Civic Intelligence

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd

EIN 36-2916466 • 501(c)3 • Skokie, IL

Profile

To provide the most comprehensive care and support to people living with als and their families in chicagoland, so they can confidently navigate the disease, and advance scientific research for the prevention, treatment and cure of als.

5550 West Touhy Ave 302Skokie, IL 60077-3254

www.lesturnerals.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

74th percentile

0.39x

Higher debt load relative to assets than 74% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

70th percentile

0.38x

Higher debt load relative to revenue than 70% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

78th percentile

26%

Higher net margin than 78% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

81st percentile

$239,077

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 5.3% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Asset Growth

88th percentile

34%

Faster asset growth than 88% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

88th percentile

69%

Faster revenue growth than 88% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Assets

Up

$4,414,309

Up $1,127,549 (+34%) from 2023

Liabilities

Down

$1,731,071

Down $63,954 (-3.6%) from 2023

Net Assets

Up

$2,683,238

Up $1,191,503 (+80%) from 2023

Revenue

Up

$4,524,784

Up $1,842,376 (+69%) from 2023

Expenses

Down

$3,333,281

Down $22,659 (-0.7%) from 2023

Net Income

Up

$1,191,503

Up $1,865,035 (+277%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2015: $3,027,507Liabilities 2015: $1,384,922Net Assets 2015: $1,642,5852015Assets 2016: $2,510,840Liabilities 2016: $1,199,125Net Assets 2016: $1,311,7152016Assets 2017: $2,310,150Liabilities 2017: $1,075,636Net Assets 2017: $1,234,5142017Assets 2018: $2,745,696Liabilities 2018: $995,212Net Assets 2018: $1,750,4842018Assets 2019: $2,454,778Liabilities 2019: $827,627Net Assets 2019: $1,627,1512019Assets 2020: $3,428,851Liabilities 2020: $1,174,723Net Assets 2020: $2,254,1282020Assets 2021: $3,335,798Liabilities 2021: $1,044,440Net Assets 2021: $2,291,3582021Assets 2022: $3,764,134Liabilities 2022: $1,598,867Net Assets 2022: $2,165,2672022Assets 2023: $3,286,760Liabilities 2023: $1,795,025Net Assets 2023: $1,491,7352023Assets 2024: $4,414,309Liabilities 2024: $1,731,071Net Assets 2024: $2,683,2382024

Highlighted filing

2024

Assets$4,414,309
Liabilities$1,731,071
Net Assets$2,683,238

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2015: $3,478,188Expenses 2015: $4,601,751Net Income 2015: -$1,123,5632015Revenue 2016: $2,297,445Expenses 2016: $2,628,315Net Income 2016: -$330,8702016Revenue 2017: $2,391,944Expenses 2017: $2,469,145Net Income 2017: -$77,2012017Revenue 2018: $3,114,452Expenses 2018: $2,598,482Net Income 2018: $515,9702018Revenue 2019: $3,673,033Expenses 2019: $3,796,366Net Income 2019: -$123,3332019Revenue 2020: $3,551,407Expenses 2020: $2,924,430Net Income 2020: $626,9772020Revenue 2021: $3,120,220Expenses 2021: $3,082,990Net Income 2021: $37,2302021Revenue 2022: $2,660,033Expenses 2022: $2,786,124Net Income 2022: -$126,0912022Revenue 2023: $2,682,408Expenses 2023: $3,355,940Net Income 2023: -$673,5322023Revenue 2024: $4,524,784Expenses 2024: $3,333,281Net Income 2024: $1,191,5032024

Highlighted filing

2024

Revenue$4,524,784
Expenses$3,333,281
Net Income$1,191,503

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jul 2, 2025
Return Version
2024v5.2
Gross Receipts
$5,474,152
Mission and Program Overview

Mission

The les turner als foundation was organized as a not-for-profit organization to advance scientific research into the causes, treatments and prevention of als, provide people living with als, their families and caregivers exceptional clinical care and support services, and to increase awareness and education of als.

To find a cure for als, provide patient and family support and increase public awareness.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$2,058,972$3,272,662▲ $1,213,690
Intangible Assets$110,450$165,540▲ $55,090
Investments Other Securities$124,165$147,143▲ $22,978
Prepaid Expenses and Deferred Charges$95,433$116,126▲ $20,693
Accounts Receivable$97,333$95,710▼ $1,623
Pledges and Grants Receivable$162,726$66,359▼ $96,367
Land, Buildings, and Equipment, Net$630,427$18,164▼ $612,263
Total Assets$3,286,760$4,414,309▲ $1,127,549
Other Assets Total$7,254$532,605▲ $525,351
Liabilities
Grants Payable$1,095,000$1,100,000▲ $5,000
Mortgage Notes Payable Secured by Investment Property$637,018$557,228▼ $79,790
Accounts Payable and Accrued Expenses$63,007$73,843▲ $10,836
Total Liabilities$1,795,025$1,731,071▼ $63,954
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,167,421$1,797,147▲ $629,726
Net Assets With Donor Restrictions$324,314$886,091▲ $561,777
Total Net Assets Fund Balance$1,491,735$2,683,238▲ $1,191,503
Total Liabilities and Net Assets / Fund Balance$3,286,760$4,414,309▲ $1,127,549

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$14,441$203,863$218,304
Leasehold Improvements$3,723$52,054$55,777
Other Assets Org$525,351--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$124,165$17,500▲ $5,478-$147,143
2023$115,000-▲ $9,165-$124,165
2022-$115,000--$115,000
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Laura FrevelettiChief Executive OfficerFT$191,209$47,868$239,077
Lauren WebbChief Advocacy and Outreach OfficerFT$120,634$27,548$148,182
Mark HeidenDirector of CommunicationsFT$127,500$4,972$132,472
Constance PaeselChief Operations OfficerFT$113,500$4,483$117,983

Board Members and Trustees

NameTitle
Erin Reardon CohnBoard Chair
Harvey GaffenChair Emeritus
Joel a SchechterVice Chair
John Coleman Iii MdVice Chair
Robin FernVice Chair
Thomas F BolekyVice Chair
Aalok DaveDirector
Bonny GaffenDirector
Diana PisoneDirector
Frank GranataDirector
Janene JonasDirector
Jodi M HarrisDirector
Joshua NewsomeDirector
Ken HoffmanDirector
Mary Lou PisoneDirector
Sarvesh SoiDirector
Sean FallonDirector
Tina CascioDirector
Deborah CrockettTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$5,107,087
Program Service Revenue
$0
Investment Income
$107,409
Other Revenue
$-689,712
All Other Contributions
$3,423,881
Change in Net Assets
$1,191,503

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,524,784
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$4,524,784
Total Revenue per Form 990
$4,524,784
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,457,602
Grants and Similar Amounts Paid$1,126,959
Other Expenses$748,720
Total Fundraising Expense$421,419
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,126,959--$1,126,959
Other Salaries and Wages$775,944$94,993$187,983$1,058,920
Current Officers, Directors, Trustees, and Key Employees$175,189$21,447$42,441$239,077
Fees for Services Other$29,404$56,122$79,538$165,064
Payroll Taxes$71,206$8,717$17,251$97,174
Office Expenses$57,817$7,357$20,118$85,292
Occupancy$36,542$11,297$19,806$67,645
Depreciation Depletion$40,856$10,007-$50,863
Advertising$33,664-$4,700$38,364
Information Technology$33,758$75$3,907$37,740
Pension Plan Contributions$23,742$2,907$5,752$32,401
Other Employee Benefits$22,005$2,694$5,331$30,030
Conferences and Meetings$20,623$8,525$448$29,596
Travel$24,751$29$599$25,379
Fees for Services Accounting-$23,038-$23,038
Insurance$13,018$3,507$2,996$19,521
Other Expenses$799$285$1,693$2,777
Total Functional Expenses$2,651,091$260,771$421,419$3,333,281

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,333,281
Total Expenses per Audited Statements$3,333,281
Total Expenses per Form 990$3,333,281
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Northwestern University Feinberg School of MedicineChicago, IL501(c)(3)Research to Find a Cure$700,000
Lois Insolia Als ClinicChicago, IL501(c)(3)Clinic for the Therapy of Als Patients$300,000
Northwestern University Feinberg School of MedicineChicago, IL501(c)(3)Endowment for Als Research and Patient Center$100,000
Northwestern University Feinberg School of MedicineChicago, IL501(c)(3)Education$26,959
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$949,368
Fundraising Gross Income$259,656
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk for Life$664,081-$87,982-
Gala$715,481$99,000$84,837$14,163
Total Events$1,822,838$259,656$949,368$-689,712
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Bonny and harvey gaffen have a family relationship. Mary lou and diana pisone have a family relationship.

Form 990, Part VI, Section B, Line 11B

A copy of the 990 is provided to each board member prior to filing and approved by the board of directors.

Form 990, Part VI, Section B, Line 12C

Annually, each staff and board member is required to state all affiliations which could give rise to a potential conflict. Employment changes are monitored as well. All potential conflicts are reviewed annually by the governance committee of the board of directors. Any potential conflicts are mitigated by full tranparency to the board and by the board member involved recusing themselves from a vote.

Form 990, Part VI, Section B, Line 15

Ceo compensation is determined by the executive committee using comparability data and is approved by the full board of directors. Key officer compensation is determined by ceo and coo. All increases are approved by executive committee and board of directors

Form 990, Part VI, Section C, Line 19

All documents are available upon request. Financial statements are included on the website.

Filing and Contact Details

Filer

Filer Name
Les Turner Amyotrophic
EIN
36-2916466
Phone
8476793311
Address
5550 WEST TOUHY AVE 302, SKOKIE, IL 60077-3254

Signing Officer

Name
Laura Freveletti
Title
CEO
Phone
8476793311
Signed
2025-07-02
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Laura Freveletti
Formed
1977
Legal Domicile
Il
Voting Board Members
19
Independent Board Members
19
Employees
19
Volunteers
35

Preparer

Firm
Wipfli Llp
Address
2501 W BELTLINE HWY STE 501, MADISON, WI 53713
Preparer
Quinn Dugan
Phone
6082741980
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

There were no changes to the audit selection process from the prior year.

Financial Statement Notes

PART V, LINE 4:

The foundation's endowment consists of two funds with donor restrictions, the joseph b. Heller endowment fund, created in 2022 and the gibble endowment fund, created in 2024. The endowment's primary objective is to maintain and grow its principal in perpetuity. The primary long-term financial objective for the foundation's endowments is to preserve the real purchasing power of endowment assets and income after accounting for endowment spending and costs of portfolio management.

PART X, LINE 2:

The foundation is a tax-exempt corporation as permitted by section 501(c)(3) of the internal revenue code. The foundation believes it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements.

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IRS990/Desc0THE FOUNDATION CURRENTLY MAKES GRANTS TO THE LES TURNER ALS CENTER AT NORTHWESTERN MEDICINE FOR ALS RESEARCH, THE LOIS INSOLIA ALS CLINIC AND OTHER ALS EDUCATIONAL AND SCIENTIFIC ACTIVITIES.IN ADDITION, THE FOUNDATION PROVIDES PERSONALIZED SUPPORT VISITS, SUPPORT GROUPS, ACCESS TO EQUIPMENT AND OTHER PROGRAM SERVICES TO PEOPLE WITH ALS AND THEIR FAMILIES. THE FOUNDATION OFFERS EXTENSIVE EDUCATIONAL RESOURCES TO PEOPLE WITH ALS AND THEIR FAMILIES ACROSS THE COUNTRY AND INCREASES PUBLIC AWARENESS OF THE DISEASE THROUGH EDUCATIONAL PROGRAMS AND INITIATIVES.
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IRS990/Form990PartVIISectionAGrp/PersonNm14JANENE JONAS
IRS990/Form990PartVIISectionAGrp/PersonNm15JOSHUA NEWSOME
IRS990/Form990PartVIISectionAGrp/PersonNm16MARY LOU PISONE
IRS990/Form990PartVIISectionAGrp/PersonNm17DIANA PISONE
IRS990/Form990PartVIISectionAGrp/PersonNm18SARVESH SOI
IRS990/Form990PartVIISectionAGrp/PersonNm19LAURA FREVELETTI
IRS990/Form990PartVIISectionAGrp/PersonNm20MARK HEIDEN
IRS990/Form990PartVIISectionAGrp/PersonNm21LAUREN WEBB
IRS990/Form990PartVIISectionAGrp/PersonNm22CONSTANCE PAESEL
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IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIR EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt5VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt6TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19CHIEF EXECUTIVE OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR OF COMMUNICATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt21CHIEF ADVOCACY AND OUTREACH OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt22CHIEF OPERATIONS OFFICER
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IRS990/FSAuditedInd01
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IRS990/FundraisingDirectExpensesAmt0949368
IRS990/FundraisingGrossIncomeAmt0259656
IRS990/GainOrLossGrp/SecuritiesAmt01219
IRS990/GamingActivitiesInd00
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IRS990/GrantsToOrganizationsInd01
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IRS990/IndoorTanningServicesInd00
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IRS990/IntangibleAssetsGrp/EOYAmt0165540
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IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0106190
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IRS990/LocalChaptersInd00
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IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0TO PROVIDE THE MOST COMPREHENSIVE CARE AND SUPPORT TO PEOPLE LIVING WITH ALS AND THEIR FAMILIES IN CHICAGOLAND, SO THEY CAN CONFIDENTLY NAVIGATE THE DISEASE, AND ADVANCE SCIENTIFIC RESEARCH FOR THE PREVENTION, TREATMENT AND CURE OF ALS.
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IRS990/OtherExpensesGrp/ProgramServicesAmt3799
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IRS990/OtherExpensesGrp/TotalAmt159335
IRS990/OtherExpensesGrp/TotalAmt27215
IRS990/OtherExpensesGrp/TotalAmt32777
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IRS990/PensionPlanContributionsGrp/TotalAmt032401
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0162726
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt066359
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt095433
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0116126
IRS990/PrincipalOfficerNm0LAURA FREVELETTI
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IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01217914
IRS990/PYInvestmentIncomeAmt0102365
IRS990/PYOtherExpensesAmt0663890
IRS990/PYOtherRevenueAmt0-653715

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