Civic Intelligence

Foundation for Prader-Willi Researchinc

990 • Fiscal year 2022 • EIN 31-1763110

Jan 01, 2022 to Dec 31, 2022 • Filed on Nov 15, 2023

Organization ProfileWWW.FPWR.ORG

Refreshing map…

440 N Barranca Ave 3620Covina, CA 91723

(888) 322-5487

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

74th percentile

0.39x

Higher debt load relative to assets than 74% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Liabilities / Revenue

77th percentile

0.64x

Higher debt load relative to revenue than 77% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Net Margin

32nd percentile

-0.1%

Higher net margin than 32% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Top Officer Pay

65th percentile

$158,878

Higher top officer pay than 65% of similar nonprofits.

Top officer pay equals 3.1% of source-year revenue.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2022

Asset Growth

81st percentile

24%

Faster asset growth than 81% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2021 to 2022

Revenue Growth

78th percentile

32%

Faster revenue growth than 78% of similar nonprofits.

2022 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets74th percentile

Assets

Up

$8,344,580

Up $1,599,970 (+24%) from 2021

Net Assets

Down

$5,110,702

Down $160,675 (-3.0%) from 2021

Liabilities

Up

$3,233,878

Up $1,760,645 (+120%) from 2021

Revenue And Expenses
Liabilities / Revenue77th percentileNet Margin32nd percentile

Revenue

Up

$5,083,937

Up $1,244,978 (+32%) from 2021

Expenses

Up

$5,088,497

Up $1,938,887 (+62%) from 2021

Net Income

Down

-$4,560

Down $693,909 (-101%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth81st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2010: $627,589Liabilities 2010: $191,396Net Assets 2010: $436,1932010Assets 2011: $1,545,653Liabilities 2011: $380,355Net Assets 2011: $1,165,2982011Assets 2012: $1,895,712Liabilities 2012: $194,897Net Assets 2012: $1,700,8152012Assets 2013: $2,336,935Liabilities 2013: $650,556Net Assets 2013: $1,686,3792013Assets 2014: $3,824,434Liabilities 2014: $882,416Net Assets 2014: $2,942,0182014Assets 2015: $5,051,231Liabilities 2015: $1,979,286Net Assets 2015: $3,071,9452015Assets 2016: $4,877,823Liabilities 2016: $1,518,397Net Assets 2016: $3,359,4262016Assets 2018: $5,481,978Liabilities 2018: $1,299,792Net Assets 2018: $4,182,1862018Assets 2019: $5,712,409Liabilities 2019: $2,108,729Net Assets 2019: $3,603,6802019Assets 2020: $6,285,928Liabilities 2020: $1,907,112Net Assets 2020: $4,378,8162020Assets 2021: $6,744,610Liabilities 2021: $1,473,233Net Assets 2021: $5,271,3772021Assets 2022: $8,344,580Liabilities 2022: $3,233,878Net Assets 2022: $5,110,7022022Assets 2024: $8,871,895Liabilities 2024: $3,480,573Net Assets 2024: $5,391,3222024

Highlighted filing

2022

Assets$8,344,580
Liabilities$3,233,878
Net Assets$5,110,702
Open 2022 Filing

Operations Trend

Revenue Growth78th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $488,5832010Expenses 2011: $693,6712011Expenses 2012: $692,1552012Revenue 2013: $1,404,365Expenses 2013: $1,417,383Net Income 2013: -$13,0182013Revenue 2014: $3,032,815Expenses 2014: $1,777,176Net Income 2014: $1,255,6392014Revenue 2015: $2,989,838Expenses 2015: $2,859,911Net Income 2015: $129,9272015Revenue 2016: $3,277,707Expenses 2016: $3,102,558Net Income 2016: $175,1492016Revenue 2018: $4,152,623Expenses 2018: $3,593,919Net Income 2018: $558,7042018Revenue 2019: $4,062,325Expenses 2019: $4,494,006Net Income 2019: -$431,6812019Revenue 2020: $3,655,364Expenses 2020: $3,053,653Net Income 2020: $601,7112020Revenue 2021: $3,838,959Expenses 2021: $3,149,610Net Income 2021: $689,3492021Revenue 2022: $5,083,937Expenses 2022: $5,088,497Net Income 2022: -$4,5602022Revenue 2024: $6,173,660Expenses 2024: $6,062,339Net Income 2024: $111,3212024

Highlighted filing

2022

Revenue$5,083,937
Expenses$5,088,497
Net Income-$4,560
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Nov 15, 2023
Return Version
2022v5.0
Gross Receipts
$5,326,703
Mission and Program Overview

Mission

The Foundation for Prader-Willi Research is dedicated to supporting research to advance the understanding and treatment of Prader-Willi Syndrome.

Supports research to advance the understanding and treatment of prader-willi syndrome

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$5,717,225$7,975,970▲ $2,258,745
Investments Program Related$430,000$250,000▼ $180,000
Prepaid Expenses and Deferred Charges$130,629$56,069▼ $74,560
Pledges and Grants Receivable$459,250$39,962▼ $419,288
Investments in Publicly Traded Securities$5,542$17,940▲ $12,398
Cash and Non-Interest-Bearing Accounts$416$4,639▲ $4,223
Land, Buildings, and Equipment, Net$1,548$0▼ $1,548
Total Assets$6,744,610$8,344,580▲ $1,599,970
Liabilities
Grants Payable$1,409,874$3,175,224▲ $1,765,350
Accounts Payable and Accrued Expenses$61,609$58,654▼ $2,955
Deferred Revenue$1,750$0▼ $1,750
Total Liabilities$1,473,233$3,233,878▲ $1,760,645
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$4,990,690$3,449,567▼ $1,541,123
Net Assets With Donor Restrictions$280,687$1,661,135▲ $1,380,448
Total Net Assets Fund Balance$5,271,377$5,110,702▼ $160,675
Total Liabilities and Net Assets / Fund Balance$6,744,610$8,344,580▲ $1,599,970

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$6,967$6,967
Compensation and Service Providers
Top Officer Pay65th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Theresa StrongDirector of Research ProgramFT$158,830$48$158,878
Susan HedstromExecutive DirectorFT$73,353$125$73,478

Board Members and Trustees

NameTitle
Jeannine KowalPresident Thru 3/22
Drew HarmanVice President
Brian CarucciDirector
Ian AlbergDirector
Justin NelsonDirector
Karen ShahinianDirector
Kristin WhiteDirector
Mike SimsDirector
Renee SnyderDirector
Scott ArantDirector
Guy NiedorkomDirector Thru 2/22
Daniel ChorneyDirector Thru 3/22
Jack JonesDirector Thru 3/22
Jason WaldropDirector Thru 3/22
Alicia SecorDirector Thru 6/22
Paul Wissman PresidentEff. 3/22, Treasurer Thru 3/22
Amber RobersonSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$4,654,934
Program Service Revenue
$231,217
Investment Income
$83,302
Other Revenue
$114,484
All Other Contributions
$3,787,724
Change in Net Assets
$-4,560

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded9$62,404Avg. Selling Price
Total Noncash Contributions9$62,404-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,083,937
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$5,083,937
Total Revenue per Form 990
$5,083,937
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$3,615,813
Salaries, Compensation, and Employee Benefits$791,170
Other Expenses$681,514
Total Fundraising Expense$245,248
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,843,364--$2,843,364
Foreign Grants$772,449--$772,449
Other Salaries and Wages$504,253$32,773$113,555$650,581
Fees for Services Other$24,255$79,770$52,829$156,854
Office Expenses$20,904$82,819$9,870$113,593
Travel$101,364$1,447$9,940$112,751
Fees for Services Accounting-$80,235-$80,235
Current Officers, Directors, Trustees, and Key Employees$36,739$14,696$22,043$73,478
Payroll Taxes$47,312$4,150$11,857$63,319
Occupancy$58,426$20-$58,446
Conferences and Meetings$40,482$4,653$4,251$49,386
Information Technology$1,848$28,093-$29,941
Insurance-$17,111-$17,111
Other Expenses$7,399$5,800$238$13,437
Other Employee Benefits$2,864$232$696$3,792
Depreciation Depletion-$1,548-$1,548
Advertising$177$300$150$627
Fees for Services Legal-$313-$313
Total Functional Expenses$4,475,469$367,780$245,248$5,088,497

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$5,244,612
Total Expenses per Form 990$5,088,497
Expenses per Audited Statements$5,049,612
Expenses Not Reported on Form 990$195,000
Expenses Not Reported on Financial Statements$38,885
Other Expense Adjustments$38,885
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Texas Tech UniversityLubbock, TX501(c)(3)Research$486,000
Maimonides Medical CenterBrooklyn, NY501(c)(3)Research$165,148
Duke UniversityDurham, NC501(c)(3)Research$162,000
Rockefeller UniversityNew York, NY501(c)(3)Research$162,000
The Scintillon InstituteSan Diego, CA501(c)(3)Research$162,000
BRIGHAM AND WOMEN'S HOSPITALBoston, MA-Research$161,816
Chicago School of Professional PsychologyChicago, IL501(c)(3)Research$152,667
Vanderbilt UniversityNashville, TN501(c)(3)Research$135,589
Albert Einstein College of MedicineBronx, NY501(c)(3)Research$108,000
General ElectricPittsburgh, PA501(c)(3)Research$108,000
Icahn School of Medicine at Mount SinaiNew York, NY501(c)(3)Research$108,000
Massachusetts General HospitalBoston, MA501(c)(3)Research$108,000
Princeton UniversityPrinceton, NJ501(c)(3)Research$108,000
Stanford University School of MedicineStanford, CA501(c)(3)Research$108,000
The University of Illinois at Urbana-champaignUrbana, IL501(c)(3)Research$108,000
University of MichiganAnn Arbor, MI501(c)(3)Research$108,000
Virginia Polytechnic Institute and State UniversityBlacksburg, VAState of VaResearch$108,000
Columbia UniversityNew York, NY501(c)(3)Research$106,280
Ut Southwestern Medical CenterDallas, TX501(c)(3)Research$81,000
SEATTLE CHILDREN'S HOSPITAL FOUNDATIONSeattle, WA501(c)(3)Research$17,500
CHILDREN'S HOSPITAL COLORADO ANSCHUTZ MEDICAL CAMPUSAurora, CO501(c)(3)Research$10,000
STANFORD MEDICINE CHILDREN'S HEALTHPalo Alto, CA501(c)(3)Research$10,000
University of Utah HealthSalt Lake City, UT501(c)(3)Research$10,000
University of BuffaloBuffalo, NY501(c)(3)Research$7,475

International Summary

Offices
0
Employees
0
Spending
$772,449

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Grants to Recipients in Region for Research-00$502,457
East Asia and the PacificGrants to Recipients in Region for Research-00$269,992
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$294,730
Fundraising Direct Expenses$180,362
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Hampton Event$501,200$65,600$50,561$15,039
Iggs Festival$192,172$28,725$15,400$13,325
Total Events$1,161,940$294,730$180,362$114,368
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization has its form 990 prepared by an outside accounting firm. It is reviewed by the executive director and a complete copy is provided to all members of the governing body for their review prior to filing.”

Form 990, Part VI, Section B, Line 12C

“The board of directors and the governance committee are responsible for determining and reviewing conflicts of interest. All board members and officers are required to self disclose conflicts as they arise as well as annually sign a disclosure form noting any potential conflicts of interest. Such persons may make a presentation at the governing board or committee meeting, but after the presentation, they must leave during the discussion of, and the vote on, the transaction or arrangement.”

Form 990, Part VI, Section B, Line 15A

“The process for determining the compensation of the ceo included the use of comparability data, review and approval by the executive committee of the board, and contemporaneous documentation.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Foundation for Prader-willi
EIN
31-1763110
Phone
8883225487
Address
440 N BARRANCA AVE 3620, COVINA, CA 91723

Signing Officer

Name
Susan Hedstrom
Title
Executive Director
Phone
8883225487
Signed
2023-11-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Susan Hedstrom
Formed
2001
Legal Domicile
Ny
Voting Board Members
11
Independent Board Members
11
Employees
12
Volunteers
50

Preparer

Firm
PKF O'CONNOR DAVIES LLP
Address
245 PARK AVENUE 12TH FLOOR, NEW YORK, NY 10167
Preparer
Eva Mruk
Phone
9143818900
Supplemental Narrative

Additional Explanations

Part V, Line 2A

“The organization contracted with a professional employer organization (peo) for services, including but not limited to, payroll, timekeeping, employee benefits, hr administration and workforce regulatory compliance needs. As the employer of record for tax purposes, forms w-2 and w-3 are issued by the peo and filed under the peo's federal ein. In this co-employment arrangement, the organization is the common law employer and, accordingly, compensation is reported on form 990, part vii, section a and part ix, lines 5-10.”

FORM 990, PART XI, LINE 9:

“Impairment of mission related investment -195,000. Return of prior year grant expense 38,885.”

Form 990, Part XII, Line 2C

“The organization has a committee that assumes responsibility for the oversight of the audit of its financial statements and the selection of an independent accountant. This process did not change from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The foundation recognizes the effect of income tax positions only if those positions are more likely not to be sustained. Management has determined that the foundation had no uncertain positions that would require financial statement recognition or disclosure. The foundation is no longer subject to examinations by the applicable taxing jurisdictions for periods prior to 2019.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Impairment on mission related investment 195,000.”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“Return of prior year grants expense 38,885.”

Raw XML AppendixShowing 400 of 967 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt17125
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1848
IRS990/Form990PartVIISectionAGrp/PersonNm0PAUL WISSMAN PRESIDENT
IRS990/Form990PartVIISectionAGrp/PersonNm1JEANNINE KOWAL
IRS990/Form990PartVIISectionAGrp/PersonNm2DREW HARMAN
IRS990/Form990PartVIISectionAGrp/PersonNm3AMBER ROBERSON
IRS990/Form990PartVIISectionAGrp/PersonNm4IAN ALBERG
IRS990/Form990PartVIISectionAGrp/PersonNm5SCOTT ARANT
IRS990/Form990PartVIISectionAGrp/PersonNm6BRIAN CARUCCI
IRS990/Form990PartVIISectionAGrp/PersonNm7DANIEL CHORNEY
IRS990/Form990PartVIISectionAGrp/PersonNm8JACK JONES
IRS990/Form990PartVIISectionAGrp/PersonNm9JUSTIN NELSON
IRS990/Form990PartVIISectionAGrp/PersonNm10GUY NIEDORKOM
IRS990/Form990PartVIISectionAGrp/PersonNm11ALICIA SECOR
IRS990/Form990PartVIISectionAGrp/PersonNm12KAREN SHAHINIAN
IRS990/Form990PartVIISectionAGrp/PersonNm13MIKE SIMS
IRS990/Form990PartVIISectionAGrp/PersonNm14RENEE SNYDER
IRS990/Form990PartVIISectionAGrp/PersonNm15JASON WALDROP
IRS990/Form990PartVIISectionAGrp/PersonNm16KRISTIN WHITE
IRS990/Form990PartVIISectionAGrp/PersonNm17SUSAN HEDSTROM
IRS990/Form990PartVIISectionAGrp/PersonNm18THERESA STRONG
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1773353
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18158830
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0EFF. 3/22, TREASURER THRU 3/22
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT THRU 3/22
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR THRU 3/22
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR THRU 3/22
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR THRU 2/22
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR THRU 6/22
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR THRU 3/22
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR OF RESEARCH PROGRAM
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02001
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0867210
IRS990/FundraisingDirectExpensesAmt0180362
IRS990/FundraisingGrossIncomeAmt0294730
IRS990/GainOrLossGrp/SecuritiesAmt00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GrantAmt03615813
IRS990/GrantsPayableGrp/BOYAmt01409874
IRS990/GrantsPayableGrp/EOYAmt03175224
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt02843364
IRS990/GrantsToDomesticOrgsGrp/TotalAmt02843364
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt062404
IRS990/GrossReceiptsAmt05326703
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt011
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartVInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt028093
IRS990/InformationTechnologyGrp/ProgramServicesAmt01848
IRS990/InformationTechnologyGrp/TotalAmt029941
IRS990/InsuranceGrp/ManagementAndGeneralAmt017111
IRS990/InsuranceGrp/TotalAmt017111
IRS990/InvestmentIncomeGrp/ExclusionAmt068302
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt015000
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt083302
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt0430000
IRS990/InvestmentsProgramRelatedGrp/EOYAmt0250000
IRS990/InvestmentsPubTradedSecGrp/BOYAmt05542
IRS990/InvestmentsPubTradedSecGrp/EOYAmt017940
IRS990/IRPDocumentCnt05
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt06967
IRS990/LandBldgEquipBasisNetGrp/BOYAmt01548
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt06967
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt062404
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt05271377
IRS990/NetAssetsOrFundBalancesEOYAmt05110702
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0114368
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0114368
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt04990690
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt03449567
IRS990/NoncashContributionsAmt062404
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt020
IRS990/OccupancyGrp/ProgramServicesAmt058426
IRS990/OccupancyGrp/TotalAmt058446
IRS990/OfficeExpensesGrp/FundraisingAmt09870
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt082819
IRS990/OfficeExpensesGrp/ProgramServicesAmt020904
IRS990/OfficeExpensesGrp/TotalAmt0113593
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt0-156115
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0696
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0232
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt02864
IRS990/OtherEmployeeBenefitsGrp/TotalAmt03792
IRS990/OtherExpensesGrp/Desc0PARTICIPANT INCENTIVES
IRS990/OtherExpensesGrp/Desc1AUDIO VISUAL EXPENSES
IRS990/OtherExpensesGrp/FundraisingAmt019819
IRS990/OtherExpensesGrp/FundraisingAmt1238
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt013820
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt15800
IRS990/OtherExpensesGrp/ProgramServicesAmt013633
IRS990/OtherExpensesGrp/ProgramServicesAmt17399
IRS990/OtherExpensesGrp/TotalAmt047272
IRS990/OtherExpensesGrp/TotalAmt113437
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
IRS990/OtherRevenueMiscGrp/ExclusionAmt0116
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0116
IRS990/OtherRevenueTotalAmt0116
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0113555
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt032773
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0504253
IRS990/OtherSalariesAndWagesGrp/TotalAmt0650581
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt011857
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04150
IRS990/PayrollTaxesGrp/ProgramServicesAmt047312
IRS990/PayrollTaxesGrp/TotalAmt063319
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0459250
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt039962
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0130629
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt056069
IRS990/PrincipalOfficerNm0SUSAN HEDSTROM
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE REVENUE
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0231217
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0231217
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03612120
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01757456
IRS990/PYInvestmentIncomeAmt016585
IRS990/PYOtherExpensesAmt0452478
IRS990/PYOtherRevenueAmt0-24782
IRS990/PYProgramServiceRevenueAmt0235036
IRS990/PYRevenuesLessExpensesAmt0689349
IRS990/PYSalariesCompEmpBnftPaidAmt0939676
IRS990/PYTotalExpensesAmt03149610
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03838959
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-4560
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0246217
IRS990/SavingsAndTempCashInvstGrp/BOYAmt05717225
IRS990/SavingsAndTempCashInvstGrp/EOYAmt07975970
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME - 2022 AMOUNT: $ 116.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt04654934
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt03612120
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt03495770
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt03863432
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt03950192
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt019576448
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt083302
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt01677
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt026556
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt054246
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt040045
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0205826

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,344,580
Liabilities
$3,233,878
Net assets
$5,110,702
Revenue
$5,083,937
Expenses
$5,088,497
Net income
-$4,560
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.87$3.48$5.39$6.17$6.06$0.11
2022Detailed filing. Detailed filing data is available for this year.$8.34$3.23$5.11$5.08$5.09$0.00
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.74$1.47$5.27$3.84$3.15$0.69
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.29$1.91$4.38$3.66$3.05$0.60
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.71$2.11$3.60$4.06$4.49$0.43
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.48$1.30$4.18$4.15$3.59$0.56
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.88$1.52$3.36$3.28$3.10$0.18
2015Detailed filing. Detailed filing data is available for this year.$5.05$1.98$3.07$2.99$2.86$0.13
2014Detailed filing. Detailed filing data is available for this year.$3.82$0.88$2.94$3.03$1.78$1.26
2013Detailed filing. Detailed filing data is available for this year.$2.34$0.65$1.69$1.40$1.42$0.01
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.90$0.19$1.70$0.69
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.55$0.38$1.17$0.69
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.63$0.19$0.44$0.49