840$2,310,150▼ $200,690
Other Assets Total$25,451$17,430▼ $8,021
Liabilities
Grants Payable$937,500$847,500▼ $90,000
Deferred Revenue$171,138$179,850▲ $8,712
Accounts Payable and Accrued Expenses$72,737$48,286▼ $24,451
Other Liabilities$17,750$0▼ $17,750
Total Liabilities$1,199,125$1,075,636▼ $123,489
Net Assets / Fund Balance
Unrestricted Net Assets$846,332$859,123▲ $12,791
Temporarily Rstr Net Assets$465,383$375,391▼ $89,992
Total Net Assets Fund Balance$1,311,715$1,234,514▼ $77,201
Total Liabilities and Net Assets / Fund Balance$2,510,840$2,310,150▼ $200,690

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$14,983$260,802$275,785
Leasehold Improvements$6,285$42,592$48,877
Other Land Buildings$3,671$40,331$44,002
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Andrea Pauls BackmanChief Executive OfficerFT$181,000$181,000

Board Members and Trustees

NameTitle
Ken HoffmanPresident
Joel a SchechterVice-president
Kenneth M CraneVice-president
Robin FernVice-president
Scott Heller MdVice-president
Bonny GaffenDirector
David T HoppeDirector
Deborah CrockettDirector
Janene Ingram JonasDirector
Joan a ParkerDirector
Joshua NewsomeDirector
Mary Lou PisoneDirector
Matthew BrownDirector
Sue RandallDirector
Thomas F BolekyDirector
Vicki FlahavenDirector
Harvey GaffenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$3,025,110
Program Service Revenue
$0
Investment Income
$20,061
Other Revenue
$-653,227
All Other Contributions
$994,023
Change in Net Assets
$-77,201

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,391,944
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$2,391,944
Total Revenue per Form 990
$2,391,944
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,130,000
Salaries, Compensation, and Employee Benefits$886,275
Other Expenses$452,870
Total Fundraising Expense$203,379
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,130,000--$1,130,000
Comp Disqual Persons$538,302$22,845$88,392$649,539
Current Officers, Directors, Trustees, and Key Employees$45,250$36,200$36,200$117,650
Office Expenses$27,899$37,538$26,422$91,859
Payroll Taxes$41,801$4,233$8,687$54,721
Other Employee Benefits$45,201$643$2,500$48,344
Fees for Services Accounting-$40,341-$40,341
Occupancy$14,414$17,412$7,391$39,217
Depreciation Depletion$642$16,961-$17,603
Other Expenses$5,145$9,196$3,257$17,598
Pension Plan Contributions$14,447$1,574-$16,021
Insurance$973$13,660-$14,633
All Other Expenses$6,251$3,897$3,133$13,281
Conferences and Meetings$7,470$3,117$1,950$12,537
Total Functional Expenses$2,048,884$216,882$203,379$2,469,145

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,469,145
Total Expenses per Audited Statements$2,469,145
Total Expenses per Form 990$2,469,145
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Northwestern University Feinberg School of MedicineChicago, IL501(c)3Research to Find a Cure$560,000
Lois Insolia ClinicChicago, IL501(c)3Clinic for the Therapy of Als Patients$470,000
Northwestern University Feinberg School of MedicineChicago, IL501(c)3Endowment for Als Research and Patient Center$100,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$794,991
Fundraising Gross Income$141,764
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Dinner Dance Gala$767,891$89,600$154,451$-64,851
Walk for Life$833,086$11,912$138,866$-126,954
Total Events$1,795,545$110,051$370,109$-260,058
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Two directors within the organization are married.

Form 990, Part VI, Section B, Line 11B

A copy of the 990, along with the audit report is provided to each member executive committee prior to filing.

Form 990, Part VI, Section B, Line 12C

Annually, each executive and board member is required to state all affiliations. Employment changes are monitored as well.

Form 990, Part VI, Section B, Line 15

Changes in key personnel require a compensation analysis by the executive committee.

Form 990, Part VI, Section C, Line 19

All documents are available upon request. Financial statements are included in the annual report.

Filing and Contact Details

Filer

Filer Name
Les Turner Amyotrophic
EIN
36-2916466
Phone
8476793311
Address
5550 WEST TOUHY AVE NO 302, SKOKIE, IL 60077-3254

Signing Officer

Name
Andrea Pauls Backman
Title
CEO
Phone
8476793311
Signed
2018-06-19
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Andrea Pauls Backman
Formed
1977
Legal Domicile
Il
Voting Board Members
19
Independent Board Members
19
Employees
20
Volunteers
300

Preparer

Firm
Wipfli Llp
Address
625 N NORTH COURT SUITE 200, PALATINE, IL 60067
Preparer
Michael W Zuckerman
Phone
8473581170
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

Procedures are consistent with prior years.

Financial Statement Notes

PART X, LINE 2:

The foundation is a tax-exempt corporation as permitted by section 501(c)(3) of the internal revenue code. The foundation believes it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements.

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IRS990/Desc0THE FOUNDATION CURRENTLY MAKES GRANTS TO THE LES TURNER ALS CENTER AT NORTHWESTERN MEDICINE FOR ALS RESEARCH DONE AT FOUR LES TURNER ALS RESEARCH LABORATORIES, THE LOIS INSOLIA ALS CLINIC AND OTHER ALS EDUCATIONAL AND SCIENTIFIC ACTIVITIES. IN ADDITION, THE FOUNDATION SPONSORS SUPPORT GROUPS, PROVIDES EQUIPMENT AND OTHER PROGRAM SERVICES TO PEOPLE WITH ALS AND THEIR FAMILIES. THE FOUNDATION ALSO INCREASES PUBLIC AWARENESS OF THE DISEASE THROUGH EDUCATIONAL PROGRAMS AND INITIATIVES.
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